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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Needing advice: V and UTI

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Needing advice: V and UTI

Post  Antaea on Sat May 21, 2016 10:51 am

Hi Ladies, I need some advice:
I've got a cystitis as a side-effect of Gabapentin, which is, even on the lowest dose, helping so far. Any suggestions for what I can do until I see my doc on Thursday? I shall not stop with Neurontin because it helps really a lot. Unfortunately I do not tolerate Cranberry and other acid fluids, got much pain in all my lady parts after drinking even diluted orange juice. Now I only drink clear water all the time.
Some time ago, a doc said I shall take 3 Ibuprofen.1200 mg, a day against the infection and the pain. I'll try it during the week-end. But I would be glad for more suggestions conc. food which is not as acid that it worsens the v but so much that it defends the UTI.
Thanks a lot. Wishing you all an as painless day as possible.
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Antaea

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Re: Needing advice: V and UTI

Post  emalita on Sat May 21, 2016 1:29 pm

Have you tried the powder supplement called D-Mannose? There are studies proving it's effect on UTIs caused by E coli bacteria (most common bacteria to cause UTIs), and two of my Naturopaths recommended it. I unfortunately got a hold of it only after my UTI was cleared. So I can't say for sure how well it would have worked for me.

I believe some health food stores sell it, or you can order it online. Here's a link that talks about it in more detail. I don't really agree with everything this website puts out, but it outlines how well D-mannose works pretty nicely.

http://articles.mercola.com/sites/articles/archive/2014/04/28/d-mannose-uti-prevention.aspx

Good luck!

emalita

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RE: Needing advice: UTI and V

Post  Antaea on Sun May 22, 2016 11:16 am

Thank your for your advice. D-mannose is not available in Norway and cannot be imported,even there is one food-supplement on the market, but in a combination with cranberry-extract. Sad
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Re: Needing advice: V and UTI

Post  emalita on Sun May 22, 2016 6:03 pm

Oh bummer...I hope you can find something else available in your area other than antibiotics.

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Re: Needing advice: V and UTI

Post  Sarah001 on Sun May 22, 2016 9:06 pm

A teaspoon of bicarbonate of soda mixed into a pint of water and drunk straight down 3-4 times a day will make the urine more alkaline which will ease pain and reduce the growth of more bacteria (they like an acid environment) which will just help with your symptoms until your appointment. It won't get rid of the infection though even if all the pain goes still get the antibiotics.
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Re: Needing advice: V and UTI

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