Log in

I forgot my password

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


please help me - my inner labia are stretched out and disappearing into outer labia

View previous topic View next topic Go down

please help me - my inner labia are stretched out and disappearing into outer labia

Post  emmajane on Wed Aug 10, 2016 3:28 am

I have Ehlers Danlos, a genetic disorder that causes problems with connective tissue. My skin, muscles, ligaments, vasculature, etc are all super-stretchy. People with Ehlers-Danlos are prone to pelvic prolapses. Nothing holds firm, everything stretches.

I have terrible pain and itchiness in my vulva. It is all day long, but especially bad at night. I avoid sex because when I'm itchy, it makes it unbearable; and when I'm not itchy, I just don't want to mess with my vulva at all. Any contact at all makes it immediately itchy.

My inner labia are disappearing. They have become just part of the outer labia. I can still tell which part of the skin used to be inner labia, because it is smoother and pink. But other than colour and texture, it just looks like part of the outer labia. My perineum also feels like it is stretching beyond capacity.

I feel like my pelvic organs are falling down and my skin is stretching to accomodate. Like if you blew up a latex glove past capacity, the creases between fingers would fill in and the fingers would shorten. I think that is what happened to my inner labia. It is very painful.

Is this possible?

I know that lichen sclerosis can cause the inner labia to become confluent with the outer, but I have no white marks, so I don't think it is that.

Also, I think my cervix has dropped way down inside my vagina. It is so close to the opening now that I can't keep a tampon in. And I can't have a bowel movement without supporting my perineum.

Please help me if you have any information, I cannot find anything about pelvic collapse causing this kind of problem. The doctor sent me for a colonoscopy, which was fine.

I think I posted this in the wrong spot initially, so I tried to delete it over there. I am sorry if you read this twice.

emmajane

Posts : 2
Join date : 2016-08-09

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  emalita on Wed Aug 10, 2016 1:11 pm

I'm so sorry you are having to go through this.

Have you been seen at a women's clinic where they specialize in pelvic floor disorders like pelvic organ prolapse? I think you really need to be evaluated as soon as possible so that appropriate treatments can start before things get worse.

I had a scare with a doctor thinking I had lichen sclerosus, but thankfully I was misdiagnosed. Unfortunately, from what I've read and have been told on LS forums, whitening is not always present. However, loss of labia and severe itching are very large symptoms known to LS. Have you had a biopsy to rule this out?

I don't know where you're located, but in the US there are quite a few good hospitals that deal with things like pelvic organ prolapse. It's vulvodynia that is tricky to find a specialist for. Below is a link to a hospital in my area to just give you an idea of the type of facility I was referring to.

http://www.froedtert.com/womens-incontinence/conditions

I wish you the best of luck!

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  emmajane on Wed Aug 10, 2016 6:44 pm

Thank you so much for your reply. I will ask for a referral to a gynecologist. I am not in the US, but in Canada. We have free health care, but we have less options. Because the government is footing the bill, we do not get to choose who we see quite so much. Our GP must refer us to a specialist, and sometimes they either do not want to do this, or they have a specialist in mind. I will see who I can get him to refer me to. Maybe I have ruled out lichen sclerosis too soon. I have not had a biopsy, perhaps I should be asking for one.

Thank you again for your kind response! It is just wonderful to be able to communicate this issue (even on an online forum). It is such an embarrassing and taboo problem to have IRL.

Smile

emmajane

Posts : 2
Join date : 2016-08-09

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  emalita on Wed Aug 10, 2016 11:45 pm

I'm here to listen and provide support in any way I can  Very Happy  PM me any time if you feel like chatting.

Keep us updated on your progress. I hope you are referred to a good specialist who can help you get some relief!

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum