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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Will this ever end...

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Will this ever end...

Post  emalita on Mon May 23, 2016 11:52 pm

I don't know what the F changed from this weekend to today, but this stupid pain in the creases between my labia minor and majora is flaring up! I had such a good weekend with my pain overall, and all of the sudden BOOM, here's the pain. Although this certainly is not even close to the worst flare up I've had with this particular pain, it is the worst I've had in a few weeks. Imagine a prickly hot rug burn, and that's my vulva!

Did I let my vulva get too hot today?? Last night was the first night in 4 days that I had to use one of my suppositories...is that irritating my skin?? I just can't take this crap anymore. Sometimes I feel like having good days makes this whole thing worse because then you are reminded of how bad things really are the next flare. My body was "normal" at one point...why can't it get back to that Crying or Very sad

emalita

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Will this ever end

Post  let's kick this on Tue May 24, 2016 12:06 am

I feel for you I have had this pain for 10months I am so ready for it to go away. I have tried so many treatments

let's kick this

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Re: Will this ever end...

Post  emalita on Tue May 24, 2016 12:22 am

The worst thing is that I can't even curl up in a ball and cry because it hurts too much to let my skin touch itself that much Crying or Very sad

emalita

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Re: Will this ever end...

Post  fairlight10 on Tue May 24, 2016 10:37 am

Heat is the enemy for my vestibulitis. I would never have a hot bath. Never sit on a hot surface. I avoid getting too hot as this can cause the nerves too start up.

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Will this ever end

Post  let's kick this on Sun May 29, 2016 11:36 pm

Ice packs help some. Have any of you been to a pain specialist yet? I'm going to a chiro now she's not helping much yet but she seems to think she can. She's alsoa homeopath Natural healer giving me lots of natural pills to try??? Just hoping that we all finf something my gosh this stinks Evil or Very Mad

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Re: Will this ever end...

Post  emalita on Mon May 30, 2016 12:34 am

let's kick this - No, I personally haven't seen a pain specialist, but that is because I don't want to just treat the symptoms. My pain is not nerve related; so I'm focusing on finding a cure Very Happy  Unfortunately my skin was too sensitive to touch and pressure to be able to use ice.

Good news is I think I MAY have figured out what was making my crease pain so bad. My specialist originally diagnosed me with lichen sclerosus, which was for the pain in my creases, but I've since had two OBGYNs tell me I don't have LS. I started noticing that my pain was worse after using the hydrocortisone cream that I was prescribed for the "LS" symptoms, and so I chose to stop it cold turkey because reducing it down to only applying it once a day was actually making things worse (don't ask me how that makes any sense scratch ). Anyway, last night was the third night of not using the cream at all, and my symptoms are getting better every day (today it was almost nonexistent).

I have no doubt the cream helped calm down whatever was going on, but then I think it just became more irritating than anything. I want to see how things feel in the next week or two, but if the pain stays away, then I think I can safely say the cream was keeping the irritation going.

If this pain can go the heck away, then I just have to focus on my inner labia acid burn pain Rolling Eyes

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Re: Will this ever end...

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