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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Weight gain from Neurontin?

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Weight gain from Neurontin?

Post  Antaea on Mon Jun 06, 2016 8:15 am

Did anyone of you Ladies experience weight-gain while using Gabapentin?

I am on Neurontin, 300 mg in the evening, since 3 weeks. It works very fine. But during the last week I have increased my weight with 3 pounds/1,5 kg, even I do not eat different. My weight increased from one day to the other with 1 kg. This makes me very unhappy, because I do not know how to stop it. I just want to cry!! Is this a side-effect of Gabapentin? Is becoming a fat, ugly woman the price I have to pay for living a normal life in spite of V???? Sad Sad Sad
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Re: Weight gain from Neurontin?

Post  emalita on Mon Jun 06, 2016 12:43 pm

I'm sorry to hear you're having weight gain side effects. I personally do not use gabapentin, but studies do show weight gain as a side effect (see below link). If you are using it in a compounded cream, I would assume it would reduce the side effects but not eliminate them.

http://www.ncbi.nlm.nih.gov/pubmed/9263379

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Re: Weight gain from Neurontin?

Post  SinclairSassy on Wed Aug 03, 2016 1:57 pm

I started taking Gabapentin in June and worked up to 300 mg, three times a day. Before I started it, I was in so much pain and suffering so much anxiety, I literally could not eat, so I did lose weight. Now that I'm taking Gabapentin, I'm eating normally and have put on a few pounds, which is natural after starving myself (not intentionally). I finally leveled off at 145 lbs in July. (I was at 155 lbs when my pain first started in April, 2016). While I have consistently hovered at 144 lbs to 146 lbs for the past two months, I've noticed that my stomach seems more rounded and puffy. So even though my scale isn't showing any weight gain, my body feels heavier. Maybe your body simply needs to adjust to your new medicine. I know what you mean about wanting to cry. I think I have cried every day since April. Hang in there!

I do want to point out that I was put on Gabapentin for a back injury. I have not been formally diagnosed with V yet, but I am 99.9% certain that I have V. I have an appointment with a specialist in Birmingham, AL, on December 1st.

My biggest problem now is trying to find clothes to wear. I have looked at four stores online this morning and can't find any pants. I'm not sure what I am going to wear this winter! I'm starting to wonder if I will need to buy a sewing machine, learn to sew, and make my own pants.

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Re: Weight gain from Neurontin?

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