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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Pain After Vestibulectomy

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Pain After Vestibulectomy

Post  Mll2013 on Fri Jun 10, 2016 11:01 pm

Hi all again, I was writing in regards to pain after my vestibulectomy. I am on day 7 of recovery, the first few days went surprisingly well but it seems to be getting worse each day for me now. I have an intense burning or searing pain that will not go away. I have tried to contact the doctor's office but they are not getting back to me. I do not feel like I have a fever, and Ice used to help a lot! Now ice does not help at all and it actually hurts..... I have been trying to do sitz baths but it hurts sitting up, and I have been trying to stay on top of my pain medication. I just wanted to know if anyone else had similar problems and had this burning pain? It is miserable! I am afraid I might have torn something when trying to go the bathroom, maybe an infection, maybe frostbite from using too much cold down there? Any help would be advised, I I'm struggling emotionally right now and it would be nice to talk to someone who can relate to what I'm going through.

As for other relief my mom bought me some witch-hazel, but that ended up just burning more. I have heard Vaseline can help the area and one of my friends suggested dermoplast which she used after giving birth. I didn't know if anyone else tried those things and had any relief? Seriously any input would be extremely helpful right now. Thank you in advance

Mll2013

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Re: Pain After Vestibulectomy

Post  emalita on Sat Jun 11, 2016 1:16 pm

I'm so sorry you're in such pain. I've never had the surgery; so I can't provide any support from experience (sorry).

Did your doctor prescribe antibiotics or anything to prevent infection? Has your doctor gotten back to you yet? I can't imagine how much it hurts, but if you tore something or your skin is tight, sitting in a warm bath would probably do wonders to loosen things up and would hopefully provide some relief.

I would be a little hesitant to put anything on the area unless a doctor said it was okay, but I would imagine that if a product is used for women post delivery, then it hopefully would be okay for you post surgery.

I'm happy to listen and provide support any way I can. Feel free to PM me if you want to chat.

I hope your pain reduces soon!

emalita

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Re: Pain After Vestibulectomy

Post  jjr23 on Tue Aug 23, 2016 5:48 am

Hi Mll2013, I had surgery 8 days ago (so at a similar stage that you were at when you made that post) and I am currently feeling the same pain as you have described. I saw my surgeon yesterday for a one week check up and he said that the pain is normal. He said everything looked like it was healing normally. I'm an anxious person and I tend to worry about stuff even after reassurance! I'm wondering how everything is going for you now that it's been a few weeks since you posted that??

jjr23

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Re: Pain After Vestibulectomy

Post  Alana3 on Fri Aug 26, 2016 2:04 pm

I had that too during my recovery and it ended up being yeast and UTI. I am 4 years post op and am feeling great and able to have sex. Try getting in to your doctor and seeing if you have some crazy infection going on...

Alana3

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Re: Pain After Vestibulectomy

Post  Mitch on Wed Jan 11, 2017 8:39 pm

Hi Alana, I am new to the group and just posted about my wife scheduled to meet with Dr Trabin to get a second opinion. We discovered his info from this forum and your journey. We live in Florida and would love to connect to discuss with you since she is considering her options and the best course of action. She is scheduled for a vestibulectomy with another doctor on Feb 1st.
l. Glad you are doing so well!

Mitch

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Re: Pain After Vestibulectomy

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