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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


US petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed"

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US petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed"

Post  Fielder on Fri May 06, 2016 9:46 am

Here is a link to the American petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed" http://www.ataraschimmel.com/petitions.html (A similar petition is also currently up and running in the UK for members who are living in the UK https://petition.parliament.uk/petitions/128528.)

The lady behind the US campaign/petition it is Atara Schimmel.

This is Atara's FB page https://www.facebook.com/atara.schimmel?fref=ts and this is the group she runs on FB https://www.facebook.com/groups/pudendalneuralgiahope/ (it's a closed group so you'd have to apply to join it).

Hope that this is of some help/interest and forum members will sign.

Fielder

Fielder

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Re: US petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed"

Post  emalita on Fri May 06, 2016 1:34 pm

I wish this petition was more broad as it is requesting additional training specifically for Pudendal Neuralgia and Persistent Genital Arousal Disorder, but it's a start! I would be thrilled to see any additional training requirements at this point.

emalita

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Re: US petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed"

Post  Fielder on Fri May 06, 2016 1:45 pm

emalita wrote:I wish this petition was more broad as it is requesting additional training specifically for Pudendal Neuralgia and Persistent Genital Arousal Disorder, but it's a start! I would be thrilled to see any additional training requirements at this point.

I see where you're coming from. My own thoughts were that, from other forums I belong to re pelvic pain, there are quite a lot of men who suffer with pelvic pain for a whole manner of reasons and they are being missed out too. But, as you say, it's a start. (The petition in the UK is really taking off, but I doubt that we will reach the 10,000 signatures required to make our Government have to respond to it... I truly hope to be very wrong about that though!)

Fielder

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US petition for "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed."

Post  Fielder on Sun May 08, 2016 4:40 pm

Hi again Emalita (and anyone else in the US who is interested),

I've just realised that there seem to be two petitions in the US...if you go to the link I gave in my previous post and page further down, you'll see the second one which is for "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed."  You can go straight to it here https://www.change.org/p/incorporate-vulvovaginal-and-pelvic-pain-conditions-into-core-curricula-of-gynecology-and-obstetrics-and-continuing-ed

Fielder

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Re: US petition to "Incorporate vulvovaginal and pelvic pain conditions into core curricula of gynecology and obstetrics and continuing ed"

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