Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Similar topics
Latest topics
» Hope to all my suffering ladies
Needing advice: V and UTI EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Needing advice: V and UTI EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Needing advice: V and UTI EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Needing advice: V and UTI EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Needing advice: V and UTI EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Needing advice: V and UTI EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Needing advice: V and UTI EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Needing advice: V and UTI EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Needing advice: V and UTI EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Needing advice: V and UTI

3 posters

Go down

Needing advice: V and UTI Empty Needing advice: V and UTI

Post  Antaea Sat May 21, 2016 10:51 am

Hi Ladies, I need some advice:
I've got a cystitis as a side-effect of Gabapentin, which is, even on the lowest dose, helping so far. Any suggestions for what I can do until I see my doc on Thursday? I shall not stop with Neurontin because it helps really a lot. Unfortunately I do not tolerate Cranberry and other acid fluids, got much pain in all my lady parts after drinking even diluted orange juice. Now I only drink clear water all the time.
Some time ago, a doc said I shall take 3 Ibuprofen.1200 mg, a day against the infection and the pain. I'll try it during the week-end. But I would be glad for more suggestions conc. food which is not as acid that it worsens the v but so much that it defends the UTI.
Thanks a lot. Wishing you all an as painless day as possible.
Antaea
Antaea

Posts : 29
Join date : 2016-05-11
Age : 74
Location : Gotland/Sweden

Back to top Go down

Needing advice: V and UTI Empty Re: Needing advice: V and UTI

Post  emalita Sat May 21, 2016 1:29 pm

Have you tried the powder supplement called D-Mannose? There are studies proving it's effect on UTIs caused by E coli bacteria (most common bacteria to cause UTIs), and two of my Naturopaths recommended it. I unfortunately got a hold of it only after my UTI was cleared. So I can't say for sure how well it would have worked for me.

I believe some health food stores sell it, or you can order it online. Here's a link that talks about it in more detail. I don't really agree with everything this website puts out, but it outlines how well D-mannose works pretty nicely.

http://articles.mercola.com/sites/articles/archive/2014/04/28/d-mannose-uti-prevention.aspx

Good luck!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

Back to top Go down

Needing advice: V and UTI Empty RE: Needing advice: UTI and V

Post  Antaea Sun May 22, 2016 11:16 am

Thank your for your advice. D-mannose is not available in Norway and cannot be imported,even there is one food-supplement on the market, but in a combination with cranberry-extract. Sad
Antaea
Antaea

Posts : 29
Join date : 2016-05-11
Age : 74
Location : Gotland/Sweden

Back to top Go down

Needing advice: V and UTI Empty Re: Needing advice: V and UTI

Post  emalita Sun May 22, 2016 6:03 pm

Oh bummer...I hope you can find something else available in your area other than antibiotics.

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

Back to top Go down

Needing advice: V and UTI Empty Re: Needing advice: V and UTI

Post  Sarah001 Sun May 22, 2016 9:06 pm

A teaspoon of bicarbonate of soda mixed into a pint of water and drunk straight down 3-4 times a day will make the urine more alkaline which will ease pain and reduce the growth of more bacteria (they like an acid environment) which will just help with your symptoms until your appointment. It won't get rid of the infection though even if all the pain goes still get the antibiotics.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

Needing advice: V and UTI Empty Re: Needing advice: V and UTI

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum