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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


does this sound like vulvodynia? please read!

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does this sound like vulvodynia? please read!

Post  LegendOfAspen on Mon May 16, 2016 9:28 am

hello everyone, i have known this forum for a while, and all you ladies seem super nice and not judgmental, which is why i have come here. i will try to keep this as short as possible, but i have no access to a gyno as of right now, and my anxiety is killing me because of this, so if anyone can help, that is greatly appreciated. i have had these symptoms for over almost a year now, although the pain has gone down significantly. it started right after a birth control pill i started when i was 18 in may of 2015. i had this intense burning down there as well as dryness. long story short, i was misdiagnosed twice and my gyno didn't help at all. i stopped the birth control by myself and immediately felt improvement, however, it has never fully gone away. i recently had sex with my boyfriend, which was painfree 98% of the time actually. my current symptoms are: slight irritation on the vulva, dryness, pasty white discharge, an odd smell (not that bad really, not like fish), and burning with urination. i can touch my vulva and apply pressure with no pain, but i don't get wet like a normal 19 year old would. i don't wanna be in discomfort for the rest of my life and i'm up at 5:30am having an anxiety attack about this. does this sound like vulvodynia or something else? i just have the irritation and slight burning so i automatically thought of vulvodynia since i was told no other vaginal infection causes burning. any feedback is SO appreciated, thank you lovelies.

LegendOfAspen

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Re: does this sound like vulvodynia? please read!

Post  emalita on Mon May 16, 2016 2:22 pm

Hi!

I'm sorry to hear you're in pain and that you don't have access to the care you need.

Vulvodynia isn't a single disease/condition for everyone. Vulvodynia is a diagnosis based off of elimination of other conditions (e.g. yeast, BV, STDs, etc.), and when a doctor cannot find a cause for the pain, they may diagnose vulvodynia, which is simply chronic vulvar pain without a known cause. Basically they are telling you that you're in pain, but they don't know why.

Personally for me, all of my tests came back normal until I went to a vulvovaginal specialist who developed his own testing method using a higher powered microscope (he has published studies acknowledging these new tests). He diagnosed me with a very bad case of inflammatory vaginitis (IV not DIV). He was the first vulvar specialist who didn't just assume all unexplained vulvar pain was nerve related, which is the answer I've gotten from two other specialists who I wanted to slap. And he didn't tell me all my pain was caused by unresolved sexual issues either (I hate doctors sometimes). Don't get me wrong, there are women whose pain is caused by overactive/damaged nerves or mental trauma from sexual abuse, but that's not my case.

Trust me, there are plenty of vaginal conditions that cause burning besides the typical yeast, BV, and STD. I know this isn't what you want to hear, but you should really be seen by a vulvovaginal specialist who is used to seeing nonstandard disorders. That is the only way you will find any peace from your anxiety...trust me, I've been there.

Hang in there. You can get to the bottom of this Smile

emalita

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