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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Pain After Vestibulectomy

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Pain After Vestibulectomy

Post  Mll2013 on Fri Jun 10, 2016 11:01 pm

Hi all again, I was writing in regards to pain after my vestibulectomy. I am on day 7 of recovery, the first few days went surprisingly well but it seems to be getting worse each day for me now. I have an intense burning or searing pain that will not go away. I have tried to contact the doctor's office but they are not getting back to me. I do not feel like I have a fever, and Ice used to help a lot! Now ice does not help at all and it actually hurts..... I have been trying to do sitz baths but it hurts sitting up, and I have been trying to stay on top of my pain medication. I just wanted to know if anyone else had similar problems and had this burning pain? It is miserable! I am afraid I might have torn something when trying to go the bathroom, maybe an infection, maybe frostbite from using too much cold down there? Any help would be advised, I I'm struggling emotionally right now and it would be nice to talk to someone who can relate to what I'm going through.

As for other relief my mom bought me some witch-hazel, but that ended up just burning more. I have heard Vaseline can help the area and one of my friends suggested dermoplast which she used after giving birth. I didn't know if anyone else tried those things and had any relief? Seriously any input would be extremely helpful right now. Thank you in advance

Mll2013

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Re: Pain After Vestibulectomy

Post  emalita on Sat Jun 11, 2016 1:16 pm

I'm so sorry you're in such pain. I've never had the surgery; so I can't provide any support from experience (sorry).

Did your doctor prescribe antibiotics or anything to prevent infection? Has your doctor gotten back to you yet? I can't imagine how much it hurts, but if you tore something or your skin is tight, sitting in a warm bath would probably do wonders to loosen things up and would hopefully provide some relief.

I would be a little hesitant to put anything on the area unless a doctor said it was okay, but I would imagine that if a product is used for women post delivery, then it hopefully would be okay for you post surgery.

I'm happy to listen and provide support any way I can. Feel free to PM me if you want to chat.

I hope your pain reduces soon!

emalita

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Re: Pain After Vestibulectomy

Post  jjr23 on Tue Aug 23, 2016 5:48 am

Hi Mll2013, I had surgery 8 days ago (so at a similar stage that you were at when you made that post) and I am currently feeling the same pain as you have described. I saw my surgeon yesterday for a one week check up and he said that the pain is normal. He said everything looked like it was healing normally. I'm an anxious person and I tend to worry about stuff even after reassurance! I'm wondering how everything is going for you now that it's been a few weeks since you posted that??

jjr23

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Re: Pain After Vestibulectomy

Post  Alana3 on Fri Aug 26, 2016 2:04 pm

I had that too during my recovery and it ended up being yeast and UTI. I am 4 years post op and am feeling great and able to have sex. Try getting in to your doctor and seeing if you have some crazy infection going on...

Alana3

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Re: Pain After Vestibulectomy

Post  Mitch on Wed Jan 11, 2017 8:39 pm

Hi Alana, I am new to the group and just posted about my wife scheduled to meet with Dr Trabin to get a second opinion. We discovered his info from this forum and your journey. We live in Florida and would love to connect to discuss with you since she is considering her options and the best course of action. She is scheduled for a vestibulectomy with another doctor on Feb 1st.
l. Glad you are doing so well!

Mitch

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Re: Pain After Vestibulectomy

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