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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Rx is draining me HELP

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Rx is draining me HELP

Post  girlcraft on Sat Jun 04, 2016 11:16 pm

I was officially diagnosed with Vulvodynia about a year and a half ago. Prior to that I had gone to the GYNO 7 separate times complaining of pain with sex, peeing, itching and every time they missed prescribed me with yeast infection antibiotics. I even went as far as taking boric acid to wipe out the "yeast infection" it was then I turned to a specialities who informed me of vuvlodynia. So not only did I have vuvlodynia but I was also making my condition worse by wiping out my ph balance and killed all the the good flora in my vagina.

Since then I have taken Prozac in the morning and Nortriptyline at night. Both of these antidepressants have been problematic for me. The dosages kept increasing because nothing was helping and once increased the side effects were getting terrible and causing cramping, stomach spasms, passing out, constipated, insomnia, you name it I've had it. I've also tried Wellbutrin in place of Prozac bc on paper it seems better but so far it hasn't done me any good. Also switching dosages and pills so often has thrown my emotions and body out of whack.

I've also tried taking cranberry supplements, probiotic supplements, a mixture of NAC, Vitamin C and Spurinal. Even went as far are putting hurts bee's chapstick on the vagina, which burned like hell, bc another forum suggested people have found relief from it. I've tried stretching my pelvic floor but not for a long period of time, and wasn't sure if the stretches I was doing were effective. I plan to try to continue the stretching and ingesting coconut oil, as I read that was a great cure for people.

PLEASE PLEASE help me anyone! I am 21 years old and miss being sexually active. I've tried so hard to be positive and look for hope but I am at my wits currently Neutral Embarassed No No

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Re: Rx is draining me HELP

Post  emalita on Sat Jun 04, 2016 11:57 pm

Can you provide some more information on your pain (below are some questions that may help)? Some people assume vulvodynia is only caused by overactive nerves or pelvic floor dysfunction, but after finally seeing about 11 different doctors I was diagnosed with inflammatory vaginitis. My pain was caused by too many unnecessary antibiotics, yeast creams, and OTC treatments. So, my flora is shot.

What does your pain feel like (e.g. stabbing, acid burn, prickling, itching, etc.)?
Where is your pain located (e.g. inner labia, vaginal opening, internal, etc.)?
Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)?
Is the pain worse at any particular time (e.g. only after sex, going to the bathroom, after showering, during your period, etc.)?
Do you have excessive discharge, or discharge that makes your pain worse?
Do you know what the onset of your pain was (e.g. bad infection, first time having sex, etc.)?

Have you found any relief from your prescriptions? If so, can you ask that they be compounded into a cream that you apply directly to your vulva to reduce the side effects? I know gabapentin is commonly compounded in a cream for women with vulvodynia, but I'm not sure about Nortriptyline. I know my pain isn't nerve related; so I can't comment on the effectiveness of these creams even though my doctor did shove them at me.

Are you using only hypoallergenic products to reduce any possible chemical sensitivities or anything that may be keeping your irritation going? See the below link for some good suggestions:

http://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes#13808

If you are concerned about possible UTIs, I would suggest trying a supplement called D-Mannose. However, my specialist says that it is the discharge from unhealthy flora that causes the vulvar and urethral burning in a lot of women. I know that is true for me because if I have a tampon in my symptoms reduce (the tampon stops the discharge from touching the vulva).

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Re: Rx is draining me HELP

Post  girlcraft on Sun Jun 05, 2016 12:14 am

Thanks for the reply emalita!

I have a dull burning sensation on my labia and vagina always and a stabbing raw burning when inserting a tampon or during intercourse. Also I can't handle any stimulation to the clit (vibrators etc) for long, they make it very irritated as well. It's uncomfortable definitely but I am able to sit in a regular chair with no added issues. It is extremely sensitive when I wipe after going to the bathroom, the only differences I've noticed is red irrigation on the outside as well as an increase of discharge and smegma. The onset of the pain was sudden, I was fairly sexually active at the time, as I had mentioned I thought it was a yeast infection that wouldn't go away, it started off feeling like a yeast infection, was treated severely for that and after that was ruled out the doctor gave me antibiotics because it looked like I had an increased amount of Strep B, after the antibiotics I felt okay for about 3 months, the pain came back, I was given the antibiotics again, pain came back 1 month later, was given it a final 3rd time and it did nothing. After that I then went to the specialist who diagnosed me vulvodynia.




