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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Needing advice: V and UTI

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Needing advice: V and UTI

Post  Antaea on Sat May 21, 2016 10:51 am

Hi Ladies, I need some advice:
I've got a cystitis as a side-effect of Gabapentin, which is, even on the lowest dose, helping so far. Any suggestions for what I can do until I see my doc on Thursday? I shall not stop with Neurontin because it helps really a lot. Unfortunately I do not tolerate Cranberry and other acid fluids, got much pain in all my lady parts after drinking even diluted orange juice. Now I only drink clear water all the time.
Some time ago, a doc said I shall take 3 Ibuprofen.1200 mg, a day against the infection and the pain. I'll try it during the week-end. But I would be glad for more suggestions conc. food which is not as acid that it worsens the v but so much that it defends the UTI.
Thanks a lot. Wishing you all an as painless day as possible.
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Re: Needing advice: V and UTI

Post  emalita on Sat May 21, 2016 1:29 pm

Have you tried the powder supplement called D-Mannose? There are studies proving it's effect on UTIs caused by E coli bacteria (most common bacteria to cause UTIs), and two of my Naturopaths recommended it. I unfortunately got a hold of it only after my UTI was cleared. So I can't say for sure how well it would have worked for me.

I believe some health food stores sell it, or you can order it online. Here's a link that talks about it in more detail. I don't really agree with everything this website puts out, but it outlines how well D-mannose works pretty nicely.

http://articles.mercola.com/sites/articles/archive/2014/04/28/d-mannose-uti-prevention.aspx

Good luck!

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RE: Needing advice: UTI and V

Post  Antaea on Sun May 22, 2016 11:16 am

Thank your for your advice. D-mannose is not available in Norway and cannot be imported,even there is one food-supplement on the market, but in a combination with cranberry-extract. Sad
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Re: Needing advice: V and UTI

Post  emalita on Sun May 22, 2016 6:03 pm

Oh bummer...I hope you can find something else available in your area other than antibiotics.

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Re: Needing advice: V and UTI

Post  Sarah001 on Sun May 22, 2016 9:06 pm

A teaspoon of bicarbonate of soda mixed into a pint of water and drunk straight down 3-4 times a day will make the urine more alkaline which will ease pain and reduce the growth of more bacteria (they like an acid environment) which will just help with your symptoms until your appointment. It won't get rid of the infection though even if all the pain goes still get the antibiotics.
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Re: Needing advice: V and UTI

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