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Has anyone tried Reflexology as a treatment

Wed Nov 30, 2016 8:54 pm by Roselilyflower

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an …

Comments: 3

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

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I just found this site tonight

Mon Feb 20, 2017 8:35 am by surprisemom44

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had …

Comments: 1

Pain following a vaginal cyst procedure a year ago.

Sat Feb 11, 2017 11:22 pm by crackleberry

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it …

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New here- please help

Mon Dec 12, 2016 1:49 am by 1989SBSC

I've been reading these forums for the past year or more and have never posted anything online like this before. I'm overwhelmed and don't even know where to start. Up until a couple years ago, I never had any urinary tract/vaginal problems. Sex (intercourse) always felt good, and I didn't notice any burning feelings in my vagina or urethra. Then, I lived abroad for a year in a hot, tropical …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 0

vulvodynia

Tue Aug 05, 2014 8:44 am by owlcity

I've bee recently diagnosted with vulvodynia. I had my first UTI and that was probably the trigger for me. I started using estrace topical cream and at first it didn't help at all. After few weeks i actually had one month with no pain or burning. I almost forgot that i have a "problem". The lastfew days the burning is back on and off, maybe not as bad as before. I don't know if i should …

Comments: 8

Provoked Vs. Unprovoked Vulvodynia?

Mon Dec 19, 2016 12:03 pm by Sarah08

Hello,

I am just wondering what the difference is between provoked and unprovoked vulvodynia?

I had sex with someone a few months ago and the pain/stinging has been constant ever since. Multiple visits to the GP ruled out any infections and a specialist has since suggested vulvodynia. I'm wondering whether, since it was the sex that brought it on, it would be considered provoked, or since it …

Comments: 2

Newlywed and newlydiagnosed- help!

Sun Dec 18, 2016 9:06 am by hollync

Hello, I am 24 and had pain-free sex with my new husband for 3 years before starting to have this pain about 2 years ago. It started after a course of antibiotics, and although I have been on hormonal birth control for over 10 years, I changed to a similar, but different birth control around that time as well. It generally stings and burns, mostly after intercourse.

I finally saw someone about …

Comments: 1


Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?

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Re: Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?

Post  emalita on Tue Sep 20, 2016 3:19 pm

Hi LT,

I wish I could confirm the glowing reviews from his website and other sites, but unfortunately I can't.

Like you, I thought it all sounded too good to be true, and I contacted three of his previous patients who all said he saved their lives. However, I speak daily to a post menopausal woman who I found on a support site where she mentioned she was seeing Dr. Fowler, so my following honest opinion of him is shared by her also (she actually receives worse support from him than I do).

Firstly, her and I both share your concerns with his "Hypocontactant Regimen". The rinse is extremely irritating for my friend (couldn't bring myself to try it), and using soap on the vulva daily is extremely irritating and drying. My friend and I both stopped shaving down there, as he recommended, because it caused too much irritation. I do, however, agree with not washing your hair in the shower and changing to a TRULY hypoallergenic laundry detergent (search here: http://www.ewg.org/guides/subcategories/49-LaundryDetergentHE).

Secondly, his treatments consist of antibiotics, antifungals, bioidentical hormones, and steroids. All were extremely irritating for me except the estrogen vaginal tablet that he put me on, but my friend reacts poorly to her estrogen as well. Although Dr. Fowler is willing to substitute the hormones in a different base (crisco, k-100, etc.), any other irritation you "complain" of will be met with a repetitive "consider it therapeutic discomfort" and "give it more time". Once you are done with the several month course of antibiotics, antifungals, and/or steroids, his ONLY lasting treatment is bioidentical hormones. That's it! If you aren't seeing results, he simply increases your doses and tells you to give it more time. My last visit with him he told me he didn't want to see me again for six months (that's a long time for a woman with vulvovaginal pain). He also seems to over diagnose lichen sclerosus. He told both my friend and me that we had lichen sclerosus, but we've both since had specialists confirm that we don't (my friend had a biopsy to confirm).

