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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Recent diagnosis help and advice!

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Recent diagnosis help and advice!

Post  iceangel8 on Tue Jun 21, 2016 8:20 pm

Hi all!
I was diagnosed with provoked vulvadynia a few months ago after experiencing recurring exteme pain during sex. Was given numbing cream and dilators by my gynaecologist at the GP surgery but have found treatment difficult. Let alone having the time to practice, I'm finding it difficult to properly locate the area of pain and use the cream properly. Are there any other treatments I can look into? It's been really difficult and has put pressure on my relationship with my long term boyfriend. Does anyone have any experiences and if their symptoms have eased overtime?

Thanks a lot!

iceangel8

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Re: Recent diagnosis help and advice!

Post  emalita on Tue Jun 21, 2016 9:14 pm

Hi iceangel8,

Have you been seen by a pelvic floor physical therapist to determine if you have something like pelvic floor dysfunction? A physical therapist could help identify the tight areas.

If you think your issue may be nerve related, you could try certain antidepressants or anticonvulsants (e.g. gabapentine, amitriptyline, etc.). Some of these can be made up into a compounded cream to help reduce the side effects.

I hope you find relief soon!

emalita

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Re: Recent diagnosis help and advice!

Post  PainBlogger on Wed Jun 22, 2016 9:09 am

I've found the best time to practise with dilators is first thing in the morning before getting up. Pelvic floor muscles are more relaxed as one hasn't been walking/sitting/standing all day. Furthermore, you won't have been thinking about it all day as you'll have just woken up so if anxiety about using them is a factor then that can help. As emalita says, finding a specialist pelvic pain/women's health physiotherapist may be a good idea as she would be able to give you some guidance. There are a couple of books I've found really useful:

Amy Stein - Heal Pelvic Pain

Heather Jeffcoat - Sex Without Pain.

A couple I found less useful but worth a look if you can get them from a library maybe:

Claudia Amherd - Freeing Yourself From Pelvic Pain

Isa Herrera - Ending Female Pain

If you read my post here http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement you'll see that people do get better. Good luck with your treatment Smile

PainBlogger

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Re: Recent diagnosis help and advice!

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