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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Pain After Vestibulectomy

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Pain After Vestibulectomy

Post  Mll2013 on Fri Jun 10, 2016 11:01 pm

Hi all again, I was writing in regards to pain after my vestibulectomy. I am on day 7 of recovery, the first few days went surprisingly well but it seems to be getting worse each day for me now. I have an intense burning or searing pain that will not go away. I have tried to contact the doctor's office but they are not getting back to me. I do not feel like I have a fever, and Ice used to help a lot! Now ice does not help at all and it actually hurts..... I have been trying to do sitz baths but it hurts sitting up, and I have been trying to stay on top of my pain medication. I just wanted to know if anyone else had similar problems and had this burning pain? It is miserable! I am afraid I might have torn something when trying to go the bathroom, maybe an infection, maybe frostbite from using too much cold down there? Any help would be advised, I I'm struggling emotionally right now and it would be nice to talk to someone who can relate to what I'm going through.

As for other relief my mom bought me some witch-hazel, but that ended up just burning more. I have heard Vaseline can help the area and one of my friends suggested dermoplast which she used after giving birth. I didn't know if anyone else tried those things and had any relief? Seriously any input would be extremely helpful right now. Thank you in advance


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Re: Pain After Vestibulectomy

Post  emalita on Sat Jun 11, 2016 1:16 pm

I'm so sorry you're in such pain. I've never had the surgery; so I can't provide any support from experience (sorry).

Did your doctor prescribe antibiotics or anything to prevent infection? Has your doctor gotten back to you yet? I can't imagine how much it hurts, but if you tore something or your skin is tight, sitting in a warm bath would probably do wonders to loosen things up and would hopefully provide some relief.

I would be a little hesitant to put anything on the area unless a doctor said it was okay, but I would imagine that if a product is used for women post delivery, then it hopefully would be okay for you post surgery.

I'm happy to listen and provide support any way I can. Feel free to PM me if you want to chat.

I hope your pain reduces soon!


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Re: Pain After Vestibulectomy

Post  jjr23 on Tue Aug 23, 2016 5:48 am

Hi Mll2013, I had surgery 8 days ago (so at a similar stage that you were at when you made that post) and I am currently feeling the same pain as you have described. I saw my surgeon yesterday for a one week check up and he said that the pain is normal. He said everything looked like it was healing normally. I'm an anxious person and I tend to worry about stuff even after reassurance! I'm wondering how everything is going for you now that it's been a few weeks since you posted that??


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Re: Pain After Vestibulectomy

Post  Alana3 on Fri Aug 26, 2016 2:04 pm

I had that too during my recovery and it ended up being yeast and UTI. I am 4 years post op and am feeling great and able to have sex. Try getting in to your doctor and seeing if you have some crazy infection going on...


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Re: Pain After Vestibulectomy

Post  Mitch on Wed Jan 11, 2017 8:39 pm

Hi Alana, I am new to the group and just posted about my wife scheduled to meet with Dr Trabin to get a second opinion. We discovered his info from this forum and your journey. We live in Florida and would love to connect to discuss with you since she is considering her options and the best course of action. She is scheduled for a vestibulectomy with another doctor on Feb 1st.
l. Glad you are doing so well!


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Re: Pain After Vestibulectomy

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