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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Recent diagnosis help and advice!

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Recent diagnosis help and advice!

Post  iceangel8 on Tue Jun 21, 2016 8:20 pm

Hi all!
I was diagnosed with provoked vulvadynia a few months ago after experiencing recurring exteme pain during sex. Was given numbing cream and dilators by my gynaecologist at the GP surgery but have found treatment difficult. Let alone having the time to practice, I'm finding it difficult to properly locate the area of pain and use the cream properly. Are there any other treatments I can look into? It's been really difficult and has put pressure on my relationship with my long term boyfriend. Does anyone have any experiences and if their symptoms have eased overtime?

Thanks a lot!

iceangel8

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Re: Recent diagnosis help and advice!

Post  emalita on Tue Jun 21, 2016 9:14 pm

Hi iceangel8,

Have you been seen by a pelvic floor physical therapist to determine if you have something like pelvic floor dysfunction? A physical therapist could help identify the tight areas.

If you think your issue may be nerve related, you could try certain antidepressants or anticonvulsants (e.g. gabapentine, amitriptyline, etc.). Some of these can be made up into a compounded cream to help reduce the side effects.

I hope you find relief soon!

emalita

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Re: Recent diagnosis help and advice!

Post  PainBlogger on Wed Jun 22, 2016 9:09 am

I've found the best time to practise with dilators is first thing in the morning before getting up. Pelvic floor muscles are more relaxed as one hasn't been walking/sitting/standing all day. Furthermore, you won't have been thinking about it all day as you'll have just woken up so if anxiety about using them is a factor then that can help. As emalita says, finding a specialist pelvic pain/women's health physiotherapist may be a good idea as she would be able to give you some guidance. There are a couple of books I've found really useful:

Amy Stein - Heal Pelvic Pain

Heather Jeffcoat - Sex Without Pain.

A couple I found less useful but worth a look if you can get them from a library maybe:

Claudia Amherd - Freeing Yourself From Pelvic Pain

Isa Herrera - Ending Female Pain

If you read my post here http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement you'll see that people do get better. Good luck with your treatment Smile

PainBlogger

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Re: Recent diagnosis help and advice!

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