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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


ALMOST CURED....

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ALMOST CURED....

Post  mac2011 on Fri May 20, 2016 2:22 pm

Hi,

I've just joined today. I was finally diagnosed with Vulvodynia a few months back, after I'd had it for over a year. A year and a half later I feel I am 99% cured. I just want to say that it can get better because for long time I didn't believe that.

I sympathise with anyone going through this because it's hard to discuss with anyone as it's such a sensitive topic. These forums were the only thing that helped me; doctors, gynaecologists, dermatologists seemed uneducated about this condition admitting 'knowledge of this condition is still in its infancy' and could not empathise with the pain. Luckily my partner was a great support.

For the first few months I tried aloe vera creams, apple cider vinegar, ice packs, cold showers, baking soda baths, canestan cream, each providing only a small bit of relief. As it got worse and I could barely walk anywhere I was put on dermovate, a steroid cream, that didn't have any effect. I put on a stone because it was painful to walk or move which also made it difficult to work : how to sit in a chair for hours, what to wear that was both professional and loose, and having to try to walk 'normally' around people even though it hurt.

I felt very fed up as the pain seemed endless, and it affected my sleep, distraction is always good- if you can be distracted by a book or a film ... I ended up changing my diet, not drastically, but I cut out as many processed foods as I could e.g frozen pizzas, noodles, potato chips, takeaways, alcohol and coffee and started eating more fresh fruits, vegetables, fish, water. I also forced myself to go on a walk every day, even just for 10 minutes, when it was painful and embarrassing because I was walking like I had a limp. Often I'd wait til it was dark outside to go walking to avoid embarrassment. After a couple of months little walks became longer walks, I was eating healthier and I was using silcocks base daily, washing my underwear in baking soda, and had started on licodaine. The combination seemed to work and now the pain is gone. I feel no pain and I am out running three times a week now, which I never did before. Sometimes running felt easier than walking, if that makes sense, because you can do it slowly, only moving your knees and get a bounce going, whereas walking involves the vulva more.. in my case anyway. My advice is keep a positive mental attitude (even though it is impossible sometimes) and try different things to see whichever one takes, or works for you.

So basically what worked for me, and what I am still doing (mostly) is:

1) washing my underwear (cotton of course) in baking soda to avoid any allergens from detergents.
2) I use silcocks base (no prescription needed) as a soap substitute daily.
3) I also use diprobase cream (no prescription needed) if needed.
4) I wear lose clothing and comfortable footwear. Avoid Converse shoes.
5) started eating healthier/going on walks
6) try to distract your mind with something for even an hour's relief e.g a book, a game, positive mental attitude
7) I used licodaine for a while but have since stopped because I no longer feel the pain.

mac2011

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Join date : 2016-05-20

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Re: ALMOST CURED....

Post  emalita on Fri May 20, 2016 4:06 pm

Thank you for sharing this! It is very much needed to hear that women do recover.

I wish I could use ointments to protect my skin, but unfortunately my skin does not handle their lack of breathability  Sad

I wish you the best of luck getting beyond that last 1% of pain sunny

emalita

Posts : 247
Join date : 2016-03-29
Location : USA

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Re: ALMOST CURED....

Post  kell on Tue May 24, 2016 2:16 am

I agree! It's encouraging to hear that someone is getting better - I can't wait to get through this board more (going on vacay, so won't be able to for a while)  and just hear more ideas - I've already taken some of you guy's suggestions and am trying my new "therapies" -  I am hopeful.

kell

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Join date : 2016-05-13

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Re: ALMOST CURED....

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