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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
new member re: Pelvic Floor Dysfunction (PFD)
3 posters
Page 1 of 1
new member re: Pelvic Floor Dysfunction (PFD)
I am new here and this is my first post. For those of you in the PFD school, I might have had a breakthrough of late that I want to share. A while back I bought a Tens Unit the idea being that I might shock my pelvic floor into some sort of 'reset', but I never could figure out where to put the pads to access it. While I was studying about that I came across two articles that, though not referencing this syndrome, really rang bells for me, perhaps they will for some of you too.
1. Nicole Crawford's piece, Stop Doing Kegels, where she says kegels only pull the sacrum further inward, promoting more PF gripping, squats being the antidote.
2. Brooke Thomas's, To Clench or Not to Clench (Your Butt), where she talks about the 'Perma-Clenching'.
One thing I can see is, this is going to be a hard habit to break. If I'm not actually trying to walk a mile with my hips centered over my ankles or doing the squats, I catch myself clenching. It's almost obsessive compulsive, and perhaps that accounts for whatever success there is with anti-depressants. It's like I have to re-groove my whole aspect or stance. Maybe the pudendal nerve isn't so much entrapped as 'squeezed'. So if you're positive with the q-tip, and have the mind blowing ripping sensation with any attempt at intimacy, the exercises might be worth trying, as it doesn't cost anything and you don't have to see anybody. I confess due to personal circumstance, I haven't given it a 'test drive' so to speak. But it seems better and definitely not worse. Good Luck Ladies, and thanks for the forum.
1. Nicole Crawford's piece, Stop Doing Kegels, where she says kegels only pull the sacrum further inward, promoting more PF gripping, squats being the antidote.
2. Brooke Thomas's, To Clench or Not to Clench (Your Butt), where she talks about the 'Perma-Clenching'.
One thing I can see is, this is going to be a hard habit to break. If I'm not actually trying to walk a mile with my hips centered over my ankles or doing the squats, I catch myself clenching. It's almost obsessive compulsive, and perhaps that accounts for whatever success there is with anti-depressants. It's like I have to re-groove my whole aspect or stance. Maybe the pudendal nerve isn't so much entrapped as 'squeezed'. So if you're positive with the q-tip, and have the mind blowing ripping sensation with any attempt at intimacy, the exercises might be worth trying, as it doesn't cost anything and you don't have to see anybody. I confess due to personal circumstance, I haven't given it a 'test drive' so to speak. But it seems better and definitely not worse. Good Luck Ladies, and thanks for the forum.
clencher35- Posts : 2
Join date : 2016-03-29
Re: new member re: Pelvic Floor Dysfunction (PFD)
Thank you, this is very helpful. I'm finally going to bite the bullet and get intimay back into my marriage! The ripping sensation you spoke about really resonates with me. I too clench and had some physio sessions privately but it's too expensive to keep up with.
Re: new member re: Pelvic Floor Dysfunction (PFD)
Thank you for these. I googled both the articles and found them very helpful. I love Katy Bowman's work. Turns out i am a major butt clencher.
One of her youtube videos also really spoke to me when she said to "get off your sacrum" while sitting. I always sit on my sacrum! So just noticing that i do that, and getting more mindful of it (so i can change how i sit) has helped things "down there" a lot.
One of her youtube videos also really spoke to me when she said to "get off your sacrum" while sitting. I always sit on my sacrum! So just noticing that i do that, and getting more mindful of it (so i can change how i sit) has helped things "down there" a lot.
yoginimom- Posts : 60
Join date : 2014-08-08
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer