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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

How long have you had your vulvodynia?

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How long have you had your vulvodynia?

Post  Mvp1022 on Sun May 29, 2016 1:32 am

How long did it take you to find a treatment that work, if you did?


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Re: How long have you had your vulvodynia?

Post  PainBlogger on Sun May 29, 2016 12:35 pm

To find the right combination of effective treatments took me just over a year. I had found some benefit with physio, diet and lifestyle changes before then, but I'd had the pain for about 15 months before starting the medication I'm on now (duloxetine) which has really cut my pain considerably.


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RE: How long did you have your vulvodynia

Post  Antaea on Sun May 29, 2016 3:15 pm

Not so easy to answer: I guess, since I was a little child. I suffered from burning and stinging already when I was only 4 years old. Remember en episode at the doctor. My mother used to put Baby cream on. It vanished with puberty. Today I guess, I had provoked vestibulitis.
The next very serious periode I had in 2007/2008. Then, vaginal atrophy and very low estrogen levels were the reason. i suffered very much and it took several months of all kind of treatments, until systemic and local estrogen worked. Since then I use estradiol creme which is available in the EU but not in the States.
In March I had a UTI and got my present V. This time I knew all the syptoms and got an appointment with a gyeaecologist very soon. She ruled out all the normal reasons for pain. The result I presented after only 8 weeks for my GP and started with Neurontin. 300 mg once a day in the evening, the day after. This became my rescue. Today, on the 15th day of the treatment, I am nearly without pain, the side-effects decrease from day to day. I only use coconut-oil, but make my local Gabapentin cream myself, since it is not available in Europe: I mix the content of one capsule with 5 grams coconut oil and use this once or twice a day. That makes a 6% Gabapentin-ointment. It seems that this helps to reduce the pain even more.
It is absolutely necessary to get the right treatment before the pain memory can develop. This happens usually after 3 to 6 months of constant pain.

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Re: How long have you had your vulvodynia?

Post  emalita on Sun May 29, 2016 6:59 pm

I've had my pain for just over 2 years, and I'm hopefully on the road to recovery now (many doctors helped make my pain much worse Sad ). I'm in no way cured yet, but I think I'm on the right track finally. I guess it all depends on what is causing your pain (e.g. nerve issues, inflammation, sensitivities, etc.).


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Re: How long have you had your vulvodynia?

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