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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Gabapentin - and other questions around this

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Gabapentin - and other questions around this

Post  Antaea on Wed May 11, 2016 8:29 pm

Today I was diagnosed with generalized vulvodynia and I shall start with Neurontin, 1 tablett 300 mg at night. But I am very afraid of the side-effects. I have to drive 2300 km to Southern Scandinavia on June 15th, returning to Hammerfest two months later. And have to prepare the caravan for the travel in a couple of days. No possibility to take a plane. I have cats with whom I travel with. They need special treatment which only I can give them. And the stage on Gotland is more than a holiday. My sister and I have to discuss a lot of issues around my moving to Gotland next year. This cannot be done by chatting and skype only.
Therefore my questions: When I start taking Gabapentin, can I stop when I feel I will not manage to drive to Gotland? Or must this treatment last for a long time?
How long does it take until I can drive? Can I stop taking the drug if it does not work, or the side-effects are still dominant after two weeks. My doc told me that they will last so long.
Would it be better not to take the drug in this situation? My sister cannot visit me. She has the same problems with her cats. None can take care of them.
What are the most common side-effects you experienced? In the Norwegian catalogue I found an aweful and frightening lot of them.
I told the doc of my trip and that I must do it, but he is young and inexperienced. His superviser too meant I should start with Neurontin. But he does not care about his patients. He is brilliant but does not communicate at all.
I feel very concerned about starting a treatment which I cannot finish in case. Or where the side-effects makes it impossible to drive and to work over a period longer than 2 or 3 weeks. Then the pain would be easier to manage than not travelling to Gotland at all.
Thank you all for your opinion.
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Antaea

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Re: Gabapentin - and other questions around this

Post  emalita on Wed May 11, 2016 9:20 pm

I'm not sure if this would be available where you live, but my doctor prescribed gabapentin in a compounded cream that I was to use directly on my labia. I would highly suggest looking into having it put in a compounded cream because that could greatly reduce the side effects.

I personally chose not to use it because I know my issue is not nerve related, but my doctor said that some people get to a point of relief and can wean themselves off of it. Unfortunately there are others that are on it for life. I have read that some women have relief for several months and then the pain returns. So everyone's experience is different.

I hope it works for you!

emalita

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