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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


What do I need after a vestibulectomy?

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What do I need after a vestibulectomy?

Post  Mll2013 on Fri May 13, 2016 11:58 pm

Hello,
I am new on here and I will be having a vestibulectomy in a few weeks for my provoked vestibulydinia. I am trying to figure out everything I need and if there are any tips to help ease the recovery? What kind of clothes should I bring to the hospital afterwards? I figured something loose? What kinds of ice or ice packs worked best? Etc... Any tips would really be appreciated! I am nervous for the surgery, but am praying it will help, it is my last option! Thank you all in advance!

Mll2013

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Re: What do I need after a vestibulectomy?

Post  jen007 on Sun May 15, 2016 7:23 pm

Hi Mll2013,

Hope I'm getting back to you before your surgery so you can be properly prepared for your after care! I had a vestibulectomy 4 years ago for my PVD as well. Wasn't easy to find information on how things went post surgery. I have some tips that I hope will help you during your recovery period. First things first, take the time needed to recover, meaning don't rush back into everyday activities before you're ready. I stayed in bed for the first week or so before I started to walk just around my house. I suggest if you're working you take off for at least 3-4 weeks. Something I did was when I did try to walk I kept my knees together...sounds strange, but you don't want to pull stitches from walking around. As far as what to wear/ bring to the hospital, I wore very loose comfortable clothing. I did have underwear, which was 100% cotton. I'm not sure if I brought pads or if they were given to me, but if you're going to be traveling home you'll need a pad, but only if you're traveling otherwise don't wear one - it will irritate you. For ice packs, gel is the best. You can mold them just how you want them. I also filled some ziplock bags with water and stuck them in the freezer. Always keep a cotton towel wrapped around the ice packs you use - they're the most sanitary plus you need a barrier between your skin and the ice pack. Before all of that, you should definitely buy yourself a sitz bath - its a little tub you stick over your toilet that you fill with water to soak yourself in. I wouldn't recommend getting in and out of a tub for a while. You'll risk pulling stitches or get stuck in there. I soaked up to 3 times a day with warm water. You can even put a little bit of salt in the water to help heal your skin and keep it clean. Don't put any soap down there. Also, another thing you can buy are large cotton pads to sit on while you're in bed. They are like the kind you buy to house train your dog. These will come in handy when you have your period. Don't use pads for your period! I didn't start to use pads until after about a month or 2. If you can, try to stay on the first level of your home or somewhere you won't have to use stairs...lifting your legs to use the stair can pull stitches. My doctor told me I could walk backwards down the stairs, that way I don't have to lift my legs as much, but that's not very safe to do - especially if you're alone.

I hope these tips will help you! I'll try to check back here to see if you have any questions. Feel free to direct message me here if you have a pressing question about recovery...I have it set up so I get a notification when someone DM's me.

Good Luck!

-Jen


Last edited by jen007 on Sun May 15, 2016 7:23 pm; edited 1 time in total (Reason for editing : SP)

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Re: What do I need after a vestibulectomy?

Post  Mll2013 on Sat Jun 04, 2016 11:19 pm

Thank you Jen! Your info had been helpful. I had my surgery yesterday. In a lot of pain, but hoping it will all be worth it! I was wondering if you remembered how long it was until you could sleep on your side? Also, for your sitz bath did you just use warm water? I tried on earlier and it was very painful, I will try again tomorrow. For now I am just rinsing off with a bottle.
Lastly, I was just curious how are you doing now 4 years after the surgery? Have your pains been resolved?
Thanks again for your previous response, it is nice to have someone to ask questions to

Mll2013

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Re: What do I need after a vestibulectomy?

Post  emalita on Tue Jun 07, 2016 6:39 pm

Mll2013 - Just checking in to see how you're doing. I hope the pain from surgery is getting a little less every day sunny

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Re: What do I need after a vestibulectomy?

Post  Mll2013 on Tue Jun 07, 2016 6:51 pm

Today is a bad day. I need to have a bowel movement but the pain from the stitches makes it hard to push. It is excruciating. I've been able to go a small amount but am not able to finish. I've not had much blood the last couple days; but now there is a lot. Is this normal?

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Re: What do I need after a vestibulectomy?

Post  emalita on Tue Jun 07, 2016 7:09 pm

I'm so sorry to hear that. I've never had the surgery so I can't speak to what is normal. However, from other injuries that I've had stitches with, having more blood as the days go on wasn't normal unless I had a stitch stretch too much or if the blood was actually leftover dried blood that was now washing away. I'm sure it is too painful for you to take a look down there, but that may be the only way to see where the blood is coming from.

As far as painful bowel movements, have you tried using a stool softener? I'm sure they make OTC ones that you can buy, but I also think aloe vera is used for softening stools, which can be purchased at a natural foods store.

When is your next follow up with your doctor?

I hope you heal quickly!

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Re: What do I need after a vestibulectomy?

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