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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Very very long introduction (new and miserable)

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Very very long introduction (new and miserable)

Post  Haze on Wed May 25, 2016 6:45 am

Okay... I set out keep this as short as possible but boy, it's hard to condense 4+ years of pain. I've got an appointment tomorrow and am losing my mind. Any advice or ideas would be seriously appreciated if anybody can bear to read through.

Female, 25 years old, living the UK.

Pain begins January 2012, about an hour into intercourse with the SO. A "honey, I'm getting sore, can we take a break?" situation. Over the next couple of months an hour before pain becomes 30 minutes, 20 minutes, 10 minutes, 5 minutes. By the end of March 2012, we can't have sex at all. We can't even attempt it. The pain from the briefest contact lingers for hours. The pain is only when provoked, but it is excruciating. The affected area feels like a nasty bruise would when pushed down on, with the addition of extreme soreness, as if the skin has been ripped away or is severely burnt.

Tentative about going to the doctors because of a previous experience with a horrible, horrible doctor. But I drag myself down, explain the issue and without any examination whatsoever I am given antibiotics for a urinary tract infection that I don't think for a second I had.

After I've finished the course of unnecessary antibiotics I return to the doctor who seems very dubious of my reported symptoms, and asks repeatedly if I have any itching, any discharge, pain when I urinate to which the answers are all a certain no. I reiterate over and over that my problem is pain on penetration but the guy ignores me and continues the discussion as if I've told him my problem is with urinating. I don't go back. I hope the pain will just go away.

June 2012, I've moved to a new area and sign up with a new GP. I've also not had a period for three months by this point and am confirmed not pregnant. I figure, hey, I should go back and have another go at talking about the pain too. My SO comes with to help hold my ground in case I'm ignored again. She takes my concerns a lot more seriously, does a q-tip test. She notes that she can't see any visible cause, but that the area looks a little red.

I have blood tests re. the lack of periods that come back with nothing out of the ordinary. She sends me to have an ultrasound. which concludes I have polycystic ovary syndrome. Back to the GP, and I'm referred to a gynaecologist for both the pain and the PCOS.

A year and a half without sex. After waiting times for tests and visits, it's August 2013 before I see the specialist for the first time. For PCOS he concludes I need to lose at least 10% of my body weight unaided before any help will be offered (as of today I've lost over 25% and still no advice is forthcoming with my total absence of periods, but hey ho one problem at a time). He does another q-tip test with the same results and diagnoses vulvodynia. I'm prescribed Tegretol and booked in for a follow up in 6 months.

Two years without sex, February 2014. Back to the gynaecologist and zero pain reduction achieved. I'm prescribed Gabapentin and booked in for a follow up in 6 months. The diagnosis note changes to vulvar vestibulitis.

Two and a half years without sex, August 2014. Back to the gynaecologist and zero pain reduction achieved. I'm booked in for a biopsy under general anaesthetic. The biopsy itself was fine, but obviously a lot of pain in the week after. I hear nothing back from the gynaecologist or hospital for ages, I go to my GP who tells me that I have to wait for a letter with results and follow up appointment from the hospital. I keep popping back to the GP but nothing is ever moved forward other than I'm prescribed higher and higher doses of Gabapentin with no results.

Three and a half years without sex, June 2015. I've moved area again, sign up with a new doctor and go through everything again. I'm slowly taken off the Gabapentin, which was a relief as it really did knock me about (a lot of drowsiness and confusion which did subside but it took a long time). She refers me to the same gynaecologist.

Four years without sex, February 2016. Back to the gynaecologist. The biopsy found a bit fat nothing wrong with me, other than the obvious, inflammation. He prescribes me a cream to apply every night and states that if this doesn't work he is out of ideas and will be referring me to someone specialising in dermatitis.

I'm told that they also removed a hymen tag during the biopsy (I had a septate hymen which a previous super-horrible boyfriend actually sliced with a pocket knife in response to my inability to have sex back then).

He writes on the docs that he has diagnosed eczema. He's asking me questions again like "are you sure there is no itching, no discharge, no yeast infection, no STDs?" If I'm honest, I'm quite angry when I walk away. Maybe it is eczema, but I sure as hell don't feel it is. It feels like I'm right back to square one when the first GP I approached seemed convinced of a condition I didn't have, based on an assumption that I has no understanding of what my one and only symptom is.

