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» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Theresa1987 on Tue Jul 12, 2016 8:31 pm

Hi all,

I've had vulvodynia for 5 years. Long story short it seems it was probably kicked off by going on the pill. Tried many treatments with no real results or I seem to get better but then the pain changes.

I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.

Anyone experienced anything similar? Any advice? I've tried all the usual things, botox, physio, amitriptiline, gabapentin, cymbalta, chriopractor, dillators... I've wondered if it;s hormones but I use all the compounded hormone creams and they don't seem to make a difference. Haven't tried the nerve block or surgery.

Theresa1987

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  emalita on Tue Jul 12, 2016 11:53 pm

Hi Theresa1987,

I'm sorry to hear that you've been dealing with this crappy condition for so long.

Like you, my pain has varied throughout my 2+ year battle with this condition. Right now my largest complaint is only on my left side near the bottom inbetween my labia minora and majora. It mostly feels like a really sore bruise, but it can feel like burning, throbbing, prickling, and stinging (no shooting pain down my butt though). Although it is at its worst when touched, it can act up without provocation.

Sounds like you have certainly tried the most common treatments. The hormones you were on, were they bioidentical hormones? I've read that can sometimes make a difference as to whether or not someone responds to hormone therapy.

emalita

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  WaahwaahUK on Wed Jul 13, 2016 11:35 am

Hi there. My pain is also now only on the left side of my vulva and labia. It was originally on both sides and up to my clitoris too. You've tried more things than I have! However, for me I've found slow (very slow) progress with physio (womens health internal physio and also osteopathy). I have definitely had set backs. Experiencing one now! However, overall I feel some small improvement over time. I'm so sorry you've had this for 5 years. How long did you have physio for? I do have suspected pudendal nerve irritation which is supposedly settling but can still be firing off for some time apparently.


Last edited by WaahwaahUK on Wed Jul 13, 2016 11:36 am; edited 1 time in total (Reason for editing : Addition)

WaahwaahUK

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

Post  Saoirse on Sat Jul 23, 2016 6:38 am

Theresa1987 wrote:Hi all,



I found physio therapy really helpful for my vaginismus but for the last two years or so my pain is only on the left side. It hurts at the spot at 4 O'clock and then will burn in a line down on the inside of the butt cheek. It use to hurt onto the clit but now that's stopped. The pain is getting more unpredictable and worse as time goes on.
surgery.

Can you ask for a MRI? I had the similar sistuation and when the doctor did MRI they found out my bartholin cyst was hidden deep under the tissue. I had it removed, it helped with the pain. Before the pain can come all the way up and down to the buttlock, but somehome I still itch constantly at the area. Still dealing with it... Sad

Saoirse

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Re: Pain only on the left side of vulva but doesn't seem to pudendal neuralgia

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