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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hello I'm newly diagnosed too!

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Hello I'm newly diagnosed too!

Post  Annmaria on Sun May 01, 2016 5:54 pm

Hello everyone I am so happy to have found you!
I'm a 56 year old woman recently diagnosed although I suspect I have had this a long time but it has crept up on me.
I first noticed painful sex with a partner who lived away (about 4 years ago) and who I only saw about every month. I thought my problem was 'tightening' because I didn't have intercourse so frequently plus I was newly through the menopause. He wasn't at all sympathetic to my pain and suffice to say that was the end of that relationship! I would have cystitis and vaginal pain for weeks after but it did subside to a manageable discomfort (eventually)

I started a relationship just over a year ago and found the same problem only this time worse. I was convinced I had an STI but rigorous and repeated testing ruled everything out including herpes which I was convinced I had! Since this encounter my symptoms have got worse and I'm sure the intercourse has made it worse. Yesterday I had the Q tip test and nearly hit the ceiling! I hadn't realised one small localised area could cause such pain! I have had a year of sheer anxiety and now I have to try to learn to relax and manage my condition.

I wanted to ask if any of you out there are postmenopausal and/or had any similar experiences? I don't take any medication although I have been given some anesthetic cream to apply.  I am looking forward to being part of a community here and hope that I might be able to offer support too. I'm in the UK by the way!
Thank you Ax

Annmaria

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Re: Hello I'm newly diagnosed too!

Post  fairlight10 on Sun May 01, 2016 6:22 pm

Hi Annmarie I am postmenopausal and diagnosed with vulvar vestibulitis 4years ago. After going to the doctors many times I went and saw a consultant gynaecologist privately. He told me what my condition was called. He gave me amitriptyline but I had an adverse reaction to this. Went back to my GP told her who I had seen and what the consultant told me I had. She put me on nortriptyline which suited me. It has helped me tremendously and I would recommend you try it. Have you had all other possible causes ruled out by a gynaecologist?

fairlight10

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Re: Hello I'm newly diagnosed too!

Post  fairlight10 on Sun May 01, 2016 6:23 pm

Hi Annmarie I am postmenopausal and diagnosed with vulvar vestibulitis 4years ago. After going to the doctors many times I went and saw a consultant gynaecologist privately. He told me what my condition was called. He gave me amitriptyline but I had an adverse reaction to this. Went back to my GP told her who I had seen and what the consultant told me I had. She put me on nortriptyline which suited me. It has helped me tremendously and I would recommend you try it. Have you had all other possible causes ruled out by a gynaecologist?

fairlight10

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Re: Hello I'm newly diagnosed too!

Post  Annmaria on Sun May 01, 2016 7:32 pm

Hi Fairlight

Thank you for the reply it's nice to be here with others and I feel less alone.

I have just had the STI testing to rule those sorts of things out. I just assume it must be to do with the menopause but apart from that I have no idea. I was told I could try Amitryptline so I could make an appointment and ask about the nortryptline but I thought I might try diet and perhaps acupuncture first. At this stage I'm not really sure it's all so confusing!
I suspect it is going to be a bit of trial and error...

Annmaria

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Re: Hello I'm newly diagnosed too!

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