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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Hello from Northern Norway

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Hello from Northern Norway

Post  Antaea on Wed May 11, 2016 6:06 pm

Hi, very glad that I just found this forum. Today my fears became confirmed: The burning, itching everlasting pain in all parts of the vulva and the labia major is indeed generalized vulvodynia.
But let me introduce myself:
I am writing from Northern Norway, only a few hours drive south of the North Cape. Born German, I live there for nearly 30 years, teaching music at the local School for Culture. I am 66 years old and shall retire at the end of this year. I live alone after a marriage with an alcoholic long ago. I have no kids (due to heavy migraines all my life), but a precious cat-family of 5. Antaea is my pagan name, I am eclectic witch and deeply rotfasted in our subarctic nature - or in nature generally. But next year I shall move to the Swedish island of Gotland in the Baltic to live there with my sister for the rest of our lives.
I had an episode of nerve-pain in 2007/2008, when the doctor found out that my estrogen levels were extremely low. After 9 months they were normal and the pain ceased.
In March this year I had a cystitis and was treated with 3 different antibiotics. I got problems and pains in the vulva, but meant, it was due to the cystitis. But it never got away, it only became worse. Now I have it 24/7 and no painkiller, no topical treatment works.Only Tramadol takes the top of the pain at night and gives me a day with little pain the morning after. I observe all the general advices like no soap etc. But I have to admit: Pain will be a part of my life until I die. On Friday i'll start with Gabapentin, and a fortnight later I shall meet my doctor for an evaluation.
I need therapy suggestions and, first of all, input in how to live a good life in spite of the pain. I am open too for alternative therapies.
I also hope to be able to give something back to you. You can find me under my user name on Facebook too.
Whishing you a painless day in your part of the world. Here it is 8 pm.
God kveld (Good evening) from Antaea
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Antaea

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Re: Hello from Northern Norway

Post  emalita on Wed May 11, 2016 6:26 pm

Hi Antaea!

Those darn antibiotics are what do a lot of us in unfortunately. My pain was caused by 4 rounds of very unnecessary antibiotics that I had trusted my doctors to prescribe appropriately (I know better now).

I'm absolutely no expert, but I've been around the block more than once trying to relieve my pain the last 2 years. So, I'm happy to share what has and hasn't worked for me so far. Can you provide more details on your pain? You mention it is burning and itching on your entire vulva. Are any areas worse than others (e.g. inner labia, vaginal opening, etc.)? Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)? Is the pain worse at any particular time (e.g. going to the bathroom, after showering, etc.)? What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)? Do you have excessive discharge that makes your pain worse?

Sorry for all the questions, but the more details you can give, the better suggestions we can provide without boring you with some that probably won't be relevant to your pain. Obviously only provide information for what you are comfortable sharing. Nothing is too much information here...we've all heard it before Wink

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Re: Hello from Northern Norway

Post  Antaea on Wed May 11, 2016 8:44 pm

Hi Emalita,
thank you for asking. That's the reason why I am here.
I have no discharge at all. After the menopause I am very dry. The pain is mainly and worst in the vestibulum and the clitoris, but can change to the inner labia. The outer labia feel like sitting on a brush. All other conditions had been ruled out. No vaginitis, no bacteria, vira, no herpes or papilloma-virus. No lichen sclerosus. The vulva looks just fine. I use estrogen-cream (Ovesterin) which is not availalbe in the States, only in Canada. I used hyaloronic acid too, but it made things worse after a time. Just now I rinse with water only every time I am in the bath room and use almond oil. I also use Lidocain topical at night and Tramadol every second day. I shall start with Gabapentin and I am very afraid of the side- effects because I shall travel 2300 km by car on June 15th with the caravan and my cat-family. More about that in a second thread.
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Antaea

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Age : 67
Location : Hammerfest Norway

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Re: Hello from Northern Norway

Post  emalita on Wed May 11, 2016 9:55 pm

Hmm...I'm just going to start rambling off ideas, and I hope some are helpful Very Happy

Since your pain started after taking antibiotics, have you tried supplementing with a good probiotic meant for vaginal health? I use Fem-Dophilus, but I'm not sure if that's available by you.

One of the first things my Naturopath and Functional Medicine Practitioner focused on was improving my gut health because a large part of your immune system is in your gut. They gave me all sorts of supplements, which did nothing, but a diet rich in whole plant foods as well as fermented foods or things like kefir can help. Unfortunately none of that made any difference for me, but it doesn't hurt to give your immune system a good boost with a healthy diet.

My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after every urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day. I personally haven't used it yet, but the other patients of his that I spoke to said it was a life saver. It is supposed to reduce inflammation, itching, and irritation. This may be worth looking into.

Now I'm sure you know this already, but I have to add it all just in case. Eliminate all chemicals that are coming into contact with your vulva. This includes: flushable or feminine wipes (they are the devil in wipe form), shampoo (my OBGYN has me washing my hair in the sink - he says it only takes a single drop in the shower to set off a reaction), laundry detergent (I make my own, but my OBGYN recommends All Free & Clear or Cheer Free & Gentle), shaving cream (my OBGYN recommends Vanicream Shaving Cream), super soft or scented toilet paper (lots of chemicals go into making super plush TP), douches, etc.

I hope you find relief soon! Hang in there, this doesn't have to be forever Smile

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Re: Hello from Northern Norway

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