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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Can discharge cause vulvadynia

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Can discharge cause vulvadynia

Post  Casscass09 on Thu Jun 02, 2016 10:57 pm

Can vulvoadyna cause weird discharge?
I had a lot of yeast infections/ bv awhile back and after I got rid of it I still had pain with peeing and vulva pain. I've noticed for awhile I've had a lot of discharge whenever I get it looked at, they comment I do have lots of discharge but after all my tests come back negative the doctor never questions the discharge.

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Re: Can discharge cause vulvadynia

Post  emalita on Thu Jun 02, 2016 11:17 pm

I guess it all depends on what your discharge is like and what all your symptoms are. Desquamative inflammatory vaginitis and inflammatory vaginitis can cause excessive discharge but so can infections and STDs. I have IV, but excessive discharge was never a huge issue for me. The specialist I see believes that a lot of vulvovaginal pain is caused by the discharge from an unhealthy flora (e.g. high white blood cell count, low lactobacillus, etc.), and he says the discharge in a way burns the inner labia and vestibule (including the urethra).

Vulvodynia isn't a single disease/condition for everyone. The diagnosis literally means "chronic vulvar pain without an identifiable cause". So, can vulvodynia cause discharge? Well, it all depends on what the true cause of your pain is.

Sorry, that probably wasn't the response you were hoping for. Just know that it took about 11 different specialists before I got my diagnosis because not all providers are trained or have the testing to be able to diagnose DIV or IV. I'm not saying you have either condition, but don't let doctors tell you there isn't anything wrong when you clearly know there is...especially when most doctors seem to only look for yeast, BV, and STDs. Our lady bits are far more complex than that Wink

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Re: Can discharge cause vulvadynia

Post  Casscass09 on Thu Jun 02, 2016 11:37 pm

emalita wrote:I guess it all depends on what your discharge is like and what all your symptoms are. Desquamative inflammatory vaginitis and inflammatory vaginitis can cause excessive discharge but so can infections and STDs. I have IV, but excessive discharge was never a huge issue for me. The specialist I see believes that a lot of vulvovaginal pain is caused by the discharge from an unhealthy flora (e.g. high white blood cell count, low lactobacillus, etc.), and he says the discharge in a way burns the inner labia and vestibule (including the urethra).

Vulvodynia isn't a single disease/condition for everyone. The diagnosis literally means "chronic vulvar pain without an identifiable cause". So, can vulvodynia cause discharge? Well, it all depends on what the true cause of your pain is.

Sorry, that probably wasn't the response you were hoping for. Just know that it took about 11 different specialists before I got my diagnosis because not all providers are trained or have the testing to be able to diagnose DIV or IV. I'm not saying you have either condition, but don't let doctors tell you there isn't anything wrong when you clearly know there is...especially when most doctors seem to only look for yeast, BV, and STDs. Our lady bits are far more complex than that Wink

Thank you!! I'm looking into another Gyno. The one I have now never brought it up, I had to mention it. Then all she did was refer me to physical therapy. Which I'm still gonna do, but she never tried anything else. So I feel like she probably doesn't know much.

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Re: Can discharge cause vulvadynia

Post  emalita on Thu Jun 02, 2016 11:50 pm

Where do you live? If you're in the U.S., my specialist is in AZ (Fowler Gyn International). He doesn't have the greatest bedside manner, but he does have special testing available that most doctors don't have (getting a diagnosis is half the battle Smile ). Plus, he's a lot cheaper to see than a lot of doctors.

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Re: Can discharge cause vulvadynia

Post  Casscass09 on Mon Jun 06, 2016 12:58 pm

emalita wrote:Where do you live? If you're in the U.S., my specialist is in AZ (Fowler Gyn International). He doesn't have the greatest bedside manner, but he does have special testing available that most doctors don't have (getting a diagnosis is half the battle Smile ). Plus, he's a lot cheaper to see than a lot of doctors.

