Vulvodynia Support
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» Hope to all my suffering ladies
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
explains simply pelvic floor, pudendal nerve and dilator stuff! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


explains simply pelvic floor, pudendal nerve and dilator stuff!

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explains simply pelvic floor, pudendal nerve and dilator stuff! Empty explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) Tue Jan 25, 2011 11:38 pm

Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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explains simply pelvic floor, pudendal nerve and dilator stuff! Empty Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  [Sara] Fri Jan 28, 2011 9:57 pm

Finally got a chance to read the article...makes me kind of want to try the Pudendal Nerve Perineural Injections, and Pelvic Floor Muscle Injections. It's also really scary to think about, a needle down there? pale But hey, I'm used to excruciating pain down there anyway. I wonder if anywhere offers something like that around where I live? I will have to ask my physical therapist.

[Sara]

Posts : 26
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explains simply pelvic floor, pudendal nerve and dilator stuff! Empty Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Mouse Sat Jan 29, 2011 12:01 am

Hey Sara,

There is a woman on another forum who is having the nerve block injections and they are working! She's in Canada. She gives a really great description of the process some of them go in around the butt crack.. it's lidocaine and she applies that topically as well. I'll see if I can find the relevant posts as she's giving updates every few weeks. Her specialist sounds amazing.

There is also a physical therapist on that forum who gives advice. Which is great as well. We should get one of those Smile

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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explains simply pelvic floor, pudendal nerve and dilator stuff! Empty Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) Sat Jan 29, 2011 3:40 pm


Im gonna try the pudendal nerve block next as the general one didnt work. Its given in the back though

Oh Mouse...deff copy and paste that womens posts into here..would be great to read!
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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explains simply pelvic floor, pudendal nerve and dilator stuff! Empty Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sarah001 Sat Jan 29, 2011 7:46 pm

I've been thinking about the pudendal nerve recently too, but a block doesn't last unless the tissue that's irritating it is released so pelvic floor, external hip rotators etc. The information I read about it said it goes in at the bottom of the buttocks, fairly close to the vulva itself and the doctor puts one hand inside the vagina (well a few fingers, not a whole hand!) to guide the needle. Are you sure you're not thinking genitofemoral or ilioinguinal nerve Sebby? I'm sure I've never seen anything about pudendal nerve blocks going into the back. Question
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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explains simply pelvic floor, pudendal nerve and dilator stuff! Empty Dilators helped me so much

Post  Sandra4372 Wed Sep 14, 2016 1:05 am

Hi Ladies,

Just here to let you now a little about my story. I was diagnosed six months ago by a pelvic pt. We have done many helpful stretches and she taught me exercises. I'm not sure what caused my pain, but it is only during sex. My pelvic floor physical therapist use dilators in the office to size me, so I could buy some for home. She told me to use the dilators with magnets because her patients were having more success with them.

I bought some VuVa brand dilators after she sized me in the office. They basically saved my sex life. If I use them right before intercourse because that it was she told me to do, I really don't feel any pain during sex.

It hurts when I put the dilator in first, then it stops after a couple minutes. Would like to share this treatment with you because it helped me so much.  

Have a good night everyone. Sandra

Sandra4372

Posts : 9
Join date : 2016-09-14

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