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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


NEW member - I want my life back

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NEW member - I want my life back

Post  LouR on Thu Apr 21, 2016 8:35 am

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on Saturday, but everything seems to be taking so long.  I've had a biopsy, swabs and many internal examinations.  I have been using Vagifem for a week now too, as I am perimenopausal and one doctor thought it may be Vaginal Atrophy.  A month on, I feel like I'm not getting anywhere.  I have read on this site, lots of different remedies that people have tried and have made a note of them, but I need to get properly diagnosed first.  Can anyone recommend a good gynaecologist/dermatologist in the UK that I should see?  I am really desperate to try and get some relief as in 5 weeks time my eldest son graduates from a scholarship year in the USA and at the moment I don't think I will be able to go.  Any replies would be very much appreciated, I want my life back. Thanks for taking the time to read my post.


Last edited by LouR on Thu Apr 21, 2016 8:38 am; edited 1 time in total (Reason for editing : wrong word)

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Re: NEW member - I want my life back

Post  emalita on Thu Apr 21, 2016 1:17 pm

I'm so sorry to hear that you're in pain. I hope you find relief and can attend your son's graduation.

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Re: NEW member - I want my life back

Post  PainBlogger on Thu Apr 21, 2016 5:56 pm

You could ask the gynae whether lidocaine gel at night for 6-8 weeks to break the pain cycle is an option to try. Though whether that is suitable in your case would depend on whether the skin is normal. I found seeing a pain management consultant much more helpful than a gynaecologist but my skin is normal and in my case it is nerve pain. If you're perimenopausal then I guess there's more chance it's skin-related and hopefully the gynaecologist will be able to help you. Good luck with it. Smile

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Re I want my life back

Post  let's kick this on Thu Apr 28, 2016 11:24 pm

Did you have to have a referral for pain management?

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Re: NEW member - I want my life back

Post  PainBlogger on Fri Apr 29, 2016 11:55 am

I paid for a private pain management consultant appointment because I didn't want to have to wait several months to get an NHS appointment. I didn't need a GP referral letter for the private hospital I went to, but some private hospitals do require a GP letter. I didn't get any better treatment by paying privately - I saw the same doctor I would have seen on the NHS - but it just cuts the waiting time down. The way I see it, I'm just using the money I would have used if I'd been able to go out and enjoy myself all the time this has been going on.

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Re: NEW member - I want my life back

Post  fairlight10 on Fri Apr 29, 2016 2:32 pm

I paid privately to get a diagnosis. Within 10 minutes the consultant told me I had vulvodynia/vulvar vestibulities after months of being told it was thrush or atrophic vaginitis. The lotions and potions for these ailments were making my pain worse. So I was shocked to be told it was something I had never heard of. That meant I could get the right treatment from my GP who happens to be a gynaecologist! I then saw the same consultant under the nhs a few weeks later. He said I would have to wait up to 18 weeks for a vulvoscopy histoscopy and the removal of a lost mirena coil. It was worth going private for that first consultation because I was going mental knowing my GP was wrong with her diagnosis.

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Re: NEW member - I want my life back

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