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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Possible Vulvadynia

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Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 4:59 pm

Please bear with me, this is pretty long. I took Bactrim for an unrelated issue, end of May. Second week of May felt what I thought like a yeast infection, used 7 day cream, seemed fine then started to burn by the end. Did an OTC PH test, seemed like Bacterial Vaginosis, doctors prescribed Clindomycin, without doing any tests. Did not work, still burning and very red vulva. Subsequently used about 4 different Monistat kits, no help. Finally went to Doctor, no yeast, no BV, no STDs they gave me a topical steroid, helped a bit but didn't get rid of redness, still fairly red. Doctors have given up on me, not sure where to turn. I also suffer from anxiety, the only thing that makes me feel better is taking Xanax. I think the stress is exacerbating the symptoms. Any advice would be so appreciated!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 5:26 pm

Hi CherryTree23,

OTC yeast creams can be EXTREMELY irritating, and then combining that with taking antibiotics, your vagina and vulva are probably pretty unhappy at the moment. I know this isn't what you want to hear, but my best advice is to stop everything. Don't put anymore products inside your vagina because they will only make things worse. Give your vagina a chance to calm down and regulate itself.

I am speaking from experience. I have been suffering with this horrible condition for over 2 years because my anxiety had me throwing anything and everything into my vagina that I could get my hands on, and I allowed doctors to over prescribe many antibiotics within a short time period. I absolutely understand the desire to be doing something...anything...to help the burning stop, but I promise you that less is more when it comes to the delicate ecosystem that is the vagina Wink It took me about 2 months of doing NOTHING to finally start seeing drastic improvements, and the less I touch, poke, rub and medicate, the better I get. I'm not healed yet, but I'm definitely going in the right direction finally after far too many months of anxiety fueled overreactions.

Learn from my mistakes and give it a few weeks before throwing something new at it. Trust me, I know that is hard and will probably feel impossible, but I wish I could go back 2 years and listen to my own advice. I hope you find relief soon Very Happy

emalita

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 6:33 pm

Thanks so much for your reply! My doctor called me just awhile ago and also told me, maybe just stop the steroid cream for about a week and we'll see you in the office in about a week if you're not better. She actually said maybe we over medicated! The thing that freaked me out is she mentioned possibly doing a biopsy to detect skin diseases...which would seem a bit coincidental suddenly popping up right after all these medications. You're totally correct my anxiety wants me to just keep trying things just to stop the pain!! I'm glad you are feeling better! Did you ever have to do a biopsy? Thanks again for the reply!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 7:26 pm

No, I never went through with a biopsy, but luckily no doctor really pushed it either. I've heard the biopsy healing process can be really painful. So I agree with your doctor that you should give it some time to calm down (probably more than a week) before going through with a biopsy.

At one point, OTC yeast creams felt like acid on my vulva, and they caused swelling and redness. They can be nasty if your vulva is already irritated.

Soaking in a bath really helped my symptoms. Unfortunately there wasn't much else that helped me. If your skin can tolerate it, an ice pack may provide some relief.

How long has it been since you've used any medications or products?

emalita

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 7:41 pm

Hello!
The last time I used Monistat was probably the second week of July. Today is the first day I'm stopping with the steroid. The steroid seemed to help with the really intense burning, but hasn't finished the job! Still so red and irritated. All of my doctors seem to be biopsy happy! I think that sounds like the worst idea right now! I highly doubt I have a skin disease and biopsy has a chance of infection, just had an infected biopsy from a mole in May! I was doing baking soda baths as well, haven't done that in about 10 days, Doctor said to stop that. Ugh, this is just so bizarre, I'm 2 months into this and already getting depressed about it!! I'm seeing a different Doctor tomorrow, hoping for a different opinion or outlook on things!

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Re: Possible Vulvadynia

Post  emalita on Mon Aug 01, 2016 8:18 pm

Steroids provided some relief for me for maybe the first couple of weeks and then started to make things worse. So I completely understand where you're coming from with that.

Be careful with baking soda baths because they can disrupt your pH, which then disrupts your flora. Baking soda baths are actually used as a treatment for a condition called lactobacillosis where it is believed that there is too much good bacteria (the purpose of treatment is to raise pH and kill off some of the good bacteria). I would recommend sticking with just a regular water bath because even epsom salt can be drying to the delicate skin down there (been there, done that).

You obviously have to do what is right for you, but so many women have said their biopsies came back as unspecified inflammation or something like that, which doesn't tell anyone anything other than your skin is inflammed (duh). Definitely weigh your options before jumping into a biopsy, which may lead to more antibiotics. Can you tell I'm very anti anything extreme with my girly bits at the moment Wink

Is the doctor you're seeing tomorrow a vulvovaginal specialist or someone who has a lot of experience treating vulvodynia or vulvar skin conditions?

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Re: Possible Vulvadynia

Post  CherryTree23 on Mon Aug 01, 2016 8:34 pm

I agree with you on the baking soda, it probably contributed to my irritation! It is starting to seem that the more doctors I see with any medical issue, the worse the medical issue becomes!!

I will definitely wait more than just a week or two before doing the biopsy. Unless they think there is a high chance of something serious going on. I'm pretty sure they just like to cover their butts in the very slight chance something is very wrong!

Had I just left myself alone about a month ago, I feel like things would have cleared up by now! Just from reading posts in here, seems like everyone has done tons of antibiotics and creams, and it's never helped the situation. I do also think half the battle is mental. The more you focus on it, the more it hurts!

I don't know much about this doctor tomorrow, he's with a major medical establishment in my area, so let's hope he knows something

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Re: Possible Vulvadynia

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