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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  Bananasmiles on Thu Jun 16, 2016 12:48 am

Hey everyone, so I'll start from the beginning. Im 19 years old, and about a year and a half ago, I had sex for the first time. It felt like it hurt more than it should but I thought it was normal pain since it was my first time. After having it a few times though I realized it was hurting a lot more on only one side. I got kind of worried but it went away when I stopped having it, and didn't really bother me. But it really hurt to be fingered as well, again just on one side. From then on, I would have weeks where that same area would hurt, like when I wore tight clothing, or after having sex, and the area hurts upon touch. But then it would almost just seem to go away, until I did one of those things again. About a week ago, I started getting burning after I got my period, and it was really intense, it put me in a really bad mood, and it felt horrible. I finally went to the DR, who thought it was herpes, but she didn't see any blisters, and all the tests for STDS came back negative, there is no cyst, and no yeast infection. It still hurts down there, especially when I walk, not a lot, just kind of like a dull pain, in just one spot. Its just upon entry of the vagina. Does this sound like it could be vulvodynia? Thank you so much for reading and for your help!

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 2:45 am

Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

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Thanks for the quick reply!

Post  Bananasmiles on Thu Jun 16, 2016 3:41 am

emalita wrote:Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

Hey! I haven't researched much into that, but I just looked them up, and I guess really any of them could be a possibility? Im not sure. I haven't seen any specialty doctors, just a general doctor. I do have Generalized Anxiety Disorder, which I don't know if that makes it worse? Also the guy who I lost my virginity to, did not go gentle on me, and so I'm thinking he could possibly have damaged a nerve or something. I haven't asked for antidepressants, but I can give it a try if it helps. The one thing I always find to help is sitting in the jacuzzi, and no it is not worse at any specific time, except maybe when I get my period.
Is there a reason it only hurts on one side? Thanks for the quick reply!!

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 1:12 pm

Unfortunately there could be so many different reasons why it only hurts on one side. We all are different, and our bodies react to this horrible condition in such unique ways. The best answer I can give is that there is no good reason, and it's just because your body has decided to hurt on that one side Wink Your pain could definitely have been caused by something your first partner aggravated, or that could have just been your first trigger.

Did you notice any pain prior to your first time having sex (e.g. inserting a tampon or finger)?

Personally, I would suggest trying to see a pelvic floor physical therapist prior to going the prescription route just because I'm not the biggest fan of prescriptions that I have to take for the rest of my life. If you do want to try a prescription first, see if your doctor can prescribe them in a compounded cream that is applied directly to the vulva. This will help cut down on side effects. You will probably need to see an experienced vulvar specialist in order to have the best recommendations and follow up with the prescriptions.

I'm not sure where you're located, but pelvic floor physical therapists are a lot more common in many areas than most women realize. Plus, if nothing else, the therapist could probably recommend a good vulvar specialist to work with.

Keep us updated on how you're doing! sunny

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  web96 on Sun Jun 26, 2016 4:43 am

Yes I'm sorry to say it does sound like provoked v. I have the same thing, it used to feel like a burning/stabbing pain, which for me was caused by a severe allergic reaction of the glands in that area. I also had discomfort during my period due to the moisture causing chaffing. Things got way better after I pinpointed my sulfate/detergent allergy though, and I've talked to a few other women that have the same allergy/reaction. I still have a bit of nerve pain from years of this, which I'm treating as a separate issue, but it's like 90 percent better. You can read my story in my sig for all the details
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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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