Log in

I forgot my password

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


does this sound like vulvodynia? please read!

View previous topic View next topic Go down

does this sound like vulvodynia? please read!

Post  LegendOfAspen on Mon May 16, 2016 9:28 am

hello everyone, i have known this forum for a while, and all you ladies seem super nice and not judgmental, which is why i have come here. i will try to keep this as short as possible, but i have no access to a gyno as of right now, and my anxiety is killing me because of this, so if anyone can help, that is greatly appreciated. i have had these symptoms for over almost a year now, although the pain has gone down significantly. it started right after a birth control pill i started when i was 18 in may of 2015. i had this intense burning down there as well as dryness. long story short, i was misdiagnosed twice and my gyno didn't help at all. i stopped the birth control by myself and immediately felt improvement, however, it has never fully gone away. i recently had sex with my boyfriend, which was painfree 98% of the time actually. my current symptoms are: slight irritation on the vulva, dryness, pasty white discharge, an odd smell (not that bad really, not like fish), and burning with urination. i can touch my vulva and apply pressure with no pain, but i don't get wet like a normal 19 year old would. i don't wanna be in discomfort for the rest of my life and i'm up at 5:30am having an anxiety attack about this. does this sound like vulvodynia or something else? i just have the irritation and slight burning so i automatically thought of vulvodynia since i was told no other vaginal infection causes burning. any feedback is SO appreciated, thank you lovelies.

LegendOfAspen

Posts : 4
Join date : 2015-08-11

View user profile

Back to top Go down

Re: does this sound like vulvodynia? please read!

Post  emalita on Mon May 16, 2016 2:22 pm

Hi!

I'm sorry to hear you're in pain and that you don't have access to the care you need.

Vulvodynia isn't a single disease/condition for everyone. Vulvodynia is a diagnosis based off of elimination of other conditions (e.g. yeast, BV, STDs, etc.), and when a doctor cannot find a cause for the pain, they may diagnose vulvodynia, which is simply chronic vulvar pain without a known cause. Basically they are telling you that you're in pain, but they don't know why.

Personally for me, all of my tests came back normal until I went to a vulvovaginal specialist who developed his own testing method using a higher powered microscope (he has published studies acknowledging these new tests). He diagnosed me with a very bad case of inflammatory vaginitis (IV not DIV). He was the first vulvar specialist who didn't just assume all unexplained vulvar pain was nerve related, which is the answer I've gotten from two other specialists who I wanted to slap. And he didn't tell me all my pain was caused by unresolved sexual issues either (I hate doctors sometimes). Don't get me wrong, there are women whose pain is caused by overactive/damaged nerves or mental trauma from sexual abuse, but that's not my case.

Trust me, there are plenty of vaginal conditions that cause burning besides the typical yeast, BV, and STD. I know this isn't what you want to hear, but you should really be seen by a vulvovaginal specialist who is used to seeing nonstandard disorders. That is the only way you will find any peace from your anxiety...trust me, I've been there.

Hang in there. You can get to the bottom of this Smile

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum