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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Question for those with vulvodynia

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Question for those with vulvodynia

Post  Mvp1022 on Mon May 16, 2016 6:27 pm

My pain began back in 2011. At first, it was random and periodic. I actually thought the first few times were a UTI. (I had never had one and some of my symptoms were what sounded like a UTI, pain, frequent urge to urinate, etc). In 2012 it became more frequent and by 2013 I felt pain every single day. For most of 2013 & 2014 I was almost always in pain. Some days it would be so horrible I couldn't function and others would be a slight discomfort. throughout the years I went to the gyno and few times and was never really helped. In 2015, I learned some tricks to help manage the pain. I stopped wearing panties, slept with no undergarments on, wore dresses and loose clothing as much as possible. Slowly the pain become spread apart. By the end of beginning of 2016 the pain was a lot less frequent and now I can go weeks without being in pain. There would be some slight discomfort but nothing that would really bother me. Before today, the last time I really felt in pain was February. Today it is pretty bad but far from the worse. I can have sex without terrible pain when before it would almost be a guarantee I would be in pain for a week. The week before my period would be hell, etc. Now, I didn't even know I was getting my period bc I was never in pain.

I was actually hoping someone could give me their thoughts. Does it sound like I'm slowly getting better? Or am I doing the right things? Or am I just on a offseason right now?

Mvp1022

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Re: Question for those with vulvodynia

Post  emalita on Mon May 16, 2016 7:26 pm

It's great to hear that you've found some things that provide you with relief!

Unfortunately only you can answer some of your questions. If you are getting relief from your pain, then I would say you are on the right track! I've gone through so many months of "maybe this will be the month that it's gone" that I don't even consider it ahead of time anymore. Although it may sound depressing, it is much better for my mental health to just assume this month will be the same as the last, and then if I do have an improvement, it is a celebration. The ups and downs emotionally killed me. So this is the way it has to be for me.

Are you seeing long lasting improvements, or do they vary? For example, my pain used to be horrible all month long, but now for the last 2 months or so my pain is mostly on the low side outside of my period. Then starting a week before my period the pain ramps up again. To me this is hopefully a sign of getting better since I've seen this consistent improvement for 2 months.

That's just how I look at it. Sorry that probably wasn't much help.

emalita

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Join date : 2016-03-29
Location : USA

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