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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Theresa1987 on Tue Jul 12, 2016 8:31 pm

Hi all,

I've had vulvodynia for 5 years. Long story short it seems it was probably kicked off by going on the pill. Tried many treatments with no real results or I seem to get better but then the pain changes.

I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.

Anyone experienced anything similar? Any advice? I've tried all the usual things, botox, physio, amitriptiline, gabapentin, cymbalta, chriopractor, dillators... I've wondered if it;s hormones but I use all the compounded hormone creams and they don't seem to make a difference. Haven't tried the nerve block or surgery.

Theresa1987

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  emalita on Tue Jul 12, 2016 11:53 pm

Hi Theresa1987,

I'm sorry to hear that you've been dealing with this crappy condition for so long.

Like you, my pain has varied throughout my 2+ year battle with this condition. Right now my largest complaint is only on my left side near the bottom inbetween my labia minora and majora. It mostly feels like a really sore bruise, but it can feel like burning, throbbing, prickling, and stinging (no shooting pain down my butt though). Although it is at its worst when touched, it can act up without provocation.

Sounds like you have certainly tried the most common treatments. The hormones you were on, were they bioidentical hormones? I've read that can sometimes make a difference as to whether or not someone responds to hormone therapy.

emalita

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  WaahwaahUK on Wed Jul 13, 2016 11:35 am

Hi there. My pain is also now only on the left side of my vulva and labia. It was originally on both sides and up to my clitoris too. You've tried more things than I have! However, for me I've found slow (very slow) progress with physio (womens health internal physio and also osteopathy). I have definitely had set backs. Experiencing one now! However, overall I feel some small improvement over time. I'm so sorry you've had this for 5 years. How long did you have physio for? I do have suspected pudendal nerve irritation which is supposedly settling but can still be firing off for some time apparently.


Last edited by WaahwaahUK on Wed Jul 13, 2016 11:36 am; edited 1 time in total (Reason for editing : Addition)

WaahwaahUK

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Saoirse on Sat Jul 23, 2016 6:38 am

Theresa1987 wrote:Hi all,



I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.
surgery.

Can you ask for a MRI? I had the similar sistuation and when the doctor did MRI they found out my bartholin cyst was hidden deep under the tissue. I had it removed, it helped with the pain. Before the pain can come all the way up and down to the buttlock, but somehome I still itch constantly at the area. Still dealing with it... Sad

Saoirse

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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