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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


NEW member - I want my life back

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NEW member - I want my life back

Post  LouR on Thu Apr 21, 2016 8:35 am

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on Saturday, but everything seems to be taking so long.  I've had a biopsy, swabs and many internal examinations.  I have been using Vagifem for a week now too, as I am perimenopausal and one doctor thought it may be Vaginal Atrophy.  A month on, I feel like I'm not getting anywhere.  I have read on this site, lots of different remedies that people have tried and have made a note of them, but I need to get properly diagnosed first.  Can anyone recommend a good gynaecologist/dermatologist in the UK that I should see?  I am really desperate to try and get some relief as in 5 weeks time my eldest son graduates from a scholarship year in the USA and at the moment I don't think I will be able to go.  Any replies would be very much appreciated, I want my life back. Thanks for taking the time to read my post.


Last edited by LouR on Thu Apr 21, 2016 8:38 am; edited 1 time in total (Reason for editing : wrong word)

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Re: NEW member - I want my life back

Post  emalita on Thu Apr 21, 2016 1:17 pm

I'm so sorry to hear that you're in pain. I hope you find relief and can attend your son's graduation.

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Re: NEW member - I want my life back

Post  PainBlogger on Thu Apr 21, 2016 5:56 pm

You could ask the gynae whether lidocaine gel at night for 6-8 weeks to break the pain cycle is an option to try. Though whether that is suitable in your case would depend on whether the skin is normal. I found seeing a pain management consultant much more helpful than a gynaecologist but my skin is normal and in my case it is nerve pain. If you're perimenopausal then I guess there's more chance it's skin-related and hopefully the gynaecologist will be able to help you. Good luck with it. Smile

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Re I want my life back

Post  let's kick this on Thu Apr 28, 2016 11:24 pm

Did you have to have a referral for pain management?

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Re: NEW member - I want my life back

Post  PainBlogger on Fri Apr 29, 2016 11:55 am

I paid for a private pain management consultant appointment because I didn't want to have to wait several months to get an NHS appointment. I didn't need a GP referral letter for the private hospital I went to, but some private hospitals do require a GP letter. I didn't get any better treatment by paying privately - I saw the same doctor I would have seen on the NHS - but it just cuts the waiting time down. The way I see it, I'm just using the money I would have used if I'd been able to go out and enjoy myself all the time this has been going on.

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Re: NEW member - I want my life back

Post  fairlight10 on Fri Apr 29, 2016 2:32 pm

I paid privately to get a diagnosis. Within 10 minutes the consultant told me I had vulvodynia/vulvar vestibulities after months of being told it was thrush or atrophic vaginitis. The lotions and potions for these ailments were making my pain worse. So I was shocked to be told it was something I had never heard of. That meant I could get the right treatment from my GP who happens to be a gynaecologist! I then saw the same consultant under the nhs a few weeks later. He said I would have to wait up to 18 weeks for a vulvoscopy histoscopy and the removal of a lost mirena coil. It was worth going private for that first consultation because I was going mental knowing my GP was wrong with her diagnosis.

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Re: NEW member - I want my life back

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