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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

New member introduction :)

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New member introduction :)

Post  gingercat2426 on Wed Apr 20, 2016 12:56 pm

So... I guess everyone has their story but at the end of the day they all have something in common.
For me, it started in October 2012. I had been with my partner for about 18 months and all was going well I had just come back from a month long trip and I was so excited to see him again. But upon penetration it hurt, it had never hurt like that before.

For a while I thought maybe it was the medication I'd had to take for the trip. I had to keep taking it for a month after I got back so, I put up with it. I kept sleeping with my boyfriend despite the pain thinking it would go away once the medication was out of my system. Two months later and it wasn't better, if anything it was worse. If the sex itself was tolerable afterwards it would sting like nothing else - I would spend half an hour hunched over in the shower crying with the pain.

Around March of the next year I realised that it wasn't going away by itself. I went to my GP who diagnosed thrush. I was skeptical (having had thrush before) but if it was a simple as a course of cream then it was worth trying. Needless to say it didn't work so I went back to my doctor. Up to this time I had been using Nuvaring as contraception so my doctor suggested I stop using it - maybe it was causing some kind of irritation?

A month after stopping nuvaring I waited a little while longer and it didn't get better. The pain was less intense, I would be in pain during sex but I could grit my teeth and bear it. I would be sore the next day but I could live with it. Until around last Christmas when I decided that I was tired of the pain. It wasn't as bad as when it started but smaller things were hurting me now, a finger or a small dildo - any kind of penetration was painful from the beginning.

So now here I am, I've told my partner that I don't want to have sex anymore - I don't want to do things that hurt me and I don't think I should have to. I'm worried that he might leave me because of it but I just can't hurt myself anymore. I'm not really sure where to go from here - my regulur doctors haven't been any help. I know I could find a someone else but I'm a student so I don't have a lot of disposable income to afford specialist.

So that's me.


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Re: New member introduction :)

Post  emalita on Wed Apr 20, 2016 2:12 pm

Thank you for sharing your story. You're right, although our stories are all different, there are always some similarities.

I'm so sorry that you're in pain, and even though it is hard to refuse intercourse, I'm happy to hear that you are taking care of yourself by avoiding pain. People say that there are other non-penetrative forms of intimacy, but I really struggle with that because my pain is constant (unprovoked). I hope you are able to find comfortable ways of being intimate, and I hope your partner is understanding.

You mentioned you were on a medication for a trip when this all started. What type of medication was it? An antibiotic?


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Location : USA

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Re: New member introduction :)

Post  PainBlogger on Wed Apr 20, 2016 3:05 pm

You may find these books helpful:



Those are UK Amazon links but should be available on the US site or whatever site is for your country.

If you have access to a pelvic health (women's health) physiotherapist/PT then I'd recommend trying to get an appointment with one. The exercises my physio has given me have been really helpful in getting me back towards a point where I hope to be able to resume doing things I haven't been able to because of the pain. It's important not to push past the pain because that can cause tight pelvic floor muscles which then make the pain even worse. I'm on medication for nerve pain (duloxetine) which is also really helping, but it's the exercises (stretches and dilator exercises) that are really helping my muscles relax again.


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