Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Has anyone on here had there vulvodynia just go away

View previous topic View next topic Go down

Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 8:53 am

My pain used to be every day and now I just went a month without pain. (Though it's in full force this week.) It's seems like the pain is becoming more spread apart and I'm hoping I'm starting to get better. I'm hoping one day the pain won't ever come back. Has this ever happened to anyone on here?

Mvp123

Posts : 5
Join date : 2015-05-26

View user profile

Back to top Go down

Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 1:23 pm

Yep, my pain flares the week before, during, and after my period. I'm not 100% pain free outside of my period, but my sensitivity is greatly reduced. I know there are other women that have similar experiences (pain free weeks and then a flare). Can you provide more information on your pain?

What does your pain feel like (e.g. stabbing, acid burn, prickling, itching, etc.)?
Where is your pain located (e.g. inner labia, vaginal opening, internal, etc.)?
Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)?
Is the pain worse at any particular time (e.g. only after sex, going to the bathroom, after showering, during your period, etc.)?
What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)?
Do you have excessive discharge, or discharge that makes your pain worse?
What treatments have you tried (e.g. antibiotics, yeast creams/pills, boric acid, etc.)?
Do you know what the onset of your pain was (e.g. bad infection, first time having sex, etc.)?

emalita

Posts : 216
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 7:33 pm

My pain is like a bad irritation, acid burn type of feel. I found the pain hard to explain. The pain is at the vaginal opening mostly though sometimes it feels like it spreads out further. (Always external) My vulvar gets red and inflamed. I can see the redness when I check myself. I went to the gyno once while it was bad and she said she could see some redness and inflammation. (She actually tested my urine and said she found small amounts of blood or something like that caused by the inflammation.) But besides when it hurts, there are no changes I can see. Before, the pain seems to get worse a day or two after sex (but not always.) I actually had sex a few times this month and was fine. Though I had sex Saturday and was in pain Monday. It also seems to get worse before and during my period. (But, again, not always.) Again, last time I got my period it didnt hurt. But, I actually think I may be getting my period soon which may be the may also be the cause of this flare up. My periods are irregular so I don't actually know if I am getting it. I'm not sure what exactly has been ruled out. I went to the same gyno for a while who would test for UTI, yeast and once took a culture but said she found nothing abnormal. I didn't have health insurance for a while and now that I do, I have a gyno appt in June. I've tried yeast infection medicine that did not help. I was on antibiotics for something else which actually did seems to help. Besides that I've tried to switch to detergents and that kind of stuff. I also tried to take a ph balancing medicine? Neither really helped. What I think has helped the most is I stopped wearing undies and wear dresses/skirts as muchas possible. My discharge seems to be more during pain and maybe a little greyish but it seems more like it's my body trying to clean out whatever is bothering it? That was just my assumption. Also, I have a weird side effect which people have said it seems it may be bacterial. Sometimes my pee is very cloudy and smells like amonia? But, my gyno never said anything about bacterial so IDK? I will mention it to my new gyno. Finally, I think the offset was birth control. I started the depo shot in Jan and my first flare up was in February.

Anyway, I hope you can give some insight. It is interesting you said your virtually fine until your period. I think I may be getting my period. (My period is irregular and so idk when it's really coming but I think it's coming.) Maybe, my situation is similar to yours?

Thanks for taking the time to respond. Very Happy

Mvp123

Posts : 5
Join date : 2015-05-26

View user profile

Back to top Go down

Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 8:49 pm

Hmm...Well a quick google of grayish discharge keeps bringing up bacterial vaginosis (BV), but doctors are more than happy to over diagnose this condition; so I can't imagine your doctor wouldn't have tested for it. Too many people think they have chronic BV, and for most, that's just not the case. Plus, it unfortunately leads to tons of unnecessary antibiotics that will just ruin your vaginal flora further.

Have you tested your pH to see if you have an issue with that? Depending on where you live, you can easily buy pH strips pretty cheaply to monitor this yourself. I'm in the U.S., but I buy "EcoCare Comfort Vaginal pH-Test Cotton Swabs" from amazon.co.uk because I'm far too lazy to deal with regular test strips. Not that having a higher pH (above 4.5) is a guarantee of an infection because a lot of things can impact the results (e.g. your period, semen, etc.), but if you are consistently over 4.5, then you know there is probably something going on (and that doesn't always mean BV either!). What pH balancing products have you used and for how long?

Have you been tested for STDS (chlamydia, gonorrhea, HPV, trichomoniasis, etc.)? If you are embarrassed about this, which you shouldn't be, there are many private and confidential online STD testing companies that you could use. The only online lab I've had experience with is mylabbox.com. The test was easy and the results came back quickly. I would have been thrilled if my symptoms were caused by a curable/treatable STD, but I wasn't that lucky...lol!

A lot of doctors in the U.S. now have online systems that allow you to login and see a high level overview of the tests you've had. I would check online to see if your doctor's office does that because I think your first step needs to be finding out what you've been tested for already so you know where to start.

Let me know how things are going!

emalita

Posts : 216
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Has anyone on here had there vulvodynia just go away

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum