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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

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Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  emalita on Mon May 23, 2016 10:10 pm

I wanted to write down most of the hypoallergenic products and temporary lifestyle changes that my doctor recommends (or as he calls it The Hypocontactant Regimen). Sorry if there is already something like this out there, but I figured I would write mostly everything that my specialist has me doing.

- Eliminate all chemicals that are coming into contact with your vulva, this includes: flushable or feminine wipes (they are the devil in wipe form), shampoo, laundry detergent, dryer sheets/fabric softeners, shaving cream, super soft or scented toilet paper (lots of chemicals go into making super plush TP), any feminine products that are not 100% ORGANIC cotton, douches, etc.

- Shampoo: Free & Clear Shampoo - Wash your hair in the sink or tub. My specialist says it only takes a single drop of shampoo or conditioner in the shower to set off a reaction, and don't try to cheat by just leaning back in the shower.

- Laundry Detergent: All Free & Clear or Cheer Free & Gentle...I personally make my own following the instructions from the below website:

http://www.dwellinginhappiness.com/chemical-free-liquid-laundry-detergent/

- Fabric Softeners: Find alternatives to dryer sheets. I personally just use a little vinegar in my washing machine's rinse cycle.

- Shaving Cream: Vanicream Shaving Cream...Takes a little getting used to if you normally use the foaming stuff. Just make sure to rinse thoroughly after you're done otherwise it can leave a little residue.

- Tampons/Pads: TOTM or Natracare...Do a little research, you will be amazed as to how horrible regular tampons/pads are for our lady parts.

- If you are having sex, your partner MUST use hypoallergenic products also. Afterall, your partner's skin is coming into contact with you. So any chemical residues on their skin can rub off on you. My specialist recommends Astroglide Gel for lube, but that still seems to have too many chemicals in it for me. Also, condoms should be non-lubricated, non-ribbed, and non-scented/flavored.

- No oral sex on you to avoid saliva irritation

- Body & Vulvar Soap: Grandma's Pure Lye Soap...Yep he recommends we use a wash on our vulvas to keep bacteria, yeast, and perspiration low. Pure soaps are too drying for me; so I use Sliquid Splash Unscented wash.

- Wear all cotton undies

- Body Lotion: Vanicream Lite Lotion

- My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after EVERY urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day.

- Apply a small amount of Vaniply to the vaginal opening before exercise or sports to avoid friction


I hope this is useful and helps someone find relief sunny

emalita

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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  PainBlogger on Tue May 24, 2016 11:23 am

To add to emalita's good advice above (mainly because a lot of the products named may not be easy available in the UK or elsewhere), here are some of the products I now use:

- Surcare detergent (it's fragrance free and marketed for eczema etc sufferers so gentler than many other products). It comes in powder, liquid, and fabric softener and I've seen it in Savers and Sainsburys and some Tesco stores.

- Oilatum bath formula - I get the junior/kids version because the adult one has fragrance in it. I put one capful (less than the recommended three) into a warm (not too hot) bath.

- Sanex zero shower gel - one has to be careful to make sure it's the fragrance free one because some of the Zero range still has fragrance in. This is available in Tesco and no doubt other supermarkets and chemists. It still has a few chemicals, obviously, but so many less than most products.

- Aqueous cream (preferably SLS free and it shouldn't have added fragrance) which can be used either as soap, a moisturiser or as a leg/underarm shaving cream (but I wouldn't put it anywhere near down below). I get it from Savers as the Boots one has (or used to have) a horrible smelling preservative called chlorocreosol in it.

- Yes lubricant (water-based is better, but there is an oil-based one) - no parabens, glycerine and other nasty stuff. There is a minimal amount of preservative in it (which is essential to get the germs away or it would go off really quickly), but I've not had any reaction to it.

- I've stopped using any sanitary towels that are scented. Bodyform are fragrance free and don't irritate me, though they are not cotton. I tried Natracare but they weren't absorbent enough. There's another cotton organic brand available in the UK called Pravera Organyc and I found that they stuck a bit better and were a bit more absorbent but still not quite good enough for very heavy periods. I'd imagine they're fine for lighter flow though. They can be found here: http://www.pravera.co.uk/organyc anyway.




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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  WaahwaahUK on Tue May 24, 2016 7:05 pm

Just wanted to add for UK peeps - I get my sanitary towels from amazon they're called 'Cottons' and they do a night time towel which I find is good for heavy flows.

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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  emalita on Tue May 24, 2016 7:20 pm

Something else that I think should be mentioned even though I don't have much experience with them is reusable menstrual products. I personally haven't had great success with menstrual cups just because they are too big for me to gently get in at the moment, but for someone who is looking for truly chemical free options, they're worth looking into.

Below is a good website for reusable pads and menstrual cups. I've watched a handful of her youtube videos when I was trying to figure out how to use menstrual cups. She is extremely knowledgeable Smile

http://www.preciousstars.net


Last edited by emalita on Thu May 26, 2016 2:01 pm; edited 1 time in total

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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  PainBlogger on Wed May 25, 2016 2:47 pm

WaahwaahUK wrote:Just wanted to add for UK peeps - I get my sanitary towels from amazon they're called 'Cottons' and they do a night time towel which I find is good for heavy flows.

Thanks for the recommendation. Smile




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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  lindsey_taylor on Fri Jul 08, 2016 7:37 pm

Anyone have any recommendations on toilet paper brands that may decrease irritation?

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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  emalita on Fri Jul 08, 2016 9:10 pm

One lady told me she uses Quilted Northern TP, my specialist says it should be high quality TP, internet searches and blogs say the higher quality TPs are worse because of all the chemicals that go into making them soft and white, etc.

So unfortunately I think it will be trial and error for you because there are so many varying opinions. I personally use Charmin Basic and don't seem to have issues.

Just be careful with recycled TP because it generally contains BPA from recycled sales receipts and newspapers. I recommend googling "allergy to toilet paper" because there are a ton of articles about it, including learning about bamboo TP Wink

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Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

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