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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New member introduction :)

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New member introduction :)

Post  gingercat2426 on Wed Apr 20, 2016 12:56 pm

So... I guess everyone has their story but at the end of the day they all have something in common.
For me, it started in October 2012. I had been with my partner for about 18 months and all was going well I had just come back from a month long trip and I was so excited to see him again. But upon penetration it hurt, it had never hurt like that before.

For a while I thought maybe it was the medication I'd had to take for the trip. I had to keep taking it for a month after I got back so, I put up with it. I kept sleeping with my boyfriend despite the pain thinking it would go away once the medication was out of my system. Two months later and it wasn't better, if anything it was worse. If the sex itself was tolerable afterwards it would sting like nothing else - I would spend half an hour hunched over in the shower crying with the pain.

Around March of the next year I realised that it wasn't going away by itself. I went to my GP who diagnosed thrush. I was skeptical (having had thrush before) but if it was a simple as a course of cream then it was worth trying. Needless to say it didn't work so I went back to my doctor. Up to this time I had been using Nuvaring as contraception so my doctor suggested I stop using it - maybe it was causing some kind of irritation?

A month after stopping nuvaring I waited a little while longer and it didn't get better. The pain was less intense, I would be in pain during sex but I could grit my teeth and bear it. I would be sore the next day but I could live with it. Until around last Christmas when I decided that I was tired of the pain. It wasn't as bad as when it started but smaller things were hurting me now, a finger or a small dildo - any kind of penetration was painful from the beginning.

So now here I am, I've told my partner that I don't want to have sex anymore - I don't want to do things that hurt me and I don't think I should have to. I'm worried that he might leave me because of it but I just can't hurt myself anymore. I'm not really sure where to go from here - my regulur doctors haven't been any help. I know I could find a someone else but I'm a student so I don't have a lot of disposable income to afford specialist.

So that's me.

gingercat2426

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Re: New member introduction :)

Post  emalita on Wed Apr 20, 2016 2:12 pm

Thank you for sharing your story. You're right, although our stories are all different, there are always some similarities.

I'm so sorry that you're in pain, and even though it is hard to refuse intercourse, I'm happy to hear that you are taking care of yourself by avoiding pain. People say that there are other non-penetrative forms of intimacy, but I really struggle with that because my pain is constant (unprovoked). I hope you are able to find comfortable ways of being intimate, and I hope your partner is understanding.

You mentioned you were on a medication for a trip when this all started. What type of medication was it? An antibiotic?

emalita

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Re: New member introduction :)

Post  PainBlogger on Wed Apr 20, 2016 3:05 pm

You may find these books helpful:

https://www.amazon.co.uk/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561/ref=sr_1_1?ie=UTF8&qid=1461164343&sr=8-1&keywords=heal+pelvic+pain

http://www.amazon.co.uk/Sex-Without-Pain-Self-Treatment-Deserve-ebook/dp/B00K7IH67U?ie=UTF8&keywords=painful%20sex&qid=1461164499&ref_=sr_1_7&sr=8-7

Those are UK Amazon links but should be available on the US site or whatever site is for your country.

If you have access to a pelvic health (women's health) physiotherapist/PT then I'd recommend trying to get an appointment with one. The exercises my physio has given me have been really helpful in getting me back towards a point where I hope to be able to resume doing things I haven't been able to because of the pain. It's important not to push past the pain because that can cause tight pelvic floor muscles which then make the pain even worse. I'm on medication for nerve pain (duloxetine) which is also really helping, but it's the exercises (stretches and dilator exercises) that are really helping my muscles relax again.

PainBlogger

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Re: New member introduction :)

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