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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Has anyone on here had there vulvodynia just go away

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Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 8:53 am

My pain used to be every day and now I just went a month without pain. (Though it's in full force this week.) It's seems like the pain is becoming more spread apart and I'm hoping I'm starting to get better. I'm hoping one day the pain won't ever come back. Has this ever happened to anyone on here?

Mvp123

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Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 1:23 pm

Yep, my pain flares the week before, during, and after my period. I'm not 100% pain free outside of my period, but my sensitivity is greatly reduced. I know there are other women that have similar experiences (pain free weeks and then a flare). Can you provide more information on your pain?

What does your pain feel like (e.g. stabbing, acid burn, prickling, itching, etc.)?
Where is your pain located (e.g. inner labia, vaginal opening, internal, etc.)?
Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)?
Is the pain worse at any particular time (e.g. only after sex, going to the bathroom, after showering, during your period, etc.)?
What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)?
Do you have excessive discharge, or discharge that makes your pain worse?
What treatments have you tried (e.g. antibiotics, yeast creams/pills, boric acid, etc.)?
Do you know what the onset of your pain was (e.g. bad infection, first time having sex, etc.)?

emalita

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Re: Has anyone on here had there vulvodynia just go away

Post  Mvp123 on Fri May 20, 2016 7:33 pm

My pain is like a bad irritation, acid burn type of feel. I found the pain hard to explain. The pain is at the vaginal opening mostly though sometimes it feels like it spreads out further. (Always external) My vulvar gets red and inflamed. I can see the redness when I check myself. I went to the gyno once while it was bad and she said she could see some redness and inflammation. (She actually tested my urine and said she found small amounts of blood or something like that caused by the inflammation.) But besides when it hurts, there are no changes I can see. Before, the pain seems to get worse a day or two after sex (but not always.) I actually had sex a few times this month and was fine. Though I had sex Saturday and was in pain Monday. It also seems to get worse before and during my period. (But, again, not always.) Again, last time I got my period it didnt hurt. But, I actually think I may be getting my period soon which may be the may also be the cause of this flare up. My periods are irregular so I don't actually know if I am getting it. I'm not sure what exactly has been ruled out. I went to the same gyno for a while who would test for UTI, yeast and once took a culture but said she found nothing abnormal. I didn't have health insurance for a while and now that I do, I have a gyno appt in June. I've tried yeast infection medicine that did not help. I was on antibiotics for something else which actually did seems to help. Besides that I've tried to switch to detergents and that kind of stuff. I also tried to take a ph balancing medicine? Neither really helped. What I think has helped the most is I stopped wearing undies and wear dresses/skirts as muchas possible. My discharge seems to be more during pain and maybe a little greyish but it seems more like it's my body trying to clean out whatever is bothering it? That was just my assumption. Also, I have a weird side effect which people have said it seems it may be bacterial. Sometimes my pee is very cloudy and smells like amonia? But, my gyno never said anything about bacterial so IDK? I will mention it to my new gyno. Finally, I think the offset was birth control. I started the depo shot in Jan and my first flare up was in February.

Anyway, I hope you can give some insight. It is interesting you said your virtually fine until your period. I think I may be getting my period. (My period is irregular and so idk when it's really coming but I think it's coming.) Maybe, my situation is similar to yours?

Thanks for taking the time to respond. Very Happy

Mvp123

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Re: Has anyone on here had there vulvodynia just go away

Post  emalita on Fri May 20, 2016 8:49 pm

Hmm...Well a quick google of grayish discharge keeps bringing up bacterial vaginosis (BV), but doctors are more than happy to over diagnose this condition; so I can't imagine your doctor wouldn't have tested for it. Too many people think they have chronic BV, and for most, that's just not the case. Plus, it unfortunately leads to tons of unnecessary antibiotics that will just ruin your vaginal flora further.

Have you tested your pH to see if you have an issue with that? Depending on where you live, you can easily buy pH strips pretty cheaply to monitor this yourself. I'm in the U.S., but I buy "EcoCare Comfort Vaginal pH-Test Cotton Swabs" from amazon.co.uk because I'm far too lazy to deal with regular test strips. Not that having a higher pH (above 4.5) is a guarantee of an infection because a lot of things can impact the results (e.g. your period, semen, etc.), but if you are consistently over 4.5, then you know there is probably something going on (and that doesn't always mean BV either!). What pH balancing products have you used and for how long?

Have you been tested for STDS (chlamydia, gonorrhea, HPV, trichomoniasis, etc.)? If you are embarrassed about this, which you shouldn't be, there are many private and confidential online STD testing companies that you could use. The only online lab I've had experience with is mylabbox.com. The test was easy and the results came back quickly. I would have been thrilled if my symptoms were caused by a curable/treatable STD, but I wasn't that lucky...lol!

A lot of doctors in the U.S. now have online systems that allow you to login and see a high level overview of the tests you've had. I would check online to see if your doctor's office does that because I think your first step needs to be finding out what you've been tested for already so you know where to start.

Let me know how things are going!

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Re: Has anyone on here had there vulvodynia just go away

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