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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Weight gain from Neurontin?

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Weight gain from Neurontin?

Post  Antaea on Mon Jun 06, 2016 8:15 am

Did anyone of you Ladies experience weight-gain while using Gabapentin?

I am on Neurontin, 300 mg in the evening, since 3 weeks. It works very fine. But during the last week I have increased my weight with 3 pounds/1,5 kg, even I do not eat different. My weight increased from one day to the other with 1 kg. This makes me very unhappy, because I do not know how to stop it. I just want to cry!! Is this a side-effect of Gabapentin? Is becoming a fat, ugly woman the price I have to pay for living a normal life in spite of V???? Sad Sad Sad
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Re: Weight gain from Neurontin?

Post  emalita on Mon Jun 06, 2016 12:43 pm

I'm sorry to hear you're having weight gain side effects. I personally do not use gabapentin, but studies do show weight gain as a side effect (see below link). If you are using it in a compounded cream, I would assume it would reduce the side effects but not eliminate them.

http://www.ncbi.nlm.nih.gov/pubmed/9263379

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Re: Weight gain from Neurontin?

Post  SinclairSassy on Wed Aug 03, 2016 1:57 pm

I started taking Gabapentin in June and worked up to 300 mg, three times a day. Before I started it, I was in so much pain and suffering so much anxiety, I literally could not eat, so I did lose weight. Now that I'm taking Gabapentin, I'm eating normally and have put on a few pounds, which is natural after starving myself (not intentionally). I finally leveled off at 145 lbs in July. (I was at 155 lbs when my pain first started in April, 2016). While I have consistently hovered at 144 lbs to 146 lbs for the past two months, I've noticed that my stomach seems more rounded and puffy. So even though my scale isn't showing any weight gain, my body feels heavier. Maybe your body simply needs to adjust to your new medicine. I know what you mean about wanting to cry. I think I have cried every day since April. Hang in there!

I do want to point out that I was put on Gabapentin for a back injury. I have not been formally diagnosed with V yet, but I am 99.9% certain that I have V. I have an appointment with a specialist in Birmingham, AL, on December 1st.

My biggest problem now is trying to find clothes to wear. I have looked at four stores online this morning and can't find any pants. I'm not sure what I am going to wear this winter! I'm starting to wonder if I will need to buy a sewing machine, learn to sew, and make my own pants.

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