He booked me in for a follow up which is tomorrow, 26th May. It has been over four years without sex. The cream has done nothing. Actually, I feel like the cream has made the pain even worse, though that might be my mindset.

My SO and I are still together and he is a very patient godsend. Having said that, the toll of no sex for over 80% of our relationship is a real strain, and there's only so far he can go to understanding my feelings.

The response on both my pain and PCOS from every medical professional I have spoken to is "well, it's not too important anyway, you're not looking to get pregnant right now". This really concerns me. Me and SO have been together nearly 5 years, and I found out by accident that a proposal is forthcoming. We both want to start a family before we're 30. Sure, that seems like a long time away, but considering how much time has passed with no periods I'd like to think we could fix that before we start trying. And we can't even consider trying until I'm capable of having sex.

The response from medical professionals has also been widely different when my SO attends the appointments with me. The impression I get is that a women explaining her pain and anguish over not being able to have sex is not an important issue until the man comes along and says that he too, cannot have sex because of my defective vagina. In fact, it feels like nobody believes I am in pain until the SO confirms that he is trying his darndest to penetrate me. When he's in the room the response is a very can-do, we will get to the bottom of this, this must be awful for you both. When I'm alone on an appointment, the response is a lot of shoulder shrugging, a lot of suggestion that the pain isn't as bad as I say, maybe I'm mistaking itching for pain, sex isn't the be all and end all.

I want surgery. I hate myself so much at this point I have seriously considered cutting the painful area out myself with a knife. I know logically that this wouldn't help me, I'm just sick of waiting for months and months for a test, or a tablet, or a follow up, that brings me no closer to a solution. I am sorely tempted to say this at my appointment tomorrow, but I don't feel a hysterical woman approach is going to do me any favours.

Any advice/ideas, any anything would be welcome. The only person in my personal life who knows about this is my SO, and it's actually been nice to write it all down and share. So thanks if you made it to the end.

TLDR; lots of pain, several treatments, no improvement, head about to explode, need to make myself heard at appointment, advice please.


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Re: Very very long introduction (new and miserable)

Post  PainBlogger on Wed May 25, 2016 8:20 am

Have you ever been referred to a pain clinic? That may be worth asking about. In my experience, gynaecologists are a bit lacking when it comes to treating long-term pain. You say you've tried Tegretol and gabapentin. There are a variety of other drugs for nerve pain (amitriptyline, nortriptyline, pregabalin, duloxetine, possibly opiates short-term) that a specialist in a pain clinic might consider prescribing for you to try.

Acupuncture - not often available on the NHS, but if you can afford a few private sessions then I'd say it's worth a go.

Physiotherapy - tight pelvic floor muscles can be caused by the chronic pain which then only makes sex even more difficult. You'd need to see a women's health/pelvic pain physio. In some areas it's available on the NHS, in others only privately, but again, worth asking about.

Lidocaine gel/ointment - probably not advisable if you really do have eczema or a dermatological issue, but could be an option if not.

Re: the appointment, maybe write down a list of what you need to tell the doctor and of any questions so that you can go through each point methodically. Reiterate the impact it's having on your life and make sure you state the actual terms 'depressed' and 'anxious' rather than saying things like 'feeling down'. For some reason, doctors tend to react more concerned when they hear the actually medical terms, if that makes sense.

People do get better from this. I am one of them. I'm not 100% better, but am maybe 80% there. Good luck with your appointment and let us know how it goes.

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Re: Very very long introduction (new and miserable)

Post  fairlight10 on Wed May 25, 2016 10:34 am

Hello Haze. I feel am so cross with the way you have been treated. Or not treated! We have been suffering the same amount of time. I cut some of the crap you have been through by seeing a consultant gynaecologist privately when I realised that GPs are completely ignorant of the condition vulvodynia and its subsets vulvar vestibulitis etc. I am taking nortriptyline 30mgs. It has been very effect in reducing nerve pain which is what you have in your vestibule. Don't bother with amitriptyline. The side effects are not good. Also it's a cheaper drug. I have also heard duloxetine is very effective. I always took a family member to appointments to back me up. Sorry to hear you have PCOS. My daughter suffers with this. Don't keep this from your close female relatives. You need their support. Acupuncture is also a good therapy. I had 20 sessions. You will be counseled and they will try to reduce your stress levels and put the needles in the vulvodynia points. Hope this helps.

