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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


does this sound like vulvodynia? please read!

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does this sound like vulvodynia? please read!

Post  LegendOfAspen on Mon May 16, 2016 9:28 am

hello everyone, i have known this forum for a while, and all you ladies seem super nice and not judgmental, which is why i have come here. i will try to keep this as short as possible, but i have no access to a gyno as of right now, and my anxiety is killing me because of this, so if anyone can help, that is greatly appreciated. i have had these symptoms for over almost a year now, although the pain has gone down significantly. it started right after a birth control pill i started when i was 18 in may of 2015. i had this intense burning down there as well as dryness. long story short, i was misdiagnosed twice and my gyno didn't help at all. i stopped the birth control by myself and immediately felt improvement, however, it has never fully gone away. i recently had sex with my boyfriend, which was painfree 98% of the time actually. my current symptoms are: slight irritation on the vulva, dryness, pasty white discharge, an odd smell (not that bad really, not like fish), and burning with urination. i can touch my vulva and apply pressure with no pain, but i don't get wet like a normal 19 year old would. i don't wanna be in discomfort for the rest of my life and i'm up at 5:30am having an anxiety attack about this. does this sound like vulvodynia or something else? i just have the irritation and slight burning so i automatically thought of vulvodynia since i was told no other vaginal infection causes burning. any feedback is SO appreciated, thank you lovelies.

LegendOfAspen

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Re: does this sound like vulvodynia? please read!

Post  emalita on Mon May 16, 2016 2:22 pm

Hi!

I'm sorry to hear you're in pain and that you don't have access to the care you need.

Vulvodynia isn't a single disease/condition for everyone. Vulvodynia is a diagnosis based off of elimination of other conditions (e.g. yeast, BV, STDs, etc.), and when a doctor cannot find a cause for the pain, they may diagnose vulvodynia, which is simply chronic vulvar pain without a known cause. Basically they are telling you that you're in pain, but they don't know why.

Personally for me, all of my tests came back normal until I went to a vulvovaginal specialist who developed his own testing method using a higher powered microscope (he has published studies acknowledging these new tests). He diagnosed me with a very bad case of inflammatory vaginitis (IV not DIV). He was the first vulvar specialist who didn't just assume all unexplained vulvar pain was nerve related, which is the answer I've gotten from two other specialists who I wanted to slap. And he didn't tell me all my pain was caused by unresolved sexual issues either (I hate doctors sometimes). Don't get me wrong, there are women whose pain is caused by overactive/damaged nerves or mental trauma from sexual abuse, but that's not my case.

Trust me, there are plenty of vaginal conditions that cause burning besides the typical yeast, BV, and STD. I know this isn't what you want to hear, but you should really be seen by a vulvovaginal specialist who is used to seeing nonstandard disorders. That is the only way you will find any peace from your anxiety...trust me, I've been there.

Hang in there. You can get to the bottom of this Smile

emalita

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