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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Has anyone on here had there vulvodynia just go away

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Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 8:53 am

My pain used to be every day and now I just went a month without pain. (Though it's in full force this week.) It's seems like the pain is becoming more spread apart and I'm hoping I'm starting to get better. I'm hoping one day the pain won't ever come back. Has this ever happened to anyone on here?

Mvp123

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Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 1:23 pm

Yep, my pain flares the week before, during, and after my period. I'm not 100% pain free outside of my period, but my sensitivity is greatly reduced. I know there are other women that have similar experiences (pain free weeks and then a flare). Can you provide more information on your pain?

What does your pain feel like (e.g. stabbing, acid burn, prickling, itching, etc.)?
Where is your pain located (e.g. inner labia, vaginal opening, internal, etc.)?
Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)?
Is the pain worse at any particular time (e.g. only after sex, going to the bathroom, after showering, during your period, etc.)?
What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)?
Do you have excessive discharge, or discharge that makes your pain worse?
What treatments have you tried (e.g. antibiotics, yeast creams/pills, boric acid, etc.)?
Do you know what the onset of your pain was (e.g. bad infection, first time having sex, etc.)?

emalita

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Re: Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 7:33 pm

My pain is like a bad irritation, acid burn type of feel. I found the pain hard to explain. The pain is at the vaginal opening mostly though sometimes it feels like it spreads out further. (Always external) My vulvar gets red and inflamed. I can see the redness when I check myself. I went to the gyno once while it was bad and she said she could see some redness and inflammation. (She actually tested my urine and said she found small amounts of blood or something like that caused by the inflammation.) But besides when it hurts, there are no changes I can see. Before, the pain seems to get worse a day or two after sex (but not always.) I actually had sex a few times this month and was fine. Though I had sex Saturday and was in pain Monday. It also seems to get worse before and during my period. (But, again, not always.) Again, last time I got my period it didnt hurt. But, I actually think I may be getting my period soon which may be the may also be the cause of this flare up. My periods are irregular so I don't actually know if I am getting it. I'm not sure what exactly has been ruled out. I went to the same gyno for a while who would test for UTI, yeast and once took a culture but said she found nothing abnormal. I didn't have health insurance for a while and now that I do, I have a gyno appt in June. I've tried yeast infection medicine that did not help. I was on antibiotics for something else which actually did seems to help. Besides that I've tried to switch to detergents and that kind of stuff. I also tried to take a ph balancing medicine? Neither really helped. What I think has helped the most is I stopped wearing undies and wear dresses/skirts as muchas possible. My discharge seems to be more during pain and maybe a little greyish but it seems more like it's my body trying to clean out whatever is bothering it? That was just my assumption. Also, I have a weird side effect which people have said it seems it may be bacterial. Sometimes my pee is very cloudy and smells like amonia? But, my gyno never said anything about bacterial so IDK? I will mention it to my new gyno. Finally, I think the offset was birth control. I started the depo shot in Jan and my first flare up was in February.

Anyway, I hope you can give some insight. It is interesting you said your virtually fine until your period. I think I may be getting my period. (My period is irregular and so idk when it's really coming but I think it's coming.) Maybe, my situation is similar to yours?

Thanks for taking the time to respond. Very Happy

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Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 8:49 pm

Hmm...Well a quick google of grayish discharge keeps bringing up bacterial vaginosis (BV), but doctors are more than happy to over diagnose this condition; so I can't imagine your doctor wouldn't have tested for it. Too many people think they have chronic BV, and for most, that's just not the case. Plus, it unfortunately leads to tons of unnecessary antibiotics that will just ruin your vaginal flora further.

Have you tested your pH to see if you have an issue with that? Depending on where you live, you can easily buy pH strips pretty cheaply to monitor this yourself. I'm in the U.S., but I buy "EcoCare Comfort Vaginal pH-Test Cotton Swabs" from amazon.co.uk because I'm far too lazy to deal with regular test strips. Not that having a higher pH (above 4.5) is a guarantee of an infection because a lot of things can impact the results (e.g. your period, semen, etc.), but if you are consistently over 4.5, then you know there is probably something going on (and that doesn't always mean BV either!). What pH balancing products have you used and for how long?

Have you been tested for STDS (chlamydia, gonorrhea, HPV, trichomoniasis, etc.)? If you are embarrassed about this, which you shouldn't be, there are many private and confidential online STD testing companies that you could use. The only online lab I've had experience with is mylabbox.com. The test was easy and the results came back quickly. I would have been thrilled if my symptoms were caused by a curable/treatable STD, but I wasn't that lucky...lol!

A lot of doctors in the U.S. now have online systems that allow you to login and see a high level overview of the tests you've had. I would check online to see if your doctor's office does that because I think your first step needs to be finding out what you've been tested for already so you know where to start.

Let me know how things are going!

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Re: Has anyone on here had there vulvodynia just go away

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