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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Thanks for this forum - I am desperate.

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Thanks for this forum - I am desperate.

Post  kell on Fri May 13, 2016 6:04 pm

Hi, I'm 60 and have had painful sex for several years - its to the point where we don't even have sex...  and that sucks. Plus I understand that not 'using it'  means I am 'losing it'...  which also sucks.

I'm worried for my marriage - and I really want to have decent sex again - (decent is fine, wouldn't I love Hugely Satisfying Orgasmic Sex again - yes, but right now just fairly pain-free is fine).  I hope to hear of some interesting and helpful things from you ladies.

Basically,it appears to me my most painful part is right at the opening of the vagina - once we blast through that it doesn't "seem" like the rest of the way is that painful, but the pain from the opening is so constant during the event that it is hard to tell and very, very hard to concentrate on anything pleasurable.  It's awful.  I love my husband so much and he loves me but this is starting to create a wall between us.  Sad and depressing - never felt old in my life but now I do.

In the past I've used Replens, Astroglide, KY and Estring.... Estring was starting to work fairly well but then I had two incidences where it attached itself to my cervix -- the last time I could NOT get it out and the dear husband had to GET IT.  Tell me that wasn't horrible and embarrassing.  So not fair.  So I was done with that.

I just ordered Carlson's Key-E capsules and some YES lubricant in hopes to get things going again... I hope it's not too late.  I was also thinking of rubbing some organic coconut oil on the opening area til the products arrive.  Has anyone tried these things??

I have also gotten a compounded estrogen prescription with some progesterone pills, I believe - but balked when she said it was like $150 for the script!! (over $300 without the insurance! HIghway robbery!!) so i didn't try that. I left so discouraged.

Anyway, that's pretty much it.  I'm glad to have at least found a place where I can see others have similar situations, and that actually helps a little.

kell

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Re: Thanks for this forum - I am desperate.

Post  PainBlogger on Fri May 13, 2016 6:34 pm

I've been using Yes lubricant for my physio exercises. I've not had any irritation from it. I did try coconut oil and it stung a bit but that was a while ago when my symptoms were worse, so maybe it would be ok now. Whatever you try, try on a small area first and wait to check for any bad reaction before using more.

Trying to continue despite the pain can cause the pelvic floor muscles to tighten up and in turn exacerbate the pain. Do you have access to a physiotherapist/PT specialising in pelvic pain that your doctor could refer you to?

PainBlogger

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Re: Thanks for this forum - I am desperate.

Post  kell on Fri May 13, 2016 6:42 pm

Thanks PainBlogger for your response! I don't know about the physiotherapist - I've never even heard of it in reference to this so maybe it will be something I'll check out. It's so weird, I've suffered with this for so long, tried some things w/ varying success - yet I'd go online and find very little real or helpful information on anything!

Today I just got immersed in it all (found the terms vestibule, vulvodynia etc. for first time) - and was looking specifically for a current, used forum where women discussed this - so happy to have found this one.

kell

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Re: Thanks for this forum - I am desperate.

Post  emalita on Fri May 13, 2016 7:57 pm

I've used YES lubricant and coconut oil in the past. Unfortunately I've had a reaction to both (e.g. stinging, burning, etc.). However, prior to this whole mess starting for me, I had used both with no pain. My skin is extremely sensitive and it tends to react to mostly everything nowadays.

If your issue is more pain and less skin sensitivity, then I think you will be fine with either. I personally think coconut oil would be more gentle simply because the YES waterbased lubricant has citric acid in it, but when I was able to have sex a LONG time ago, coconut oil was a no no because my fiancé and I used condoms.

I absolutely agree with PainBlogger. Do some research on pelvic floor physical therapy, and see if that sounds like it may help your issue.

Good luck!

emalita

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Re: Thanks for this forum - I am desperate.

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