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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


new member re: Pelvic Floor Dysfunction (PFD)

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new member re: Pelvic Floor Dysfunction (PFD)

Post  clencher35 on Tue Mar 29, 2016 7:00 pm

I am new here and this is my first post. For those of you in the PFD school, I might have had a breakthrough of late that I want to share. A while back I bought a Tens Unit the idea being that I might shock my pelvic floor into some sort of 'reset', but I never could figure out where to put the pads to access it. While I was studying about that I came across two articles that, though not referencing this syndrome, really rang bells for me, perhaps they will for some of you too.
1. Nicole Crawford's piece, Stop Doing Kegels, where she says kegels only pull the sacrum further inward, promoting more PF gripping, squats being the antidote.
2. Brooke Thomas's, To Clench or Not to Clench (Your Butt), where she talks about the 'Perma-Clenching'.

One thing I can see is, this is going to be a hard habit to break. If I'm not actually trying to walk a mile with my hips centered over my ankles or doing the squats, I catch myself clenching. It's almost obsessive compulsive, and perhaps that accounts for whatever success there is with anti-depressants. It's like I have to re-groove my whole aspect or stance. Maybe the pudendal nerve isn't so much entrapped as 'squeezed'. So if you're positive with the q-tip, and have the mind blowing ripping sensation with any attempt at intimacy, the exercises might be worth trying, as it doesn't cost anything and you don't have to see anybody. I confess due to personal circumstance, I haven't given it a 'test drive' so to speak. But it seems better and definitely not worse. Good Luck Ladies, and thanks for the forum.

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Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  Sebby (Admin) on Tue Mar 29, 2016 7:34 pm

Thank you, this is very helpful. I'm finally going to bite the bullet and get intimay back into my marriage! The ripping sensation you spoke about really resonates with me. I too clench and had some physio sessions privately but it's too expensive to keep up with.
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Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  yoginimom on Tue Mar 29, 2016 10:06 pm

Thank you for these. I googled both the articles and found them very helpful. I love Katy Bowman's work. Turns out i am a major butt clencher. Smile

One of her youtube videos also really spoke to me when she said to "get off your sacrum" while sitting. I always sit on my sacrum!  So just noticing that i do that, and getting more mindful of it (so i can change how i sit) has helped things "down there" a lot.

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Re: new member re: Pelvic Floor Dysfunction (PFD)

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