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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Theresa1987 on Tue Jul 12, 2016 8:31 pm

Hi all,

I've had vulvodynia for 5 years. Long story short it seems it was probably kicked off by going on the pill. Tried many treatments with no real results or I seem to get better but then the pain changes.

I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.

Anyone experienced anything similar? Any advice? I've tried all the usual things, botox, physio, amitriptiline, gabapentin, cymbalta, chriopractor, dillators... I've wondered if it;s hormones but I use all the compounded hormone creams and they don't seem to make a difference. Haven't tried the nerve block or surgery.

Theresa1987

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  emalita on Tue Jul 12, 2016 11:53 pm

Hi Theresa1987,

I'm sorry to hear that you've been dealing with this crappy condition for so long.

Like you, my pain has varied throughout my 2+ year battle with this condition. Right now my largest complaint is only on my left side near the bottom inbetween my labia minora and majora. It mostly feels like a really sore bruise, but it can feel like burning, throbbing, prickling, and stinging (no shooting pain down my butt though). Although it is at its worst when touched, it can act up without provocation.

Sounds like you have certainly tried the most common treatments. The hormones you were on, were they bioidentical hormones? I've read that can sometimes make a difference as to whether or not someone responds to hormone therapy.

emalita

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  WaahwaahUK on Wed Jul 13, 2016 11:35 am

Hi there. My pain is also now only on the left side of my vulva and labia. It was originally on both sides and up to my clitoris too. You've tried more things than I have! However, for me I've found slow (very slow) progress with physio (womens health internal physio and also osteopathy). I have definitely had set backs. Experiencing one now! However, overall I feel some small improvement over time. I'm so sorry you've had this for 5 years. How long did you have physio for? I do have suspected pudendal nerve irritation which is supposedly settling but can still be firing off for some time apparently.


Last edited by WaahwaahUK on Wed Jul 13, 2016 11:36 am; edited 1 time in total (Reason for editing : Addition)

WaahwaahUK

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Saoirse on Sat Jul 23, 2016 6:38 am

Theresa1987 wrote:Hi all,



I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.
surgery.

Can you ask for a MRI? I had the similar sistuation and when the doctor did MRI they found out my bartholin cyst was hidden deep under the tissue. I had it removed, it helped with the pain. Before the pain can come all the way up and down to the buttlock, but somehome I still itch constantly at the area. Still dealing with it... Sad

Saoirse

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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