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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Needing advice: V and UTI

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Needing advice: V and UTI

Post  Antaea on Sat May 21, 2016 10:51 am

Hi Ladies, I need some advice:
I've got a cystitis as a side-effect of Gabapentin, which is, even on the lowest dose, helping so far. Any suggestions for what I can do until I see my doc on Thursday? I shall not stop with Neurontin because it helps really a lot. Unfortunately I do not tolerate Cranberry and other acid fluids, got much pain in all my lady parts after drinking even diluted orange juice. Now I only drink clear water all the time.
Some time ago, a doc said I shall take 3 Ibuprofen.1200 mg, a day against the infection and the pain. I'll try it during the week-end. But I would be glad for more suggestions conc. food which is not as acid that it worsens the v but so much that it defends the UTI.
Thanks a lot. Wishing you all an as painless day as possible.
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Re: Needing advice: V and UTI

Post  emalita on Sat May 21, 2016 1:29 pm

Have you tried the powder supplement called D-Mannose? There are studies proving it's effect on UTIs caused by E coli bacteria (most common bacteria to cause UTIs), and two of my Naturopaths recommended it. I unfortunately got a hold of it only after my UTI was cleared. So I can't say for sure how well it would have worked for me.

I believe some health food stores sell it, or you can order it online. Here's a link that talks about it in more detail. I don't really agree with everything this website puts out, but it outlines how well D-mannose works pretty nicely.

http://articles.mercola.com/sites/articles/archive/2014/04/28/d-mannose-uti-prevention.aspx

Good luck!

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RE: Needing advice: UTI and V

Post  Antaea on Sun May 22, 2016 11:16 am

Thank your for your advice. D-mannose is not available in Norway and cannot be imported,even there is one food-supplement on the market, but in a combination with cranberry-extract. Sad
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Re: Needing advice: V and UTI

Post  emalita on Sun May 22, 2016 6:03 pm

Oh bummer...I hope you can find something else available in your area other than antibiotics.

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Re: Needing advice: V and UTI

Post  Sarah001 on Sun May 22, 2016 9:06 pm

A teaspoon of bicarbonate of soda mixed into a pint of water and drunk straight down 3-4 times a day will make the urine more alkaline which will ease pain and reduce the growth of more bacteria (they like an acid environment) which will just help with your symptoms until your appointment. It won't get rid of the infection though even if all the pain goes still get the antibiotics.
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Re: Needing advice: V and UTI

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