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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Advice: vestibulitis + compound cream

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Advice: vestibulitis + compound cream

Post  hopeful819 on Sun May 22, 2016 4:58 am

Hi there! 18 year old recently diagnosed with both vestibulitis and generalized vulvodynia. I'm supposed to apply a compound cream (amitriptyline/baclofen/gabapentin) twice a day, but the process of touching and applying it around the vestibule area is extremely painful and debilitating. Has anyone had a similar situation or found a way around this with topical treatments? Would it be significantly less effective if I applied it around the general vulva area but not the vestibule? Thank you so much!

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Re: Advice: vestibulitis + compound cream

Post  emalita on Sun May 22, 2016 1:32 pm

Unfortunately the cream should really be applied on the area causing you pain. I personally found applying cream with a Q-tip (instead of my finger) caused me less discomfort because I had better control of the areas that were touched.

I hope this treatment works for you!

emalita

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Re: Advice: vestibulitis + compound cream

Post  PainBlogger on Sun May 22, 2016 2:36 pm

It may be a case of putting up with the added discomfort in the short term in order to see an improvement as the cream starts to work. Hopefully as the cream starts to work, you won't have so much pain applying it because the nerves will have calmed down. If it persistently just makes you feel worse though I'd get in touch with the prescriber and see what they can suggest. Maybe give it a couple of weeks and see how it goes. It can be similar with oral medication; the first week or two can make one feel even worse because there can be side effects without improvement. But as the drugs start to work and the body adjusts, the side effects go and the pain starts to ease. At least in theory. I hope you soon see some benefit.

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Re: Advice: vestibulitis + compound cream

Post  emalita on Sun May 22, 2016 3:30 pm

PainBlogger - My specialist keeps referring to what you're talking about as "therapeutic discomfort". I want to slap him every time he says it Rolling Eyes

I know I have to power through it, but does he really have to give this added pain its own name Wink

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Re: Advice: vestibulitis + compound cream

Post  PainBlogger on Sun May 22, 2016 3:58 pm

emalita wrote:PainBlogger - My specialist keeps referring to what you're talking about as "therapeutic discomfort". I want to slap him every time he says it Rolling Eyes

I know I have to power through it, but does he really have to give this added pain its own name Wink

Despite a medical background I've never heard that precise term. It is nicely succinct though!

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Re: Advice: vestibulitis + compound cream

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