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Re: Very very long introduction (new and miserable)

Post  emalita on Wed May 25, 2016 3:40 pm

I'm so sorry to hear you've been treated this way. You, and all women, deserve better treatment than this. I've racked up about 11 or 12 different doctors in 2 years because I keep abandoning the idiots who won't listen. I personally do have a skin issue, but every doctor keeps trying to tell me it is nerve pain or unresolved sexual issues.

Do you have pain only with penetration during intercourse, or do you have pain when trying to insert anything (e.g. tampon, finger, etc.)? The reason I ask is to try to make sure it isn't something that is coming into contact with your skin just during sex. Also, I watched a show once where a woman thought she was allergic to her husband's semen, but she ended up having a condition called dermatographia where even the slightest touch caused inflammation (antihistamines before sex resolved her issue). It doesn't sound like what you have because I think you would have noticed the inflammation, but I wanted to throw it out there just in case.

Have you had your hormones tested throughout the course of a few weeks or a month to see where you are at since you don't have regular periods? Have you been on hormonal birth control in the past that would have disrupted your cycle? Something I would highly suggest looking into is seed cycling to try to balance things out. I know what you must be thinking, how the heck are seeds going to help regulate my period...well, I don't know why, but they do. Plus, it is a chemical free, cheap, and easy process to follow. It wouldn't hurt to give it a try for a few months while you are looking for better treatments for your pain. Below is a good link that talks about it.

http://www.dr-kristy.com/balancing-hormones-with-seed-clycling/

If you haven't already, it would be a good idea to use hypoallergenic products to ensure your vulvar exposure to chemicals is limited (and keep in mind that everything washes downward in the shower). Take a look at the below link for some suggestions.

http://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes

I hope you find a doctor who is more qualified to treat your pain. Hang in there...it can get better! sunny

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Re: Very very long introduction (new and miserable)

Post  Haze on Wed May 25, 2016 8:25 pm

Wow, thank you for the responses! This has seriously given me some hope.

I only wish I'd looked for support online before today as I could have been looking at some of these suggestions privately - if I had only known about them. The gynaecologist really made it sound like the cream was the last option I had. I'll definitely be looking into every single suggestion now!

Going to take a list tomorrow and hopefully come back with a more positive update. Even if not, I know I can work towards some private treatment/lifestyle changes... why oh why hasn't a single doctor mentioned any of these to me before? If I can instigate my own pain relief I'd be over the moon, but, well, a little sour at all this time spent in pain waiting for a doctor to fix me.

emalita - Pain is on any insertion. I've had my hormones tested once and that's it. Cycled through a few different pills in my teens. Had regular periods up before they suddenly stopped. I average one a year now. The response has been a resounding "well, you're not looking to get pregnant right now... so it's not a problem". My sister, who turns 40 this year, suspected she also has PCOS with same absence of periods and some other symptoms starting from her late-20s. She had already had a child and the response she got was "well, you've already had a child... so it's not a problem". I guess I need to start pushing a bit harder for help on this one. Never heard of seed cycling before, will be picking up seeds tomorrow and starting right away.

I was dreading going to this appointment and being told to abandon all hope so seriously, thank you so much for the advice.

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Re: Very very long introduction (new and miserable)

Post  PainBlogger on Wed May 25, 2016 9:05 pm

Haze - what was the name of the cream you were prescribed? Was it a steroid? I'm almost certain that a series of steroid-containing (and antibiotic/antifungal) creams that my (well-meaning) GP initially prescribed made my problem worse.

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Re: Very very long introduction (new and miserable)

Post  Haze on Thu May 26, 2016 5:09 am

PainBlogger - I was prescribed Eumovate Ointment, contains clobetasone butyrate - I think steroid? I didn't honestly think it would help, still feel the diagnosis of eczema is wrong. He was angling the discussion towards itching, discharge, etc. and that's just not my experience.

The instructions also said external application only. Again, not medically trained, but I'd always thought my pain zone (just inside the vaginal opening) to be internal?

The pain has felt worse since I started the cream. But I've also felt very stressed thinking that this was my final chance at a fix. It's possible the pain just feels worse because I was expecting/wishing for some relief?

