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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New here- my story

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New here- my story

Post  MelisaD on Wed Apr 20, 2016 6:25 pm

Hi all,

I'm 28, from Australia. I've been diagnosed with crappy condition for 5 years but I suspect I've been suffering for much longer. I'm too sure what triggered it in the beginning. When I was initially diagnosed it was a continuous pain, anything and everything would aggravate it, but after taking endep it reliever it to a point where only provoked pain through sex or examination.
I've been with my husband the same amount of time, it's been such a struggle, since he was my first everything.
I decided to come off endep as I felt like it had plateaued and started gabapentin but that hasn't helped at all.
Ive seen my specialist and all they want me to do is do my physio.
Just feeling quite down at the moment. Has anyone become pain free completely from physio?
My husband wants me to get the operation, but I'm a bit scared it'll be botched and won't even help.

MelisaD

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Re: New here- my story

Post  emalita on Wed Apr 20, 2016 6:51 pm

Hi! I'm sorry to hear you've been suffering with this condition for so long. I'm not currently receiving physical therapy, but my specialist did tell me I would have to do home dialator therapy once my symptoms have calmed down a bit. So unfortunately I can't comment on PT myself, but I've heard it works wonders for some women. You can try searching this site to read through what women have said about it Smile

Surgery is an extremely serious decision that, obviously, shouldn't be taken lightly. If you do choose that route, I hope you do it for YOU, not anyone else. I hope you find relief!

emalita

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Re: New here- my story

Post  MelisaD on Wed Apr 20, 2016 6:54 pm

Thanks for the reply. I'll have a look through and see if anyone has had success with just dilators

MelisaD

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Re: New here- my story

Post  PainBlogger on Wed Apr 20, 2016 7:59 pm

I'm improving a lot with physio (including dilators) and taking duloxetine. It's not a quick fix, but well worth trying physio.

PainBlogger

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Re: New here- my story

Post  gingercat2426 on Thu Apr 21, 2016 12:39 am

Hi,

Can I ask where in Australia you are located? I'm in Melbourne and after visiting several unhelpful GPs/Family Planning I've decided to bite the bullet and try and get a referral to the Royal Women's. I know of a few physios that specialise in pelvic pain but I think they tend to focus more on vaginismus than vulvodynia - either way feel free to message me if you want to talk about anything.

gingercat2426

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Re: New here- my story

Post  MelisaD on Thu Apr 21, 2016 9:20 am

Hi I'm from Melbourne. I do get seen at the Royal women's. The physios and sexual counsellor are lovely there, though the vulvar derm doctors (consultant in particular) are idiots in my opinion.
Yes I agree they concentrate too much on vaginismus. Thank you so much for the offer.
I'm feeling a bit better seeing all the lovely comments

MelisaD

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Re: New here- my story

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