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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


Gabapentin - and other questions around this

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Gabapentin - and other questions around this

Post  Antaea on Wed May 11, 2016 8:29 pm

Today I was diagnosed with generalized vulvodynia and I shall start with Neurontin, 1 tablett 300 mg at night. But I am very afraid of the side-effects. I have to drive 2300 km to Southern Scandinavia on June 15th, returning to Hammerfest two months later. And have to prepare the caravan for the travel in a couple of days. No possibility to take a plane. I have cats with whom I travel with. They need special treatment which only I can give them. And the stage on Gotland is more than a holiday. My sister and I have to discuss a lot of issues around my moving to Gotland next year. This cannot be done by chatting and skype only.
Therefore my questions: When I start taking Gabapentin, can I stop when I feel I will not manage to drive to Gotland? Or must this treatment last for a long time?
How long does it take until I can drive? Can I stop taking the drug if it does not work, or the side-effects are still dominant after two weeks. My doc told me that they will last so long.
Would it be better not to take the drug in this situation? My sister cannot visit me. She has the same problems with her cats. None can take care of them.
What are the most common side-effects you experienced? In the Norwegian catalogue I found an aweful and frightening lot of them.
I told the doc of my trip and that I must do it, but he is young and inexperienced. His superviser too meant I should start with Neurontin. But he does not care about his patients. He is brilliant but does not communicate at all.
I feel very concerned about starting a treatment which I cannot finish in case. Or where the side-effects makes it impossible to drive and to work over a period longer than 2 or 3 weeks. Then the pain would be easier to manage than not travelling to Gotland at all.
Thank you all for your opinion.
Antaea
Antaea

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Age : 69
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Re: Gabapentin - and other questions around this

Post  emalita on Wed May 11, 2016 9:20 pm

I'm not sure if this would be available where you live, but my doctor prescribed gabapentin in a compounded cream that I was to use directly on my labia. I would highly suggest looking into having it put in a compounded cream because that could greatly reduce the side effects.

I personally chose not to use it because I know my issue is not nerve related, but my doctor said that some people get to a point of relief and can wean themselves off of it. Unfortunately there are others that are on it for life. I have read that some women have relief for several months and then the pain returns. So everyone's experience is different.

I hope it works for you!

emalita

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Join date : 2016-03-29
Location : USA

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