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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Will this ever end...

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Will this ever end...

Post  emalita on Mon May 23, 2016 11:52 pm

I don't know what the F changed from this weekend to today, but this stupid pain in the creases between my labia minor and majora is flaring up! I had such a good weekend with my pain overall, and all of the sudden BOOM, here's the pain. Although this certainly is not even close to the worst flare up I've had with this particular pain, it is the worst I've had in a few weeks. Imagine a prickly hot rug burn, and that's my vulva!

Did I let my vulva get too hot today?? Last night was the first night in 4 days that I had to use one of my suppositories...is that irritating my skin?? I just can't take this crap anymore. Sometimes I feel like having good days makes this whole thing worse because then you are reminded of how bad things really are the next flare. My body was "normal" at one point...why can't it get back to that Crying or Very sad

emalita

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Will this ever end

Post  let's kick this on Tue May 24, 2016 12:06 am

I feel for you I have had this pain for 10months I am so ready for it to go away. I have tried so many treatments

let's kick this

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Re: Will this ever end...

Post  emalita on Tue May 24, 2016 12:22 am

The worst thing is that I can't even curl up in a ball and cry because it hurts too much to let my skin touch itself that much Crying or Very sad

emalita

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Re: Will this ever end...

Post  fairlight10 on Tue May 24, 2016 10:37 am

Heat is the enemy for my vestibulitis. I would never have a hot bath. Never sit on a hot surface. I avoid getting too hot as this can cause the nerves too start up.

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Will this ever end

Post  let's kick this on Sun May 29, 2016 11:36 pm

Ice packs help some. Have any of you been to a pain specialist yet? I'm going to a chiro now she's not helping much yet but she seems to think she can. She's alsoa homeopath Natural healer giving me lots of natural pills to try??? Just hoping that we all finf something my gosh this stinks Evil or Very Mad

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Re: Will this ever end...

Post  emalita on Mon May 30, 2016 12:34 am

let's kick this - No, I personally haven't seen a pain specialist, but that is because I don't want to just treat the symptoms. My pain is not nerve related; so I'm focusing on finding a cure Very Happy  Unfortunately my skin was too sensitive to touch and pressure to be able to use ice.

Good news is I think I MAY have figured out what was making my crease pain so bad. My specialist originally diagnosed me with lichen sclerosus, which was for the pain in my creases, but I've since had two OBGYNs tell me I don't have LS. I started noticing that my pain was worse after using the hydrocortisone cream that I was prescribed for the "LS" symptoms, and so I chose to stop it cold turkey because reducing it down to only applying it once a day was actually making things worse (don't ask me how that makes any sense scratch ). Anyway, last night was the third night of not using the cream at all, and my symptoms are getting better every day (today it was almost nonexistent).

I have no doubt the cream helped calm down whatever was going on, but then I think it just became more irritating than anything. I want to see how things feel in the next week or two, but if the pain stays away, then I think I can safely say the cream was keeping the irritation going.

If this pain can go the heck away, then I just have to focus on my inner labia acid burn pain Rolling Eyes

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Re: Will this ever end...

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