Sadly, I don't live near there. Hopefully I can find someone good around me. Another question, is it possible for vulvadynia to cause burning with uranation? I thought it might be IC at first but I went to the urologist And she gave me pyridum for the burning. After that it went away for some reason like for 4 months and the when I tried to have sex it came right back. Don't know if that has anything to do with vulvadynia or not?

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Re: Can discharge cause vulvadynia

Post  emalita on Mon Jun 06, 2016 1:50 pm

Well, just remember that the diagnosis of vulvodynia simply means you have unexplained vulvar pain...it is a diagnosis of a symptom, not a disease (similar to being diagnosed with a headache - a headache is a symptom, not the root cause of the pain, which may be stress, hunger, hormone fluctuations, etc.). Some women have vulvar pain that is caused by nerve issues, some have pelvic floor dysfunction, some have unidentified environmental sensitivities, etc. Below are some links that talk more about it:

http://goaskalice.columbia.edu/answered-questions/what-vulvodynia-and-vulvular-vestibulitis
http://www.ncbi.nlm.nih.gov/pubmed/14756898
http://www.nva.org/what-is-vulvodynia/what-causes-vulvodynia/

So, depending on what the cause of your pain is, you may experience burning with urination. Since this pain only returns when you try to have sex, are you making sure your partner is using only hypoallergenic products since their skin is coming into contact with you? Do you use condoms or a lubricant that you could have developed a sensitivity to? Do you make sure to urinate immediately after having sex? You may be getting frequent UTIs. Some women find they can prevent sex-related UTIs by using a supplement called D-Mannose before and/or after sex. That may be something to look into for you.

emalita

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Re: Can discharge cause vulvadynia

Post  Casscass09 on Mon Jun 06, 2016 2:14 pm

emalita wrote:Well, just remember that the diagnosis of vulvodynia simply means you have unexplained vulvar pain...it is a diagnosis of a symptom, not a disease (similar to being diagnosed with a headache - a headache is a symptom, not the root cause of the pain, which may be stress, hunger, hormone fluctuations, etc.). Some women have vulvar pain that is caused by nerve issues, some have pelvic floor dysfunction, some have unidentified environmental sensitivities, etc. Below are some links that talk more about it:

http://goaskalice.columbia.edu/answered-questions/what-vulvodynia-and-vulvular-vestibulitis
http://www.ncbi.nlm.nih.gov/pubmed/14756898
http://www.nva.org/what-is-vulvodynia/what-causes-vulvodynia/

So, depending on what the cause of your pain is, you may experience burning with urination. Since this pain only returns when you try to have sex, are you making sure your partner is using only hypoallergenic products since their skin is coming into contact with you? Do you use condoms or a lubricant that you could have developed a sensitivity to? Do you make sure to urinate immediately after having sex? You may be getting frequent UTIs. Some women find they can prevent sex-related UTIs by using a supplement called D-Mannose before and/or after sex. That may be something to look into for you.
I'm using non lube condoms with a 3 ingredient lube because I suspect that regular lube is what what causing my bv. I pee after sex and already use d-mannose before and after. It's not utis, I've gotten tested about 6 times. Nothing's come up. when I went to Gyno she told me that my muscles are very tight near the opening Could that be PFD?

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Re: Can discharge cause vulvadynia

Post  emalita on Mon Jun 06, 2016 5:16 pm

It certainly could be PFD, but it may not be either. When I'm able to maintain relief sometime in the future, my specialist said I will need to start dialator therapy since I haven't had sex in over a year, which has resulted in tightening of my vaginal opening, and it will also "reintroduce" me to penetration again prior to actually having sex. So, I guess what I'm trying to get at is not all tightness is PFD.

However, the good thing about PFD is that treatments for it are not something that would harm you if you wanted to go down that route (unlike, for example, thinking it's a chronic infection and treating it with antibiotics, which can cause harm). I believe there are some books out there that allow you to try dialator therapy at home. Hopefully one of the ladies on the forum who have used at home treatments can comment on a good book.

Otherwise, seeing a pelvic floor physical therapist would be a great place to start if you suspect PFD.

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Re: Can discharge cause vulvadynia

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