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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Another one suffering

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Another one suffering

Post  Ldc on Thu Aug 18, 2016 6:51 pm

Hi, I was a bit reluctant about registering and posting here.. But this forum has helped me a lot so far. I read it almost everyday since I realized my problems down there weren't caused by an infection.

Well, I think I can skip the emotional journey, as all of you know what it is like. I am 24 years old, apparently healthy, no UTIs in the past and a couple of yeast infections, but many years ago. But like a couple of months ago this mess started. I am not sure why, I think there are many culprits. This year I was having more stress than usual because of university and my job. Suddenly, after my period (February) I felt a bit discomfort down there and I went to the doctor, who told me that I probably had yeast and prescribed me with clotrimazol. Well, I was not sure, because the only sympton I had was my inflammated vagina. No discharge at all! It was cleared up but it happened to me every month after my period till May. I went every month to the doctor, and she told me it was normal due to the ph changes during our periods. But I started to worry and to be really annoyed, plus the stress I was having in May, which was way higher than before. The results? My inflammation did not go away and I started to have a burning sensantion and what it seemed to be an UTI. But after the medication (antibiotics, antifungals, among others) and some negative cultures I had no clue what was going on. So were the doctors, neither obgyns, urologists and a dermatologist.

After one month and a half waitung for my body to cure and to get back I started to freak out and to google my symptoms. Vulvodynia came across. By that moment I was starting to feel my muscles (including my anus area) really really tight. I couldn't go to the toilet and I swear I never ever had problems. And I asked my boyfriend to help me, since he is working as a PT in a hospital. He pretty unterstand what is going on and we are fighting together, hopefully.

Well, after going to four different doctors with no relief (appart from a mild improvement thanks to corticoids and zinc sulfate, which was suggested by a dermatologist who saw the redness and irritation and a couple of 'eczemas' according to her), my mom thought of a friend of our family who is working as a doctor. He is specialized in muscular and nerve related traumas and he was the First one understanding how I was suffering and what could be going on (since apparently I had no infections). After an appointment he examined me and found out that probably, due to the inflammatory process (triggered by tampons? I still don't know but I am suspicious), my area was hypersensitive and my nerves were all crazy sending wrong signals. And, of course, he detected muscular problems, both inside and outside.

He has told me to use a compound cream of amitriptiline and baclofen and I have already started with a couple of PTs to solve the Problem and desensitize it.

And now I am at this point. I have the burning sensation both inside and outside, itchiness (only sometimes), redness and irritation in the vestibular area and ocassional "pricks" in my lady parts and my back part.

Well... I feel happy since I am already on track, today I had my second session with the PT and I think I was lucky enough to be treated as fast as I did, only two months before it all started.

But, as I newby here, I have a couple of questions to you Smile I have read like a thousand posts and I would like to ask for advice. I will tell my doctor, but I have checked here some sucessful stories related to the use of amitriptiline and Lyrica. Another doctor suggested me to take a minimun dose of Lyrica (75 mg) to help with the nerve pain. Do you think it would help me? I mean, taking topical ami and simultaneously Lyrica (orally).

Aaaand, regarding the soreness... I am not sure what to do. ATM no soaps, no nasty chemicals (but i want to look for "natural" laundry soap and gel), only water to clean the area, no jeans, cotton undies. It is still irritated but I am also a little bit worried about my "flora" or whatever is inside of me. The smell is a bit stronger and my discharge is also a little bit sticky, but far to be copious (I also feel a lot of dryness since all this started). I was wondering if it would be okay to continue on the probiotics, since I think that appart from the muscle/nerve problem, something else could be wrong inside as I took a lot of different medications in june (and maybe my good flora is still recovering or I don't know).

Thank u very much for reading me... I know it is really really long. And so sorry for the misspelling, I am not English speaker. Keep fighting, girls!

Ldc

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Re: Another one suffering

Post  PainBlogger on Fri Aug 19, 2016 1:41 pm

Ldc wrote:
But, as I newby here, I have a couple of questions to you Smile I have read like a thousand posts and I would like to ask for advice. I will tell my doctor, but I have checked here some sucessful stories related to the use of amitriptiline and Lyrica. Another doctor suggested me to take a minimun dose of Lyrica (75 mg) to help with the nerve pain. Do you think it would help me? I mean, taking topical ami and simultaneously Lyrica (orally).

Aaaand, regarding the soreness... I am not sure what to do. ATM no soaps, no nasty chemicals (but i want to look for "natural" laundry soap and gel), only water to clean the area, no jeans, cotton undies. It is still irritated but I am also a little bit worried about my "flora"  or whatever is inside of me. The smell is a bit stronger and my discharge is also a little bit sticky, but far to be copious (I also feel a lot of dryness since all this started). I was wondering if it would be okay to continue on the probiotics, since I think that appart from the muscle/nerve problem, something else could be wrong inside as I took a lot of different medications in june (and maybe my good flora is still recovering or I don't know).

Thank u very much for reading me... I know it is really really long. And so sorry for the misspelling, I am not English speaker. Keep fighting, girls!

Firstly, your English is great!

Secondly, topical amitriptyline and oral Lyrica - obviously I can't say for definite if it would help you. We all respond so differently to medications. What I can tell you is that I was taking oral amitriptyline and oral Lyrica simultaneously and they are often prescribed in combination. I didn't have any terrible side effects although I do feel much more alert since I changed to duloxetine. I'd say it's worth trying Lyrica. If you don't find any benefit then it's one option you can cross off the list of possibilities. If it helps and side effects are minimal then you'll be glad you tried it Smile

PainBlogger

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Re: Another one suffering

Post  Ldc on Fri Aug 19, 2016 2:40 pm

Thanks Smile It made me smile. I do love languages and I am a translator.

I think I will definitely ask my doctor. He is doing great and since we have a close relationship since I was a child I really trust him. By know, the constant burning is vanished most of the time and I am still like super sensitive (that means, after wiping or by touching it it hurts and burns). At least I am far better than a month ago. The thing is that what worries me the most is the hypersensibility mostly on two tiny spots at both sides of my vestibule and I am just freaking out all the time because I want to get better. Then I remember the key word, patience. Sorry I am beating around the bush, haha.

I hope time and all I am doing right now will help. I am always terrified thinking about not being able to intimate again with my beloved bf. But today I am really positive and I think it will be okay. Thanks for your answer and your personal opinion Smile Smile

Ldc

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Re: Another one suffering

Post  lindsey_taylor on Sun Aug 21, 2016 8:00 pm

Hello and welcome to this forum! Your English is fantastic! I'm so sorry for the fact that you are suffering from this, but so glad that you are making progress in improving! Please continue to let us know how things are going for you!

lindsey_taylor

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Re: Another one suffering

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