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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Vulvodynia - Newly Diagnosed

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Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 10:30 pm

Hi everyone,

I'm 19 years old and was diagnosed with Vulvodynia after constant pain with no physical reason as to why. They sent me for at least four tests to ensure I had no Sexually Transmitted Infection/Disease, despite me telling them there was no way I could have! I've managed the pain with Lidocaine 5% and painkillers as required. Relaxation techniques have also seemed to help as the doctors I saw believed it was related to stress. I saw a gynecologist last week who confirmed I had Vulvodynia and also referred me for cystoscopy as I always feel as though I have a UTI; he wanted to rule out any bladder issues.

Lately, I have experienced intense soreness and itching around my vulva and vaginal opening due to friction from wearing pads. This accompanied by Vulvodynia has been excruciatingly painful. The doctor prescribed me Clotrimazole to reduce the itching but the soreness remains. Does anyone know of any treatments or home remedies that might help? I'm a Student Mental Health Nurse and I start my placement next month, so I want to ensure I'm fit and healthy!

Another question I have is does anyone know of any good lubricants to use during sex that is good for Vulvodynia? I don't intend to have sex until the soreness has gone completely, but I'd like to find one which isn't going to cause anymore! I've been with my boyfriend for over 3 years and I want to ensure we maintain that side of the relationship.

Thanks in advance. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  emalita on Mon Jul 25, 2016 11:08 pm

Hi emtx,

A good lubricant is an organic UK brand called YES. The waterbased lubricant also helped a lot with my vulvar itching. So it may be worth a try for you even before you have sex.

Epsom salt soaks also help with itching, but they are obviously not the most convenient. Outside of steroids and other creams, I can't really recommend a good itch remedy.

Do you have any physical changes to your vulva, or have you had a biopsy to rule out something like lichen sclerosus(LS) since you have chronic itching? Not trying to freak you out, but I had a semi-recent freak out with being misdiagnosed with LS, so it's fresh in my mind.

emalita

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 11:11 pm

Hi emalita,

Thanks for the recommendation, I'll check it out! Smile I've seen some Aloe Vera ones but I don't know if they're any good for soreness?

It's slightly red but other than that it's pretty normal. The doctor had a look today as I was concerned, and she said she didn't notice anything out of the ordinary and wasn't worried. I think the hot weather and wearing sanitary towels has caused a lot of it. But it's something to remember for the future!

Thank you for your help. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  PainBlogger on Tue Jul 26, 2016 7:28 am

I'd make sure that any sanitary towels you wear are non-fragranced and ideally cotton-based. I found that fragranced towels made my pain worse- they're not always obviously fragranced but if you read the packaging it should say if they are or not. Personally I've not found a cotton/organic/'natural' fibres towel absorbent/leak-proof enough for me, but I find Bodyform (which are non scented irritate me the least). That may be a UK brand though and I don't know where you're based. Towards the end of my (usually eight day) period, I still get a bit sore even though my problems have improved tremendously. But then I think a lot of people would after eight days!

I second the recommendation of YES lubricant. It's also wise to avoid any scented bath/toilet products and use fragrance free detergent on any clothes that are in contact with the affected area.

PainBlogger

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Tue Jul 26, 2016 9:24 am

Hi Painblogger,

I'm based in the UK so I'll give Bodyform a go!

Thanks for your advice, and I'm glad your problems have improved!

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  jjr23 on Wed Aug 24, 2016 4:44 pm

Hi emtx,

I use olive oil as lubricant. Mt gynocologist is the one who actually recommended this to me! His area of specialization is vulvodynia so I highly respect his advice. From my experience it's been great. It doesn't dry out as quick as other lubricants and it has a nice smooth and slimey feel to it. I have a bottle of it in my room always, it's my life saviour. If I'm ever ready or willing to try having sex I use LOTS of it and it really helps. It reduces the harsh friction on the painful skin. I'm not sure if it can be used with condoms though. Like the oil might break down the latex. (If not using a condom, the guy loves the feel of the oil too!)


Last edited by jjr23 on Wed Aug 24, 2016 4:45 pm; edited 1 time in total (Reason for editing : Spelling error)

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Wed Aug 24, 2016 4:49 pm

Hi jjr23,

Sounds different but worth a try!

Thanks. Smile

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Re: Vulvodynia - Newly Diagnosed

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