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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New member introduction :)

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New member introduction :)

Post  gingercat2426 on Wed Apr 20, 2016 12:56 pm

So... I guess everyone has their story but at the end of the day they all have something in common.
For me, it started in October 2012. I had been with my partner for about 18 months and all was going well I had just come back from a month long trip and I was so excited to see him again. But upon penetration it hurt, it had never hurt like that before.

For a while I thought maybe it was the medication I'd had to take for the trip. I had to keep taking it for a month after I got back so, I put up with it. I kept sleeping with my boyfriend despite the pain thinking it would go away once the medication was out of my system. Two months later and it wasn't better, if anything it was worse. If the sex itself was tolerable afterwards it would sting like nothing else - I would spend half an hour hunched over in the shower crying with the pain.

Around March of the next year I realised that it wasn't going away by itself. I went to my GP who diagnosed thrush. I was skeptical (having had thrush before) but if it was a simple as a course of cream then it was worth trying. Needless to say it didn't work so I went back to my doctor. Up to this time I had been using Nuvaring as contraception so my doctor suggested I stop using it - maybe it was causing some kind of irritation?

A month after stopping nuvaring I waited a little while longer and it didn't get better. The pain was less intense, I would be in pain during sex but I could grit my teeth and bear it. I would be sore the next day but I could live with it. Until around last Christmas when I decided that I was tired of the pain. It wasn't as bad as when it started but smaller things were hurting me now, a finger or a small dildo - any kind of penetration was painful from the beginning.

So now here I am, I've told my partner that I don't want to have sex anymore - I don't want to do things that hurt me and I don't think I should have to. I'm worried that he might leave me because of it but I just can't hurt myself anymore. I'm not really sure where to go from here - my regulur doctors haven't been any help. I know I could find a someone else but I'm a student so I don't have a lot of disposable income to afford specialist.

So that's me.

gingercat2426

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Re: New member introduction :)

Post  emalita on Wed Apr 20, 2016 2:12 pm

Thank you for sharing your story. You're right, although our stories are all different, there are always some similarities.

I'm so sorry that you're in pain, and even though it is hard to refuse intercourse, I'm happy to hear that you are taking care of yourself by avoiding pain. People say that there are other non-penetrative forms of intimacy, but I really struggle with that because my pain is constant (unprovoked). I hope you are able to find comfortable ways of being intimate, and I hope your partner is understanding.

You mentioned you were on a medication for a trip when this all started. What type of medication was it? An antibiotic?

emalita

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Re: New member introduction :)

Post  PainBlogger on Wed Apr 20, 2016 3:05 pm

You may find these books helpful:

https://www.amazon.co.uk/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561/ref=sr_1_1?ie=UTF8&qid=1461164343&sr=8-1&keywords=heal+pelvic+pain

http://www.amazon.co.uk/Sex-Without-Pain-Self-Treatment-Deserve-ebook/dp/B00K7IH67U?ie=UTF8&keywords=painful%20sex&qid=1461164499&ref_=sr_1_7&sr=8-7

Those are UK Amazon links but should be available on the US site or whatever site is for your country.

If you have access to a pelvic health (women's health) physiotherapist/PT then I'd recommend trying to get an appointment with one. The exercises my physio has given me have been really helpful in getting me back towards a point where I hope to be able to resume doing things I haven't been able to because of the pain. It's important not to push past the pain because that can cause tight pelvic floor muscles which then make the pain even worse. I'm on medication for nerve pain (duloxetine) which is also really helping, but it's the exercises (stretches and dilator exercises) that are really helping my muscles relax again.

PainBlogger

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Re: New member introduction :)

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