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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Needing advice: V and UTI

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Needing advice: V and UTI

Post  Antaea on Sat May 21, 2016 10:51 am

Hi Ladies, I need some advice:
I've got a cystitis as a side-effect of Gabapentin, which is, even on the lowest dose, helping so far. Any suggestions for what I can do until I see my doc on Thursday? I shall not stop with Neurontin because it helps really a lot. Unfortunately I do not tolerate Cranberry and other acid fluids, got much pain in all my lady parts after drinking even diluted orange juice. Now I only drink clear water all the time.
Some time ago, a doc said I shall take 3 Ibuprofen.1200 mg, a day against the infection and the pain. I'll try it during the week-end. But I would be glad for more suggestions conc. food which is not as acid that it worsens the v but so much that it defends the UTI.
Thanks a lot. Wishing you all an as painless day as possible.
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Re: Needing advice: V and UTI

Post  emalita on Sat May 21, 2016 1:29 pm

Have you tried the powder supplement called D-Mannose? There are studies proving it's effect on UTIs caused by E coli bacteria (most common bacteria to cause UTIs), and two of my Naturopaths recommended it. I unfortunately got a hold of it only after my UTI was cleared. So I can't say for sure how well it would have worked for me.

I believe some health food stores sell it, or you can order it online. Here's a link that talks about it in more detail. I don't really agree with everything this website puts out, but it outlines how well D-mannose works pretty nicely.

http://articles.mercola.com/sites/articles/archive/2014/04/28/d-mannose-uti-prevention.aspx

Good luck!

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RE: Needing advice: UTI and V

Post  Antaea on Sun May 22, 2016 11:16 am

Thank your for your advice. D-mannose is not available in Norway and cannot be imported,even there is one food-supplement on the market, but in a combination with cranberry-extract. Sad
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Re: Needing advice: V and UTI

Post  emalita on Sun May 22, 2016 6:03 pm

Oh bummer...I hope you can find something else available in your area other than antibiotics.

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Re: Needing advice: V and UTI

Post  Sarah001 on Sun May 22, 2016 9:06 pm

A teaspoon of bicarbonate of soda mixed into a pint of water and drunk straight down 3-4 times a day will make the urine more alkaline which will ease pain and reduce the growth of more bacteria (they like an acid environment) which will just help with your symptoms until your appointment. It won't get rid of the infection though even if all the pain goes still get the antibiotics.
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Re: Needing advice: V and UTI

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