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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


new member re: Pelvic Floor Dysfunction (PFD)

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new member re: Pelvic Floor Dysfunction (PFD)

Post  clencher35 on Tue Mar 29, 2016 7:00 pm

I am new here and this is my first post. For those of you in the PFD school, I might have had a breakthrough of late that I want to share. A while back I bought a Tens Unit the idea being that I might shock my pelvic floor into some sort of 'reset', but I never could figure out where to put the pads to access it. While I was studying about that I came across two articles that, though not referencing this syndrome, really rang bells for me, perhaps they will for some of you too.
1. Nicole Crawford's piece, Stop Doing Kegels, where she says kegels only pull the sacrum further inward, promoting more PF gripping, squats being the antidote.
2. Brooke Thomas's, To Clench or Not to Clench (Your Butt), where she talks about the 'Perma-Clenching'.

One thing I can see is, this is going to be a hard habit to break. If I'm not actually trying to walk a mile with my hips centered over my ankles or doing the squats, I catch myself clenching. It's almost obsessive compulsive, and perhaps that accounts for whatever success there is with anti-depressants. It's like I have to re-groove my whole aspect or stance. Maybe the pudendal nerve isn't so much entrapped as 'squeezed'. So if you're positive with the q-tip, and have the mind blowing ripping sensation with any attempt at intimacy, the exercises might be worth trying, as it doesn't cost anything and you don't have to see anybody. I confess due to personal circumstance, I haven't given it a 'test drive' so to speak. But it seems better and definitely not worse. Good Luck Ladies, and thanks for the forum.

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Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  Sebby (Admin) on Tue Mar 29, 2016 7:34 pm

Thank you, this is very helpful. I'm finally going to bite the bullet and get intimay back into my marriage! The ripping sensation you spoke about really resonates with me. I too clench and had some physio sessions privately but it's too expensive to keep up with.
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Re: new member re: Pelvic Floor Dysfunction (PFD)

Post  yoginimom on Tue Mar 29, 2016 10:06 pm

Thank you for these. I googled both the articles and found them very helpful. I love Katy Bowman's work. Turns out i am a major butt clencher. Smile

One of her youtube videos also really spoke to me when she said to "get off your sacrum" while sitting. I always sit on my sacrum!  So just noticing that i do that, and getting more mindful of it (so i can change how i sit) has helped things "down there" a lot.

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Re: new member re: Pelvic Floor Dysfunction (PFD)

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