Log in

I forgot my password

Latest topics
» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


After 3 years, finally on the right path!

Go down

After 3 years, finally on the right path!

Post  sailor_moon on Sun Jul 24, 2016 11:57 am

Ok Ladies...so after 3 long and extremely hard miserable years, I am finally on the right path and getting the right treatment.

After 2 successful nerve blocks and my symptom history, I finally got to see the only Pudental nerve specialist in the southern hemisphere! And I pretty much have been diagnosed with pudental neuralgia...no surprise at this point given my symptoms.

He first asked my history and symptoms. He then got me to walk back and forth pacing the room. He then went on to press on areas of my back, butt and legs asking where hurt. He then gave me a vulva examination and used a Q tip to do a series of different movements 'tapping' with the q tip and 'brushing' the Q tip on specific areas.

He also believes that the menstrual regulating drug I'm taking has affected the tissue down there further adding to the inflammation.

He believes the cause of the problem is muscular, the muscles are constantly in a spasm and are bulking, causing pudental nerve trauma. given my excessive exercise history and the fact I have had a few falls on my ass over the years.

Treatment for now is a combo cream of 2% Amitripteline  and 0.05% estrogen, and once I get a GP referral, 3 months of physiotherapy by one of his trained physiotherapists [ I get 5 free sessions if I get my GP to refer me!]

Also, I am getting a special pudental nerve MRI done next week, to see whats going on and just in case of entrapment, but he highly doubts its entrapped at this point. We will just have to wait and see.

Dont give up hope ladies!! I believe we will all find a cure or means of relief, we just need the right doctor who is willing to help us. It has taken me 3 long, and very hard years to get the right help, but I never gave up, even though 14 other doctors told me to.

Any advice would be much appreciated. I will try and keep you all updated.


Last edited by sailor_moon on Sun Jul 31, 2016 5:38 am; edited 1 time in total
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  emalita on Sun Jul 24, 2016 2:07 pm

That's great news! I hope this doctor and treatment regimen are finally the answers to your pain Very Happy

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  PainBlogger on Sun Jul 24, 2016 8:35 pm

That's great new after so much frustration. Good luck with the cream and the physio.

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  WaahwaahUK on Mon Jul 25, 2016 8:17 pm

Wishing you much luck and pain relief! Keep us posted.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  meelie on Thu Jul 28, 2016 11:07 pm

where are you? and how did you find a pudental nerve specialist? Good luck with your plan.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  sailor_moon on Sun Jul 31, 2016 5:43 am

Thanks ladies. I will definitely keep you posted!

I cant start physio yet as I am waiting for my GP to write up a chronic pain management plan so I can get 5 free physio sessions...hes on holidays so I cant get a referral from him for another 3 weeks! long wait but it has to be done so I can save some $$$....I'm frigging broke after these doctors costs while trying to pay my mortgage.

I have a special pudental MRI this week to get a better look at whats going on and to check for entrapment just in case....$550 later and a $200 motel room....and a 6 hour drive.

Meelie I am in Australia Smile this pudental specialist is in Australia too, in Sydney.
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  lindsey_taylor on Mon Aug 01, 2016 12:13 am

I hope everything continues in a positive manner for you! You give us all hope with this!

lindsey_taylor

Posts : 57
Join date : 2016-06-06
Age : 32
Location : Georgia, United States

View user profile

Back to top Go down

Re: After 3 years, finally on the right path!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum