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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 8:28 pm

I have an appointment on June 3rd. I was on vagifem suppositories for vaginal dryness. Could not tolerate the vagifem as it was causing me serious itching in my bits. I stayed on it 5 weeks. As soon as I stopped taking it, my vulva became sore. Just on the lower right side (just outside the vaginal opening). It's been sore for 4 weeks. Seems a bit better than to start with. There is absolutely nothing visible at all. I think in the beginning there may have been slight swelling, but very slight. Not redness at all. I do have some the symptoms mentioned here like it sort of feels raw but, it is not raw at all. Mostly like a dull ache or bruised feeling. I can't even make it hurt if I push in that area, but oddly enough, my underwear has no problem making it uncomfortable, but only when I am walking. I also feel this if I bend forward and touch my toes to the floor. Sometimes sitting also. I'm going to really look around on here to find out what I can do. I've been sitting in a hot bath in the evenings. This is the craziest thing that has ever happened to me just right out of the blut

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emalita on Mon May 23, 2016 8:59 pm

You could have had a reaction to something in the prescription, and it's just taking your skin a while to calm down. I once read that our vulvar skin can take a month to heal from a minor irritation and far longer for a more serious irritation.

I would highly suggest being very careful what you put on your vulva to try to find relief since you are still in the early stages of your pain. A lot of us have gotten into a horrible cycle of pain because we would put anything and everything on or in our bits to try to find relief, but it only adds to the irritation (even if it seems like something that shouldn't normally cause a reaction - my skin now reacts to plain water).

I am in no way trying to diminish your pain by saying you are in the early stages, but I wish I could go back 2 years and tell myself to just slow down. I personally got myself into the situation I'm in now by allowing doctors to prescribe whatever they wanted and by self treating. So be your best advocate in this journey, and I hope you find very quick relief!

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  PainBlogger on Mon May 23, 2016 9:21 pm

How hot a bath are you having? You may find it better to keep the water to a warm but not overly hot temperature.

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Post  emmasmudge on Mon May 23, 2016 9:56 pm

Oh very interesting take.....I had not thought about the fact that I could still be recovering. I was for a while putting cortisone on that area, but it did nothing. I was actually thinking of some kind of mild heat tonight like heat pad on low. Thanks very much for the input

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Re: My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

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