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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
explains simply pelvic floor, pudendal nerve and dilator stuff!
5 posters
Page 1 of 1
Re: explains simply pelvic floor, pudendal nerve and dilator stuff!
Finally got a chance to read the article...makes me kind of want to try the Pudendal Nerve Perineural Injections, and Pelvic Floor Muscle Injections. It's also really scary to think about, a needle down there? But hey, I'm used to excruciating pain down there anyway. I wonder if anywhere offers something like that around where I live? I will have to ask my physical therapist.
[Sara]- Posts : 26
Join date : 2011-01-01
Re: explains simply pelvic floor, pudendal nerve and dilator stuff!
Hey Sara,
There is a woman on another forum who is having the nerve block injections and they are working! She's in Canada. She gives a really great description of the process some of them go in around the butt crack.. it's lidocaine and she applies that topically as well. I'll see if I can find the relevant posts as she's giving updates every few weeks. Her specialist sounds amazing.
There is also a physical therapist on that forum who gives advice. Which is great as well. We should get one of those
There is a woman on another forum who is having the nerve block injections and they are working! She's in Canada. She gives a really great description of the process some of them go in around the butt crack.. it's lidocaine and she applies that topically as well. I'll see if I can find the relevant posts as she's giving updates every few weeks. Her specialist sounds amazing.
There is also a physical therapist on that forum who gives advice. Which is great as well. We should get one of those
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: explains simply pelvic floor, pudendal nerve and dilator stuff!
Im gonna try the pudendal nerve block next as the general one didnt work. Its given in the back though
Oh Mouse...deff copy and paste that womens posts into here..would be great to read!
Re: explains simply pelvic floor, pudendal nerve and dilator stuff!
I've been thinking about the pudendal nerve recently too, but a block doesn't last unless the tissue that's irritating it is released so pelvic floor, external hip rotators etc. The information I read about it said it goes in at the bottom of the buttocks, fairly close to the vulva itself and the doctor puts one hand inside the vagina (well a few fingers, not a whole hand!) to guide the needle. Are you sure you're not thinking genitofemoral or ilioinguinal nerve Sebby? I'm sure I've never seen anything about pudendal nerve blocks going into the back.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Dilators helped me so much
Hi Ladies,
Just here to let you now a little about my story. I was diagnosed six months ago by a pelvic pt. We have done many helpful stretches and she taught me exercises. I'm not sure what caused my pain, but it is only during sex. My pelvic floor physical therapist use dilators in the office to size me, so I could buy some for home. She told me to use the dilators with magnets because her patients were having more success with them.
I bought some VuVa brand dilators after she sized me in the office. They basically saved my sex life. If I use them right before intercourse because that it was she told me to do, I really don't feel any pain during sex.
It hurts when I put the dilator in first, then it stops after a couple minutes. Would like to share this treatment with you because it helped me so much.
Have a good night everyone. Sandra
Just here to let you now a little about my story. I was diagnosed six months ago by a pelvic pt. We have done many helpful stretches and she taught me exercises. I'm not sure what caused my pain, but it is only during sex. My pelvic floor physical therapist use dilators in the office to size me, so I could buy some for home. She told me to use the dilators with magnets because her patients were having more success with them.
I bought some VuVa brand dilators after she sized me in the office. They basically saved my sex life. If I use them right before intercourse because that it was she told me to do, I really don't feel any pain during sex.
It hurts when I put the dilator in first, then it stops after a couple minutes. Would like to share this treatment with you because it helped me so much.
Have a good night everyone. Sandra
Sandra4372- Posts : 9
Join date : 2016-09-14
Similar topics
» Nerve or pelvic floor related?
» New to sudden yelps and hops in public...
» Pudendal Nerve Injection
» New to sudden yelps and hops in public...
» Pudendal Nerve Injection
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer