Log in

I forgot my password

Latest topics
» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Gabapentin - and other questions around this

Go down

Gabapentin - and other questions around this

Post  Antaea on Wed May 11, 2016 8:29 pm

Today I was diagnosed with generalized vulvodynia and I shall start with Neurontin, 1 tablett 300 mg at night. But I am very afraid of the side-effects. I have to drive 2300 km to Southern Scandinavia on June 15th, returning to Hammerfest two months later. And have to prepare the caravan for the travel in a couple of days. No possibility to take a plane. I have cats with whom I travel with. They need special treatment which only I can give them. And the stage on Gotland is more than a holiday. My sister and I have to discuss a lot of issues around my moving to Gotland next year. This cannot be done by chatting and skype only.
Therefore my questions: When I start taking Gabapentin, can I stop when I feel I will not manage to drive to Gotland? Or must this treatment last for a long time?
How long does it take until I can drive? Can I stop taking the drug if it does not work, or the side-effects are still dominant after two weeks. My doc told me that they will last so long.
Would it be better not to take the drug in this situation? My sister cannot visit me. She has the same problems with her cats. None can take care of them.
What are the most common side-effects you experienced? In the Norwegian catalogue I found an aweful and frightening lot of them.
I told the doc of my trip and that I must do it, but he is young and inexperienced. His superviser too meant I should start with Neurontin. But he does not care about his patients. He is brilliant but does not communicate at all.
I feel very concerned about starting a treatment which I cannot finish in case. Or where the side-effects makes it impossible to drive and to work over a period longer than 2 or 3 weeks. Then the pain would be easier to manage than not travelling to Gotland at all.
Thank you all for your opinion.
avatar
Antaea

Posts : 29
Join date : 2016-05-11
Age : 68
Location : Gotland/Sweden

View user profile

Back to top Go down

Re: Gabapentin - and other questions around this

Post  emalita on Wed May 11, 2016 9:20 pm

I'm not sure if this would be available where you live, but my doctor prescribed gabapentin in a compounded cream that I was to use directly on my labia. I would highly suggest looking into having it put in a compounded cream because that could greatly reduce the side effects.

I personally chose not to use it because I know my issue is not nerve related, but my doctor said that some people get to a point of relief and can wean themselves off of it. Unfortunately there are others that are on it for life. I have read that some women have relief for several months and then the pain returns. So everyone's experience is different.

I hope it works for you!

emalita

Posts : 236
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum