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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

explains simply pelvic floor, pudendal nerve and dilator stuff!

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explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) on Tue Jan 25, 2011 11:38 pm

Sebby (Admin)

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  [Sara] on Fri Jan 28, 2011 9:57 pm

Finally got a chance to read the article...makes me kind of want to try the Pudendal Nerve Perineural Injections, and Pelvic Floor Muscle Injections. It's also really scary to think about, a needle down there? pale But hey, I'm used to excruciating pain down there anyway. I wonder if anywhere offers something like that around where I live? I will have to ask my physical therapist.


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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Mouse on Sat Jan 29, 2011 12:01 am

Hey Sara,

There is a woman on another forum who is having the nerve block injections and they are working! She's in Canada. She gives a really great description of the process some of them go in around the butt crack.. it's lidocaine and she applies that topically as well. I'll see if I can find the relevant posts as she's giving updates every few weeks. Her specialist sounds amazing.

There is also a physical therapist on that forum who gives advice. Which is great as well. We should get one of those Smile


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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) on Sat Jan 29, 2011 3:40 pm

Im gonna try the pudendal nerve block next as the general one didnt work. Its given in the back though

Oh Mouse...deff copy and paste that womens posts into here..would be great to read!
Sebby (Admin)

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sarah001 on Sat Jan 29, 2011 7:46 pm

I've been thinking about the pudendal nerve recently too, but a block doesn't last unless the tissue that's irritating it is released so pelvic floor, external hip rotators etc. The information I read about it said it goes in at the bottom of the buttocks, fairly close to the vulva itself and the doctor puts one hand inside the vagina (well a few fingers, not a whole hand!) to guide the needle. Are you sure you're not thinking genitofemoral or ilioinguinal nerve Sebby? I'm sure I've never seen anything about pudendal nerve blocks going into the back. Question

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Dilators helped me so much

Post  Sandra4372 on Wed Sep 14, 2016 1:05 am

Hi Ladies,

Just here to let you now a little about my story. I was diagnosed six months ago by a pelvic pt. We have done many helpful stretches and she taught me exercises. I'm not sure what caused my pain, but it is only during sex. My pelvic floor physical therapist use dilators in the office to size me, so I could buy some for home. She told me to use the dilators with magnets because her patients were having more success with them.

I bought some VuVa brand dilators after she sized me in the office. They basically saved my sex life. If I use them right before intercourse because that it was she told me to do, I really don't feel any pain during sex.

It hurts when I put the dilator in first, then it stops after a couple minutes. Would like to share this treatment with you because it helped me so much.  

Have a good night everyone. Sandra


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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

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