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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Question for those with vulvodynia

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Question for those with vulvodynia

Post  Mvp1022 on Mon May 16, 2016 6:27 pm

My pain began back in 2011. At first, it was random and periodic. I actually thought the first few times were a UTI. (I had never had one and some of my symptoms were what sounded like a UTI, pain, frequent urge to urinate, etc). In 2012 it became more frequent and by 2013 I felt pain every single day. For most of 2013 & 2014 I was almost always in pain. Some days it would be so horrible I couldn't function and others would be a slight discomfort. throughout the years I went to the gyno and few times and was never really helped. In 2015, I learned some tricks to help manage the pain. I stopped wearing panties, slept with no undergarments on, wore dresses and loose clothing as much as possible. Slowly the pain become spread apart. By the end of beginning of 2016 the pain was a lot less frequent and now I can go weeks without being in pain. There would be some slight discomfort but nothing that would really bother me. Before today, the last time I really felt in pain was February. Today it is pretty bad but far from the worse. I can have sex without terrible pain when before it would almost be a guarantee I would be in pain for a week. The week before my period would be hell, etc. Now, I didn't even know I was getting my period bc I was never in pain.

I was actually hoping someone could give me their thoughts. Does it sound like I'm slowly getting better? Or am I doing the right things? Or am I just on a offseason right now?


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Re: Question for those with vulvodynia

Post  emalita on Mon May 16, 2016 7:26 pm

It's great to hear that you've found some things that provide you with relief!

Unfortunately only you can answer some of your questions. If you are getting relief from your pain, then I would say you are on the right track! I've gone through so many months of "maybe this will be the month that it's gone" that I don't even consider it ahead of time anymore. Although it may sound depressing, it is much better for my mental health to just assume this month will be the same as the last, and then if I do have an improvement, it is a celebration. The ups and downs emotionally killed me. So this is the way it has to be for me.

Are you seeing long lasting improvements, or do they vary? For example, my pain used to be horrible all month long, but now for the last 2 months or so my pain is mostly on the low side outside of my period. Then starting a week before my period the pain ramps up again. To me this is hopefully a sign of getting better since I've seen this consistent improvement for 2 months.

That's just how I look at it. Sorry that probably wasn't much help.


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