Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Go down

Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  emalita on Mon May 23, 2016 10:10 pm

I wanted to write down most of the hypoallergenic products and temporary lifestyle changes that my doctor recommends (or as he calls it The Hypocontactant Regimen). Sorry if there is already something like this out there, but I figured I would write mostly everything that my specialist has me doing.

- Eliminate all chemicals that are coming into contact with your vulva, this includes: flushable or feminine wipes (they are the devil in wipe form), shampoo, laundry detergent, dryer sheets/fabric softeners, shaving cream, super soft or scented toilet paper (lots of chemicals go into making super plush TP), any feminine products that are not 100% ORGANIC cotton, douches, etc.

- Shampoo: Free & Clear Shampoo - Wash your hair in the sink or tub. My specialist says it only takes a single drop of shampoo or conditioner in the shower to set off a reaction, and don't try to cheat by just leaning back in the shower.

- Laundry Detergent: All Free & Clear or Cheer Free & Gentle...I personally make my own following the instructions from the below website:

http://www.dwellinginhappiness.com/chemical-free-liquid-laundry-detergent/

- Fabric Softeners: Find alternatives to dryer sheets. I personally just use a little vinegar in my washing machine's rinse cycle.

- Shaving Cream: Vanicream Shaving Cream...Takes a little getting used to if you normally use the foaming stuff. Just make sure to rinse thoroughly after you're done otherwise it can leave a little residue.

- Tampons/Pads: TOTM or Natracare...Do a little research, you will be amazed as to how horrible regular tampons/pads are for our lady parts.

- If you are having sex, your partner MUST use hypoallergenic products also. Afterall, your partner's skin is coming into contact with you. So any chemical residues on their skin can rub off on you. My specialist recommends Astroglide Gel for lube, but that still seems to have too many chemicals in it for me. Also, condoms should be non-lubricated, non-ribbed, and non-scented/flavored.

- No oral sex on you to avoid saliva irritation

- Body & Vulvar Soap: Grandma's Pure Lye Soap...Yep he recommends we use a wash on our vulvas to keep bacteria, yeast, and perspiration low. Pure soaps are too drying for me; so I use Sliquid Splash Unscented wash.

- Wear all cotton undies

- Body Lotion: Vanicream Lite Lotion

- My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after EVERY urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day.

- Apply a small amount of Vaniply to the vaginal opening before exercise or sports to avoid friction


I hope this is useful and helps someone find relief sunny

emalita

Posts : 221
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  PainBlogger on Tue May 24, 2016 11:23 am

To add to emalita's good advice above (mainly because a lot of the products named may not be easy available in the UK or elsewhere), here are some of the products I now use:

- Surcare detergent (it's fragrance free and marketed for eczema etc sufferers so gentler than many other products). It comes in powder, liquid, and fabric softener and I've seen it in Savers and Sainsburys and some Tesco stores.

- Oilatum bath formula - I get the junior/kids version because the adult one has fragrance in it. I put one capful (less than the recommended three) into a warm (not too hot) bath.

- Sanex zero shower gel - one has to be careful to make sure it's the fragrance free one because some of the Zero range still has fragrance in. This is available in Tesco and no doubt other supermarkets and chemists. It still has a few chemicals, obviously, but so many less than most products.

- Aqueous cream (preferably SLS free and it shouldn't have added fragrance) which can be used either as soap, a moisturiser or as a leg/underarm shaving cream (but I wouldn't put it anywhere near down below). I get it from Savers as the Boots one has (or used to have) a horrible smelling preservative called chlorocreosol in it.

- Yes lubricant (water-based is better, but there is an oil-based one) - no parabens, glycerine and other nasty stuff. There is a minimal amount of preservative in it (which is essential to get the germs away or it would go off really quickly), but I've not had any reaction to it.

- I've stopped using any sanitary towels that are scented. Bodyform are fragrance free and don't irritate me, though they are not cotton. I tried Natracare but they weren't absorbent enough. There's another cotton organic brand available in the UK called Pravera Organyc and I found that they stuck a bit better and were a bit more absorbent but still not quite good enough for very heavy periods. I'd imagine they're fine for lighter flow though. They can be found here: http://www.pravera.co.uk/organyc anyway.




PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  WaahwaahUK on Tue May 24, 2016 7:05 pm

Just wanted to add for UK peeps - I get my sanitary towels from amazon they're called 'Cottons' and they do a night time towel which I find is good for heavy flows.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  emalita on Tue May 24, 2016 7:20 pm

Something else that I think should be mentioned even though I don't have much experience with them is reusable menstrual products. I personally haven't had great success with menstrual cups just because they are too big for me to gently get in at the moment, but for someone who is looking for truly chemical free options, they're worth looking into.

Below is a good website for reusable pads and menstrual cups. I've watched a handful of her youtube videos when I was trying to figure out how to use menstrual cups. She is extremely knowledgeable Smile

http://www.preciousstars.net


Last edited by emalita on Thu May 26, 2016 2:01 pm; edited 1 time in total

emalita

Posts : 221
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  PainBlogger on Wed May 25, 2016 2:47 pm

WaahwaahUK wrote:Just wanted to add for UK peeps - I get my sanitary towels from amazon they're called 'Cottons' and they do a night time towel which I find is good for heavy flows.

Thanks for the recommendation. Smile




PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  lindsey_taylor on Fri Jul 08, 2016 7:37 pm

Anyone have any recommendations on toilet paper brands that may decrease irritation?

lindsey_taylor

Posts : 57
Join date : 2016-06-06
Age : 32
Location : Georgia, United States

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  emalita on Fri Jul 08, 2016 9:10 pm

One lady told me she uses Quilted Northern TP, my specialist says it should be high quality TP, internet searches and blogs say the higher quality TPs are worse because of all the chemicals that go into making them soft and white, etc.

So unfortunately I think it will be trial and error for you because there are so many varying opinions. I personally use Charmin Basic and don't seem to have issues.

Just be careful with recycled TP because it generally contains BPA from recycled sales receipts and newspapers. I recommend googling "allergy to toilet paper" because there are a ton of articles about it, including learning about bamboo TP Wink

emalita

Posts : 221
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum