Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


NEW member - I want my life back

View previous topic View next topic Go down

NEW member - I want my life back

Post  LouR on Thu Apr 21, 2016 8:35 am

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on Saturday, but everything seems to be taking so long.  I've had a biopsy, swabs and many internal examinations.  I have been using Vagifem for a week now too, as I am perimenopausal and one doctor thought it may be Vaginal Atrophy.  A month on, I feel like I'm not getting anywhere.  I have read on this site, lots of different remedies that people have tried and have made a note of them, but I need to get properly diagnosed first.  Can anyone recommend a good gynaecologist/dermatologist in the UK that I should see?  I am really desperate to try and get some relief as in 5 weeks time my eldest son graduates from a scholarship year in the USA and at the moment I don't think I will be able to go.  Any replies would be very much appreciated, I want my life back. Thanks for taking the time to read my post.


Last edited by LouR on Thu Apr 21, 2016 8:38 am; edited 1 time in total (Reason for editing : wrong word)

LouR

Posts : 1
Join date : 2016-04-21

View user profile

Back to top Go down

Re: NEW member - I want my life back

Post  emalita on Thu Apr 21, 2016 1:17 pm

I'm so sorry to hear that you're in pain. I hope you find relief and can attend your son's graduation.

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: NEW member - I want my life back

Post  PainBlogger on Thu Apr 21, 2016 5:56 pm

You could ask the gynae whether lidocaine gel at night for 6-8 weeks to break the pain cycle is an option to try. Though whether that is suitable in your case would depend on whether the skin is normal. I found seeing a pain management consultant much more helpful than a gynaecologist but my skin is normal and in my case it is nerve pain. If you're perimenopausal then I guess there's more chance it's skin-related and hopefully the gynaecologist will be able to help you. Good luck with it. Smile

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Re I want my life back

Post  let's kick this on Thu Apr 28, 2016 11:24 pm

Did you have to have a referral for pain management?

let's kick this

Posts : 29
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: NEW member - I want my life back

Post  PainBlogger on Fri Apr 29, 2016 11:55 am

I paid for a private pain management consultant appointment because I didn't want to have to wait several months to get an NHS appointment. I didn't need a GP referral letter for the private hospital I went to, but some private hospitals do require a GP letter. I didn't get any better treatment by paying privately - I saw the same doctor I would have seen on the NHS - but it just cuts the waiting time down. The way I see it, I'm just using the money I would have used if I'd been able to go out and enjoy myself all the time this has been going on.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Re: NEW member - I want my life back

Post  fairlight10 on Fri Apr 29, 2016 2:32 pm

I paid privately to get a diagnosis. Within 10 minutes the consultant told me I had vulvodynia/vulvar vestibulities after months of being told it was thrush or atrophic vaginitis. The lotions and potions for these ailments were making my pain worse. So I was shocked to be told it was something I had never heard of. That meant I could get the right treatment from my GP who happens to be a gynaecologist! I then saw the same consultant under the nhs a few weeks later. He said I would have to wait up to 18 weeks for a vulvoscopy histoscopy and the removal of a lost mirena coil. It was worth going private for that first consultation because I was going mental knowing my GP was wrong with her diagnosis.

fairlight10

Posts : 39
Join date : 2016-04-17

View user profile

Back to top Go down

Re: NEW member - I want my life back

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum