Log in

I forgot my password

Latest topics
» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Vulvodynia is ruining my life

Go down

Vulvodynia is ruining my life

Post  amy124 on Tue Aug 16, 2016 2:33 pm

Hi everyone. I've read through a bunch of your stories and I am so glad I found this forum. I've felt so isolated in my issues but it's reassuring to find a group of people who seem to be experiencing something similar to what I have been experiencing...although I would never wish this on you all because it sucks.

I'm 18 years old and I've been struggling with all sorts of bladder/vaginal issues for about a year. Experienced no pain, sensitivity, or any issues and had painless sex for about a year before all these issues started. I started getting urinary pain and soreness every month around my period and after sex. I went to numerous doctors who all told me I had UTIs and treated me with antibiotics (I tried cipro, bacterium, nitrofurantoin, macrobid, etc.) ...I was treated 8 or 9 times within 6 months. All these courses of antibiotics gave me yeast infections (of course) so I was also treated for those too. I finally went to a new doctor with yet another UTI. She did a urine culture and told me I didn't have a UTI this whole time and she wasn't sure what was causing the pain. She gave me antibiotics anyways and, like all the previous times, the symptoms went away for the most part. However, since I began treatment for all the UTIs, the burning pain when I pee has not completely gone away. It is bearable and I can live with it but it's definitely annoying. I feel like I'm not really emptying my bladder all the way. My symptoms seemed to, for the most part, go away for a month or two (minus the burning when I pee). The past 3 months however have been awful as a whole new set of issues have emerged. Now, I have intense burning in my vulva area that randomly happens for days at a time then goes away for days or even a week or two. It usually happens closer to my period. Sometimes so painful I can't walk or it wakes me up at night. It feels raw and on fire and it burns to pee but definitely doesn't feel like a UTI. It seems to be an external skin issue as I don't have much burning inside my vagina. I have visited 4 doctors who tested me for all sorts of STDs, yeast infections, UTIs, bacterial vaginosis, did pelvic exams and told me they can't find anything wrong. I changed my clothing detergent, I drink more water, I wear cotton underwear and avoid tight clothing, I use vaseline on the area, I try to limit processed food and sugars, I don't drink caffeinated drinks, but nothing seems to be helping. I am in a relationship and I have pretty much stopped having sex entirely because I am terrified that it will cause more pain (also, my boyfriend got tested for STDs too and came back clean). I'm only 18 and its so frustrating that I am already losing my desire to have sex at all due to all these stupid issues. All my doctors told me this is just something I will have to live with. I feel like I'm going crazy because no one believes me since all my tests come back negative and physically I look fine. I was so relieved when I found this forum because all the problems described here are exactly what I'm experiencing. So glad Im not alone in all these issues.

amy124

Posts : 1
Join date : 2016-08-16

View user profile

Back to top Go down

Re: Vulvodynia is ruining my life

Post  emalita on Tue Aug 16, 2016 4:11 pm

Hi amy124,

I'm so sorry you're having to go through all this.

You had a lot of antibiotics and yeast medications in a short period of time. My issue was caused by being over prescribed antibiotics for what I thought was a UTI that wouldn't go away. I had a confirmed UTI that was cured during one of the initial rounds of antibiotics, but the pain continued because the antibiotics destroyed my healthy flora. Your flora can be out of balance without you having an actual infection, and your vulvar skin can be super irritated from any yeast creams used as well as any excess discharge that you may have had from your flora being out of whack.

If you think you have a UTI in the future, I would suggest looking into having some D-Mannose on hand to see if that will get rid of it without antibiotics. Do a google search and do some research on it. It has a lot of good information supporting its use for UTIs.

For your flora, you could try some probiotics meant for vaginal health to see if it helps improve things. Unfortunately, for me, they did nothing (test confirmed they didn't increase my good bacteria), and I've found that it just took a lot of time to get things to calm down once I stopped throwing product after product at it.

How long has it been since you've used any medication or product vaginally? When was your last round of antibiotics?

emalita

Posts : 246
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Vulvodynia is ruining my life

Post  PainBlogger on Tue Aug 16, 2016 4:44 pm

Just because the doctors can't see anything wrong and tests show up negative for things doesn't mean your pain is not 100% genuine. And it doesn't mean you'll have to live with this forever. If you haven't already then I'd recommend a referral to a pain management specialist. Gynaecologists/dermatologists/urologists are not always great at treating chronic pain when they can't find an obvious cause to treat. Pain specialists are experts in medication for chronic pain. Physiotherapy/PT may also help you.

You can read my story here: http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement

I've had a lot of urinary issues. I still can't empty my bladder properly (it empties fully but it fits and starts rather than one continuous flow). But I'm heaps better than I was. It can take time to find the optimum treatment regimen (and often it's a combination of things needed) but don't lose hope. The best general advice I can give you is to be stubborn. It can be hard when you're in pain and your energy is sapped, but people do get better from this.

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Vulvodynia is ruining my life

Post  WaahwaahUK on Wed Aug 17, 2016 12:39 pm

I echo the sentiments already expressed here. Personally I ended up in awful pain I feel partly from being over prescribed creams like steroids and thrush treatments when my GP didn't know what was actually wrong. I would say now be cautious what you use there whilst you are in pain, and perhaps look to more specialist help. Don't give up. If possible get a physiotherapist who specialises in women's health to assess you. There are so many causes and contributory factors to this kind of pain. As PainBlogger said, be stubborn. In the meanwhile I'm sure you can see from other posts, that keeping things natural and keeping irritants away from that area as much as possible will help. You're not alone.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: Vulvodynia is ruining my life

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum