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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

NEW member - I want my life back

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NEW member - I want my life back

Post  LouR on Thu Apr 21, 2016 8:35 am

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on Saturday, but everything seems to be taking so long.  I've had a biopsy, swabs and many internal examinations.  I have been using Vagifem for a week now too, as I am perimenopausal and one doctor thought it may be Vaginal Atrophy.  A month on, I feel like I'm not getting anywhere.  I have read on this site, lots of different remedies that people have tried and have made a note of them, but I need to get properly diagnosed first.  Can anyone recommend a good gynaecologist/dermatologist in the UK that I should see?  I am really desperate to try and get some relief as in 5 weeks time my eldest son graduates from a scholarship year in the USA and at the moment I don't think I will be able to go.  Any replies would be very much appreciated, I want my life back. Thanks for taking the time to read my post.

Last edited by LouR on Thu Apr 21, 2016 8:38 am; edited 1 time in total (Reason for editing : wrong word)


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Re: NEW member - I want my life back

Post  emalita on Thu Apr 21, 2016 1:17 pm

I'm so sorry to hear that you're in pain. I hope you find relief and can attend your son's graduation.


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Re: NEW member - I want my life back

Post  PainBlogger on Thu Apr 21, 2016 5:56 pm

You could ask the gynae whether lidocaine gel at night for 6-8 weeks to break the pain cycle is an option to try. Though whether that is suitable in your case would depend on whether the skin is normal. I found seeing a pain management consultant much more helpful than a gynaecologist but my skin is normal and in my case it is nerve pain. If you're perimenopausal then I guess there's more chance it's skin-related and hopefully the gynaecologist will be able to help you. Good luck with it. Smile


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Re I want my life back

Post  let's kick this on Thu Apr 28, 2016 11:24 pm

Did you have to have a referral for pain management?

let's kick this

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Re: NEW member - I want my life back

Post  PainBlogger on Fri Apr 29, 2016 11:55 am

I paid for a private pain management consultant appointment because I didn't want to have to wait several months to get an NHS appointment. I didn't need a GP referral letter for the private hospital I went to, but some private hospitals do require a GP letter. I didn't get any better treatment by paying privately - I saw the same doctor I would have seen on the NHS - but it just cuts the waiting time down. The way I see it, I'm just using the money I would have used if I'd been able to go out and enjoy myself all the time this has been going on.


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Re: NEW member - I want my life back

Post  fairlight10 on Fri Apr 29, 2016 2:32 pm

I paid privately to get a diagnosis. Within 10 minutes the consultant told me I had vulvodynia/vulvar vestibulities after months of being told it was thrush or atrophic vaginitis. The lotions and potions for these ailments were making my pain worse. So I was shocked to be told it was something I had never heard of. That meant I could get the right treatment from my GP who happens to be a gynaecologist! I then saw the same consultant under the nhs a few weeks later. He said I would have to wait up to 18 weeks for a vulvoscopy histoscopy and the removal of a lost mirena coil. It was worth going private for that first consultation because I was going mental knowing my GP was wrong with her diagnosis.


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Re: NEW member - I want my life back

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