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Re: Very very long introduction (new and miserable)

Post  PainBlogger on Thu May 26, 2016 7:59 am

Yep, that's a steroid, and not the mildest one either. And yes, I would say that just inside is definitely not external. If the pain is making things worse then I'd say you definitely need to let the prescriber know that. Sometimes these things make things worse very initially and then the benefit starts to kick in, but if it's been a while and it's still making things worse then it seems like stopping it is logical (but don't just stop it without consulting with a doctor first).

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Re: Very very long introduction (new and miserable)

Post  Haze on Thu May 26, 2016 5:55 pm

So I just returned from my appointment, which was a total utter waste of time. I am so angry.

The consultant wasn't in today, so instead I was seen by a registrar I have never met with before. They were running about an hour behind schedule. The appointment went:

Registrar - "I've been looking at your notes, has the cream worked?"

Me - "No, over the last two months it feels like the pain is worse."

Registrar - "Your consultant has written down here that if it hasn't worked there is nothing more we can do, so I will write a letter of referral to a dermatologist for your eczema."

Me - "Okay. I have some questions about other treatments I'd like to look into."

Registrar - "No, it is in your notes there is nothing more we can help you with. I'm going to write this letter today and you will get a new appointment in the post."

Me - "What I wanted to ask, is there a chance that the inflammation might not be the only cause of the pain?"

Registrar - "The biopsy found inflammation. There is nothing else to treat you for."

She then stood up and led me to the door. My consult lasted about 60 seconds. A super kind nurse saw my reaction coming out and let me sit in a spare room where I had a good 30 minute cry before heading home.

So, so angry. I'll calm down in a day or two, but right this moment I am livid. Plan is back to the GP on Thursday. My current GP is kind, so if nothing else she will give me a chance to speak.

I'll probably post this question in another section, but has anyone been diagnosed with vaginal eczema with absolutely zero itching, discharge or rash? I really do not feel they've drawn the right conclusion here!

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Re: Very very long introduction (new and miserable)

Post  emalita on Thu May 26, 2016 7:14 pm

I am so sorry! That is not acceptable at all! The only good thing to possibly come from this appointment is you hopefully won't ever have to see that uninformed doctor again. Just know this is on them, not you! It's not like you purposely have a difficult case to treat because you thought it would be fun. So don't let that doctor's office make you feel sad or discouraged...being angry at THEM is appropriate though Wink Just channel that anger into motivation! From my experience there unfortunately aren't many doctors out there who are educated in vulvar pain conditions, but they are out there! You just have to dig through the crappy ones to find someone who will listen.

I am absolutely no medical expert, but your pain sounds very typical of provoked vestibulodynia. I would definitely discuss with your GP being seen by a pelvic floor physical therapist. This would be a great place to start since it seems to be one of the better treatments for provoked pain. Plus, pelvic therapists are much more knowledgeable about vulvodynia in general and may be able to give you the names of some great informed doctors to go see.

Honestly, if your pain was due to eczema, you should be uncomfortable more times than not (not just during penetration), in my opinion. That's not to say you don't have sensitive tissue or another form of a skin issue, but a skin issue doesn't sound like what you're describing. However, I do have a skin issue, and there isn't much to see (and there's no itching). So just because there aren't physical signs of trauma or a rash, that doesn't rule out skin problems either unfortunately (even if most doctors like to believe that).

If you choose to stop the steroid cream, please do it slowly! Even if you never had a skin condition, your body needs time to adjust to not having the steroid applied. For example, if you use the cream once a day, change to using it every other day for 2 weeks then only 3 times a week for 2 weeks and so on.

Keep us updated on how your next appointment goes. I know it's hard because I struggle with it too, but go into your next appointment with a game plan. Tell THEM what you want to try next, whether that be antidepressants, anticonvulsants, or physical therapy.

Good luck, and keep your head up! sunny

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Re: Very very long introduction (new and miserable)

Post  fairlight10 on Thu May 26, 2016 8:09 pm

The way you have been treated is unfortunately a common tale told by many sufferers on this forum. You could go down the private route. My first consultation cost £200. It was worth every penny to get the correct diagnosis. I agree it sounds like provoked vestibulodynia. The new name for vulvar vestibulitis/vulvodynia. Also ask your GP to be referred to a pain management clinic at a local hospital. Acupuncture is £40 a session usually. Research on the many websites for your condition. I was told I had thrush, uti's and atrophic vaginitis by my GP who is also a gynaecologist! I enjoyed going back and telling her what the consultant said it was. Also, going into hospital and having a lost myrena coil removed by the private consultant who diagnosed my condition. I also had a hysterscopy and vulvoscopy all paid for on the NHS via my GP surgery. A vulvoscopy is a highly magnified procedure to make sure there is no underlying skin problem. Plus a biopsy was done. Something I read at the beginning of all this was that we are all on our own journey. I found some comfort in reading on this forum everybody's different journey and the different therapies they have tried. Keep us posted of your journey and we are here for you.

