Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


new member re: Pelvic Floor Dysfunction (PFD)

View previous topic View next topic Go down

new member re: Pelvic Floor Dysfunction (PFD)

Post  clencher35 on Tue Mar 29, 2016 7:00 pm

I am new here and this is my first post. For those of you in the PFD school, I might have had a breakthrough of late that I want to share. A while back I bought a Tens Unit the idea being that I might shock my pelvic floor into some sort of 'reset', but I never could figure out where to put the pads to access it. While I was studying about that I came across two articles that, though not referencing this syndrome, really rang bells for me, perhaps they will for some of you too.
1. Nicole Crawford's piece, Stop Doing Kegels, where she says kegels only pull the sacrum further inward, promoting more PF gripping, squats being the antidote.
2. Brooke Thomas's, To Clench or Not to Clench (Your Butt), where she talks about the 'Perma-Clenching'.

One thing I can see is, this is going to be a hard habit to break. If I'm not actually trying to walk a mile with my hips centered over my ankles or doing the squats, I catch myself clenching. It's almost obsessive compulsive, and perhaps that accounts for whatever success there is with anti-depressants. It's like I have to re-groove my whole aspect or stance. Maybe the pudendal nerve isn't so much entrapped as 'squeezed'. So if you're positive with the q-tip, and have the mind blowing ripping sensation with any attempt at intimacy, the exercises might be worth trying, as it doesn't cost anything and you don't have to see anybody. I confess due to personal circumstance, I haven't given it a 'test drive' so to speak. But it seems better and definitely not worse. Good Luck Ladies, and thanks for the forum.

clencher35

Posts : 1
Join date : 2016-03-29

View user profile

Back to top Go down

Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  Sebby (Admin) on Tue Mar 29, 2016 7:34 pm

Thank you, this is very helpful. I'm finally going to bite the bullet and get intimay back into my marriage! The ripping sensation you spoke about really resonates with me. I too clench and had some physio sessions privately but it's too expensive to keep up with.
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  yoginimom on Tue Mar 29, 2016 10:06 pm

Thank you for these. I googled both the articles and found them very helpful. I love Katy Bowman's work. Turns out i am a major butt clencher. Smile

One of her youtube videos also really spoke to me when she said to "get off your sacrum" while sitting. I always sit on my sacrum!  So just noticing that i do that, and getting more mindful of it (so i can change how i sit) has helped things "down there" a lot.

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum