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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New member introduction :)

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New member introduction :)

Post  gingercat2426 on Wed Apr 20, 2016 12:56 pm

So... I guess everyone has their story but at the end of the day they all have something in common.
For me, it started in October 2012. I had been with my partner for about 18 months and all was going well I had just come back from a month long trip and I was so excited to see him again. But upon penetration it hurt, it had never hurt like that before.

For a while I thought maybe it was the medication I'd had to take for the trip. I had to keep taking it for a month after I got back so, I put up with it. I kept sleeping with my boyfriend despite the pain thinking it would go away once the medication was out of my system. Two months later and it wasn't better, if anything it was worse. If the sex itself was tolerable afterwards it would sting like nothing else - I would spend half an hour hunched over in the shower crying with the pain.

Around March of the next year I realised that it wasn't going away by itself. I went to my GP who diagnosed thrush. I was skeptical (having had thrush before) but if it was a simple as a course of cream then it was worth trying. Needless to say it didn't work so I went back to my doctor. Up to this time I had been using Nuvaring as contraception so my doctor suggested I stop using it - maybe it was causing some kind of irritation?

A month after stopping nuvaring I waited a little while longer and it didn't get better. The pain was less intense, I would be in pain during sex but I could grit my teeth and bear it. I would be sore the next day but I could live with it. Until around last Christmas when I decided that I was tired of the pain. It wasn't as bad as when it started but smaller things were hurting me now, a finger or a small dildo - any kind of penetration was painful from the beginning.

So now here I am, I've told my partner that I don't want to have sex anymore - I don't want to do things that hurt me and I don't think I should have to. I'm worried that he might leave me because of it but I just can't hurt myself anymore. I'm not really sure where to go from here - my regulur doctors haven't been any help. I know I could find a someone else but I'm a student so I don't have a lot of disposable income to afford specialist.

So that's me.

gingercat2426

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Re: New member introduction :)

Post  emalita on Wed Apr 20, 2016 2:12 pm

Thank you for sharing your story. You're right, although our stories are all different, there are always some similarities.

I'm so sorry that you're in pain, and even though it is hard to refuse intercourse, I'm happy to hear that you are taking care of yourself by avoiding pain. People say that there are other non-penetrative forms of intimacy, but I really struggle with that because my pain is constant (unprovoked). I hope you are able to find comfortable ways of being intimate, and I hope your partner is understanding.

You mentioned you were on a medication for a trip when this all started. What type of medication was it? An antibiotic?

emalita

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Re: New member introduction :)

Post  PainBlogger on Wed Apr 20, 2016 3:05 pm

You may find these books helpful:

https://www.amazon.co.uk/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561/ref=sr_1_1?ie=UTF8&qid=1461164343&sr=8-1&keywords=heal+pelvic+pain

http://www.amazon.co.uk/Sex-Without-Pain-Self-Treatment-Deserve-ebook/dp/B00K7IH67U?ie=UTF8&keywords=painful%20sex&qid=1461164499&ref_=sr_1_7&sr=8-7

Those are UK Amazon links but should be available on the US site or whatever site is for your country.

If you have access to a pelvic health (women's health) physiotherapist/PT then I'd recommend trying to get an appointment with one. The exercises my physio has given me have been really helpful in getting me back towards a point where I hope to be able to resume doing things I haven't been able to because of the pain. It's important not to push past the pain because that can cause tight pelvic floor muscles which then make the pain even worse. I'm on medication for nerve pain (duloxetine) which is also really helping, but it's the exercises (stretches and dilator exercises) that are really helping my muscles relax again.

PainBlogger

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Re: New member introduction :)

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