Vulvodynia Support
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» Hope to all my suffering ladies
Gabapentin - and other questions around this EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Gabapentin - and other questions around this EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Gabapentin - and other questions around this EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Gabapentin - and other questions around this EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Gabapentin - and other questions around this EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Gabapentin - and other questions around this EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Gabapentin - and other questions around this EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Gabapentin - and other questions around this EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Gabapentin - and other questions around this EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Gabapentin - and other questions around this

2 posters

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Gabapentin - and other questions around this Empty Gabapentin - and other questions around this

Post  Antaea Wed May 11, 2016 8:29 pm

Today I was diagnosed with generalized vulvodynia and I shall start with Neurontin, 1 tablett 300 mg at night. But I am very afraid of the side-effects. I have to drive 2300 km to Southern Scandinavia on June 15th, returning to Hammerfest two months later. And have to prepare the caravan for the travel in a couple of days. No possibility to take a plane. I have cats with whom I travel with. They need special treatment which only I can give them. And the stage on Gotland is more than a holiday. My sister and I have to discuss a lot of issues around my moving to Gotland next year. This cannot be done by chatting and skype only.
Therefore my questions: When I start taking Gabapentin, can I stop when I feel I will not manage to drive to Gotland? Or must this treatment last for a long time?
How long does it take until I can drive? Can I stop taking the drug if it does not work, or the side-effects are still dominant after two weeks. My doc told me that they will last so long.
Would it be better not to take the drug in this situation? My sister cannot visit me. She has the same problems with her cats. None can take care of them.
What are the most common side-effects you experienced? In the Norwegian catalogue I found an aweful and frightening lot of them.
I told the doc of my trip and that I must do it, but he is young and inexperienced. His superviser too meant I should start with Neurontin. But he does not care about his patients. He is brilliant but does not communicate at all.
I feel very concerned about starting a treatment which I cannot finish in case. Or where the side-effects makes it impossible to drive and to work over a period longer than 2 or 3 weeks. Then the pain would be easier to manage than not travelling to Gotland at all.
Thank you all for your opinion.
Antaea
Antaea

Posts : 29
Join date : 2016-05-11
Age : 74
Location : Gotland/Sweden

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Gabapentin - and other questions around this Empty Re: Gabapentin - and other questions around this

Post  emalita Wed May 11, 2016 9:20 pm

I'm not sure if this would be available where you live, but my doctor prescribed gabapentin in a compounded cream that I was to use directly on my labia. I would highly suggest looking into having it put in a compounded cream because that could greatly reduce the side effects.

I personally chose not to use it because I know my issue is not nerve related, but my doctor said that some people get to a point of relief and can wean themselves off of it. Unfortunately there are others that are on it for life. I have read that some women have relief for several months and then the pain returns. So everyone's experience is different.

I hope it works for you!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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