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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

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Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  SinclairSassy on Wed Aug 03, 2016 3:05 pm

I have heard that some women wear joggers, leggings and yoga pants...what brands are they? What stores carry them? Do you have any pictures you can share? Don't the seams in the crotch irritate? I have looked at dozens of stores online - tens of thousands of pages of pants - and I can't find a dang thing that I think will work.

I went through my closet yesterday and took out all of my (beloved) jeans, khakis, and other slacks with seams. If I can't wear them, I don't want to look at them. Very depressing. I felt like I was losing my best friend. Que the tissues because I'm going to cry again. After I was finished and took a look around my closet, I realized that I have two pairs of pants I can wear. I don't have any tops to go with one pair and I don't even LIKE the other pair. I don't want to have to wear my bathrobe to the grocery store! Cool

Any help would be greatly appreciated!

SinclairSassy

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  emalita on Wed Aug 03, 2016 5:57 pm

I haven't been able to wear pants or regular underwear (can only wear men's boxers) in over a year. So I understand the frustration. If you do a lot of searching, you can find some harem style pants that don't look ridiculous. They have a nice baggy crotch and some look dressy enough to be work pants as long as you avoid the really intense ones Wink

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  SinclairSassy on Wed Aug 03, 2016 6:37 pm

Thank you, emalita! I will start looking for some harem style pants. I guess all of us women on here are bringing back MC Hammer style! Laughing

I actually thought about trying men's boxers, but I didn't know if that was something that would work. I'll definitely look into getting some. I have this fear of standing outside right when a huge gust of wind blows my way - and right up my dress. It worked for Marilyn Monroe, but I would die of embarrassment!

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  emalita on Wed Aug 03, 2016 8:42 pm

SinclairSassy wrote:I guess all of us women on here are bringing back MC Hammer style! Laughing

That's exactly what my fiancé said to me when I told him what types of pants I was ordering Laughing

Wearing men's boxers under a skirt could help with any possible flashing occurrences, but I'm not sure it would save any embarrassment Wink

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  SinclairSassy on Wed Aug 03, 2016 9:32 pm

Best laugh I have had in a very, very long time. Thank you for that!

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  SinclairSassy on Wed Aug 03, 2016 10:55 pm

I found some harem pants at American Eagle Outfitters. They are the "I dream of Jeannie" type with a very long elastic portion at the top. I don't think I can wear those because either my BPS/IC or vulvodynia causes pain in my lower abdomen when I wear anything that restricts me in that area. (which ticks me off because there were some cute styles!) I can only wear drawstring waist pants.

What do you do for leggings/yoga pants? I'm afraid that if I buy up a size to have excess room in the crotch, the waist will not fit.

I long for the old days. Shopping wasn't a scavenger hunt.

SinclairSassy

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

Post  emalita on Wed Aug 03, 2016 11:53 pm

I've never worn leggings. Even before all this got really bad, my lady bits never liked clothes that were too tight in the crotch. Plus my short legs and fat thighs didn't help encourage the look on me Wink

If I absolutely must wear pants for some reason, I wear something like in the link below. Mine are a bit baggier than these appear and aren't tummy control pants, but mine have a bit higher waist like that so I can control how close the crotch comes to my vulva. Mine have a very gentle waist (no tight elastic). I tried to find my exact pants but couldn't since I bought them many years ago.

http://m.jcpenney.com/xersion-tummy-control-pants-tall/prod.jump?ppId=pp5004200238&catId=cat100250133&Ntt=

I long for the days of wearing underwear again! Gosh, I had no idea I could miss my granny panties so much! I am lucky enough to work from home and can wear whatever I need to most of the time, but I definitely hear you. I miss wearing a cute pair of jeans and looking slim. All my shopping to accommodate my unhappy vulva has left me looking like I'm always in a moomoo Rolling Eyes

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Re: Clothing Information - I need pants to wear or my neighbors are going to see more of me than I want them to see

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