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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Vulvodynia - Newly Diagnosed

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Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 10:30 pm

Hi everyone,

I'm 19 years old and was diagnosed with Vulvodynia after constant pain with no physical reason as to why. They sent me for at least four tests to ensure I had no Sexually Transmitted Infection/Disease, despite me telling them there was no way I could have! I've managed the pain with Lidocaine 5% and painkillers as required. Relaxation techniques have also seemed to help as the doctors I saw believed it was related to stress. I saw a gynecologist last week who confirmed I had Vulvodynia and also referred me for cystoscopy as I always feel as though I have a UTI; he wanted to rule out any bladder issues.

Lately, I have experienced intense soreness and itching around my vulva and vaginal opening due to friction from wearing pads. This accompanied by Vulvodynia has been excruciatingly painful. The doctor prescribed me Clotrimazole to reduce the itching but the soreness remains. Does anyone know of any treatments or home remedies that might help? I'm a Student Mental Health Nurse and I start my placement next month, so I want to ensure I'm fit and healthy!

Another question I have is does anyone know of any good lubricants to use during sex that is good for Vulvodynia? I don't intend to have sex until the soreness has gone completely, but I'd like to find one which isn't going to cause anymore! I've been with my boyfriend for over 3 years and I want to ensure we maintain that side of the relationship.

Thanks in advance. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  emalita on Mon Jul 25, 2016 11:08 pm

Hi emtx,

A good lubricant is an organic UK brand called YES. The waterbased lubricant also helped a lot with my vulvar itching. So it may be worth a try for you even before you have sex.

Epsom salt soaks also help with itching, but they are obviously not the most convenient. Outside of steroids and other creams, I can't really recommend a good itch remedy.

Do you have any physical changes to your vulva, or have you had a biopsy to rule out something like lichen sclerosus(LS) since you have chronic itching? Not trying to freak you out, but I had a semi-recent freak out with being misdiagnosed with LS, so it's fresh in my mind.

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 11:11 pm

Hi emalita,

Thanks for the recommendation, I'll check it out! Smile I've seen some Aloe Vera ones but I don't know if they're any good for soreness?

It's slightly red but other than that it's pretty normal. The doctor had a look today as I was concerned, and she said she didn't notice anything out of the ordinary and wasn't worried. I think the hot weather and wearing sanitary towels has caused a lot of it. But it's something to remember for the future!

Thank you for your help. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  PainBlogger on Tue Jul 26, 2016 7:28 am

I'd make sure that any sanitary towels you wear are non-fragranced and ideally cotton-based. I found that fragranced towels made my pain worse- they're not always obviously fragranced but if you read the packaging it should say if they are or not. Personally I've not found a cotton/organic/'natural' fibres towel absorbent/leak-proof enough for me, but I find Bodyform (which are non scented irritate me the least). That may be a UK brand though and I don't know where you're based. Towards the end of my (usually eight day) period, I still get a bit sore even though my problems have improved tremendously. But then I think a lot of people would after eight days!

I second the recommendation of YES lubricant. It's also wise to avoid any scented bath/toilet products and use fragrance free detergent on any clothes that are in contact with the affected area.

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Tue Jul 26, 2016 9:24 am

Hi Painblogger,

I'm based in the UK so I'll give Bodyform a go!

Thanks for your advice, and I'm glad your problems have improved!

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  jjr23 on Wed Aug 24, 2016 4:44 pm

Hi emtx,

I use olive oil as lubricant. Mt gynocologist is the one who actually recommended this to me! His area of specialization is vulvodynia so I highly respect his advice. From my experience it's been great. It doesn't dry out as quick as other lubricants and it has a nice smooth and slimey feel to it. I have a bottle of it in my room always, it's my life saviour. If I'm ever ready or willing to try having sex I use LOTS of it and it really helps. It reduces the harsh friction on the painful skin. I'm not sure if it can be used with condoms though. Like the oil might break down the latex. (If not using a condom, the guy loves the feel of the oil too!)


Last edited by jjr23 on Wed Aug 24, 2016 4:45 pm; edited 1 time in total (Reason for editing : Spelling error)

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Wed Aug 24, 2016 4:49 pm

Hi jjr23,

Sounds different but worth a try!

Thanks. Smile

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Re: Vulvodynia - Newly Diagnosed

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