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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 8:28 pm

I have an appointment on June 3rd. I was on vagifem suppositories for vaginal dryness. Could not tolerate the vagifem as it was causing me serious itching in my bits. I stayed on it 5 weeks. As soon as I stopped taking it, my vulva became sore. Just on the lower right side (just outside the vaginal opening). It's been sore for 4 weeks. Seems a bit better than to start with. There is absolutely nothing visible at all. I think in the beginning there may have been slight swelling, but very slight. Not redness at all. I do have some the symptoms mentioned here like it sort of feels raw but, it is not raw at all. Mostly like a dull ache or bruised feeling. I can't even make it hurt if I push in that area, but oddly enough, my underwear has no problem making it uncomfortable, but only when I am walking. I also feel this if I bend forward and touch my toes to the floor. Sometimes sitting also. I'm going to really look around on here to find out what I can do. I've been sitting in a hot bath in the evenings. This is the craziest thing that has ever happened to me just right out of the blut

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emalita on Mon May 23, 2016 8:59 pm

You could have had a reaction to something in the prescription, and it's just taking your skin a while to calm down. I once read that our vulvar skin can take a month to heal from a minor irritation and far longer for a more serious irritation.

I would highly suggest being very careful what you put on your vulva to try to find relief since you are still in the early stages of your pain. A lot of us have gotten into a horrible cycle of pain because we would put anything and everything on or in our bits to try to find relief, but it only adds to the irritation (even if it seems like something that shouldn't normally cause a reaction - my skin now reacts to plain water).

I am in no way trying to diminish your pain by saying you are in the early stages, but I wish I could go back 2 years and tell myself to just slow down. I personally got myself into the situation I'm in now by allowing doctors to prescribe whatever they wanted and by self treating. So be your best advocate in this journey, and I hope you find very quick relief!

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  PainBlogger on Mon May 23, 2016 9:21 pm

How hot a bath are you having? You may find it better to keep the water to a warm but not overly hot temperature.

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 9:56 pm

Oh very interesting take.....I had not thought about the fact that I could still be recovering. I was for a while putting cortisone on that area, but it did nothing. I was actually thinking of some kind of mild heat tonight like heat pad on low. Thanks very much for the input

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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