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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Question for those with vulvodynia

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Question for those with vulvodynia

Post  Mvp1022 on Mon May 16, 2016 6:27 pm

My pain began back in 2011. At first, it was random and periodic. I actually thought the first few times were a UTI. (I had never had one and some of my symptoms were what sounded like a UTI, pain, frequent urge to urinate, etc). In 2012 it became more frequent and by 2013 I felt pain every single day. For most of 2013 & 2014 I was almost always in pain. Some days it would be so horrible I couldn't function and others would be a slight discomfort. throughout the years I went to the gyno and few times and was never really helped. In 2015, I learned some tricks to help manage the pain. I stopped wearing panties, slept with no undergarments on, wore dresses and loose clothing as much as possible. Slowly the pain become spread apart. By the end of beginning of 2016 the pain was a lot less frequent and now I can go weeks without being in pain. There would be some slight discomfort but nothing that would really bother me. Before today, the last time I really felt in pain was February. Today it is pretty bad but far from the worse. I can have sex without terrible pain when before it would almost be a guarantee I would be in pain for a week. The week before my period would be hell, etc. Now, I didn't even know I was getting my period bc I was never in pain.

I was actually hoping someone could give me their thoughts. Does it sound like I'm slowly getting better? Or am I doing the right things? Or am I just on a offseason right now?


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Re: Question for those with vulvodynia

Post  emalita on Mon May 16, 2016 7:26 pm

It's great to hear that you've found some things that provide you with relief!

Unfortunately only you can answer some of your questions. If you are getting relief from your pain, then I would say you are on the right track! I've gone through so many months of "maybe this will be the month that it's gone" that I don't even consider it ahead of time anymore. Although it may sound depressing, it is much better for my mental health to just assume this month will be the same as the last, and then if I do have an improvement, it is a celebration. The ups and downs emotionally killed me. So this is the way it has to be for me.

Are you seeing long lasting improvements, or do they vary? For example, my pain used to be horrible all month long, but now for the last 2 months or so my pain is mostly on the low side outside of my period. Then starting a week before my period the pain ramps up again. To me this is hopefully a sign of getting better since I've seen this consistent improvement for 2 months.

That's just how I look at it. Sorry that probably wasn't much help.


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