Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

V and W ...for Work

Go down

V and W ...for Work

Post  Antaea on Thu May 12, 2016 8:07 am

Vulvodynia and Work... just curious:
How do you manage to work with V? How did your colleagues react? Were you open about your condition? How did your employer react?
Just now I find it very exhausting to work as a teacher. I am open to my colleages and of course my headmaster, even towards my students - I work as a music teacher at our local School for Culture. I "classify" my information, but all know that I suffer from uncurable nerve-pain " downstairs". If I react somewhat "weird" it may have its reason in my pain just now.
The reaction so far from all colleages and parents of my students has been positive without exception.
But I have to motivate me every second to work. And when I have closed the door to my room at 8.30 pm I could cry of pain and exhaustion.

Posts : 29
Join date : 2016-05-11
Age : 68
Location : Gotland/Sweden

View user profile

Back to top Go down

Re: V and W ...for Work

Post  emalita on Thu May 12, 2016 2:02 pm

Hi again! I'm sure you're sick of hearing from me on your posts Wink

I am lucky enough to work from home; so I don't have to explain to anyone (other than my fiancé) why I'm sitting very unladylike or taking a long time in the bathroom.

Personally, I don't feel that it is anyone's business what I'm going through unless I want to tell them, which I don't, or unless it impacts my job. However, due to seeing many different specialists that are often several hours away from me, I did send my boss a confidential email briefly indicating that I have a medical condition that requires care from doctors several hours away from me, and I reassured her that it would not impact my job other than the occasional last minute time off request. The only reason I told her anything was so she knew that there may be a need for me to take last minute time off. I am extremely lucky to work for a great company in a very flexible position where I get to pretty much call the shots on my schedule. As I know this isn't the case for most people, I can certainly understand the need to be more open about the nature of the condition.

I cannot imagine how difficult it must be to be in front of students all day while being in pain. That takes great strength to not only withstand the physical pain but the emotional pain as well.

Stay positive. Although my pain isn't gone, I've come a long way from where I was several months ago. Just keep trying new things, and it will get better with time.


Posts : 221
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum