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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


new member re: Pelvic Floor Dysfunction (PFD)

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new member re: Pelvic Floor Dysfunction (PFD)

Post  clencher35 on Tue Mar 29, 2016 7:00 pm

I am new here and this is my first post. For those of you in the PFD school, I might have had a breakthrough of late that I want to share. A while back I bought a Tens Unit the idea being that I might shock my pelvic floor into some sort of 'reset', but I never could figure out where to put the pads to access it. While I was studying about that I came across two articles that, though not referencing this syndrome, really rang bells for me, perhaps they will for some of you too.
1. Nicole Crawford's piece, Stop Doing Kegels, where she says kegels only pull the sacrum further inward, promoting more PF gripping, squats being the antidote.
2. Brooke Thomas's, To Clench or Not to Clench (Your Butt), where she talks about the 'Perma-Clenching'.

One thing I can see is, this is going to be a hard habit to break. If I'm not actually trying to walk a mile with my hips centered over my ankles or doing the squats, I catch myself clenching. It's almost obsessive compulsive, and perhaps that accounts for whatever success there is with anti-depressants. It's like I have to re-groove my whole aspect or stance. Maybe the pudendal nerve isn't so much entrapped as 'squeezed'. So if you're positive with the q-tip, and have the mind blowing ripping sensation with any attempt at intimacy, the exercises might be worth trying, as it doesn't cost anything and you don't have to see anybody. I confess due to personal circumstance, I haven't given it a 'test drive' so to speak. But it seems better and definitely not worse. Good Luck Ladies, and thanks for the forum.

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Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  Sebby (Admin) on Tue Mar 29, 2016 7:34 pm

Thank you, this is very helpful. I'm finally going to bite the bullet and get intimay back into my marriage! The ripping sensation you spoke about really resonates with me. I too clench and had some physio sessions privately but it's too expensive to keep up with.
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Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  yoginimom on Tue Mar 29, 2016 10:06 pm

Thank you for these. I googled both the articles and found them very helpful. I love Katy Bowman's work. Turns out i am a major butt clencher. Smile

One of her youtube videos also really spoke to me when she said to "get off your sacrum" while sitting. I always sit on my sacrum!  So just noticing that i do that, and getting more mindful of it (so i can change how i sit) has helped things "down there" a lot.

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Re: new member re: Pelvic Floor Dysfunction (PFD)

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