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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Recent diagnosis help and advice!

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Recent diagnosis help and advice!

Post  iceangel8 on Tue Jun 21, 2016 8:20 pm

Hi all!
I was diagnosed with provoked vulvadynia a few months ago after experiencing recurring exteme pain during sex. Was given numbing cream and dilators by my gynaecologist at the GP surgery but have found treatment difficult. Let alone having the time to practice, I'm finding it difficult to properly locate the area of pain and use the cream properly. Are there any other treatments I can look into? It's been really difficult and has put pressure on my relationship with my long term boyfriend. Does anyone have any experiences and if their symptoms have eased overtime?

Thanks a lot!

iceangel8

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Re: Recent diagnosis help and advice!

Post  emalita on Tue Jun 21, 2016 9:14 pm

Hi iceangel8,

Have you been seen by a pelvic floor physical therapist to determine if you have something like pelvic floor dysfunction? A physical therapist could help identify the tight areas.

If you think your issue may be nerve related, you could try certain antidepressants or anticonvulsants (e.g. gabapentine, amitriptyline, etc.). Some of these can be made up into a compounded cream to help reduce the side effects.

I hope you find relief soon!

emalita

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Re: Recent diagnosis help and advice!

Post  PainBlogger on Wed Jun 22, 2016 9:09 am

I've found the best time to practise with dilators is first thing in the morning before getting up. Pelvic floor muscles are more relaxed as one hasn't been walking/sitting/standing all day. Furthermore, you won't have been thinking about it all day as you'll have just woken up so if anxiety about using them is a factor then that can help. As emalita says, finding a specialist pelvic pain/women's health physiotherapist may be a good idea as she would be able to give you some guidance. There are a couple of books I've found really useful:

Amy Stein - Heal Pelvic Pain

Heather Jeffcoat - Sex Without Pain.

A couple I found less useful but worth a look if you can get them from a library maybe:

Claudia Amherd - Freeing Yourself From Pelvic Pain

Isa Herrera - Ending Female Pain

If you read my post here http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement you'll see that people do get better. Good luck with your treatment Smile

PainBlogger

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Re: Recent diagnosis help and advice!

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