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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 8:28 pm

I have an appointment on June 3rd. I was on vagifem suppositories for vaginal dryness. Could not tolerate the vagifem as it was causing me serious itching in my bits. I stayed on it 5 weeks. As soon as I stopped taking it, my vulva became sore. Just on the lower right side (just outside the vaginal opening). It's been sore for 4 weeks. Seems a bit better than to start with. There is absolutely nothing visible at all. I think in the beginning there may have been slight swelling, but very slight. Not redness at all. I do have some the symptoms mentioned here like it sort of feels raw but, it is not raw at all. Mostly like a dull ache or bruised feeling. I can't even make it hurt if I push in that area, but oddly enough, my underwear has no problem making it uncomfortable, but only when I am walking. I also feel this if I bend forward and touch my toes to the floor. Sometimes sitting also. I'm going to really look around on here to find out what I can do. I've been sitting in a hot bath in the evenings. This is the craziest thing that has ever happened to me just right out of the blut

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emalita on Mon May 23, 2016 8:59 pm

You could have had a reaction to something in the prescription, and it's just taking your skin a while to calm down. I once read that our vulvar skin can take a month to heal from a minor irritation and far longer for a more serious irritation.

I would highly suggest being very careful what you put on your vulva to try to find relief since you are still in the early stages of your pain. A lot of us have gotten into a horrible cycle of pain because we would put anything and everything on or in our bits to try to find relief, but it only adds to the irritation (even if it seems like something that shouldn't normally cause a reaction - my skin now reacts to plain water).

I am in no way trying to diminish your pain by saying you are in the early stages, but I wish I could go back 2 years and tell myself to just slow down. I personally got myself into the situation I'm in now by allowing doctors to prescribe whatever they wanted and by self treating. So be your best advocate in this journey, and I hope you find very quick relief!

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  PainBlogger on Mon May 23, 2016 9:21 pm

How hot a bath are you having? You may find it better to keep the water to a warm but not overly hot temperature.

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 9:56 pm

Oh very interesting take.....I had not thought about the fact that I could still be recovering. I was for a while putting cortisone on that area, but it did nothing. I was actually thinking of some kind of mild heat tonight like heat pad on low. Thanks very much for the input

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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