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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  Bananasmiles on Thu Jun 16, 2016 12:48 am

Hey everyone, so I'll start from the beginning. Im 19 years old, and about a year and a half ago, I had sex for the first time. It felt like it hurt more than it should but I thought it was normal pain since it was my first time. After having it a few times though I realized it was hurting a lot more on only one side. I got kind of worried but it went away when I stopped having it, and didn't really bother me. But it really hurt to be fingered as well, again just on one side. From then on, I would have weeks where that same area would hurt, like when I wore tight clothing, or after having sex, and the area hurts upon touch. But then it would almost just seem to go away, until I did one of those things again. About a week ago, I started getting burning after I got my period, and it was really intense, it put me in a really bad mood, and it felt horrible. I finally went to the DR, who thought it was herpes, but she didn't see any blisters, and all the tests for STDS came back negative, there is no cyst, and no yeast infection. It still hurts down there, especially when I walk, not a lot, just kind of like a dull pain, in just one spot. Its just upon entry of the vagina. Does this sound like it could be vulvodynia? Thank you so much for reading and for your help!

Bananasmiles

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 2:45 am

Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

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Thanks for the quick reply!

Post  Bananasmiles on Thu Jun 16, 2016 3:41 am

emalita wrote:Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

Hey! I haven't researched much into that, but I just looked them up, and I guess really any of them could be a possibility? Im not sure. I haven't seen any specialty doctors, just a general doctor. I do have Generalized Anxiety Disorder, which I don't know if that makes it worse? Also the guy who I lost my virginity to, did not go gentle on me, and so I'm thinking he could possibly have damaged a nerve or something. I haven't asked for antidepressants, but I can give it a try if it helps. The one thing I always find to help is sitting in the jacuzzi, and no it is not worse at any specific time, except maybe when I get my period.
Is there a reason it only hurts on one side? Thanks for the quick reply!!

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 1:12 pm

Unfortunately there could be so many different reasons why it only hurts on one side. We all are different, and our bodies react to this horrible condition in such unique ways. The best answer I can give is that there is no good reason, and it's just because your body has decided to hurt on that one side Wink Your pain could definitely have been caused by something your first partner aggravated, or that could have just been your first trigger.

Did you notice any pain prior to your first time having sex (e.g. inserting a tampon or finger)?

Personally, I would suggest trying to see a pelvic floor physical therapist prior to going the prescription route just because I'm not the biggest fan of prescriptions that I have to take for the rest of my life. If you do want to try a prescription first, see if your doctor can prescribe them in a compounded cream that is applied directly to the vulva. This will help cut down on side effects. You will probably need to see an experienced vulvar specialist in order to have the best recommendations and follow up with the prescriptions.

I'm not sure where you're located, but pelvic floor physical therapists are a lot more common in many areas than most women realize. Plus, if nothing else, the therapist could probably recommend a good vulvar specialist to work with.

Keep us updated on how you're doing! sunny

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  web96 on Sun Jun 26, 2016 4:43 am

Yes I'm sorry to say it does sound like provoked v. I have the same thing, it used to feel like a burning/stabbing pain, which for me was caused by a severe allergic reaction of the glands in that area. I also had discomfort during my period due to the moisture causing chaffing. Things got way better after I pinpointed my sulfate/detergent allergy though, and I've talked to a few other women that have the same allergy/reaction. I still have a bit of nerve pain from years of this, which I'm treating as a separate issue, but it's like 90 percent better. You can read my story in my sig for all the details
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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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