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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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How long have you had your vulvodynia?

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How long have you had your vulvodynia?

Post  Mvp1022 on Sun May 29, 2016 1:32 am

How long did it take you to find a treatment that work, if you did?


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Re: How long have you had your vulvodynia?

Post  PainBlogger on Sun May 29, 2016 12:35 pm

To find the right combination of effective treatments took me just over a year. I had found some benefit with physio, diet and lifestyle changes before then, but I'd had the pain for about 15 months before starting the medication I'm on now (duloxetine) which has really cut my pain considerably.


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RE: How long did you have your vulvodynia

Post  Antaea on Sun May 29, 2016 3:15 pm

Not so easy to answer: I guess, since I was a little child. I suffered from burning and stinging already when I was only 4 years old. Remember en episode at the doctor. My mother used to put Baby cream on. It vanished with puberty. Today I guess, I had provoked vestibulitis.
The next very serious periode I had in 2007/2008. Then, vaginal atrophy and very low estrogen levels were the reason. i suffered very much and it took several months of all kind of treatments, until systemic and local estrogen worked. Since then I use estradiol creme which is available in the EU but not in the States.
In March I had a UTI and got my present V. This time I knew all the syptoms and got an appointment with a gyeaecologist very soon. She ruled out all the normal reasons for pain. The result I presented after only 8 weeks for my GP and started with Neurontin. 300 mg once a day in the evening, the day after. This became my rescue. Today, on the 15th day of the treatment, I am nearly without pain, the side-effects decrease from day to day. I only use coconut-oil, but make my local Gabapentin cream myself, since it is not available in Europe: I mix the content of one capsule with 5 grams coconut oil and use this once or twice a day. That makes a 6% Gabapentin-ointment. It seems that this helps to reduce the pain even more.
It is absolutely necessary to get the right treatment before the pain memory can develop. This happens usually after 3 to 6 months of constant pain.

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Re: How long have you had your vulvodynia?

Post  emalita on Sun May 29, 2016 6:59 pm

I've had my pain for just over 2 years, and I'm hopefully on the road to recovery now (many doctors helped make my pain much worse Sad ). I'm in no way cured yet, but I think I'm on the right track finally. I guess it all depends on what is causing your pain (e.g. nerve issues, inflammation, sensitivities, etc.).


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Re: How long have you had your vulvodynia?

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