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I'm new to this forum and would love some advice! :)

Mon Jun 04, 2018 11:13 pm by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 12:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 4:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Tue May 15, 2018 10:43 pm by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 11:33 am by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Sun May 06, 2018 10:35 pm by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Thu Apr 26, 2018 7:06 pm by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 6:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Fri Jan 07, 2011 7:08 pm by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Real answer on why this women prefered a male gyneacologist...

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Real answer on why this women prefered a male gyneacologist...

Post  Sebby (Admin) on Mon Jan 24, 2011 3:58 pm

Im copying and pasting this womens answers from a forum...

"I've asked it once and I'll ask it again...WHY? I'm working on some marketing materials for some of our docs and I just can't fathom why a man would want to become an OB/Gyn. They don't even have the same organs...how effective can they really be as docs who focus on the health of those same organs and structures?"

"I much prefer a male gynacologist to look at my bits than a female gynacologist"

"really? eek do you mind if i ask why? i could never fathom having a male gyno; it'd freak me out too much"

"Sorry I posted but my comp froze and I lost my reply..
My doc was my gyno at the same time when I was at uni and he used to sing to me when he was up there checking my fruity bits..
a woman doc/gyno has never sung to me when doing that shit..
and for me I just think its more normal for a man to look at a womans bits than a woman"

"Did he do requests?"

"He used to sing opera when he looked at my bits.. he said it made him happy.. both looking at my innards and singing"



Sebby (Admin)

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Age : 37
Location : London UK

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Men only please!!

Post  Char29 on Fri Oct 05, 2012 3:29 am

My theory on this is :
I have had both Ob/gyn and Specialists of all sorts and to be honest, I much prefer men!
I have found that women in general are a lot rougher than men. It is as if they cannot imagine the pain that we are going through because they are all "normal".
Men on the other hand, have no idea what it is like to have our bits, never mind bits that are on fire, so they are generally more gentle.
In fact I have had some really ignorant women doctors and nurses say some really hurtful things too.
One female doc in Barbados (I was working on ships at the time), hurt me so badly that I could not sit down for 2 days!!
Most recently I went to the Sex Clinic to supposedly see the guru on vulvas and she was hurting me so badly and not letting me go! She wanted me to put a number to the pain! I could hardly breathe or talk never mind put a number to the pain!!
I was referred to a great male specialist in this field after that, and he was uber gentle. However he would not carry on with the "treatment" as he felt I was too inflamed (it all looked normal to me as I have had this my whole life).
Needless to say I have not been back to any doctor!! Have hit a wall!!!
Sorry - that was me going off on a tangent - I only joined this forum today and this is all just flowing out of me!!! Never been able to "talk" to anyone who totally gets it!!
Charmaine xx


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