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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Has anyone on here had there vulvodynia just go away

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Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 8:53 am

My pain used to be every day and now I just went a month without pain. (Though it's in full force this week.) It's seems like the pain is becoming more spread apart and I'm hoping I'm starting to get better. I'm hoping one day the pain won't ever come back. Has this ever happened to anyone on here?

Mvp123

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Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 1:23 pm

Yep, my pain flares the week before, during, and after my period. I'm not 100% pain free outside of my period, but my sensitivity is greatly reduced. I know there are other women that have similar experiences (pain free weeks and then a flare). Can you provide more information on your pain?

What does your pain feel like (e.g. stabbing, acid burn, prickling, itching, etc.)?
Where is your pain located (e.g. inner labia, vaginal opening, internal, etc.)?
Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)?
Is the pain worse at any particular time (e.g. only after sex, going to the bathroom, after showering, during your period, etc.)?
What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)?
Do you have excessive discharge, or discharge that makes your pain worse?
What treatments have you tried (e.g. antibiotics, yeast creams/pills, boric acid, etc.)?
Do you know what the onset of your pain was (e.g. bad infection, first time having sex, etc.)?

emalita

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Re: Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 7:33 pm

My pain is like a bad irritation, acid burn type of feel. I found the pain hard to explain. The pain is at the vaginal opening mostly though sometimes it feels like it spreads out further. (Always external) My vulvar gets red and inflamed. I can see the redness when I check myself. I went to the gyno once while it was bad and she said she could see some redness and inflammation. (She actually tested my urine and said she found small amounts of blood or something like that caused by the inflammation.) But besides when it hurts, there are no changes I can see. Before, the pain seems to get worse a day or two after sex (but not always.) I actually had sex a few times this month and was fine. Though I had sex Saturday and was in pain Monday. It also seems to get worse before and during my period. (But, again, not always.) Again, last time I got my period it didnt hurt. But, I actually think I may be getting my period soon which may be the may also be the cause of this flare up. My periods are irregular so I don't actually know if I am getting it. I'm not sure what exactly has been ruled out. I went to the same gyno for a while who would test for UTI, yeast and once took a culture but said she found nothing abnormal. I didn't have health insurance for a while and now that I do, I have a gyno appt in June. I've tried yeast infection medicine that did not help. I was on antibiotics for something else which actually did seems to help. Besides that I've tried to switch to detergents and that kind of stuff. I also tried to take a ph balancing medicine? Neither really helped. What I think has helped the most is I stopped wearing undies and wear dresses/skirts as muchas possible. My discharge seems to be more during pain and maybe a little greyish but it seems more like it's my body trying to clean out whatever is bothering it? That was just my assumption. Also, I have a weird side effect which people have said it seems it may be bacterial. Sometimes my pee is very cloudy and smells like amonia? But, my gyno never said anything about bacterial so IDK? I will mention it to my new gyno. Finally, I think the offset was birth control. I started the depo shot in Jan and my first flare up was in February.

Anyway, I hope you can give some insight. It is interesting you said your virtually fine until your period. I think I may be getting my period. (My period is irregular and so idk when it's really coming but I think it's coming.) Maybe, my situation is similar to yours?

Thanks for taking the time to respond. Very Happy

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Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 8:49 pm

Hmm...Well a quick google of grayish discharge keeps bringing up bacterial vaginosis (BV), but doctors are more than happy to over diagnose this condition; so I can't imagine your doctor wouldn't have tested for it. Too many people think they have chronic BV, and for most, that's just not the case. Plus, it unfortunately leads to tons of unnecessary antibiotics that will just ruin your vaginal flora further.

Have you tested your pH to see if you have an issue with that? Depending on where you live, you can easily buy pH strips pretty cheaply to monitor this yourself. I'm in the U.S., but I buy "EcoCare Comfort Vaginal pH-Test Cotton Swabs" from amazon.co.uk because I'm far too lazy to deal with regular test strips. Not that having a higher pH (above 4.5) is a guarantee of an infection because a lot of things can impact the results (e.g. your period, semen, etc.), but if you are consistently over 4.5, then you know there is probably something going on (and that doesn't always mean BV either!). What pH balancing products have you used and for how long?

Have you been tested for STDS (chlamydia, gonorrhea, HPV, trichomoniasis, etc.)? If you are embarrassed about this, which you shouldn't be, there are many private and confidential online STD testing companies that you could use. The only online lab I've had experience with is mylabbox.com. The test was easy and the results came back quickly. I would have been thrilled if my symptoms were caused by a curable/treatable STD, but I wasn't that lucky...lol!

A lot of doctors in the U.S. now have online systems that allow you to login and see a high level overview of the tests you've had. I would check online to see if your doctor's office does that because I think your first step needs to be finding out what you've been tested for already so you know where to start.

Let me know how things are going!

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