Log in

I forgot my password

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

Question for those with vulvodynia

View previous topic View next topic Go down

Question for those with vulvodynia

Post  Mvp1022 on Mon May 16, 2016 6:27 pm

My pain began back in 2011. At first, it was random and periodic. I actually thought the first few times were a UTI. (I had never had one and some of my symptoms were what sounded like a UTI, pain, frequent urge to urinate, etc). In 2012 it became more frequent and by 2013 I felt pain every single day. For most of 2013 & 2014 I was almost always in pain. Some days it would be so horrible I couldn't function and others would be a slight discomfort. throughout the years I went to the gyno and few times and was never really helped. In 2015, I learned some tricks to help manage the pain. I stopped wearing panties, slept with no undergarments on, wore dresses and loose clothing as much as possible. Slowly the pain become spread apart. By the end of beginning of 2016 the pain was a lot less frequent and now I can go weeks without being in pain. There would be some slight discomfort but nothing that would really bother me. Before today, the last time I really felt in pain was February. Today it is pretty bad but far from the worse. I can have sex without terrible pain when before it would almost be a guarantee I would be in pain for a week. The week before my period would be hell, etc. Now, I didn't even know I was getting my period bc I was never in pain.

I was actually hoping someone could give me their thoughts. Does it sound like I'm slowly getting better? Or am I doing the right things? Or am I just on a offseason right now?


Posts : 3
Join date : 2014-04-06

View user profile

Back to top Go down

Re: Question for those with vulvodynia

Post  emalita on Mon May 16, 2016 7:26 pm

It's great to hear that you've found some things that provide you with relief!

Unfortunately only you can answer some of your questions. If you are getting relief from your pain, then I would say you are on the right track! I've gone through so many months of "maybe this will be the month that it's gone" that I don't even consider it ahead of time anymore. Although it may sound depressing, it is much better for my mental health to just assume this month will be the same as the last, and then if I do have an improvement, it is a celebration. The ups and downs emotionally killed me. So this is the way it has to be for me.

Are you seeing long lasting improvements, or do they vary? For example, my pain used to be horrible all month long, but now for the last 2 months or so my pain is mostly on the low side outside of my period. Then starting a week before my period the pain ramps up again. To me this is hopefully a sign of getting better since I've seen this consistent improvement for 2 months.

That's just how I look at it. Sorry that probably wasn't much help.


Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum