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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

NEW member - I want my life back

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NEW member - I want my life back

Post  LouR on Thu Apr 21, 2016 8:35 am

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on Saturday, but everything seems to be taking so long.  I've had a biopsy, swabs and many internal examinations.  I have been using Vagifem for a week now too, as I am perimenopausal and one doctor thought it may be Vaginal Atrophy.  A month on, I feel like I'm not getting anywhere.  I have read on this site, lots of different remedies that people have tried and have made a note of them, but I need to get properly diagnosed first.  Can anyone recommend a good gynaecologist/dermatologist in the UK that I should see?  I am really desperate to try and get some relief as in 5 weeks time my eldest son graduates from a scholarship year in the USA and at the moment I don't think I will be able to go.  Any replies would be very much appreciated, I want my life back. Thanks for taking the time to read my post.

Last edited by LouR on Thu Apr 21, 2016 8:38 am; edited 1 time in total (Reason for editing : wrong word)


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Re: NEW member - I want my life back

Post  emalita on Thu Apr 21, 2016 1:17 pm

I'm so sorry to hear that you're in pain. I hope you find relief and can attend your son's graduation.


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Re: NEW member - I want my life back

Post  PainBlogger on Thu Apr 21, 2016 5:56 pm

You could ask the gynae whether lidocaine gel at night for 6-8 weeks to break the pain cycle is an option to try. Though whether that is suitable in your case would depend on whether the skin is normal. I found seeing a pain management consultant much more helpful than a gynaecologist but my skin is normal and in my case it is nerve pain. If you're perimenopausal then I guess there's more chance it's skin-related and hopefully the gynaecologist will be able to help you. Good luck with it. Smile


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Re I want my life back

Post  let's kick this on Thu Apr 28, 2016 11:24 pm

Did you have to have a referral for pain management?

let's kick this

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Re: NEW member - I want my life back

Post  PainBlogger on Fri Apr 29, 2016 11:55 am

I paid for a private pain management consultant appointment because I didn't want to have to wait several months to get an NHS appointment. I didn't need a GP referral letter for the private hospital I went to, but some private hospitals do require a GP letter. I didn't get any better treatment by paying privately - I saw the same doctor I would have seen on the NHS - but it just cuts the waiting time down. The way I see it, I'm just using the money I would have used if I'd been able to go out and enjoy myself all the time this has been going on.


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Re: NEW member - I want my life back

Post  fairlight10 on Fri Apr 29, 2016 2:32 pm

I paid privately to get a diagnosis. Within 10 minutes the consultant told me I had vulvodynia/vulvar vestibulities after months of being told it was thrush or atrophic vaginitis. The lotions and potions for these ailments were making my pain worse. So I was shocked to be told it was something I had never heard of. That meant I could get the right treatment from my GP who happens to be a gynaecologist! I then saw the same consultant under the nhs a few weeks later. He said I would have to wait up to 18 weeks for a vulvoscopy histoscopy and the removal of a lost mirena coil. It was worth going private for that first consultation because I was going mental knowing my GP was wrong with her diagnosis.


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Re: NEW member - I want my life back

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