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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


explains simply pelvic floor, pudendal nerve and dilator stuff!

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explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) on Tue Jan 25, 2011 11:38 pm

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  [Sara] on Fri Jan 28, 2011 9:57 pm

Finally got a chance to read the article...makes me kind of want to try the Pudendal Nerve Perineural Injections, and Pelvic Floor Muscle Injections. It's also really scary to think about, a needle down there? pale But hey, I'm used to excruciating pain down there anyway. I wonder if anywhere offers something like that around where I live? I will have to ask my physical therapist.

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Mouse on Sat Jan 29, 2011 12:01 am

Hey Sara,

There is a woman on another forum who is having the nerve block injections and they are working! She's in Canada. She gives a really great description of the process some of them go in around the butt crack.. it's lidocaine and she applies that topically as well. I'll see if I can find the relevant posts as she's giving updates every few weeks. Her specialist sounds amazing.

There is also a physical therapist on that forum who gives advice. Which is great as well. We should get one of those Smile

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) on Sat Jan 29, 2011 3:40 pm


Im gonna try the pudendal nerve block next as the general one didnt work. Its given in the back though

Oh Mouse...deff copy and paste that womens posts into here..would be great to read!
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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sarah001 on Sat Jan 29, 2011 7:46 pm

I've been thinking about the pudendal nerve recently too, but a block doesn't last unless the tissue that's irritating it is released so pelvic floor, external hip rotators etc. The information I read about it said it goes in at the bottom of the buttocks, fairly close to the vulva itself and the doctor puts one hand inside the vagina (well a few fingers, not a whole hand!) to guide the needle. Are you sure you're not thinking genitofemoral or ilioinguinal nerve Sebby? I'm sure I've never seen anything about pudendal nerve blocks going into the back. Question
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Dilators helped me so much

Post  Sandra4372 on Wed Sep 14, 2016 1:05 am

Hi Ladies,

Just here to let you now a little about my story. I was diagnosed six months ago by a pelvic pt. We have done many helpful stretches and she taught me exercises. I'm not sure what caused my pain, but it is only during sex. My pelvic floor physical therapist use dilators in the office to size me, so I could buy some for home. She told me to use the dilators with magnets because her patients were having more success with them.

I bought some VuVa brand dilators after she sized me in the office. They basically saved my sex life. If I use them right before intercourse because that it was she told me to do, I really don't feel any pain during sex.

It hurts when I put the dilator in first, then it stops after a couple minutes. Would like to share this treatment with you because it helped me so much.  

Have a good night everyone. Sandra

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

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