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    » Anyone been to see Dr.Claire Bailey in Birmingham?
    Tue Aug 15, 2017 6:36 pm by Kezz

    » Recently Diagnosed.... Help!
    Tue Aug 15, 2017 2:57 pm by amyhp

    » Vestibulectomy
    Sun Aug 13, 2017 9:54 am by infinitelywondering

    » Discomfort from my own liquids
    Sun Aug 13, 2017 4:27 am by Hopeitworks

    » Anyone else have burning on the front of thighs?
    Sun Aug 13, 2017 2:20 am by Hopeitworks

    » Partial Vestibulectomy
    Sun Aug 13, 2017 1:38 am by infinitelywondering

    » Anyone being treated by Drexel University???
    Sat Aug 12, 2017 8:50 pm by Hopeitworks

    » Post Vestibulectomy Pain !!!
    Sat Aug 12, 2017 8:00 pm by sj17

    » Pain management - what works for me
    Sat Aug 12, 2017 9:58 am by sj17

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 1

    New to the site and just had a vestibulectomy

    Fri Aug 04, 2017 12:19 am by Hopeitworks

    Hello Everyone,

    I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

    Comments: 2

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 0

    can anyone recommend a good dermatologist in LA?

    Thu Jul 27, 2017 4:17 pm by saffron

    Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

    I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

    Comments: 3

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 0


    Creames and jellies and ointments

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    Creames and jellies and ointments

    Post  Antaea on Sat May 14, 2016 12:24 pm

    Hi Ladies,
    yesterday I read a lot of older threads and found one I thought a lot about in the meantime. Unfortunately I do not find it anymore. Our sister said at the end of this thread, that she must see a new gyenaecologist who will treat her different than the old one, who retired: With "a lot of creames and jellies and more" (quotation as I remember it).
    Well, I think that is the worst thing one can do. The area reacts only more and more sensitiv to anything we put on it. Nerve pain has to be treated where it comes from: In the brain. When we meet a physician, we should suggest these drugs and not "another jelly". I think, the local treatment should be as natural as possible, like coconut oil, sweet almond oil, black teabags, calendula oil and infusion for rinsing. Of course, this cannot replace special treatments like topical estrogen or lidocain when needed.
    I use plain water, coconut oil and teabags.  Not only because of the cold, but it seems they sooth the area. I use ice-packs too. (And lidocain at night, But it leaves the area irritated and swollen in the morning. And often the burning continues).
    Maybe this is very old and well-known stuff for you. Then I apologize for this thread and shall delete it if you want.

    A little post scriptum: I do not have a spelling control and do not "consult" my dictionary very often, looking up the right spelling of a word. I simply love English, but I'll never write it properly without spelling mistakes. Sometimes this make me feel ashamed. So please excuse my mistakes. Thank you!
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    Antaea

    Posts : 27
    Join date : 2016-05-11
    Age : 67
    Location : Hammerfest Norway

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