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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Hello I'm newly diagnosed too!

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Hello I'm newly diagnosed too!

Post  Annmaria on Sun May 01, 2016 5:54 pm

Hello everyone I am so happy to have found you!
I'm a 56 year old woman recently diagnosed although I suspect I have had this a long time but it has crept up on me.
I first noticed painful sex with a partner who lived away (about 4 years ago) and who I only saw about every month. I thought my problem was 'tightening' because I didn't have intercourse so frequently plus I was newly through the menopause. He wasn't at all sympathetic to my pain and suffice to say that was the end of that relationship! I would have cystitis and vaginal pain for weeks after but it did subside to a manageable discomfort (eventually)

I started a relationship just over a year ago and found the same problem only this time worse. I was convinced I had an STI but rigorous and repeated testing ruled everything out including herpes which I was convinced I had! Since this encounter my symptoms have got worse and I'm sure the intercourse has made it worse. Yesterday I had the Q tip test and nearly hit the ceiling! I hadn't realised one small localised area could cause such pain! I have had a year of sheer anxiety and now I have to try to learn to relax and manage my condition.

I wanted to ask if any of you out there are postmenopausal and/or had any similar experiences? I don't take any medication although I have been given some anesthetic cream to apply.  I am looking forward to being part of a community here and hope that I might be able to offer support too. I'm in the UK by the way!
Thank you Ax

Annmaria

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Re: Hello I'm newly diagnosed too!

Post  fairlight10 on Sun May 01, 2016 6:22 pm

Hi Annmarie I am postmenopausal and diagnosed with vulvar vestibulitis 4years ago. After going to the doctors many times I went and saw a consultant gynaecologist privately. He told me what my condition was called. He gave me amitriptyline but I had an adverse reaction to this. Went back to my GP told her who I had seen and what the consultant told me I had. She put me on nortriptyline which suited me. It has helped me tremendously and I would recommend you try it. Have you had all other possible causes ruled out by a gynaecologist?

fairlight10

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Re: Hello I'm newly diagnosed too!

Post  fairlight10 on Sun May 01, 2016 6:23 pm

Hi Annmarie I am postmenopausal and diagnosed with vulvar vestibulitis 4years ago. After going to the doctors many times I went and saw a consultant gynaecologist privately. He told me what my condition was called. He gave me amitriptyline but I had an adverse reaction to this. Went back to my GP told her who I had seen and what the consultant told me I had. She put me on nortriptyline which suited me. It has helped me tremendously and I would recommend you try it. Have you had all other possible causes ruled out by a gynaecologist?

fairlight10

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Re: Hello I'm newly diagnosed too!

Post  Annmaria on Sun May 01, 2016 7:32 pm

Hi Fairlight

Thank you for the reply it's nice to be here with others and I feel less alone.

I have just had the STI testing to rule those sorts of things out. I just assume it must be to do with the menopause but apart from that I have no idea. I was told I could try Amitryptline so I could make an appointment and ask about the nortryptline but I thought I might try diet and perhaps acupuncture first. At this stage I'm not really sure it's all so confusing!
I suspect it is going to be a bit of trial and error...

Annmaria

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Re: Hello I'm newly diagnosed too!

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