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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 8:28 pm

I have an appointment on June 3rd. I was on vagifem suppositories for vaginal dryness. Could not tolerate the vagifem as it was causing me serious itching in my bits. I stayed on it 5 weeks. As soon as I stopped taking it, my vulva became sore. Just on the lower right side (just outside the vaginal opening). It's been sore for 4 weeks. Seems a bit better than to start with. There is absolutely nothing visible at all. I think in the beginning there may have been slight swelling, but very slight. Not redness at all. I do have some the symptoms mentioned here like it sort of feels raw but, it is not raw at all. Mostly like a dull ache or bruised feeling. I can't even make it hurt if I push in that area, but oddly enough, my underwear has no problem making it uncomfortable, but only when I am walking. I also feel this if I bend forward and touch my toes to the floor. Sometimes sitting also. I'm going to really look around on here to find out what I can do. I've been sitting in a hot bath in the evenings. This is the craziest thing that has ever happened to me just right out of the blut

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emalita on Mon May 23, 2016 8:59 pm

You could have had a reaction to something in the prescription, and it's just taking your skin a while to calm down. I once read that our vulvar skin can take a month to heal from a minor irritation and far longer for a more serious irritation.

I would highly suggest being very careful what you put on your vulva to try to find relief since you are still in the early stages of your pain. A lot of us have gotten into a horrible cycle of pain because we would put anything and everything on or in our bits to try to find relief, but it only adds to the irritation (even if it seems like something that shouldn't normally cause a reaction - my skin now reacts to plain water).

I am in no way trying to diminish your pain by saying you are in the early stages, but I wish I could go back 2 years and tell myself to just slow down. I personally got myself into the situation I'm in now by allowing doctors to prescribe whatever they wanted and by self treating. So be your best advocate in this journey, and I hope you find very quick relief!

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  PainBlogger on Mon May 23, 2016 9:21 pm

How hot a bath are you having? You may find it better to keep the water to a warm but not overly hot temperature.

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 9:56 pm

Oh very interesting take.....I had not thought about the fact that I could still be recovering. I was for a while putting cortisone on that area, but it did nothing. I was actually thinking of some kind of mild heat tonight like heat pad on low. Thanks very much for the input

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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