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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Possible Vulvadynia

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Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 4:59 pm

Please bear with me, this is pretty long. I took Bactrim for an unrelated issue, end of May. Second week of May felt what I thought like a yeast infection, used 7 day cream, seemed fine then started to burn by the end. Did an OTC PH test, seemed like Bacterial Vaginosis, doctors prescribed Clindomycin, without doing any tests. Did not work, still burning and very red vulva. Subsequently used about 4 different Monistat kits, no help. Finally went to Doctor, no yeast, no BV, no STDs they gave me a topical steroid, helped a bit but didn't get rid of redness, still fairly red. Doctors have given up on me, not sure where to turn. I also suffer from anxiety, the only thing that makes me feel better is taking Xanax. I think the stress is exacerbating the symptoms. Any advice would be so appreciated!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 5:26 pm

Hi CherryTree23,

OTC yeast creams can be EXTREMELY irritating, and then combining that with taking antibiotics, your vagina and vulva are probably pretty unhappy at the moment. I know this isn't what you want to hear, but my best advice is to stop everything. Don't put anymore products inside your vagina because they will only make things worse. Give your vagina a chance to calm down and regulate itself.

I am speaking from experience. I have been suffering with this horrible condition for over 2 years because my anxiety had me throwing anything and everything into my vagina that I could get my hands on, and I allowed doctors to over prescribe many antibiotics within a short time period. I absolutely understand the desire to be doing something...anything...to help the burning stop, but I promise you that less is more when it comes to the delicate ecosystem that is the vagina Wink It took me about 2 months of doing NOTHING to finally start seeing drastic improvements, and the less I touch, poke, rub and medicate, the better I get. I'm not healed yet, but I'm definitely going in the right direction finally after far too many months of anxiety fueled overreactions.

Learn from my mistakes and give it a few weeks before throwing something new at it. Trust me, I know that is hard and will probably feel impossible, but I wish I could go back 2 years and listen to my own advice. I hope you find relief soon Very Happy

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 6:33 pm

Thanks so much for your reply! My doctor called me just awhile ago and also told me, maybe just stop the steroid cream for about a week and we'll see you in the office in about a week if you're not better. She actually said maybe we over medicated! The thing that freaked me out is she mentioned possibly doing a biopsy to detect skin diseases...which would seem a bit coincidental suddenly popping up right after all these medications. You're totally correct my anxiety wants me to just keep trying things just to stop the pain!! I'm glad you are feeling better! Did you ever have to do a biopsy? Thanks again for the reply!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 7:26 pm

No, I never went through with a biopsy, but luckily no doctor really pushed it either. I've heard the biopsy healing process can be really painful. So I agree with your doctor that you should give it some time to calm down (probably more than a week) before going through with a biopsy.

At one point, OTC yeast creams felt like acid on my vulva, and they caused swelling and redness. They can be nasty if your vulva is already irritated.

Soaking in a bath really helped my symptoms. Unfortunately there wasn't much else that helped me. If your skin can tolerate it, an ice pack may provide some relief.

How long has it been since you've used any medications or products?

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 7:41 pm

Hello!
The last time I used Monistat was probably the second week of July. Today is the first day I'm stopping with the steroid. The steroid seemed to help with the really intense burning, but hasn't finished the job! Still so red and irritated. All of my doctors seem to be biopsy happy! I think that sounds like the worst idea right now! I highly doubt I have a skin disease and biopsy has a chance of infection, just had an infected biopsy from a mole in May! I was doing baking soda baths as well, haven't done that in about 10 days, Doctor said to stop that. Ugh, this is just so bizarre, I'm 2 months into this and already getting depressed about it!! I'm seeing a different Doctor tomorrow, hoping for a different opinion or outlook on things!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 8:18 pm

Steroids provided some relief for me for maybe the first couple of weeks and then started to make things worse. So I completely understand where you're coming from with that.

Be careful with baking soda baths because they can disrupt your pH, which then disrupts your flora. Baking soda baths are actually used as a treatment for a condition called lactobacillosis where it is believed that there is too much good bacteria (the purpose of treatment is to raise pH and kill off some of the good bacteria). I would recommend sticking with just a regular water bath because even epsom salt can be drying to the delicate skin down there (been there, done that).

You obviously have to do what is right for you, but so many women have said their biopsies came back as unspecified inflammation or something like that, which doesn't tell anyone anything other than your skin is inflammed (duh). Definitely weigh your options before jumping into a biopsy, which may lead to more antibiotics. Can you tell I'm very anti anything extreme with my girly bits at the moment Wink

Is the doctor you're seeing tomorrow a vulvovaginal specialist or someone who has a lot of experience treating vulvodynia or vulvar skin conditions?

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 8:34 pm

I agree with you on the baking soda, it probably contributed to my irritation! It is starting to seem that the more doctors I see with any medical issue, the worse the medical issue becomes!!

I will definitely wait more than just a week or two before doing the biopsy. Unless they think there is a high chance of something serious going on. I'm pretty sure they just like to cover their butts in the very slight chance something is very wrong!

Had I just left myself alone about a month ago, I feel like things would have cleared up by now! Just from reading posts in here, seems like everyone has done tons of antibiotics and creams, and it's never helped the situation. I do also think half the battle is mental. The more you focus on it, the more it hurts!

I don't know much about this doctor tomorrow, he's with a major medical establishment in my area, so let's hope he knows something

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Re: Possible Vulvadynia

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