Vulvodynia Support
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» Hope to all my suffering ladies
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments

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Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments Empty Does pelvic floor disorder go hand in hand with vulvodynia? Questions about diff treatments

Post  buffygrrl1 Thu Apr 28, 2016 11:48 pm

Hi All,

So finally after 10 years the doctor figured out what is wrong with me.

I have vulvodynia, but I also have pelvic floor disorder (one of the muscles inside is tense and aggravated). I wonder if that is what caused it? When the doctor pressed on the muscle I felt the burning even on the outside instantly.

I'm wondering if anyone had any luck with physical therapy? I was also prescribed nortriptyline, but I would like to try the natural route first. I read that a lot of people gain weight from anti depressants and I don't want to deal with that Sad

buffygrrl1

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Join date : 2016-04-28

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Post  emalita Fri Apr 29, 2016 12:41 am

Hi!

Well, vulvodynia isn't a single disease/condition for everyone. Vulvodynia is a diagnosis based off of elimination of other conditions (e.g. yeast, BV, STDs, etc.), and when your doctor cannot find a cause for your pain, they may diagnose you with vulvodynia, which is simply chronic vulvar pain without a known cause. Basically they are telling you that you're in pain, but they don't know why.

Pelvic floor issues are definitely on the list of conditions that cause chronic pain.

I have not tried physical therapy, but if you don't get many replies from women on here who have tried it, you can do a search of the forum to see what women have said in the past. From what I've read, most have a positive outcome if their condition is related to something PT can help with.

Good luck!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  PainBlogger Fri Apr 29, 2016 11:49 am

I've found a lot of benefit in physical therapy. I'm also on duloxetine and I think the two treatments have complimented each other - duloxetine to calm the nerves down, exercises and physical therapy to help stretch out and relax the muscles. I've had about fifteen PT sessions over a year and a bit. I've put in a lot of time at home doing the prescribed exercises. It takes a lot of patience and has been very much a two steps forward one back kind of process but when I think back to how much pain I was in a year ago and my average pain now it's gone from flares that are 6/10 on the pain scale (I rate my pain conservatively, so 8/10 would be the worst migraine, 10/10 I'd be unconscious!) to now flares of 2/10 and most of the time I only have very low level background pain.


PainBlogger

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Join date : 2015-07-27

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