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Re: Rx is draining me HELP

Post  girlcraft on Sun Jun 05, 2016 12:17 am

Also I do not use any soaps or lotions, always use water based lube if I'm attempting to have intercourse, the only lube I found to be helpful was from the UK brand yesyesyes. Their company claims to make products for vulvar pain

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Re: Rx is draining me HELP

Post  emalita on Sun Jun 05, 2016 1:02 am

You definitely sound like your pain may be stemming from an issue with your flora due to all of the antibiotics you were on.

Do you monitor your pH at home? I do this maybe once a week to keep an eye on how I'm doing (not saying that if your pH is normal then you're fine, but it's a good baseline). I use a UK product called EcoCare Comfort Vaginal pH-Test Cotton Swabs, but there are cheaper pH strips out there. I just find this one super easy to use.

My specialist is in Arizona, and he does a test to determine flora health. I had a very high count of white blood cells and low lactobacillus (no other doctor told me this). I really recommend finding a vulvar specialist who will look deeper into your issue instead of just throwing nerve pain meds at you.

For some relief, you could try rinsing (not spraying) your vestibule with Gordon’s Boro-Packs after every urination (the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle, and I think one packet should be good for the whole day. My current specialist and another OBGYN of mine have recommended it. I've spoken to a handful of women, and some women on here, that say it is a miracle worker.

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Re: Rx is draining me HELP

Post  fairlight10 on Sun Jun 05, 2016 9:13 am

Hi girlcraft I have been reading some of your posts. I have been diagnosed with vulva vestibulities 4years ago. I was prescribed amitriptyline originally but this did not agree with me. I was put on nortriptyline 20mgs which was increased to 30mgs last september to help relieve migraine. I take it at night like you. How many mgs do you take? I don't know why you are on prozac as well and taking it in the day. No wonder you are suffering with harsh side effects. So many of us with vulvodynia start off thinking it is thrush or a uti. So we throw everything at it and make it worse. I would go back to your gp they can change your medication. Also, the stress of having this condition can aggravate it. Try to keep calm. In the past this has helped reduce any pain or irritation.

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RR: RX is draining me HELP

Post  Antaea on Sun Jun 05, 2016 1:10 pm

Hi! I am very sad about what you're going through - and I agree with Emalita concerning lotions and creams and more. I would not use anything more than clear water and a natural oil, preferably almond- or coconut-oil. After some weeks you at try some lactic acid "vagitorier" (sorry, i don't have the English expression). Maybe you have to avoid certain foods too. I cannot dring lime-or orange-juice any longer. Even not diluted with a lot of water.
Some people get relief of frozen soaked black tea bags. Before I took Neurontin, I always had some in the fridge. I used four, let them soak in little water for half a minute and froze them. Afterwords I placed them directly on the burning area. It eased the pain immediately. At night I also used Xylocain (5% Lidocain) topical cream. This does not take nerve-pain, it only numbs the skin. It burns after applying to the skin. But severak women feel, it makes their situation worse. I felt the same after using it several times during one night.
And try Gabapentin - the brand name is Neurontin. Most people have mild and only temporal side-effects in spite of what you may read on the Net. After only three weeks I have none any longer. Could even take a little beer yesterday without feeling drunk today. Already after one week on the lowest dose the pain eased. At the moment I only have very mild pain, more feeling uncomfortable than real pain.... But when the intervall is longer than usual, the pain increases again. A local Gabapentin compound may help too. But at first your skin has to calm down and the bacterial flora has to renew itself. That may take several weeks.
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Re: Rx is draining me HELP

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