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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

V and W ...for Work

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V and W ...for Work

Post  Antaea on Thu May 12, 2016 8:07 am

Vulvodynia and Work... just curious:
How do you manage to work with V? How did your colleagues react? Were you open about your condition? How did your employer react?
Just now I find it very exhausting to work as a teacher. I am open to my colleages and of course my headmaster, even towards my students - I work as a music teacher at our local School for Culture. I "classify" my information, but all know that I suffer from uncurable nerve-pain " downstairs". If I react somewhat "weird" it may have its reason in my pain just now.
The reaction so far from all colleages and parents of my students has been positive without exception.
But I have to motivate me every second to work. And when I have closed the door to my room at 8.30 pm I could cry of pain and exhaustion.

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Re: V and W ...for Work

Post  emalita on Thu May 12, 2016 2:02 pm

Hi again! I'm sure you're sick of hearing from me on your posts Wink

I am lucky enough to work from home; so I don't have to explain to anyone (other than my fiancé) why I'm sitting very unladylike or taking a long time in the bathroom.

Personally, I don't feel that it is anyone's business what I'm going through unless I want to tell them, which I don't, or unless it impacts my job. However, due to seeing many different specialists that are often several hours away from me, I did send my boss a confidential email briefly indicating that I have a medical condition that requires care from doctors several hours away from me, and I reassured her that it would not impact my job other than the occasional last minute time off request. The only reason I told her anything was so she knew that there may be a need for me to take last minute time off. I am extremely lucky to work for a great company in a very flexible position where I get to pretty much call the shots on my schedule. As I know this isn't the case for most people, I can certainly understand the need to be more open about the nature of the condition.

I cannot imagine how difficult it must be to be in front of students all day while being in pain. That takes great strength to not only withstand the physical pain but the emotional pain as well.

Stay positive. Although my pain isn't gone, I've come a long way from where I was several months ago. Just keep trying new things, and it will get better with time.


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