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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

How long have you had your vulvodynia?

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How long have you had your vulvodynia?

Post  Mvp1022 on Sun May 29, 2016 1:32 am

How long did it take you to find a treatment that work, if you did?


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Re: How long have you had your vulvodynia?

Post  PainBlogger on Sun May 29, 2016 12:35 pm

To find the right combination of effective treatments took me just over a year. I had found some benefit with physio, diet and lifestyle changes before then, but I'd had the pain for about 15 months before starting the medication I'm on now (duloxetine) which has really cut my pain considerably.


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RE: How long did you have your vulvodynia

Post  Antaea on Sun May 29, 2016 3:15 pm

Not so easy to answer: I guess, since I was a little child. I suffered from burning and stinging already when I was only 4 years old. Remember en episode at the doctor. My mother used to put Baby cream on. It vanished with puberty. Today I guess, I had provoked vestibulitis.
The next very serious periode I had in 2007/2008. Then, vaginal atrophy and very low estrogen levels were the reason. i suffered very much and it took several months of all kind of treatments, until systemic and local estrogen worked. Since then I use estradiol creme which is available in the EU but not in the States.
In March I had a UTI and got my present V. This time I knew all the syptoms and got an appointment with a gyeaecologist very soon. She ruled out all the normal reasons for pain. The result I presented after only 8 weeks for my GP and started with Neurontin. 300 mg once a day in the evening, the day after. This became my rescue. Today, on the 15th day of the treatment, I am nearly without pain, the side-effects decrease from day to day. I only use coconut-oil, but make my local Gabapentin cream myself, since it is not available in Europe: I mix the content of one capsule with 5 grams coconut oil and use this once or twice a day. That makes a 6% Gabapentin-ointment. It seems that this helps to reduce the pain even more.
It is absolutely necessary to get the right treatment before the pain memory can develop. This happens usually after 3 to 6 months of constant pain.

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Re: How long have you had your vulvodynia?

Post  emalita on Sun May 29, 2016 6:59 pm

I've had my pain for just over 2 years, and I'm hopefully on the road to recovery now (many doctors helped make my pain much worse Sad ). I'm in no way cured yet, but I think I'm on the right track finally. I guess it all depends on what is causing your pain (e.g. nerve issues, inflammation, sensitivities, etc.).


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Re: How long have you had your vulvodynia?

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