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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

How effective is vestibulectomy?

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How effective is vestibulectomy?

Post  PelvicStrong on Thu May 05, 2016 9:41 pm

Hi everyone, I'm new here.
I was diagnosed with Endometriosis, Pelvic Floor Muscle Spasms and recently Vulvodynia. They all come hand in hand. I had a laparoscopy in Dec. 2014 for Endometriosis, a Mirena installed after to prevent Endometriosis recurrence, Botox in Dec. 2015 for the pelvic floor and I've been going to PT since my surgery. The botox is more diagnostic to rule out that the vulva pain isn't only coming from the muscles but the nerve as well. It has made the spasms go away but also made my pelvic floor muscles really weak. My doctor said that I definitely need vestibulectomy as none of the treatment has helped with the 6 o'clock pain (I'm on ketoprofen cream and Gabapentin. I tried Amitriptyline and Hydroxyzine for 6 weeks, didn't help). It's provoked pain, so only hurts when it's touched and during sex. The painful skin around 5, 6, 7 o'clock is also red. On top of that, I have chronic incomplete bowel movement, which is another issue related to pelvic floor. I read that a few years after the surgery, the pain comes back because the painful nerves eventually grow back. Also, not sure if it's the vulva pain/fear or psychologically not aroused, I have very low libido and when I put dilators in my vagina, internally it's still very uncomfortable despite the botox. It's the feeling that something is pushing my organs and it hurts when I go really deep (probably hitting the cervix?).

I just want to know how effective vestibulectomy is. What is really involved in the surgery? How long does it take to recover? I would also appreciate any advice on how to communicate this type of surgery with your employer because they will need to know what type of surgery I'm having and how long I'll have to take off. Any other advice or similar experience will be greatly appreciated.


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Re: How effective is vestibulectomy?

Post  emalita on Thu May 05, 2016 11:12 pm

I have never had surgery; so I cannot comment on that piece. However, as far as your employer goes, I'm not sure where you're located, but in the U.S. you are not required to disclose the specifics of your diagnosis in order to qualify for FMLA. So, you would just go about it like any other FMLA request, indicating to your immediate boss or HR department that you need to take medical leave.

Below is what I found from the following link regarding what is needed during the request: https://las-elc.org/fact-sheets/taking-leave-from-work-for-your-own-health-condition

"A request from your employer for medical certification showing your need for leave (such as a doctor’s note) must be in writing. Certification does not have to disclose your diagnosis, but it must provide enough information for your employer to verify your need for leave. It should include:

ƒ- the date your serious health condition began;
ƒ- the probable duration of the condition;
ƒ- a statement that your condition makes you temporarily unable to work at all or perform one or more of the functions of your job (you should discuss the functions of your job with your doctor, and the doctor’s statement should reflect that discussion);
ƒ- the probable duration of your need for leave; and
ƒ- a statement verifying your need for intermittent leave or a reduced schedule, if applicable.

In most cases, your employer cannot ask you or your doctor for more than this basic information. Your employer may not contact your doctor directly without your permission."

Hope that helps!


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Re: How effective is vestibulectomy?

Post  PelvicStrong on Thu May 12, 2016 1:19 am

Hi Emalita, thank you for your response. I'm in the US. Legally, I know that I have the right to keep it private but I work with a very small team and we work very close with each other everyday. People are generally supportive and caring although I know for a fact that if they know what the surgery is for, there will be gossips. I only share my condition with my doctors and very very close friends, who I know won't judge me. So I'm thinking more of a strategy on how to tell them and what to tell them about the surgery as a courtesy because to be work absent for a long time at my job is also somewhat frown upon as it creates a burden for my coworkers. My coworkers know that I had a laparoscopy for Endometriosis but that surgery probably takes longer to recover than a vestibulectomy so essentially I need to explain to them the type of surgery I will have to give them an idea on how long I will be out, as well as paving a forthcoming work environment where no questions will be asked.


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Re: How effective is vestibulectomy?

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