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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


My (extremely long) Story

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My (extremely long) Story

Post  e31190 on Fri Apr 22, 2016 4:23 pm

Hi guys! This is going to be a long story but if it helps someone feel like they're not alone or offers the opportunity for someone to help me it'll have been worth it.

A little background on the situation: I am 22 now, will be 23 later this year. Things started happening around October/November of 2014. At this time I had been with my boyfriend for about 6 months. I've been going to the gyno since I was 18, get a Pap smear every year, never had any STDs and I am not unusually prone to yeast infections or UTIs, maybe one infection every few years that cleared up quickly. I am still with the same guy I was with then so I've been with one partner throughout this whole process. I was on birth control. I very recently just quit taking it this month to see if it would help. (I am not advocating or trying to convince anyone to go off your birth control or anything like that. I'm just saying I feel comfortable coming off of it and I wanted to see it if helped my situation out any, which I think it has a slight bit) I had been on BC for 3 years at the time this started happening. I had no problems with it whatsoever and never switched brands or anything.

Now on to the story. I wish I had kept a detailed journal of what exactly was going on but I honestly was so scared and had no idea what was happening. I also had no idea that this was still going to be happening years later. Therefore, my time frames and memories of when exactly these events happened is fuzzy and that's so annoying because I can't seem to pinpoint exactly what may have caused this. So with that said, there are two instances I can think of what may have caused this. One, I fell down concrete steps and severely bruised my tail bone. I know some ladies on here have said their vulvodynia problems have started with a back injury so that is plausible to me. The other instance is a little graphic but my boyfriend and I were having sex. We were using a condom [side note: we use condoms almost every time even though I was on BC, if that's important to what may have caused this] We use condoms because it seems even though after plenty of foreplay we still have a harder time inserting even if I am lubricated. On this particular day I'm not sure if we jumped the gun before I was ready or what but it was especially hard to insert, different than other times. While we were inserting, he was going slow as not to hurt me but it was especially painful after complete insertion.

Around this time, the vulvodynia starts but I had no idea it was vulvodynia (still don't I guess) and so I was freaking out. It started out as a tingling feeling all over the vulva. Naturally I go to Google with all my problems and what do you think comes up if you google 'tingling in the vagina area'? Herpes. So I am freaking out, wondering how I could have gotten that and googling what else it could be blah blah blah. I had been with one person and one person only at the time but I was made aware it could lay dormant for years and then pop up so that extra freaked me out. I told my boyfriend. He was calm, told me to calm down, it's probably nothing. So days go by and I swear I looked at my vagina in the mirror at least 50 times a day just waiting for something to show up on my skin. It never does and the symptoms were still there. Then came the burning. A constant burning pain in my vagina that would not go away.

I noticed however that I felt NO pain when I went to the bathroom or when I had sex. Honestly, sex helped. I guess I was focused on other things and I didn't hurt at those times. Then as months went by with no change I noticed that I had absolutely no pain or symptoms during my period. I have never looked so forward to my periods in my life. It was the only relief I had. Naturally, my sex drive went down to about 0. I was constantly worried about what it was, I was in pain and sex was the last thing I wanted to do. My boyfriend was very supportive and understood but still he didn't and couldn't understand. I had no one to talk to until I came across this page. I've read and not participated for a good year now and I finally decided to just join and put my story out there. I still have pain but my symptoms really vary.

Sometimes I feel an inner dull ache, sometimes I feel a concentrated pain in one particular area of my vulva on both sides at different times, sometimes I feel perfectly normal. I still feel fine during period time and sex. But any other time during the day, pain. I have had bouts of pretty heavy white discharge but my discharge goes back to normal after a few days. It doesn't have an odor when it is heavy, it is just a lot. I have been to the gyno but of course 'nothing was wrong'. I know I should keep insisting something is wrong and advocate for myself but it's so disheartening. I don't want to waste money just to be told everything looks fine and that there's nothing they can do.

I try to stay positive and honestly the pain is just a part of me now. I notice it and it hurts but I try to stay positive and continue on with life as normal. Some days are much better than others. When it's especially bad all I want to do is wear baggy sweatpants and cry. I just hold out hope that one day it feels better and stays better!

e31190

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Join date : 2016-03-29

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Re: My (extremely long) Story

Post  emalita on Fri Apr 22, 2016 5:26 pm

Thanks for sharing your story!

Have you considered the conditions Cytolytic Vaginosis or Lactobacillosis? The only reason I suggest them is because you mentioned the pain is gone during your period, which is when your pH is elevated. These conditions are basically too much good bacteria, and the treatments are either baking soda sitz baths or suppositories to raise your pH (killing off the overabundance of lactobacillus bacteria). Some articles reference using it in a douche, but I think that's just asking for more issues.

Some doctors don't believe in this condition, but there are MANY articles published about it. Also, one of the OBGYNs I saw said she didn't care if the medical community didn't believe it or not because she saw it under the microscope many times and relieved patient's suffering by treating it. This was not my issue though, even though she had initially suspected it (my pain is worse during my periods). So I can't comment on the treatment's effectiveness.

If you can't find a doctor who is willing or able to check for this, just be careful before self treating because if that's not your issue, killing off good bacteria will only make most issues far worse.

I hope you find relief!

emalita

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