Lastly, he has horrible customer service. It takes him days or weeks to respond to your calls, if he responds at all. My friend and I both have had several calls/emails unreturned. When you're in the office with him and ask him a question, he won't answer but instead will refer you to his packet of information he handed you (regardless if it answers your questions or not). He is in no way sympathetic to your pain. When I sent in my paperwork and payment for my four month follow up, I didn't hear from anyone for several weeks, and he ignored my call inquiring about scheduling my appointment. One day I got my test kit in the mail, I sent it back in, and days later I randomly get a call from his assistant who hands the phone to him for my 5 min unscheduled appointment (I was at work at this time and didn't have my list of questions near me - they didn't care).

So, unfortunately I can't recommend him even though I think the idea that vulvodynia can stem from unbalanced flora is absolutely worthy of further education to every gynecologist. It's just unfortunate that Dr. Fowler seems to be the one driving that belief. I don't think I will return to him again, and if I want to continue using bioidentical estrogen, I will find a specialist in my area for that.

Another thing I found odd and a little suspicious was that my four month follow up test results had some items come back identical to what I tested for four months prior. Even if I didn't improve any, having IDENTICAL results seems very improbable.

However, his treatments may work well for you! So I'm not saying just because I don't believe in his ability to heal me anymore that he couldn't help you heal. I'm happy to answer any questions you may have. I'm an open book Very Happy

emalita

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Re: Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?

Post  LT on Tue Sep 20, 2016 6:58 pm

Thank you so much for your honesty.

LT

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Re: Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?

Post  emalita on Wed Feb 15, 2017 9:30 pm

Well, I just wasted $400 to have a “phone consult” with Dr. Fowler, which equals him calling you randomly during the day without an appointment asking if you can chat for 5 minutes. The only reason I wanted to have a consult again was to get a refill on my estrogen since I think it may be helping internal dryness (THAT'S IT), but he would only give me a 3 month supply. He also is increasing my dose from Estradiol 250mcg/Estrone 150mcg to 500/300, which seems intense. I even told him that I thought my INTERNAL discomfort was 80% better (since he demanded a percentage and would not let me describe the improvement).

I’m done with him. Some of my results are a bit better, some are worse, and some have stayed the same. I think his theories are BS in most cases from what I've also heard from other women seeing him. I can easily find another provider who can prescribe vaginal bioidentical estrogen, but I was just hoping it would be easier getting a refill from him, which wasn’t the case.

Anyways, below are all of my results so far...

Below are my test result from March 2016:

Squamous Cell Maturation (nl = fully maturated): >50% Intermediately Maturated
# of Squamous Cells per Single KOVA Cell (nl = 20 – 24): 4 – 8
# of White Blood Cells per Single KOVA Cell (nl = 0 – 2): 51 – 75
Concentration of lactobacilli (nl = Q1 – 2): Low, separated by 5 – 6 segment lengths
Excess Non-Lactobacilli Bacteria (nl = none present): Hazy background
Presence of Yeast (nl): nl – no yeast elements identified

Below are my test results from June 2016:

Squamous Cell Maturation (nl = fully maturated): >50% Intermediately Maturated
# of Squamous Cells per Single KOVA Cell (nl = 20 – 24): 4 – 8
# of White Blood Cells per Single KOVA Cell (nl = 0 – 2): 0
Concentration of lactobacilli (nl = Q1 – 2): Low, separated by 5 – 6 segment lengths
Excess Non-Lactobacilli Bacteria (nl = none present): Speckled
Presence of Yeast (nl): nl – no yeast elements identified

Below are my test results from February 2017 (changes in red):

Squamous Cell Maturation (nl = fully maturated): 50/50 Intermediately and Fully Maturated
# of Squamous Cells per Single KOVA Cell (nl = 20 – 24): 12-16
# of White Blood Cells per Single KOVA Cell (nl = 0 – 2): 2-12
Concentration of lactobacilli (nl = Q1 – 2): Low, separated by 5 – 6 segment lengths
Excess Non-Lactobacilli Bacteria (nl = none present): Speckled
Presence of Yeast (nl): nl – no yeast elements identified

emalita

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Re: Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?

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