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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Weight gain from Neurontin?

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Weight gain from Neurontin?

Post  Antaea on Mon Jun 06, 2016 8:15 am

Did anyone of you Ladies experience weight-gain while using Gabapentin?

I am on Neurontin, 300 mg in the evening, since 3 weeks. It works very fine. But during the last week I have increased my weight with 3 pounds/1,5 kg, even I do not eat different. My weight increased from one day to the other with 1 kg. This makes me very unhappy, because I do not know how to stop it. I just want to cry!! Is this a side-effect of Gabapentin? Is becoming a fat, ugly woman the price I have to pay for living a normal life in spite of V???? Sad Sad Sad
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Re: Weight gain from Neurontin?

Post  emalita on Mon Jun 06, 2016 12:43 pm

I'm sorry to hear you're having weight gain side effects. I personally do not use gabapentin, but studies do show weight gain as a side effect (see below link). If you are using it in a compounded cream, I would assume it would reduce the side effects but not eliminate them.

http://www.ncbi.nlm.nih.gov/pubmed/9263379

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Re: Weight gain from Neurontin?

Post  SinclairSassy on Wed Aug 03, 2016 1:57 pm

I started taking Gabapentin in June and worked up to 300 mg, three times a day. Before I started it, I was in so much pain and suffering so much anxiety, I literally could not eat, so I did lose weight. Now that I'm taking Gabapentin, I'm eating normally and have put on a few pounds, which is natural after starving myself (not intentionally). I finally leveled off at 145 lbs in July. (I was at 155 lbs when my pain first started in April, 2016). While I have consistently hovered at 144 lbs to 146 lbs for the past two months, I've noticed that my stomach seems more rounded and puffy. So even though my scale isn't showing any weight gain, my body feels heavier. Maybe your body simply needs to adjust to your new medicine. I know what you mean about wanting to cry. I think I have cried every day since April. Hang in there!

I do want to point out that I was put on Gabapentin for a back injury. I have not been formally diagnosed with V yet, but I am 99.9% certain that I have V. I have an appointment with a specialist in Birmingham, AL, on December 1st.

My biggest problem now is trying to find clothes to wear. I have looked at four stores online this morning and can't find any pants. I'm not sure what I am going to wear this winter! I'm starting to wonder if I will need to buy a sewing machine, learn to sew, and make my own pants.

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Re: Weight gain from Neurontin?

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