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Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Vulvodynia - Newly Diagnosed

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Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 10:30 pm

Hi everyone,

I'm 19 years old and was diagnosed with Vulvodynia after constant pain with no physical reason as to why. They sent me for at least four tests to ensure I had no Sexually Transmitted Infection/Disease, despite me telling them there was no way I could have! I've managed the pain with Lidocaine 5% and painkillers as required. Relaxation techniques have also seemed to help as the doctors I saw believed it was related to stress. I saw a gynecologist last week who confirmed I had Vulvodynia and also referred me for cystoscopy as I always feel as though I have a UTI; he wanted to rule out any bladder issues.

Lately, I have experienced intense soreness and itching around my vulva and vaginal opening due to friction from wearing pads. This accompanied by Vulvodynia has been excruciatingly painful. The doctor prescribed me Clotrimazole to reduce the itching but the soreness remains. Does anyone know of any treatments or home remedies that might help? I'm a Student Mental Health Nurse and I start my placement next month, so I want to ensure I'm fit and healthy!

Another question I have is does anyone know of any good lubricants to use during sex that is good for Vulvodynia? I don't intend to have sex until the soreness has gone completely, but I'd like to find one which isn't going to cause anymore! I've been with my boyfriend for over 3 years and I want to ensure we maintain that side of the relationship.

Thanks in advance. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  emalita on Mon Jul 25, 2016 11:08 pm

Hi emtx,

A good lubricant is an organic UK brand called YES. The waterbased lubricant also helped a lot with my vulvar itching. So it may be worth a try for you even before you have sex.

Epsom salt soaks also help with itching, but they are obviously not the most convenient. Outside of steroids and other creams, I can't really recommend a good itch remedy.

Do you have any physical changes to your vulva, or have you had a biopsy to rule out something like lichen sclerosus(LS) since you have chronic itching? Not trying to freak you out, but I had a semi-recent freak out with being misdiagnosed with LS, so it's fresh in my mind.

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Mon Jul 25, 2016 11:11 pm

Hi emalita,

Thanks for the recommendation, I'll check it out! Smile I've seen some Aloe Vera ones but I don't know if they're any good for soreness?

It's slightly red but other than that it's pretty normal. The doctor had a look today as I was concerned, and she said she didn't notice anything out of the ordinary and wasn't worried. I think the hot weather and wearing sanitary towels has caused a lot of it. But it's something to remember for the future!

Thank you for your help. Smile

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  PainBlogger on Tue Jul 26, 2016 7:28 am

I'd make sure that any sanitary towels you wear are non-fragranced and ideally cotton-based. I found that fragranced towels made my pain worse- they're not always obviously fragranced but if you read the packaging it should say if they are or not. Personally I've not found a cotton/organic/'natural' fibres towel absorbent/leak-proof enough for me, but I find Bodyform (which are non scented irritate me the least). That may be a UK brand though and I don't know where you're based. Towards the end of my (usually eight day) period, I still get a bit sore even though my problems have improved tremendously. But then I think a lot of people would after eight days!

I second the recommendation of YES lubricant. It's also wise to avoid any scented bath/toilet products and use fragrance free detergent on any clothes that are in contact with the affected area.

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Tue Jul 26, 2016 9:24 am

Hi Painblogger,

I'm based in the UK so I'll give Bodyform a go!

Thanks for your advice, and I'm glad your problems have improved!

emtx

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Re: Vulvodynia - Newly Diagnosed

Post  jjr23 on Wed Aug 24, 2016 4:44 pm

Hi emtx,

I use olive oil as lubricant. Mt gynocologist is the one who actually recommended this to me! His area of specialization is vulvodynia so I highly respect his advice. From my experience it's been great. It doesn't dry out as quick as other lubricants and it has a nice smooth and slimey feel to it. I have a bottle of it in my room always, it's my life saviour. If I'm ever ready or willing to try having sex I use LOTS of it and it really helps. It reduces the harsh friction on the painful skin. I'm not sure if it can be used with condoms though. Like the oil might break down the latex. (If not using a condom, the guy loves the feel of the oil too!)


Last edited by jjr23 on Wed Aug 24, 2016 4:45 pm; edited 1 time in total (Reason for editing : Spelling error)

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Re: Vulvodynia - Newly Diagnosed

Post  emtx on Wed Aug 24, 2016 4:49 pm

Hi jjr23,

Sounds different but worth a try!

Thanks. Smile

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Re: Vulvodynia - Newly Diagnosed

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