Log in

I forgot my password

Latest topics
» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Hi I'm just over this feeling ...

Go down

Hi I'm just over this feeling ...

Post  Louise on Thu Jan 27, 2011 8:36 am

Hi, I'm new to health forums but am very relieved to find this site.. I am 28 yrs old from Perth Western Australia and my pain started a last year in June 2010 around this time I had numerous doctor consoltations where I was prescribed Canesten and other oral medication for thrush as well as antibiotics.
I finally managed to secure an appt with Gynecologist around November last year however he recommended for me to see another Gynecologist that apparently specialises in nerve pathways in this area... however after I had been given the run around for so long and being told I couldn't see her for months I gave up. My next appt is at the start of March which I'm really looking forward to.. I feel helpless a lot of the time and it's hard because I don't know when I'm going to get the horrible intense burning sensation next, I feel like a terrible girlfriend as I avoid sex it hurts. I was wondering if it was common to see protein in your urine when you have Vulvodynia as at times I see white flecks?
I hope we all get better soon, I wouldn't wish this on anyone.


Louise

Posts : 10
Join date : 2011-01-27

View user profile

Back to top Go down

Re: Hi I'm just over this feeling ...

Post  Sarah001 on Thu Jan 27, 2011 12:39 pm

Hi Louise and welcome. Don't worry about the white flecks in your urine, everyone gets those whether they have vulvodynia or not. Funnily enough that was something I wondered about in the early days too but after alot of research I found it was completely normal and men get white flecks too so nothing to do with vulvar pain.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Hi I'm just over this feeling ...

Post  noni on Thu Jan 27, 2011 3:51 pm

Hey Louise welcome!

You have come to the right place for support and advice.

Yeah...I wouldnt wish this on my worst enemy...its a challenge. And worst of all this infiltrates every aspect of your life, self image, and well being.

Hang in there...

I have a website you can visit for additional info...

www.livingwithvulvodynia.ca

If you guys have further suggestions for my website feel free to comment.

And no....I am not selling anything on there, its just advice type stuff.

thx, much love
noni
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Hi I'm just over this feeling ...

Post  Sebby (Admin) on Thu Jan 27, 2011 8:13 pm


Hi Louise and welcome

Have a look around the forum as there is a lot of useful information on different treatments and theories etc...

I do hope you have more sucess at your next appointment.

I get so fed up with being passed around like a rag doll cos the drs dont know what they are doing..it really makes me wonder if Vulvodynia is even touched upon in their training!

Ive not noticed white flecks in my urine but maybe its cos I dont look lol...

Take care and I hope you find the forum a source of support

Sebby
x
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Hi I'm just over this feeling ...

Post  Mouse on Thu Jan 27, 2011 9:27 pm

Hey Louise and welcome, no one wants to find themselves looking for one of these forums but here we are all the same Smile

You will find a wealth of knowledge here and can also ask anything. There's nothing that makes a Dr stutter more than direct questions about awkward stuff. Has anyone suggested a referral to a vuval clinic? There must be one at King Edward (I had my babies in Perth - not there though).. owww I googled and found their guidelines for treatment. Interesting that they recommend physio before ami, I got the drugs first. We have all had varying levels of success with drugs, I'm not a great candidate but others have found them helpful. A physio who specialises in the pelvic floor is a good idea as well then you can find out what your pelvic floor is doing/or not doing. I'd recommend a woman, it's a level of awkward I wouldn't want to share with a man!

http://www.kemh.health.wa.gov.au/development/manuals/O&G_guidelines/sectionc/7/c7.8.pdf
http://www.lifecare.com.au/allied-health-services-womens-health.html
http://www.lifecare.com.au/findcentre.php?page=centres_wa
http://www.vulvodynia.com.au/cv.html

Sometimes you have to find the answers yourself, I did, my gyny was useless. All those years of med school don't guarantee they paid attention in the vulval class. Finding a vulval pain specialist is probably the most helpful thing. I found mine at the vulval clinic at National Womens in Auckland. My womens physio, across the road from my house - awkward! Oh that's the most used word in my vocab now.

