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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


ALMOST CURED....

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ALMOST CURED....

Post  mac2011 on Fri May 20, 2016 2:22 pm

Hi,

I've just joined today. I was finally diagnosed with Vulvodynia a few months back, after I'd had it for over a year. A year and a half later I feel I am 99% cured. I just want to say that it can get better because for long time I didn't believe that.

I sympathise with anyone going through this because it's hard to discuss with anyone as it's such a sensitive topic. These forums were the only thing that helped me; doctors, gynaecologists, dermatologists seemed uneducated about this condition admitting 'knowledge of this condition is still in its infancy' and could not empathise with the pain. Luckily my partner was a great support.

For the first few months I tried aloe vera creams, apple cider vinegar, ice packs, cold showers, baking soda baths, canestan cream, each providing only a small bit of relief. As it got worse and I could barely walk anywhere I was put on dermovate, a steroid cream, that didn't have any effect. I put on a stone because it was painful to walk or move which also made it difficult to work : how to sit in a chair for hours, what to wear that was both professional and loose, and having to try to walk 'normally' around people even though it hurt.

I felt very fed up as the pain seemed endless, and it affected my sleep, distraction is always good- if you can be distracted by a book or a film ... I ended up changing my diet, not drastically, but I cut out as many processed foods as I could e.g frozen pizzas, noodles, potato chips, takeaways, alcohol and coffee and started eating more fresh fruits, vegetables, fish, water. I also forced myself to go on a walk every day, even just for 10 minutes, when it was painful and embarrassing because I was walking like I had a limp. Often I'd wait til it was dark outside to go walking to avoid embarrassment. After a couple of months little walks became longer walks, I was eating healthier and I was using silcocks base daily, washing my underwear in baking soda, and had started on licodaine. The combination seemed to work and now the pain is gone. I feel no pain and I am out running three times a week now, which I never did before. Sometimes running felt easier than walking, if that makes sense, because you can do it slowly, only moving your knees and get a bounce going, whereas walking involves the vulva more.. in my case anyway. My advice is keep a positive mental attitude (even though it is impossible sometimes) and try different things to see whichever one takes, or works for you.

So basically what worked for me, and what I am still doing (mostly) is:

1) washing my underwear (cotton of course) in baking soda to avoid any allergens from detergents.
2) I use silcocks base (no prescription needed) as a soap substitute daily.
3) I also use diprobase cream (no prescription needed) if needed.
4) I wear lose clothing and comfortable footwear. Avoid Converse shoes.
5) started eating healthier/going on walks
6) try to distract your mind with something for even an hour's relief e.g a book, a game, positive mental attitude
7) I used licodaine for a while but have since stopped because I no longer feel the pain.

mac2011

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Join date : 2016-05-20

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Re: ALMOST CURED....

Post  emalita on Fri May 20, 2016 4:06 pm

Thank you for sharing this! It is very much needed to hear that women do recover.

I wish I could use ointments to protect my skin, but unfortunately my skin does not handle their lack of breathability  Sad

I wish you the best of luck getting beyond that last 1% of pain sunny

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

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Re: ALMOST CURED....

Post  kell on Tue May 24, 2016 2:16 am

I agree! It's encouraging to hear that someone is getting better - I can't wait to get through this board more (going on vacay, so won't be able to for a while)  and just hear more ideas - I've already taken some of you guy's suggestions and am trying my new "therapies" -  I am hopeful.

kell

Posts : 8
Join date : 2016-05-13

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Re: ALMOST CURED....

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