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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New member introduction :)

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New member introduction :)

Post  gingercat2426 on Wed Apr 20, 2016 12:56 pm

So... I guess everyone has their story but at the end of the day they all have something in common.
For me, it started in October 2012. I had been with my partner for about 18 months and all was going well I had just come back from a month long trip and I was so excited to see him again. But upon penetration it hurt, it had never hurt like that before.

For a while I thought maybe it was the medication I'd had to take for the trip. I had to keep taking it for a month after I got back so, I put up with it. I kept sleeping with my boyfriend despite the pain thinking it would go away once the medication was out of my system. Two months later and it wasn't better, if anything it was worse. If the sex itself was tolerable afterwards it would sting like nothing else - I would spend half an hour hunched over in the shower crying with the pain.

Around March of the next year I realised that it wasn't going away by itself. I went to my GP who diagnosed thrush. I was skeptical (having had thrush before) but if it was a simple as a course of cream then it was worth trying. Needless to say it didn't work so I went back to my doctor. Up to this time I had been using Nuvaring as contraception so my doctor suggested I stop using it - maybe it was causing some kind of irritation?

A month after stopping nuvaring I waited a little while longer and it didn't get better. The pain was less intense, I would be in pain during sex but I could grit my teeth and bear it. I would be sore the next day but I could live with it. Until around last Christmas when I decided that I was tired of the pain. It wasn't as bad as when it started but smaller things were hurting me now, a finger or a small dildo - any kind of penetration was painful from the beginning.

So now here I am, I've told my partner that I don't want to have sex anymore - I don't want to do things that hurt me and I don't think I should have to. I'm worried that he might leave me because of it but I just can't hurt myself anymore. I'm not really sure where to go from here - my regulur doctors haven't been any help. I know I could find a someone else but I'm a student so I don't have a lot of disposable income to afford specialist.

So that's me.

gingercat2426

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Re: New member introduction :)

Post  emalita on Wed Apr 20, 2016 2:12 pm

Thank you for sharing your story. You're right, although our stories are all different, there are always some similarities.

I'm so sorry that you're in pain, and even though it is hard to refuse intercourse, I'm happy to hear that you are taking care of yourself by avoiding pain. People say that there are other non-penetrative forms of intimacy, but I really struggle with that because my pain is constant (unprovoked). I hope you are able to find comfortable ways of being intimate, and I hope your partner is understanding.

You mentioned you were on a medication for a trip when this all started. What type of medication was it? An antibiotic?

emalita

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Re: New member introduction :)

Post  PainBlogger on Wed Apr 20, 2016 3:05 pm

You may find these books helpful:

https://www.amazon.co.uk/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561/ref=sr_1_1?ie=UTF8&qid=1461164343&sr=8-1&keywords=heal+pelvic+pain

http://www.amazon.co.uk/Sex-Without-Pain-Self-Treatment-Deserve-ebook/dp/B00K7IH67U?ie=UTF8&keywords=painful%20sex&qid=1461164499&ref_=sr_1_7&sr=8-7

Those are UK Amazon links but should be available on the US site or whatever site is for your country.

If you have access to a pelvic health (women's health) physiotherapist/PT then I'd recommend trying to get an appointment with one. The exercises my physio has given me have been really helpful in getting me back towards a point where I hope to be able to resume doing things I haven't been able to because of the pain. It's important not to push past the pain because that can cause tight pelvic floor muscles which then make the pain even worse. I'm on medication for nerve pain (duloxetine) which is also really helping, but it's the exercises (stretches and dilator exercises) that are really helping my muscles relax again.

PainBlogger

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Re: New member introduction :)

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