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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Thanks for this forum - I am desperate.

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Thanks for this forum - I am desperate.

Post  kell on Fri May 13, 2016 6:04 pm

Hi, I'm 60 and have had painful sex for several years - its to the point where we don't even have sex...  and that sucks. Plus I understand that not 'using it'  means I am 'losing it'...  which also sucks.

I'm worried for my marriage - and I really want to have decent sex again - (decent is fine, wouldn't I love Hugely Satisfying Orgasmic Sex again - yes, but right now just fairly pain-free is fine).  I hope to hear of some interesting and helpful things from you ladies.

Basically,it appears to me my most painful part is right at the opening of the vagina - once we blast through that it doesn't "seem" like the rest of the way is that painful, but the pain from the opening is so constant during the event that it is hard to tell and very, very hard to concentrate on anything pleasurable.  It's awful.  I love my husband so much and he loves me but this is starting to create a wall between us.  Sad and depressing - never felt old in my life but now I do.

In the past I've used Replens, Astroglide, KY and Estring.... Estring was starting to work fairly well but then I had two incidences where it attached itself to my cervix -- the last time I could NOT get it out and the dear husband had to GET IT.  Tell me that wasn't horrible and embarrassing.  So not fair.  So I was done with that.

I just ordered Carlson's Key-E capsules and some YES lubricant in hopes to get things going again... I hope it's not too late.  I was also thinking of rubbing some organic coconut oil on the opening area til the products arrive.  Has anyone tried these things??

I have also gotten a compounded estrogen prescription with some progesterone pills, I believe - but balked when she said it was like $150 for the script!! (over $300 without the insurance! HIghway robbery!!) so i didn't try that. I left so discouraged.

Anyway, that's pretty much it.  I'm glad to have at least found a place where I can see others have similar situations, and that actually helps a little.

kell

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Re: Thanks for this forum - I am desperate.

Post  PainBlogger on Fri May 13, 2016 6:34 pm

I've been using Yes lubricant for my physio exercises. I've not had any irritation from it. I did try coconut oil and it stung a bit but that was a while ago when my symptoms were worse, so maybe it would be ok now. Whatever you try, try on a small area first and wait to check for any bad reaction before using more.

Trying to continue despite the pain can cause the pelvic floor muscles to tighten up and in turn exacerbate the pain. Do you have access to a physiotherapist/PT specialising in pelvic pain that your doctor could refer you to?

PainBlogger

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Re: Thanks for this forum - I am desperate.

Post  kell on Fri May 13, 2016 6:42 pm

Thanks PainBlogger for your response! I don't know about the physiotherapist - I've never even heard of it in reference to this so maybe it will be something I'll check out. It's so weird, I've suffered with this for so long, tried some things w/ varying success - yet I'd go online and find very little real or helpful information on anything!

Today I just got immersed in it all (found the terms vestibule, vulvodynia etc. for first time) - and was looking specifically for a current, used forum where women discussed this - so happy to have found this one.

kell

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Re: Thanks for this forum - I am desperate.

Post  emalita on Fri May 13, 2016 7:57 pm

I've used YES lubricant and coconut oil in the past. Unfortunately I've had a reaction to both (e.g. stinging, burning, etc.). However, prior to this whole mess starting for me, I had used both with no pain. My skin is extremely sensitive and it tends to react to mostly everything nowadays.

If your issue is more pain and less skin sensitivity, then I think you will be fine with either. I personally think coconut oil would be more gentle simply because the YES waterbased lubricant has citric acid in it, but when I was able to have sex a LONG time ago, coconut oil was a no no because my fiancé and I used condoms.

I absolutely agree with PainBlogger. Do some research on pelvic floor physical therapy, and see if that sounds like it may help your issue.

Good luck!

emalita

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Re: Thanks for this forum - I am desperate.

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