Log in

I forgot my password

Latest topics
» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


please help me - my inner labia are stretched out and disappearing into outer labia

Go down

please help me - my inner labia are stretched out and disappearing into outer labia

Post  emmajane on Wed Aug 10, 2016 3:28 am

I have Ehlers Danlos, a genetic disorder that causes problems with connective tissue. My skin, muscles, ligaments, vasculature, etc are all super-stretchy. People with Ehlers-Danlos are prone to pelvic prolapses. Nothing holds firm, everything stretches.

I have terrible pain and itchiness in my vulva. It is all day long, but especially bad at night. I avoid sex because when I'm itchy, it makes it unbearable; and when I'm not itchy, I just don't want to mess with my vulva at all. Any contact at all makes it immediately itchy.

My inner labia are disappearing. They have become just part of the outer labia. I can still tell which part of the skin used to be inner labia, because it is smoother and pink. But other than colour and texture, it just looks like part of the outer labia. My perineum also feels like it is stretching beyond capacity.

I feel like my pelvic organs are falling down and my skin is stretching to accomodate. Like if you blew up a latex glove past capacity, the creases between fingers would fill in and the fingers would shorten. I think that is what happened to my inner labia. It is very painful.

Is this possible?

I know that lichen sclerosis can cause the inner labia to become confluent with the outer, but I have no white marks, so I don't think it is that.

Also, I think my cervix has dropped way down inside my vagina. It is so close to the opening now that I can't keep a tampon in. And I can't have a bowel movement without supporting my perineum.

Please help me if you have any information, I cannot find anything about pelvic collapse causing this kind of problem. The doctor sent me for a colonoscopy, which was fine.

I think I posted this in the wrong spot initially, so I tried to delete it over there. I am sorry if you read this twice.

emmajane

Posts : 2
Join date : 2016-08-09

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  emalita on Wed Aug 10, 2016 1:11 pm

I'm so sorry you are having to go through this.

Have you been seen at a women's clinic where they specialize in pelvic floor disorders like pelvic organ prolapse? I think you really need to be evaluated as soon as possible so that appropriate treatments can start before things get worse.

I had a scare with a doctor thinking I had lichen sclerosus, but thankfully I was misdiagnosed. Unfortunately, from what I've read and have been told on LS forums, whitening is not always present. However, loss of labia and severe itching are very large symptoms known to LS. Have you had a biopsy to rule this out?

I don't know where you're located, but in the US there are quite a few good hospitals that deal with things like pelvic organ prolapse. It's vulvodynia that is tricky to find a specialist for. Below is a link to a hospital in my area to just give you an idea of the type of facility I was referring to.

http://www.froedtert.com/womens-incontinence/conditions

I wish you the best of luck!

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  emmajane on Wed Aug 10, 2016 6:44 pm

Thank you so much for your reply. I will ask for a referral to a gynecologist. I am not in the US, but in Canada. We have free health care, but we have less options. Because the government is footing the bill, we do not get to choose who we see quite so much. Our GP must refer us to a specialist, and sometimes they either do not want to do this, or they have a specialist in mind. I will see who I can get him to refer me to. Maybe I have ruled out lichen sclerosis too soon. I have not had a biopsy, perhaps I should be asking for one.

Thank you again for your kind response! It is just wonderful to be able to communicate this issue (even on an online forum). It is such an embarrassing and taboo problem to have IRL.

Smile

emmajane

Posts : 2
Join date : 2016-08-09

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  emalita on Wed Aug 10, 2016 11:45 pm

I'm here to listen and provide support in any way I can  Very Happy  PM me any time if you feel like chatting.

Keep us updated on your progress. I hope you are referred to a good specialist who can help you get some relief!

emalita

Posts : 217
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: please help me - my inner labia are stretched out and disappearing into outer labia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum