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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Vulvodynia - Newly Diagnosed

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Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 10:30 pm

Hi everyone,

I'm 19 years old and was diagnosed with Vulvodynia after constant pain with no physical reason as to why. They sent me for at least four tests to ensure I had no Sexually Transmitted Infection/Disease, despite me telling them there was no way I could have! I've managed the pain with Lidocaine 5% and painkillers as required. Relaxation techniques have also seemed to help as the doctors I saw believed it was related to stress. I saw a gynecologist last week who confirmed I had Vulvodynia and also referred me for cystoscopy as I always feel as though I have a UTI; he wanted to rule out any bladder issues.

Lately, I have experienced intense soreness and itching around my vulva and vaginal opening due to friction from wearing pads. This accompanied by Vulvodynia has been excruciatingly painful. The doctor prescribed me Clotrimazole to reduce the itching but the soreness remains. Does anyone know of any treatments or home remedies that might help? I'm a Student Mental Health Nurse and I start my placement next month, so I want to ensure I'm fit and healthy!

Another question I have is does anyone know of any good lubricants to use during sex that is good for Vulvodynia? I don't intend to have sex until the soreness has gone completely, but I'd like to find one which isn't going to cause anymore! I've been with my boyfriend for over 3 years and I want to ensure we maintain that side of the relationship.

Thanks in advance. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  emalita on Mon Jul 25, 2016 11:08 pm

Hi emtx,

A good lubricant is an organic UK brand called YES. The waterbased lubricant also helped a lot with my vulvar itching. So it may be worth a try for you even before you have sex.

Epsom salt soaks also help with itching, but they are obviously not the most convenient. Outside of steroids and other creams, I can't really recommend a good itch remedy.

Do you have any physical changes to your vulva, or have you had a biopsy to rule out something like lichen sclerosus(LS) since you have chronic itching? Not trying to freak you out, but I had a semi-recent freak out with being misdiagnosed with LS, so it's fresh in my mind.

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 11:11 pm

Hi emalita,

Thanks for the recommendation, I'll check it out! Smile I've seen some Aloe Vera ones but I don't know if they're any good for soreness?

It's slightly red but other than that it's pretty normal. The doctor had a look today as I was concerned, and she said she didn't notice anything out of the ordinary and wasn't worried. I think the hot weather and wearing sanitary towels has caused a lot of it. But it's something to remember for the future!

Thank you for your help. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  PainBlogger on Tue Jul 26, 2016 7:28 am

I'd make sure that any sanitary towels you wear are non-fragranced and ideally cotton-based. I found that fragranced towels made my pain worse- they're not always obviously fragranced but if you read the packaging it should say if they are or not. Personally I've not found a cotton/organic/'natural' fibres towel absorbent/leak-proof enough for me, but I find Bodyform (which are non scented irritate me the least). That may be a UK brand though and I don't know where you're based. Towards the end of my (usually eight day) period, I still get a bit sore even though my problems have improved tremendously. But then I think a lot of people would after eight days!

I second the recommendation of YES lubricant. It's also wise to avoid any scented bath/toilet products and use fragrance free detergent on any clothes that are in contact with the affected area.

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Tue Jul 26, 2016 9:24 am

Hi Painblogger,

I'm based in the UK so I'll give Bodyform a go!

Thanks for your advice, and I'm glad your problems have improved!

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  jjr23 on Wed Aug 24, 2016 4:44 pm

Hi emtx,

I use olive oil as lubricant. Mt gynocologist is the one who actually recommended this to me! His area of specialization is vulvodynia so I highly respect his advice. From my experience it's been great. It doesn't dry out as quick as other lubricants and it has a nice smooth and slimey feel to it. I have a bottle of it in my room always, it's my life saviour. If I'm ever ready or willing to try having sex I use LOTS of it and it really helps. It reduces the harsh friction on the painful skin. I'm not sure if it can be used with condoms though. Like the oil might break down the latex. (If not using a condom, the guy loves the feel of the oil too!)


Last edited by jjr23 on Wed Aug 24, 2016 4:45 pm; edited 1 time in total (Reason for editing : Spelling error)

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Wed Aug 24, 2016 4:49 pm

Hi jjr23,

Sounds different but worth a try!

Thanks. Smile

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Re: Vulvodynia - Newly Diagnosed

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