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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  Bananasmiles on Thu Jun 16, 2016 12:48 am

Hey everyone, so I'll start from the beginning. Im 19 years old, and about a year and a half ago, I had sex for the first time. It felt like it hurt more than it should but I thought it was normal pain since it was my first time. After having it a few times though I realized it was hurting a lot more on only one side. I got kind of worried but it went away when I stopped having it, and didn't really bother me. But it really hurt to be fingered as well, again just on one side. From then on, I would have weeks where that same area would hurt, like when I wore tight clothing, or after having sex, and the area hurts upon touch. But then it would almost just seem to go away, until I did one of those things again. About a week ago, I started getting burning after I got my period, and it was really intense, it put me in a really bad mood, and it felt horrible. I finally went to the DR, who thought it was herpes, but she didn't see any blisters, and all the tests for STDS came back negative, there is no cyst, and no yeast infection. It still hurts down there, especially when I walk, not a lot, just kind of like a dull pain, in just one spot. Its just upon entry of the vagina. Does this sound like it could be vulvodynia? Thank you so much for reading and for your help!

Bananasmiles

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 2:45 am

Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

emalita

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Thanks for the quick reply!

Post  Bananasmiles on Thu Jun 16, 2016 3:41 am

emalita wrote:Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

Hey! I haven't researched much into that, but I just looked them up, and I guess really any of them could be a possibility? Im not sure. I haven't seen any specialty doctors, just a general doctor. I do have Generalized Anxiety Disorder, which I don't know if that makes it worse? Also the guy who I lost my virginity to, did not go gentle on me, and so I'm thinking he could possibly have damaged a nerve or something. I haven't asked for antidepressants, but I can give it a try if it helps. The one thing I always find to help is sitting in the jacuzzi, and no it is not worse at any specific time, except maybe when I get my period.
Is there a reason it only hurts on one side? Thanks for the quick reply!!

Bananasmiles

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 1:12 pm

Unfortunately there could be so many different reasons why it only hurts on one side. We all are different, and our bodies react to this horrible condition in such unique ways. The best answer I can give is that there is no good reason, and it's just because your body has decided to hurt on that one side Wink Your pain could definitely have been caused by something your first partner aggravated, or that could have just been your first trigger.

Did you notice any pain prior to your first time having sex (e.g. inserting a tampon or finger)?

Personally, I would suggest trying to see a pelvic floor physical therapist prior to going the prescription route just because I'm not the biggest fan of prescriptions that I have to take for the rest of my life. If you do want to try a prescription first, see if your doctor can prescribe them in a compounded cream that is applied directly to the vulva. This will help cut down on side effects. You will probably need to see an experienced vulvar specialist in order to have the best recommendations and follow up with the prescriptions.

I'm not sure where you're located, but pelvic floor physical therapists are a lot more common in many areas than most women realize. Plus, if nothing else, the therapist could probably recommend a good vulvar specialist to work with.

Keep us updated on how you're doing! sunny

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  web96 on Sun Jun 26, 2016 4:43 am

Yes I'm sorry to say it does sound like provoked v. I have the same thing, it used to feel like a burning/stabbing pain, which for me was caused by a severe allergic reaction of the glands in that area. I also had discomfort during my period due to the moisture causing chaffing. Things got way better after I pinpointed my sulfate/detergent allergy though, and I've talked to a few other women that have the same allergy/reaction. I still have a bit of nerve pain from years of this, which I'm treating as a separate issue, but it's like 90 percent better. You can read my story in my sig for all the details
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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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