Vulvodynia Support
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» Hope to all my suffering ladies
Will this ever end... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Will this ever end... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Will this ever end... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Will this ever end... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Will this ever end... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Will this ever end... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Will this ever end... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Will this ever end... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Will this ever end... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  emalita Mon May 23, 2016 11:52 pm

I don't know what the F changed from this weekend to today, but this stupid pain in the creases between my labia minor and majora is flaring up! I had such a good weekend with my pain overall, and all of the sudden BOOM, here's the pain. Although this certainly is not even close to the worst flare up I've had with this particular pain, it is the worst I've had in a few weeks. Imagine a prickly hot rug burn, and that's my vulva!

Did I let my vulva get too hot today?? Last night was the first night in 4 days that I had to use one of my suppositories...is that irritating my skin?? I just can't take this crap anymore. Sometimes I feel like having good days makes this whole thing worse because then you are reminded of how bad things really are the next flare. My body was "normal" at one point...why can't it get back to that Crying or Very sad

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  let's kick this Tue May 24, 2016 12:06 am

I feel for you I have had this pain for 10months I am so ready for it to go away. I have tried so many treatments

let's kick this

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Join date : 2016-03-29
Location : USA

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Post  emalita Tue May 24, 2016 12:22 am

The worst thing is that I can't even curl up in a ball and cry because it hurts too much to let my skin touch itself that much Crying or Very sad

emalita

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Location : USA

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Post  fairlight10 Tue May 24, 2016 10:37 am

Heat is the enemy for my vestibulitis. I would never have a hot bath. Never sit on a hot surface. I avoid getting too hot as this can cause the nerves too start up.

fairlight10

Posts : 72
Join date : 2016-04-17

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Post  let's kick this Sun May 29, 2016 11:36 pm

Ice packs help some. Have any of you been to a pain specialist yet? I'm going to a chiro now she's not helping much yet but she seems to think she can. She's alsoa homeopath Natural healer giving me lots of natural pills to try??? Just hoping that we all finf something my gosh this stinks Evil or Very Mad

let's kick this

Posts : 29
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Location : USA

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Post  emalita Mon May 30, 2016 12:34 am

let's kick this - No, I personally haven't seen a pain specialist, but that is because I don't want to just treat the symptoms. My pain is not nerve related; so I'm focusing on finding a cure Very Happy  Unfortunately my skin was too sensitive to touch and pressure to be able to use ice.

Good news is I think I MAY have figured out what was making my crease pain so bad. My specialist originally diagnosed me with lichen sclerosus, which was for the pain in my creases, but I've since had two OBGYNs tell me I don't have LS. I started noticing that my pain was worse after using the hydrocortisone cream that I was prescribed for the "LS" symptoms, and so I chose to stop it cold turkey because reducing it down to only applying it once a day was actually making things worse (don't ask me how that makes any sense scratch ). Anyway, last night was the third night of not using the cream at all, and my symptoms are getting better every day (today it was almost nonexistent).

I have no doubt the cream helped calm down whatever was going on, but then I think it just became more irritating than anything. I want to see how things feel in the next week or two, but if the pain stays away, then I think I can safely say the cream was keeping the irritation going.

If this pain can go the heck away, then I just have to focus on my inner labia acid burn pain Rolling Eyes

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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