Vulvodynia Support
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» Hope to all my suffering ladies
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Good Place to Start - Hypoallergenic Products & Temporary Lifestyle Changes

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Post  emalita Mon May 23, 2016 10:10 pm

I wanted to write down most of the hypoallergenic products and temporary lifestyle changes that my doctor recommends (or as he calls it The Hypocontactant Regimen). Sorry if there is already something like this out there, but I figured I would write mostly everything that my specialist has me doing.

- Eliminate all chemicals that are coming into contact with your vulva, this includes: flushable or feminine wipes (they are the devil in wipe form), shampoo, laundry detergent, dryer sheets/fabric softeners, shaving cream, super soft or scented toilet paper (lots of chemicals go into making super plush TP), any feminine products that are not 100% ORGANIC cotton, douches, etc.

- Shampoo: Free & Clear Shampoo - Wash your hair in the sink or tub. My specialist says it only takes a single drop of shampoo or conditioner in the shower to set off a reaction, and don't try to cheat by just leaning back in the shower.

- Laundry Detergent: All Free & Clear or Cheer Free & Gentle...I personally make my own following the instructions from the below website:

http://www.dwellinginhappiness.com/chemical-free-liquid-laundry-detergent/

- Fabric Softeners: Find alternatives to dryer sheets. I personally just use a little vinegar in my washing machine's rinse cycle.

- Shaving Cream: Vanicream Shaving Cream...Takes a little getting used to if you normally use the foaming stuff. Just make sure to rinse thoroughly after you're done otherwise it can leave a little residue.

- Tampons/Pads: TOTM or Natracare...Do a little research, you will be amazed as to how horrible regular tampons/pads are for our lady parts.

- If you are having sex, your partner MUST use hypoallergenic products also. Afterall, your partner's skin is coming into contact with you. So any chemical residues on their skin can rub off on you. My specialist recommends Astroglide Gel for lube, but that still seems to have too many chemicals in it for me. Also, condoms should be non-lubricated, non-ribbed, and non-scented/flavored.

- No oral sex on you to avoid saliva irritation

- Body & Vulvar Soap: Grandma's Pure Lye Soap...Yep he recommends we use a wash on our vulvas to keep bacteria, yeast, and perspiration low. Pure soaps are too drying for me; so I use Sliquid Splash Unscented wash.

- Wear all cotton undies

- Body Lotion: Vanicream Lite Lotion

- My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after EVERY urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day.

- Apply a small amount of Vaniply to the vaginal opening before exercise or sports to avoid friction


I hope this is useful and helps someone find relief sunny

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  PainBlogger Tue May 24, 2016 11:23 am

To add to emalita's good advice above (mainly because a lot of the products named may not be easy available in the UK or elsewhere), here are some of the products I now use:

- Surcare detergent (it's fragrance free and marketed for eczema etc sufferers so gentler than many other products). It comes in powder, liquid, and fabric softener and I've seen it in Savers and Sainsburys and some Tesco stores.

- Oilatum bath formula - I get the junior/kids version because the adult one has fragrance in it. I put one capful (less than the recommended three) into a warm (not too hot) bath.

- Sanex zero shower gel - one has to be careful to make sure it's the fragrance free one because some of the Zero range still has fragrance in. This is available in Tesco and no doubt other supermarkets and chemists. It still has a few chemicals, obviously, but so many less than most products.

- Aqueous cream (preferably SLS free and it shouldn't have added fragrance) which can be used either as soap, a moisturiser or as a leg/underarm shaving cream (but I wouldn't put it anywhere near down below). I get it from Savers as the Boots one has (or used to have) a horrible smelling preservative called chlorocreosol in it.

- Yes lubricant (water-based is better, but there is an oil-based one) - no parabens, glycerine and other nasty stuff. There is a minimal amount of preservative in it (which is essential to get the germs away or it would go off really quickly), but I've not had any reaction to it.

- I've stopped using any sanitary towels that are scented. Bodyform are fragrance free and don't irritate me, though they are not cotton. I tried Natracare but they weren't absorbent enough. There's another cotton organic brand available in the UK called Pravera Organyc and I found that they stuck a bit better and were a bit more absorbent but still not quite good enough for very heavy periods. I'd imagine they're fine for lighter flow though. They can be found here: http://www.pravera.co.uk/organyc anyway.




PainBlogger

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Post  WaahwaahUK Tue May 24, 2016 7:05 pm

Just wanted to add for UK peeps - I get my sanitary towels from amazon they're called 'Cottons' and they do a night time towel which I find is good for heavy flows.

WaahwaahUK

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Post  emalita Tue May 24, 2016 7:20 pm

Something else that I think should be mentioned even though I don't have much experience with them is reusable menstrual products. I personally haven't had great success with menstrual cups just because they are too big for me to gently get in at the moment, but for someone who is looking for truly chemical free options, they're worth looking into.

Below is a good website for reusable pads and menstrual cups. I've watched a handful of her youtube videos when I was trying to figure out how to use menstrual cups. She is extremely knowledgeable Smile

http://www.preciousstars.net


Last edited by emalita on Thu May 26, 2016 2:01 pm; edited 1 time in total

emalita

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Post  PainBlogger Wed May 25, 2016 2:47 pm

WaahwaahUK wrote:Just wanted to add for UK peeps - I get my sanitary towels from amazon they're called 'Cottons' and they do a night time towel which I find is good for heavy flows.

Thanks for the recommendation. Smile




PainBlogger

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Post  lindsey_taylor Fri Jul 08, 2016 7:37 pm

Anyone have any recommendations on toilet paper brands that may decrease irritation?

lindsey_taylor

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Join date : 2016-06-06
Age : 38
Location : Georgia, United States

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Post  emalita Fri Jul 08, 2016 9:10 pm

One lady told me she uses Quilted Northern TP, my specialist says it should be high quality TP, internet searches and blogs say the higher quality TPs are worse because of all the chemicals that go into making them soft and white, etc.

So unfortunately I think it will be trial and error for you because there are so many varying opinions. I personally use Charmin Basic and don't seem to have issues.

Just be careful with recycled TP because it generally contains BPA from recycled sales receipts and newspapers. I recommend googling "allergy to toilet paper" because there are a ton of articles about it, including learning about bamboo TP Wink

emalita

Posts : 249
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