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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Theresa1987 on Tue Jul 12, 2016 8:31 pm

Hi all,

I've had vulvodynia for 5 years. Long story short it seems it was probably kicked off by going on the pill. Tried many treatments with no real results or I seem to get better but then the pain changes.

I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.

Anyone experienced anything similar? Any advice? I've tried all the usual things, botox, physio, amitriptiline, gabapentin, cymbalta, chriopractor, dillators... I've wondered if it;s hormones but I use all the compounded hormone creams and they don't seem to make a difference. Haven't tried the nerve block or surgery.

Theresa1987

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  emalita on Tue Jul 12, 2016 11:53 pm

Hi Theresa1987,

I'm sorry to hear that you've been dealing with this crappy condition for so long.

Like you, my pain has varied throughout my 2+ year battle with this condition. Right now my largest complaint is only on my left side near the bottom inbetween my labia minora and majora. It mostly feels like a really sore bruise, but it can feel like burning, throbbing, prickling, and stinging (no shooting pain down my butt though). Although it is at its worst when touched, it can act up without provocation.

Sounds like you have certainly tried the most common treatments. The hormones you were on, were they bioidentical hormones? I've read that can sometimes make a difference as to whether or not someone responds to hormone therapy.

emalita

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  WaahwaahUK on Wed Jul 13, 2016 11:35 am

Hi there. My pain is also now only on the left side of my vulva and labia. It was originally on both sides and up to my clitoris too. You've tried more things than I have! However, for me I've found slow (very slow) progress with physio (womens health internal physio and also osteopathy). I have definitely had set backs. Experiencing one now! However, overall I feel some small improvement over time. I'm so sorry you've had this for 5 years. How long did you have physio for? I do have suspected pudendal nerve irritation which is supposedly settling but can still be firing off for some time apparently.


Last edited by WaahwaahUK on Wed Jul 13, 2016 11:36 am; edited 1 time in total (Reason for editing : Addition)

WaahwaahUK

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Saoirse on Sat Jul 23, 2016 6:38 am

Theresa1987 wrote:Hi all,



I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.
surgery.

Can you ask for a MRI? I had the similar sistuation and when the doctor did MRI they found out my bartholin cyst was hidden deep under the tissue. I had it removed, it helped with the pain. Before the pain can come all the way up and down to the buttlock, but somehome I still itch constantly at the area. Still dealing with it... Sad

Saoirse

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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