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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


V and W ...for Work

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V and W ...for Work

Post  Antaea on Thu May 12, 2016 8:07 am

Vulvodynia and Work... just curious:
How do you manage to work with V? How did your colleagues react? Were you open about your condition? How did your employer react?
Just now I find it very exhausting to work as a teacher. I am open to my colleages and of course my headmaster, even towards my students - I work as a music teacher at our local School for Culture. I "classify" my information, but all know that I suffer from uncurable nerve-pain " downstairs". If I react somewhat "weird" it may have its reason in my pain just now.
The reaction so far from all colleages and parents of my students has been positive without exception.
But I have to motivate me every second to work. And when I have closed the door to my room at 8.30 pm I could cry of pain and exhaustion.
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Re: V and W ...for Work

Post  emalita on Thu May 12, 2016 2:02 pm

Hi again! I'm sure you're sick of hearing from me on your posts Wink

I am lucky enough to work from home; so I don't have to explain to anyone (other than my fiancé) why I'm sitting very unladylike or taking a long time in the bathroom.

Personally, I don't feel that it is anyone's business what I'm going through unless I want to tell them, which I don't, or unless it impacts my job. However, due to seeing many different specialists that are often several hours away from me, I did send my boss a confidential email briefly indicating that I have a medical condition that requires care from doctors several hours away from me, and I reassured her that it would not impact my job other than the occasional last minute time off request. The only reason I told her anything was so she knew that there may be a need for me to take last minute time off. I am extremely lucky to work for a great company in a very flexible position where I get to pretty much call the shots on my schedule. As I know this isn't the case for most people, I can certainly understand the need to be more open about the nature of the condition.

I cannot imagine how difficult it must be to be in front of students all day while being in pain. That takes great strength to not only withstand the physical pain but the emotional pain as well.

Stay positive. Although my pain isn't gone, I've come a long way from where I was several months ago. Just keep trying new things, and it will get better with time.

emalita

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