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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Hello from Northern Norway

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Hello from Northern Norway

Post  Antaea on Wed May 11, 2016 6:06 pm

Hi, very glad that I just found this forum. Today my fears became confirmed: The burning, itching everlasting pain in all parts of the vulva and the labia major is indeed generalized vulvodynia.
But let me introduce myself:
I am writing from Northern Norway, only a few hours drive south of the North Cape. Born German, I live there for nearly 30 years, teaching music at the local School for Culture. I am 66 years old and shall retire at the end of this year. I live alone after a marriage with an alcoholic long ago. I have no kids (due to heavy migraines all my life), but a precious cat-family of 5. Antaea is my pagan name, I am eclectic witch and deeply rotfasted in our subarctic nature - or in nature generally. But next year I shall move to the Swedish island of Gotland in the Baltic to live there with my sister for the rest of our lives.
I had an episode of nerve-pain in 2007/2008, when the doctor found out that my estrogen levels were extremely low. After 9 months they were normal and the pain ceased.
In March this year I had a cystitis and was treated with 3 different antibiotics. I got problems and pains in the vulva, but meant, it was due to the cystitis. But it never got away, it only became worse. Now I have it 24/7 and no painkiller, no topical treatment works.Only Tramadol takes the top of the pain at night and gives me a day with little pain the morning after. I observe all the general advices like no soap etc. But I have to admit: Pain will be a part of my life until I die. On Friday i'll start with Gabapentin, and a fortnight later I shall meet my doctor for an evaluation.
I need therapy suggestions and, first of all, input in how to live a good life in spite of the pain. I am open too for alternative therapies.
I also hope to be able to give something back to you. You can find me under my user name on Facebook too.
Whishing you a painless day in your part of the world. Here it is 8 pm.
God kveld (Good evening) from Antaea
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Re: Hello from Northern Norway

Post  emalita on Wed May 11, 2016 6:26 pm

Hi Antaea!

Those darn antibiotics are what do a lot of us in unfortunately. My pain was caused by 4 rounds of very unnecessary antibiotics that I had trusted my doctors to prescribe appropriately (I know better now).

I'm absolutely no expert, but I've been around the block more than once trying to relieve my pain the last 2 years. So, I'm happy to share what has and hasn't worked for me so far. Can you provide more details on your pain? You mention it is burning and itching on your entire vulva. Are any areas worse than others (e.g. inner labia, vaginal opening, etc.)? Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)? Is the pain worse at any particular time (e.g. going to the bathroom, after showering, etc.)? What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)? Do you have excessive discharge that makes your pain worse?

Sorry for all the questions, but the more details you can give, the better suggestions we can provide without boring you with some that probably won't be relevant to your pain. Obviously only provide information for what you are comfortable sharing. Nothing is too much information here...we've all heard it before Wink

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Re: Hello from Northern Norway

Post  Antaea on Wed May 11, 2016 8:44 pm

Hi Emalita,
thank you for asking. That's the reason why I am here.
I have no discharge at all. After the menopause I am very dry. The pain is mainly and worst in the vestibulum and the clitoris, but can change to the inner labia. The outer labia feel like sitting on a brush. All other conditions had been ruled out. No vaginitis, no bacteria, vira, no herpes or papilloma-virus. No lichen sclerosus. The vulva looks just fine. I use estrogen-cream (Ovesterin) which is not availalbe in the States, only in Canada. I used hyaloronic acid too, but it made things worse after a time. Just now I rinse with water only every time I am in the bath room and use almond oil. I also use Lidocain topical at night and Tramadol every second day. I shall start with Gabapentin and I am very afraid of the side- effects because I shall travel 2300 km by car on June 15th with the caravan and my cat-family. More about that in a second thread.
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Antaea

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Re: Hello from Northern Norway

Post  emalita on Wed May 11, 2016 9:55 pm

Hmm...I'm just going to start rambling off ideas, and I hope some are helpful Very Happy

Since your pain started after taking antibiotics, have you tried supplementing with a good probiotic meant for vaginal health? I use Fem-Dophilus, but I'm not sure if that's available by you.

One of the first things my Naturopath and Functional Medicine Practitioner focused on was improving my gut health because a large part of your immune system is in your gut. They gave me all sorts of supplements, which did nothing, but a diet rich in whole plant foods as well as fermented foods or things like kefir can help. Unfortunately none of that made any difference for me, but it doesn't hurt to give your immune system a good boost with a healthy diet.

My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after every urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day. I personally haven't used it yet, but the other patients of his that I spoke to said it was a life saver. It is supposed to reduce inflammation, itching, and irritation. This may be worth looking into.

Now I'm sure you know this already, but I have to add it all just in case. Eliminate all chemicals that are coming into contact with your vulva. This includes: flushable or feminine wipes (they are the devil in wipe form), shampoo (my OBGYN has me washing my hair in the sink - he says it only takes a single drop in the shower to set off a reaction), laundry detergent (I make my own, but my OBGYN recommends All Free & Clear or Cheer Free & Gentle), shaving cream (my OBGYN recommends Vanicream Shaving Cream), super soft or scented toilet paper (lots of chemicals go into making super plush TP), douches, etc.

I hope you find relief soon! Hang in there, this doesn't have to be forever Smile

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Re: Hello from Northern Norway

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