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Re: Very very long introduction (new and miserable)

Post  PainBlogger on Thu May 26, 2016 8:32 pm

I second what fairlight says - ask to be referred to a pain clinic. You can always proceed with the dermatology referral too. But whatever the cause, if your pain has been going on this long then I think it's perfectly reasonable that a specialist in pain management should get involved.

I'm really sorry you got nowhere today, but don't give up, there are plenty of other options it's just sometimes a bit of a battle getting to them.

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I'm so sorry

Post  lindsey_taylor on Fri Jun 10, 2016 1:28 am

I'm so sorry for the way you have been treated by doctors. I don't have the same symptoms as you, but I've had pain for about two years now, and trying to have intercourse, or to even pleasure myself, is... uncomfortable to say the VERY least. I'm so sorry that you have been unheard and your worries have basically been ignored and you have been unhelped. I certainly hope you can be pointed in the right direction.

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There is a cure, please read

Post  angelique2016 on Wed Aug 17, 2016 1:05 am

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as it has the same ingredients, but the ointment protects the skin more when you wee, rather the cream wont stay on as long, but if used just before bed it will mean you will sleep and not have to pee) used sparingly every night only before going to bed, and not to wash to much off in the shower in the morning. (Must not use ointment in the morning, as it will cause more pain due to friction) I did this for about 3 months, took the Nortriptyline at night before bed and used the ointment at night before bed. This worked, why, because the Nortriptyline, is for pain if taken in low level doses (highly levels are for depression), and makes the brain stop thinking about the pain, as it has now become persistent pain, and the ointment, soothes the skin and it has properties in it to help heal the skin. I have been cured for many years now. Anyway I stopped posting on here as I was getting abused by people that were not able to get a hold of the medications in other parts of the world. So if anyone is interested in this information, and if you can get these medications, then it will cure you, you will need to do your pelvic floor exercises after you are cured to help strengthen the muscles again, but I hope that this information can help some people out there, as I know how extremely excruciating this problem is, it bought me to tears, and no sleep and could hardly sit, wanted to go to the hospital so many times, I nearly went crazy with the pain, and of course no intercourse what so ever, could barely even wee without pain, had to wear loose clothes, not tight jeans what so ever. I tired everything, so many creams, ointments, lotions, you name it, nothing worked. It was originally caused by a harsh medicated body wash. Just use sorbolene or something like that on your body, and dont wash with harsh soaps or body washes. Just mostly water is fine, and dont sit in hot baths. Tried to have intercourse, which made it worse as the skin was so delicate now, it just made the skin split with masses of microscopic splits, which was diagnosed by the oncologist/gyno who examined me with a high tech microscope thingy! LOL  So it took longer to heal.  The skin doesn't heal down there because it is moist all the time and because of the urine and the friction of movement and rubbing from clothing, this is why the ointment works, and only used at night when you are resting, not moving around. This is why vulvodynia just keeps going on and on and on forever with no relief.

So I wish everyone all the best, please dont write back nasty things to me, simply because the medication might not be available in your country, perhaps look for medication that are of a similar nature that will help you, or go onto ebay and buy the cream. It takes time to heal, 3-6 months but you will get there, just be patient.  I feel for everyone that posts on here as I know how painful this problem is, and I know how desperate the situation gets, and how it affects every aspect of your life, This worked well for me, and it might not work for everyone, but at least give it a go!

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Re: Very very long introduction (new and miserable)

Post  emalita on Wed Aug 17, 2016 1:25 am

angelique2016 - It is so great that you're cured! Can you open up a new post with this information instead of posting it as replies? I think that would help more women get to this information, and it would help cut down on all the emails we get showing that there are new replies Wink

emalita

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Re: Very very long introduction (new and miserable)

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