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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Possible Vulvadynia

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Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 4:59 pm

Please bear with me, this is pretty long. I took Bactrim for an unrelated issue, end of May. Second week of May felt what I thought like a yeast infection, used 7 day cream, seemed fine then started to burn by the end. Did an OTC PH test, seemed like Bacterial Vaginosis, doctors prescribed Clindomycin, without doing any tests. Did not work, still burning and very red vulva. Subsequently used about 4 different Monistat kits, no help. Finally went to Doctor, no yeast, no BV, no STDs they gave me a topical steroid, helped a bit but didn't get rid of redness, still fairly red. Doctors have given up on me, not sure where to turn. I also suffer from anxiety, the only thing that makes me feel better is taking Xanax. I think the stress is exacerbating the symptoms. Any advice would be so appreciated!

CherryTree23

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 5:26 pm

Hi CherryTree23,

OTC yeast creams can be EXTREMELY irritating, and then combining that with taking antibiotics, your vagina and vulva are probably pretty unhappy at the moment. I know this isn't what you want to hear, but my best advice is to stop everything. Don't put anymore products inside your vagina because they will only make things worse. Give your vagina a chance to calm down and regulate itself.

I am speaking from experience. I have been suffering with this horrible condition for over 2 years because my anxiety had me throwing anything and everything into my vagina that I could get my hands on, and I allowed doctors to over prescribe many antibiotics within a short time period. I absolutely understand the desire to be doing something...anything...to help the burning stop, but I promise you that less is more when it comes to the delicate ecosystem that is the vagina Wink It took me about 2 months of doing NOTHING to finally start seeing drastic improvements, and the less I touch, poke, rub and medicate, the better I get. I'm not healed yet, but I'm definitely going in the right direction finally after far too many months of anxiety fueled overreactions.

Learn from my mistakes and give it a few weeks before throwing something new at it. Trust me, I know that is hard and will probably feel impossible, but I wish I could go back 2 years and listen to my own advice. I hope you find relief soon Very Happy

emalita

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 6:33 pm

Thanks so much for your reply! My doctor called me just awhile ago and also told me, maybe just stop the steroid cream for about a week and we'll see you in the office in about a week if you're not better. She actually said maybe we over medicated! The thing that freaked me out is she mentioned possibly doing a biopsy to detect skin diseases...which would seem a bit coincidental suddenly popping up right after all these medications. You're totally correct my anxiety wants me to just keep trying things just to stop the pain!! I'm glad you are feeling better! Did you ever have to do a biopsy? Thanks again for the reply!

CherryTree23

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 7:26 pm

No, I never went through with a biopsy, but luckily no doctor really pushed it either. I've heard the biopsy healing process can be really painful. So I agree with your doctor that you should give it some time to calm down (probably more than a week) before going through with a biopsy.

At one point, OTC yeast creams felt like acid on my vulva, and they caused swelling and redness. They can be nasty if your vulva is already irritated.

Soaking in a bath really helped my symptoms. Unfortunately there wasn't much else that helped me. If your skin can tolerate it, an ice pack may provide some relief.

How long has it been since you've used any medications or products?

emalita

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 7:41 pm

Hello!
The last time I used Monistat was probably the second week of July. Today is the first day I'm stopping with the steroid. The steroid seemed to help with the really intense burning, but hasn't finished the job! Still so red and irritated. All of my doctors seem to be biopsy happy! I think that sounds like the worst idea right now! I highly doubt I have a skin disease and biopsy has a chance of infection, just had an infected biopsy from a mole in May! I was doing baking soda baths as well, haven't done that in about 10 days, Doctor said to stop that. Ugh, this is just so bizarre, I'm 2 months into this and already getting depressed about it!! I'm seeing a different Doctor tomorrow, hoping for a different opinion or outlook on things!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 8:18 pm

Steroids provided some relief for me for maybe the first couple of weeks and then started to make things worse. So I completely understand where you're coming from with that.

Be careful with baking soda baths because they can disrupt your pH, which then disrupts your flora. Baking soda baths are actually used as a treatment for a condition called lactobacillosis where it is believed that there is too much good bacteria (the purpose of treatment is to raise pH and kill off some of the good bacteria). I would recommend sticking with just a regular water bath because even epsom salt can be drying to the delicate skin down there (been there, done that).

You obviously have to do what is right for you, but so many women have said their biopsies came back as unspecified inflammation or something like that, which doesn't tell anyone anything other than your skin is inflammed (duh). Definitely weigh your options before jumping into a biopsy, which may lead to more antibiotics. Can you tell I'm very anti anything extreme with my girly bits at the moment Wink

Is the doctor you're seeing tomorrow a vulvovaginal specialist or someone who has a lot of experience treating vulvodynia or vulvar skin conditions?

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 8:34 pm

I agree with you on the baking soda, it probably contributed to my irritation! It is starting to seem that the more doctors I see with any medical issue, the worse the medical issue becomes!!

I will definitely wait more than just a week or two before doing the biopsy. Unless they think there is a high chance of something serious going on. I'm pretty sure they just like to cover their butts in the very slight chance something is very wrong!

Had I just left myself alone about a month ago, I feel like things would have cleared up by now! Just from reading posts in here, seems like everyone has done tons of antibiotics and creams, and it's never helped the situation. I do also think half the battle is mental. The more you focus on it, the more it hurts!

I don't know much about this doctor tomorrow, he's with a major medical establishment in my area, so let's hope he knows something

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Re: Possible Vulvadynia

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