Vulvodynia Support
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» Hope to all my suffering ladies
After 3 years, finally on the right path! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
After 3 years, finally on the right path! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
After 3 years, finally on the right path! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
After 3 years, finally on the right path! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
After 3 years, finally on the right path! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
After 3 years, finally on the right path! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
After 3 years, finally on the right path! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
After 3 years, finally on the right path! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
After 3 years, finally on the right path! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


After 3 years, finally on the right path!

+2
emalita
sailor_moon
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After 3 years, finally on the right path! Empty After 3 years, finally on the right path!

Post  sailor_moon Sun Jul 24, 2016 11:57 am

Ok Ladies...so after 3 long and extremely hard miserable years, I am finally on the right path and getting the right treatment.

After 2 successful nerve blocks and my symptom history, I finally got to see the only Pudental nerve specialist in the southern hemisphere! And I pretty much have been diagnosed with pudental neuralgia...no surprise at this point given my symptoms.

He first asked my history and symptoms. He then got me to walk back and forth pacing the room. He then went on to press on areas of my back, butt and legs asking where hurt. He then gave me a vulva examination and used a Q tip to do a series of different movements 'tapping' with the q tip and 'brushing' the Q tip on specific areas.

He also believes that the menstrual regulating drug I'm taking has affected the tissue down there further adding to the inflammation.

He believes the cause of the problem is muscular, the muscles are constantly in a spasm and are bulking, causing pudental nerve trauma. given my excessive exercise history and the fact I have had a few falls on my ass over the years.

Treatment for now is a combo cream of 2% Amitripteline  and 0.05% estrogen, and once I get a GP referral, 3 months of physiotherapy by one of his trained physiotherapists [ I get 5 free sessions if I get my GP to refer me!]

Also, I am getting a special pudental nerve MRI done next week, to see whats going on and just in case of entrapment, but he highly doubts its entrapped at this point. We will just have to wait and see.

Dont give up hope ladies!! I believe we will all find a cure or means of relief, we just need the right doctor who is willing to help us. It has taken me 3 long, and very hard years to get the right help, but I never gave up, even though 14 other doctors told me to.

Any advice would be much appreciated. I will try and keep you all updated.


Last edited by sailor_moon on Sun Jul 31, 2016 5:38 am; edited 1 time in total
sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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Post  emalita Sun Jul 24, 2016 2:07 pm

That's great news! I hope this doctor and treatment regimen are finally the answers to your pain Very Happy

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  PainBlogger Sun Jul 24, 2016 8:35 pm

That's great new after so much frustration. Good luck with the cream and the physio.

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  WaahwaahUK Mon Jul 25, 2016 8:17 pm

Wishing you much luck and pain relief! Keep us posted.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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Post  meelie Thu Jul 28, 2016 11:07 pm

where are you? and how did you find a pudental nerve specialist? Good luck with your plan.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  sailor_moon Sun Jul 31, 2016 5:43 am

Thanks ladies. I will definitely keep you posted!

I cant start physio yet as I am waiting for my GP to write up a chronic pain management plan so I can get 5 free physio sessions...hes on holidays so I cant get a referral from him for another 3 weeks! long wait but it has to be done so I can save some $$$....I'm frigging broke after these doctors costs while trying to pay my mortgage.

I have a special pudental MRI this week to get a better look at whats going on and to check for entrapment just in case....$550 later and a $200 motel room....and a 6 hour drive.

Meelie I am in Australia Smile this pudental specialist is in Australia too, in Sydney.
sailor_moon
sailor_moon

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Post  lindsey_taylor Mon Aug 01, 2016 12:13 am

I hope everything continues in a positive manner for you! You give us all hope with this!

lindsey_taylor

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Location : Georgia, United States

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