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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Recent diagnosis help and advice!

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Recent diagnosis help and advice!

Post  iceangel8 on Tue Jun 21, 2016 8:20 pm

Hi all!
I was diagnosed with provoked vulvadynia a few months ago after experiencing recurring exteme pain during sex. Was given numbing cream and dilators by my gynaecologist at the GP surgery but have found treatment difficult. Let alone having the time to practice, I'm finding it difficult to properly locate the area of pain and use the cream properly. Are there any other treatments I can look into? It's been really difficult and has put pressure on my relationship with my long term boyfriend. Does anyone have any experiences and if their symptoms have eased overtime?

Thanks a lot!

iceangel8

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Re: Recent diagnosis help and advice!

Post  emalita on Tue Jun 21, 2016 9:14 pm

Hi iceangel8,

Have you been seen by a pelvic floor physical therapist to determine if you have something like pelvic floor dysfunction? A physical therapist could help identify the tight areas.

If you think your issue may be nerve related, you could try certain antidepressants or anticonvulsants (e.g. gabapentine, amitriptyline, etc.). Some of these can be made up into a compounded cream to help reduce the side effects.

I hope you find relief soon!

emalita

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Re: Recent diagnosis help and advice!

Post  PainBlogger on Wed Jun 22, 2016 9:09 am

I've found the best time to practise with dilators is first thing in the morning before getting up. Pelvic floor muscles are more relaxed as one hasn't been walking/sitting/standing all day. Furthermore, you won't have been thinking about it all day as you'll have just woken up so if anxiety about using them is a factor then that can help. As emalita says, finding a specialist pelvic pain/women's health physiotherapist may be a good idea as she would be able to give you some guidance. There are a couple of books I've found really useful:

Amy Stein - Heal Pelvic Pain

Heather Jeffcoat - Sex Without Pain.

A couple I found less useful but worth a look if you can get them from a library maybe:

Claudia Amherd - Freeing Yourself From Pelvic Pain

Isa Herrera - Ending Female Pain

If you read my post here http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement you'll see that people do get better. Good luck with your treatment Smile

PainBlogger

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Re: Recent diagnosis help and advice!

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