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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Hello I'm newly diagnosed too!

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Hello I'm newly diagnosed too!

Post  Annmaria on Sun May 01, 2016 5:54 pm

Hello everyone I am so happy to have found you!
I'm a 56 year old woman recently diagnosed although I suspect I have had this a long time but it has crept up on me.
I first noticed painful sex with a partner who lived away (about 4 years ago) and who I only saw about every month. I thought my problem was 'tightening' because I didn't have intercourse so frequently plus I was newly through the menopause. He wasn't at all sympathetic to my pain and suffice to say that was the end of that relationship! I would have cystitis and vaginal pain for weeks after but it did subside to a manageable discomfort (eventually)

I started a relationship just over a year ago and found the same problem only this time worse. I was convinced I had an STI but rigorous and repeated testing ruled everything out including herpes which I was convinced I had! Since this encounter my symptoms have got worse and I'm sure the intercourse has made it worse. Yesterday I had the Q tip test and nearly hit the ceiling! I hadn't realised one small localised area could cause such pain! I have had a year of sheer anxiety and now I have to try to learn to relax and manage my condition.

I wanted to ask if any of you out there are postmenopausal and/or had any similar experiences? I don't take any medication although I have been given some anesthetic cream to apply.  I am looking forward to being part of a community here and hope that I might be able to offer support too. I'm in the UK by the way!
Thank you Ax

Annmaria

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Re: Hello I'm newly diagnosed too!

Post  fairlight10 on Sun May 01, 2016 6:22 pm

Hi Annmarie I am postmenopausal and diagnosed with vulvar vestibulitis 4years ago. After going to the doctors many times I went and saw a consultant gynaecologist privately. He told me what my condition was called. He gave me amitriptyline but I had an adverse reaction to this. Went back to my GP told her who I had seen and what the consultant told me I had. She put me on nortriptyline which suited me. It has helped me tremendously and I would recommend you try it. Have you had all other possible causes ruled out by a gynaecologist?

fairlight10

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Re: Hello I'm newly diagnosed too!

Post  fairlight10 on Sun May 01, 2016 6:23 pm

Hi Annmarie I am postmenopausal and diagnosed with vulvar vestibulitis 4years ago. After going to the doctors many times I went and saw a consultant gynaecologist privately. He told me what my condition was called. He gave me amitriptyline but I had an adverse reaction to this. Went back to my GP told her who I had seen and what the consultant told me I had. She put me on nortriptyline which suited me. It has helped me tremendously and I would recommend you try it. Have you had all other possible causes ruled out by a gynaecologist?

fairlight10

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Re: Hello I'm newly diagnosed too!

Post  Annmaria on Sun May 01, 2016 7:32 pm

Hi Fairlight

Thank you for the reply it's nice to be here with others and I feel less alone.

I have just had the STI testing to rule those sorts of things out. I just assume it must be to do with the menopause but apart from that I have no idea. I was told I could try Amitryptline so I could make an appointment and ask about the nortryptline but I thought I might try diet and perhaps acupuncture first. At this stage I'm not really sure it's all so confusing!
I suspect it is going to be a bit of trial and error...

Annmaria

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Re: Hello I'm newly diagnosed too!

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