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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


explains simply pelvic floor, pudendal nerve and dilator stuff!

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explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) on Tue Jan 25, 2011 11:38 pm

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  [Sara] on Fri Jan 28, 2011 9:57 pm

Finally got a chance to read the article...makes me kind of want to try the Pudendal Nerve Perineural Injections, and Pelvic Floor Muscle Injections. It's also really scary to think about, a needle down there? pale But hey, I'm used to excruciating pain down there anyway. I wonder if anywhere offers something like that around where I live? I will have to ask my physical therapist.

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Mouse on Sat Jan 29, 2011 12:01 am

Hey Sara,

There is a woman on another forum who is having the nerve block injections and they are working! She's in Canada. She gives a really great description of the process some of them go in around the butt crack.. it's lidocaine and she applies that topically as well. I'll see if I can find the relevant posts as she's giving updates every few weeks. Her specialist sounds amazing.

There is also a physical therapist on that forum who gives advice. Which is great as well. We should get one of those Smile

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sebby (Admin) on Sat Jan 29, 2011 3:40 pm


Im gonna try the pudendal nerve block next as the general one didnt work. Its given in the back though

Oh Mouse...deff copy and paste that womens posts into here..would be great to read!
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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

Post  Sarah001 on Sat Jan 29, 2011 7:46 pm

I've been thinking about the pudendal nerve recently too, but a block doesn't last unless the tissue that's irritating it is released so pelvic floor, external hip rotators etc. The information I read about it said it goes in at the bottom of the buttocks, fairly close to the vulva itself and the doctor puts one hand inside the vagina (well a few fingers, not a whole hand!) to guide the needle. Are you sure you're not thinking genitofemoral or ilioinguinal nerve Sebby? I'm sure I've never seen anything about pudendal nerve blocks going into the back. Question
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Dilators helped me so much

Post  Sandra4372 on Wed Sep 14, 2016 1:05 am

Hi Ladies,

Just here to let you now a little about my story. I was diagnosed six months ago by a pelvic pt. We have done many helpful stretches and she taught me exercises. I'm not sure what caused my pain, but it is only during sex. My pelvic floor physical therapist use dilators in the office to size me, so I could buy some for home. She told me to use the dilators with magnets because her patients were having more success with them.

I bought some VuVa brand dilators after she sized me in the office. They basically saved my sex life. If I use them right before intercourse because that it was she told me to do, I really don't feel any pain during sex.

It hurts when I put the dilator in first, then it stops after a couple minutes. Would like to share this treatment with you because it helped me so much.  

Have a good night everyone. Sandra

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Re: explains simply pelvic floor, pudendal nerve and dilator stuff!

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