Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

How long have you had your vulvodynia?

View previous topic View next topic Go down

How long have you had your vulvodynia?

Post  Mvp1022 on Sun May 29, 2016 1:32 am

How long did it take you to find a treatment that work, if you did?


Posts : 3
Join date : 2014-04-06

View user profile

Back to top Go down

Re: How long have you had your vulvodynia?

Post  PainBlogger on Sun May 29, 2016 12:35 pm

To find the right combination of effective treatments took me just over a year. I had found some benefit with physio, diet and lifestyle changes before then, but I'd had the pain for about 15 months before starting the medication I'm on now (duloxetine) which has really cut my pain considerably.


Posts : 212
Join date : 2015-07-27

View user profile

Back to top Go down

RE: How long did you have your vulvodynia

Post  Antaea on Sun May 29, 2016 3:15 pm

Not so easy to answer: I guess, since I was a little child. I suffered from burning and stinging already when I was only 4 years old. Remember en episode at the doctor. My mother used to put Baby cream on. It vanished with puberty. Today I guess, I had provoked vestibulitis.
The next very serious periode I had in 2007/2008. Then, vaginal atrophy and very low estrogen levels were the reason. i suffered very much and it took several months of all kind of treatments, until systemic and local estrogen worked. Since then I use estradiol creme which is available in the EU but not in the States.
In March I had a UTI and got my present V. This time I knew all the syptoms and got an appointment with a gyeaecologist very soon. She ruled out all the normal reasons for pain. The result I presented after only 8 weeks for my GP and started with Neurontin. 300 mg once a day in the evening, the day after. This became my rescue. Today, on the 15th day of the treatment, I am nearly without pain, the side-effects decrease from day to day. I only use coconut-oil, but make my local Gabapentin cream myself, since it is not available in Europe: I mix the content of one capsule with 5 grams coconut oil and use this once or twice a day. That makes a 6% Gabapentin-ointment. It seems that this helps to reduce the pain even more.
It is absolutely necessary to get the right treatment before the pain memory can develop. This happens usually after 3 to 6 months of constant pain.

Posts : 27
Join date : 2016-05-11
Age : 67
Location : Hammerfest Norway

View user profile

Back to top Go down

Re: How long have you had your vulvodynia?

Post  emalita on Sun May 29, 2016 6:59 pm

I've had my pain for just over 2 years, and I'm hopefully on the road to recovery now (many doctors helped make my pain much worse Sad ). I'm in no way cured yet, but I think I'm on the right track finally. I guess it all depends on what is causing your pain (e.g. nerve issues, inflammation, sensitivities, etc.).


Posts : 216
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: How long have you had your vulvodynia?

Post  Sponsored content

Sponsored content

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum