Log in

I forgot my password

Latest topics
Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Will this ever end...

Go down

Will this ever end...

Post  emalita on Mon May 23, 2016 11:52 pm

I don't know what the F changed from this weekend to today, but this stupid pain in the creases between my labia minor and majora is flaring up! I had such a good weekend with my pain overall, and all of the sudden BOOM, here's the pain. Although this certainly is not even close to the worst flare up I've had with this particular pain, it is the worst I've had in a few weeks. Imagine a prickly hot rug burn, and that's my vulva!

Did I let my vulva get too hot today?? Last night was the first night in 4 days that I had to use one of my suppositories...is that irritating my skin?? I just can't take this crap anymore. Sometimes I feel like having good days makes this whole thing worse because then you are reminded of how bad things really are the next flare. My body was "normal" at one point...why can't it get back to that Crying or Very sad

emalita

Posts : 242
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Will this ever end

Post  let's kick this on Tue May 24, 2016 12:06 am

I feel for you I have had this pain for 10months I am so ready for it to go away. I have tried so many treatments

let's kick this

Posts : 29
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Will this ever end...

Post  emalita on Tue May 24, 2016 12:22 am

The worst thing is that I can't even curl up in a ball and cry because it hurts too much to let my skin touch itself that much Crying or Very sad

emalita

Posts : 242
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Will this ever end...

Post  fairlight10 on Tue May 24, 2016 10:37 am

Heat is the enemy for my vestibulitis. I would never have a hot bath. Never sit on a hot surface. I avoid getting too hot as this can cause the nerves too start up.

fairlight10

Posts : 67
Join date : 2016-04-17

View user profile

Back to top Go down

Will this ever end

Post  let's kick this on Sun May 29, 2016 11:36 pm

Ice packs help some. Have any of you been to a pain specialist yet? I'm going to a chiro now she's not helping much yet but she seems to think she can. She's alsoa homeopath Natural healer giving me lots of natural pills to try??? Just hoping that we all finf something my gosh this stinks Evil or Very Mad

let's kick this

Posts : 29
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Will this ever end...

Post  emalita on Mon May 30, 2016 12:34 am

let's kick this - No, I personally haven't seen a pain specialist, but that is because I don't want to just treat the symptoms. My pain is not nerve related; so I'm focusing on finding a cure Very Happy  Unfortunately my skin was too sensitive to touch and pressure to be able to use ice.

Good news is I think I MAY have figured out what was making my crease pain so bad. My specialist originally diagnosed me with lichen sclerosus, which was for the pain in my creases, but I've since had two OBGYNs tell me I don't have LS. I started noticing that my pain was worse after using the hydrocortisone cream that I was prescribed for the "LS" symptoms, and so I chose to stop it cold turkey because reducing it down to only applying it once a day was actually making things worse (don't ask me how that makes any sense scratch ). Anyway, last night was the third night of not using the cream at all, and my symptoms are getting better every day (today it was almost nonexistent).

I have no doubt the cream helped calm down whatever was going on, but then I think it just became more irritating than anything. I want to see how things feel in the next week or two, but if the pain stays away, then I think I can safely say the cream was keeping the irritation going.

If this pain can go the heck away, then I just have to focus on my inner labia acid burn pain Rolling Eyes

emalita

Posts : 242
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Will this ever end...

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum