Vulvodynia Support
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» Hope to all my suffering ladies
Botox for Vaginismus  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Botox for Vaginismus  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Botox for Vaginismus  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Botox for Vaginismus  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Botox for Vaginismus  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Botox for Vaginismus  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Botox for Vaginismus  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Botox for Vaginismus  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Botox for Vaginismus  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Botox for Vaginismus

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Post  sgw11 Mon May 02, 2016 12:14 pm

Hi girls,

so a brief background, I've had vulvodynia for about 2.5 years and secondary vaginismus for about 1 year. I have an over active pelvic floor which I'm going to the physio for, but my gynaecologist also suggested doing botox for it so I did. I had it done about 3 weeks ago and the difference is amazing. I still have days of irritation if I'm sitting down for too long, but I've been able to have relatively pain free sex (I have initial pain on penetration but once we get going it stops), with hardly any feelings of soreness or irritation the day after. I used to have about 2 days of irritation after sex, and I needed to ice the area and stuff. I was also in a long term relationship which ended in Feb this year, and we hadn't had sex since about September, but I've been able to have sex with people since. Obviously the botox won't help with the pain I have around my vulva, which is the vulvodynia and therefore has a different treatment path as I'm sure you're all aware of, but I recommend that any of you with vaginismus to ask about botox. I know everyone is different, and I had to be examined to see if I was eligible for it, and that it doesn't help in some cases, but I think anything is worth ago! Feel free to message me with any questions or write them on here.

Smile

sgw11

Posts : 46
Join date : 2015-02-18

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Post  emalita Mon May 02, 2016 12:55 pm

Thank you for sharing this! It's great to hear when women find some relief!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  sgw11 Tue May 03, 2016 6:30 am

I also wanted to add that I had both right and left pudendal nerve blocks.

sgw11

Posts : 46
Join date : 2015-02-18

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