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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  Bananasmiles on Thu Jun 16, 2016 12:48 am

Hey everyone, so I'll start from the beginning. Im 19 years old, and about a year and a half ago, I had sex for the first time. It felt like it hurt more than it should but I thought it was normal pain since it was my first time. After having it a few times though I realized it was hurting a lot more on only one side. I got kind of worried but it went away when I stopped having it, and didn't really bother me. But it really hurt to be fingered as well, again just on one side. From then on, I would have weeks where that same area would hurt, like when I wore tight clothing, or after having sex, and the area hurts upon touch. But then it would almost just seem to go away, until I did one of those things again. About a week ago, I started getting burning after I got my period, and it was really intense, it put me in a really bad mood, and it felt horrible. I finally went to the DR, who thought it was herpes, but she didn't see any blisters, and all the tests for STDS came back negative, there is no cyst, and no yeast infection. It still hurts down there, especially when I walk, not a lot, just kind of like a dull pain, in just one spot. Its just upon entry of the vagina. Does this sound like it could be vulvodynia? Thank you so much for reading and for your help!

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 2:45 am

Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

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Thanks for the quick reply!

Post  Bananasmiles on Thu Jun 16, 2016 3:41 am

emalita wrote:Hi Bananasmiles,

Your pain sounds like provoked vestibulodynia, which is just a fancy way of saying your vestibule hurts from pressure. Vestibulodynia and vulvodynia describe symptoms, not the cause of the pain. For your situation, you may want to research pelvic floor dysfunction, overactive/damaged nerves, pudendal neuralgia, etc.

Have you been seen by a pelvic floor physical therapist, or have you tried any antidepressants or anticonvulsants for nerve pain (e.g. gabapentine, amitriptyline, etc.)?

What else have you tried to relieve your pain? Do you find that any specific time of the month is worse than others?

Hey! I haven't researched much into that, but I just looked them up, and I guess really any of them could be a possibility? Im not sure. I haven't seen any specialty doctors, just a general doctor. I do have Generalized Anxiety Disorder, which I don't know if that makes it worse? Also the guy who I lost my virginity to, did not go gentle on me, and so I'm thinking he could possibly have damaged a nerve or something. I haven't asked for antidepressants, but I can give it a try if it helps. The one thing I always find to help is sitting in the jacuzzi, and no it is not worse at any specific time, except maybe when I get my period.
Is there a reason it only hurts on one side? Thanks for the quick reply!!

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  emalita on Thu Jun 16, 2016 1:12 pm

Unfortunately there could be so many different reasons why it only hurts on one side. We all are different, and our bodies react to this horrible condition in such unique ways. The best answer I can give is that there is no good reason, and it's just because your body has decided to hurt on that one side Wink Your pain could definitely have been caused by something your first partner aggravated, or that could have just been your first trigger.

Did you notice any pain prior to your first time having sex (e.g. inserting a tampon or finger)?

Personally, I would suggest trying to see a pelvic floor physical therapist prior to going the prescription route just because I'm not the biggest fan of prescriptions that I have to take for the rest of my life. If you do want to try a prescription first, see if your doctor can prescribe them in a compounded cream that is applied directly to the vulva. This will help cut down on side effects. You will probably need to see an experienced vulvar specialist in order to have the best recommendations and follow up with the prescriptions.

I'm not sure where you're located, but pelvic floor physical therapists are a lot more common in many areas than most women realize. Plus, if nothing else, the therapist could probably recommend a good vulvar specialist to work with.

Keep us updated on how you're doing! sunny

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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

Post  web96 on Sun Jun 26, 2016 4:43 am

Yes I'm sorry to say it does sound like provoked v. I have the same thing, it used to feel like a burning/stabbing pain, which for me was caused by a severe allergic reaction of the glands in that area. I also had discomfort during my period due to the moisture causing chaffing. Things got way better after I pinpointed my sulfate/detergent allergy though, and I've talked to a few other women that have the same allergy/reaction. I still have a bit of nerve pain from years of this, which I'm treating as a separate issue, but it's like 90 percent better. You can read my story in my sig for all the details
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Re: Hey everyone I'm new and confused. Does this sound like Vulvodynia?

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