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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

How long have you had your vulvodynia?

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How long have you had your vulvodynia?

Post  Mvp1022 on Sun May 29, 2016 1:32 am

How long did it take you to find a treatment that work, if you did?


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Re: How long have you had your vulvodynia?

Post  PainBlogger on Sun May 29, 2016 12:35 pm

To find the right combination of effective treatments took me just over a year. I had found some benefit with physio, diet and lifestyle changes before then, but I'd had the pain for about 15 months before starting the medication I'm on now (duloxetine) which has really cut my pain considerably.


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RE: How long did you have your vulvodynia

Post  Antaea on Sun May 29, 2016 3:15 pm

Not so easy to answer: I guess, since I was a little child. I suffered from burning and stinging already when I was only 4 years old. Remember en episode at the doctor. My mother used to put Baby cream on. It vanished with puberty. Today I guess, I had provoked vestibulitis.
The next very serious periode I had in 2007/2008. Then, vaginal atrophy and very low estrogen levels were the reason. i suffered very much and it took several months of all kind of treatments, until systemic and local estrogen worked. Since then I use estradiol creme which is available in the EU but not in the States.
In March I had a UTI and got my present V. This time I knew all the syptoms and got an appointment with a gyeaecologist very soon. She ruled out all the normal reasons for pain. The result I presented after only 8 weeks for my GP and started with Neurontin. 300 mg once a day in the evening, the day after. This became my rescue. Today, on the 15th day of the treatment, I am nearly without pain, the side-effects decrease from day to day. I only use coconut-oil, but make my local Gabapentin cream myself, since it is not available in Europe: I mix the content of one capsule with 5 grams coconut oil and use this once or twice a day. That makes a 6% Gabapentin-ointment. It seems that this helps to reduce the pain even more.
It is absolutely necessary to get the right treatment before the pain memory can develop. This happens usually after 3 to 6 months of constant pain.

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Re: How long have you had your vulvodynia?

Post  emalita on Sun May 29, 2016 6:59 pm

I've had my pain for just over 2 years, and I'm hopefully on the road to recovery now (many doctors helped make my pain much worse Sad ). I'm in no way cured yet, but I think I'm on the right track finally. I guess it all depends on what is causing your pain (e.g. nerve issues, inflammation, sensitivities, etc.).


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Re: How long have you had your vulvodynia?

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