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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


What do I need after a vestibulectomy?

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What do I need after a vestibulectomy?

Post  Mll2013 on Fri May 13, 2016 11:58 pm

Hello,
I am new on here and I will be having a vestibulectomy in a few weeks for my provoked vestibulydinia. I am trying to figure out everything I need and if there are any tips to help ease the recovery? What kind of clothes should I bring to the hospital afterwards? I figured something loose? What kinds of ice or ice packs worked best? Etc... Any tips would really be appreciated! I am nervous for the surgery, but am praying it will help, it is my last option! Thank you all in advance!

Mll2013

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Re: What do I need after a vestibulectomy?

Post  jen007 on Sun May 15, 2016 7:23 pm

Hi Mll2013,

Hope I'm getting back to you before your surgery so you can be properly prepared for your after care! I had a vestibulectomy 4 years ago for my PVD as well. Wasn't easy to find information on how things went post surgery. I have some tips that I hope will help you during your recovery period. First things first, take the time needed to recover, meaning don't rush back into everyday activities before you're ready. I stayed in bed for the first week or so before I started to walk just around my house. I suggest if you're working you take off for at least 3-4 weeks. Something I did was when I did try to walk I kept my knees together...sounds strange, but you don't want to pull stitches from walking around. As far as what to wear/ bring to the hospital, I wore very loose comfortable clothing. I did have underwear, which was 100% cotton. I'm not sure if I brought pads or if they were given to me, but if you're going to be traveling home you'll need a pad, but only if you're traveling otherwise don't wear one - it will irritate you. For ice packs, gel is the best. You can mold them just how you want them. I also filled some ziplock bags with water and stuck them in the freezer. Always keep a cotton towel wrapped around the ice packs you use - they're the most sanitary plus you need a barrier between your skin and the ice pack. Before all of that, you should definitely buy yourself a sitz bath - its a little tub you stick over your toilet that you fill with water to soak yourself in. I wouldn't recommend getting in and out of a tub for a while. You'll risk pulling stitches or get stuck in there. I soaked up to 3 times a day with warm water. You can even put a little bit of salt in the water to help heal your skin and keep it clean. Don't put any soap down there. Also, another thing you can buy are large cotton pads to sit on while you're in bed. They are like the kind you buy to house train your dog. These will come in handy when you have your period. Don't use pads for your period! I didn't start to use pads until after about a month or 2. If you can, try to stay on the first level of your home or somewhere you won't have to use stairs...lifting your legs to use the stair can pull stitches. My doctor told me I could walk backwards down the stairs, that way I don't have to lift my legs as much, but that's not very safe to do - especially if you're alone.

I hope these tips will help you! I'll try to check back here to see if you have any questions. Feel free to direct message me here if you have a pressing question about recovery...I have it set up so I get a notification when someone DM's me.

Good Luck!

-Jen


Last edited by jen007 on Sun May 15, 2016 7:23 pm; edited 1 time in total (Reason for editing : SP)

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Re: What do I need after a vestibulectomy?

Post  Mll2013 on Sat Jun 04, 2016 11:19 pm

Thank you Jen! Your info had been helpful. I had my surgery yesterday. In a lot of pain, but hoping it will all be worth it! I was wondering if you remembered how long it was until you could sleep on your side? Also, for your sitz bath did you just use warm water? I tried on earlier and it was very painful, I will try again tomorrow. For now I am just rinsing off with a bottle.
Lastly, I was just curious how are you doing now 4 years after the surgery? Have your pains been resolved?
Thanks again for your previous response, it is nice to have someone to ask questions to

Mll2013

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Re: What do I need after a vestibulectomy?

Post  emalita on Tue Jun 07, 2016 6:39 pm

Mll2013 - Just checking in to see how you're doing. I hope the pain from surgery is getting a little less every day sunny

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Re: What do I need after a vestibulectomy?

Post  Mll2013 on Tue Jun 07, 2016 6:51 pm

Today is a bad day. I need to have a bowel movement but the pain from the stitches makes it hard to push. It is excruciating. I've been able to go a small amount but am not able to finish. I've not had much blood the last couple days; but now there is a lot. Is this normal?

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Re: What do I need after a vestibulectomy?

Post  emalita on Tue Jun 07, 2016 7:09 pm

I'm so sorry to hear that. I've never had the surgery so I can't speak to what is normal. However, from other injuries that I've had stitches with, having more blood as the days go on wasn't normal unless I had a stitch stretch too much or if the blood was actually leftover dried blood that was now washing away. I'm sure it is too painful for you to take a look down there, but that may be the only way to see where the blood is coming from.

As far as painful bowel movements, have you tried using a stool softener? I'm sure they make OTC ones that you can buy, but I also think aloe vera is used for softening stools, which can be purchased at a natural foods store.

When is your next follow up with your doctor?

I hope you heal quickly!

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Re: What do I need after a vestibulectomy?

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