When you have a chronic pain condition (which vulvodynia is) waiting months for an appointment is bloody impossible. Get googling and see what you come up with. I'd also recommend finding a good therapist, it's a lot to deal with. When it was suggested to me I was bloody furious but she's turned out to be the person who has helped the most. Doing this every day can be soul destroying and unloading in a safe environment helps a lot. Mine is a sex therapist so has specific knowledge. I tell people she's my pain therapist though Smile

We're also on FB. It's a private group, only 16 of us but it's great to see we are just normal people with pains in our hoo-ha's. Email Sebby if you want an add.

Good luck hon and feel free to ask questions. I've been doing this about the same length of time you have and it's hard not to let it take over. It's also bloody hard to act "normal" but I don't know WTF normal is so that helps Smile

Take care
Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Thank you!!

Post  Louise on Fri Jan 28, 2011 2:01 pm

Hello, I just have to say a HUGE Thank you for responding to me I feel like my spirit has lifted already! Just to let you know I recieved a phone call this morning advising me that there has been a cancellation at my gyno's and I am going next week!!(perhaps the receptionist did feel sorry for me when I was in tears the day I called to make an appt afterall?..)

I finally don't feel alone and I've just told my mum and boyfriend about this group and all of the lovely kind words/ advice you've all given me, I also told one of my girlfriends but I'm convinced she thinks I'm a hypercondriac haha great...

Vicki you are too kind I actually feel like I want to cry thank you so much for sending the link to King Edward it's so strange I've actually been saying to my mum "I can't take this anymore I just want to rock up to King Edward hospital and beg someone there to help me" I'm definately going to try one of the gynos at King Edward next. My mum knows a good male dr there but I am a bit put off going to a male gyno, the last one was nice and referred me to another gyno who specialised in nerve damage etc but this last gyno said that I should "finger myself in the shower" I was so embarassed I couldn't even repeat to my mum what he said and its only just recently that I told my boyfriend about it (should that be reported?), that gyno kind of made me feel like I was imagining the pain in a way (glad I got that off my chest)...if this appt next week isn't successful I will definately look into the King Edward option for sure! It's so expensive going to all these appts as well..

Sarah thanks for letting me know about the white flecks..I never noticed them until the burning started,I appreciate that. Thank you Noni and Sebby for all of the info you have put my mind at ease. I think you are all angels Smile

One last question the last time I used canesten it burned like crazy, I think it made my situation worse is that normal for Vulvodynia sufferers?

Having to deal with this has made me appreciate how important your health is and not to take anything for granted, that all you can really ask for in life is good health.

Love x









Louise

Posts : 10
Join date : 2011-01-27

View user profile

Back to top Go down

Re: Hi I'm just over this feeling ...

Post  Mouse on Sat Jan 29, 2011 12:35 am

Hey Louise,

I am so glad you got an appointment and truly hope this specialist knows what to do. Sometimes gynys are more your general mechanic and you may need a sub specialist but it's a great place to start.

My gynaecologist was treating me for something else and the pain triggered after surgery. She just said she didn't know what it was - end of story. I would have suggested opening a book but she wouldn't give me an appointment. So I used Dr Google, diagnosed myself on the internet and found my new improved specialist on my own. She's fab! To my surprise my GP was fairly knowledgeable as well, that little gem of information could have saved me months of anguish.

I wouldn't get too worried about the fingering advice. The shower is relaxing and dialators are commonly used to expand the area - it's kind of the same concept. So don't freak out too much, maybe he didn't explain it that well. I much prefer a female "anything" this thing is so bloody awkward it's not funny.

I know what you mean about friends not getting it. One of mine said I thought you were ok now, because I'd had a few painfree days before Christmas. Even my husband can be a bit dim, these holidays have been quite stressful because he's wanted to be out doing things and I just can't. I gave him an article on chronic pain I found lurking in my handbag yesterday. He's got a whole new understanding now.

http://www.mindfood.com/at-chronic-pain-ruling-life-health-body.seo

I have generalised unprovoked V which is a wee bit different, I don't get it but thrush is very common for people with vulvodynia.

Check out the links, this is the same info my specialist gave me.

https://netforum.avectra.com/temp/ClientImages/ISSVD/4c9d4ec4-2e90-4a81-9a36-8467863002f4.pdf
https://netforum.avectra.com/temp/ClientImages/ISSVD/4bdef72c-ba47-4279-ad43-9e3d33bcc7f5.pdf

Cheers Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Hi I'm just over this feeling ...

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum