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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Thanks for this forum - I am desperate.

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Thanks for this forum - I am desperate.

Post  kell on Fri May 13, 2016 6:04 pm

Hi, I'm 60 and have had painful sex for several years - its to the point where we don't even have sex...  and that sucks. Plus I understand that not 'using it'  means I am 'losing it'...  which also sucks.

I'm worried for my marriage - and I really want to have decent sex again - (decent is fine, wouldn't I love Hugely Satisfying Orgasmic Sex again - yes, but right now just fairly pain-free is fine).  I hope to hear of some interesting and helpful things from you ladies.

Basically,it appears to me my most painful part is right at the opening of the vagina - once we blast through that it doesn't "seem" like the rest of the way is that painful, but the pain from the opening is so constant during the event that it is hard to tell and very, very hard to concentrate on anything pleasurable.  It's awful.  I love my husband so much and he loves me but this is starting to create a wall between us.  Sad and depressing - never felt old in my life but now I do.

In the past I've used Replens, Astroglide, KY and Estring.... Estring was starting to work fairly well but then I had two incidences where it attached itself to my cervix -- the last time I could NOT get it out and the dear husband had to GET IT.  Tell me that wasn't horrible and embarrassing.  So not fair.  So I was done with that.

I just ordered Carlson's Key-E capsules and some YES lubricant in hopes to get things going again... I hope it's not too late.  I was also thinking of rubbing some organic coconut oil on the opening area til the products arrive.  Has anyone tried these things??

I have also gotten a compounded estrogen prescription with some progesterone pills, I believe - but balked when she said it was like $150 for the script!! (over $300 without the insurance! HIghway robbery!!) so i didn't try that. I left so discouraged.

Anyway, that's pretty much it.  I'm glad to have at least found a place where I can see others have similar situations, and that actually helps a little.

kell

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Re: Thanks for this forum - I am desperate.

Post  PainBlogger on Fri May 13, 2016 6:34 pm

I've been using Yes lubricant for my physio exercises. I've not had any irritation from it. I did try coconut oil and it stung a bit but that was a while ago when my symptoms were worse, so maybe it would be ok now. Whatever you try, try on a small area first and wait to check for any bad reaction before using more.

Trying to continue despite the pain can cause the pelvic floor muscles to tighten up and in turn exacerbate the pain. Do you have access to a physiotherapist/PT specialising in pelvic pain that your doctor could refer you to?

PainBlogger

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Re: Thanks for this forum - I am desperate.

Post  kell on Fri May 13, 2016 6:42 pm

Thanks PainBlogger for your response! I don't know about the physiotherapist - I've never even heard of it in reference to this so maybe it will be something I'll check out. It's so weird, I've suffered with this for so long, tried some things w/ varying success - yet I'd go online and find very little real or helpful information on anything!

Today I just got immersed in it all (found the terms vestibule, vulvodynia etc. for first time) - and was looking specifically for a current, used forum where women discussed this - so happy to have found this one.

kell

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Re: Thanks for this forum - I am desperate.

Post  emalita on Fri May 13, 2016 7:57 pm

I've used YES lubricant and coconut oil in the past. Unfortunately I've had a reaction to both (e.g. stinging, burning, etc.). However, prior to this whole mess starting for me, I had used both with no pain. My skin is extremely sensitive and it tends to react to mostly everything nowadays.

If your issue is more pain and less skin sensitivity, then I think you will be fine with either. I personally think coconut oil would be more gentle simply because the YES waterbased lubricant has citric acid in it, but when I was able to have sex a LONG time ago, coconut oil was a no no because my fiancé and I used condoms.

I absolutely agree with PainBlogger. Do some research on pelvic floor physical therapy, and see if that sounds like it may help your issue.

Good luck!

emalita

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Re: Thanks for this forum - I am desperate.

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