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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


ALMOST CURED....

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ALMOST CURED....

Post  mac2011 on Fri May 20, 2016 2:22 pm

Hi,

I've just joined today. I was finally diagnosed with Vulvodynia a few months back, after I'd had it for over a year. A year and a half later I feel I am 99% cured. I just want to say that it can get better because for long time I didn't believe that.

I sympathise with anyone going through this because it's hard to discuss with anyone as it's such a sensitive topic. These forums were the only thing that helped me; doctors, gynaecologists, dermatologists seemed uneducated about this condition admitting 'knowledge of this condition is still in its infancy' and could not empathise with the pain. Luckily my partner was a great support.

For the first few months I tried aloe vera creams, apple cider vinegar, ice packs, cold showers, baking soda baths, canestan cream, each providing only a small bit of relief. As it got worse and I could barely walk anywhere I was put on dermovate, a steroid cream, that didn't have any effect. I put on a stone because it was painful to walk or move which also made it difficult to work : how to sit in a chair for hours, what to wear that was both professional and loose, and having to try to walk 'normally' around people even though it hurt.

I felt very fed up as the pain seemed endless, and it affected my sleep, distraction is always good- if you can be distracted by a book or a film ... I ended up changing my diet, not drastically, but I cut out as many processed foods as I could e.g frozen pizzas, noodles, potato chips, takeaways, alcohol and coffee and started eating more fresh fruits, vegetables, fish, water. I also forced myself to go on a walk every day, even just for 10 minutes, when it was painful and embarrassing because I was walking like I had a limp. Often I'd wait til it was dark outside to go walking to avoid embarrassment. After a couple of months little walks became longer walks, I was eating healthier and I was using silcocks base daily, washing my underwear in baking soda, and had started on licodaine. The combination seemed to work and now the pain is gone. I feel no pain and I am out running three times a week now, which I never did before. Sometimes running felt easier than walking, if that makes sense, because you can do it slowly, only moving your knees and get a bounce going, whereas walking involves the vulva more.. in my case anyway. My advice is keep a positive mental attitude (even though it is impossible sometimes) and try different things to see whichever one takes, or works for you.

So basically what worked for me, and what I am still doing (mostly) is:

1) washing my underwear (cotton of course) in baking soda to avoid any allergens from detergents.
2) I use silcocks base (no prescription needed) as a soap substitute daily.
3) I also use diprobase cream (no prescription needed) if needed.
4) I wear lose clothing and comfortable footwear. Avoid Converse shoes.
5) started eating healthier/going on walks
6) try to distract your mind with something for even an hour's relief e.g a book, a game, positive mental attitude
7) I used licodaine for a while but have since stopped because I no longer feel the pain.

mac2011

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Join date : 2016-05-20

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Re: ALMOST CURED....

Post  emalita on Fri May 20, 2016 4:06 pm

Thank you for sharing this! It is very much needed to hear that women do recover.

I wish I could use ointments to protect my skin, but unfortunately my skin does not handle their lack of breathability  Sad

I wish you the best of luck getting beyond that last 1% of pain sunny

emalita

Posts : 216
Join date : 2016-03-29
Location : USA

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Re: ALMOST CURED....

Post  kell on Tue May 24, 2016 2:16 am

I agree! It's encouraging to hear that someone is getting better - I can't wait to get through this board more (going on vacay, so won't be able to for a while)  and just hear more ideas - I've already taken some of you guy's suggestions and am trying my new "therapies" -  I am hopeful.

kell

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Join date : 2016-05-13

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Re: ALMOST CURED....

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