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Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New here- my story

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New here- my story

Post  MelisaD on Wed Apr 20, 2016 6:25 pm

Hi all,

I'm 28, from Australia. I've been diagnosed with crappy condition for 5 years but I suspect I've been suffering for much longer. I'm too sure what triggered it in the beginning. When I was initially diagnosed it was a continuous pain, anything and everything would aggravate it, but after taking endep it reliever it to a point where only provoked pain through sex or examination.
I've been with my husband the same amount of time, it's been such a struggle, since he was my first everything.
I decided to come off endep as I felt like it had plateaued and started gabapentin but that hasn't helped at all.
Ive seen my specialist and all they want me to do is do my physio.
Just feeling quite down at the moment. Has anyone become pain free completely from physio?
My husband wants me to get the operation, but I'm a bit scared it'll be botched and won't even help.

MelisaD

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Re: New here- my story

Post  emalita on Wed Apr 20, 2016 6:51 pm

Hi! I'm sorry to hear you've been suffering with this condition for so long. I'm not currently receiving physical therapy, but my specialist did tell me I would have to do home dialator therapy once my symptoms have calmed down a bit. So unfortunately I can't comment on PT myself, but I've heard it works wonders for some women. You can try searching this site to read through what women have said about it Smile

Surgery is an extremely serious decision that, obviously, shouldn't be taken lightly. If you do choose that route, I hope you do it for YOU, not anyone else. I hope you find relief!

emalita

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Re: New here- my story

Post  MelisaD on Wed Apr 20, 2016 6:54 pm

Thanks for the reply. I'll have a look through and see if anyone has had success with just dilators

MelisaD

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Re: New here- my story

Post  PainBlogger on Wed Apr 20, 2016 7:59 pm

I'm improving a lot with physio (including dilators) and taking duloxetine. It's not a quick fix, but well worth trying physio.

PainBlogger

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Re: New here- my story

Post  gingercat2426 on Thu Apr 21, 2016 12:39 am

Hi,

Can I ask where in Australia you are located? I'm in Melbourne and after visiting several unhelpful GPs/Family Planning I've decided to bite the bullet and try and get a referral to the Royal Women's. I know of a few physios that specialise in pelvic pain but I think they tend to focus more on vaginismus than vulvodynia - either way feel free to message me if you want to talk about anything.

gingercat2426

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Re: New here- my story

Post  MelisaD on Thu Apr 21, 2016 9:20 am

Hi I'm from Melbourne. I do get seen at the Royal women's. The physios and sexual counsellor are lovely there, though the vulvar derm doctors (consultant in particular) are idiots in my opinion.
Yes I agree they concentrate too much on vaginismus. Thank you so much for the offer.
I'm feeling a bit better seeing all the lovely comments

MelisaD

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Re: New here- my story

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