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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Another one suffering

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Another one suffering

Post  Ldc on Thu Aug 18, 2016 6:51 pm

Hi, I was a bit reluctant about registering and posting here.. But this forum has helped me a lot so far. I read it almost everyday since I realized my problems down there weren't caused by an infection.

Well, I think I can skip the emotional journey, as all of you know what it is like. I am 24 years old, apparently healthy, no UTIs in the past and a couple of yeast infections, but many years ago. But like a couple of months ago this mess started. I am not sure why, I think there are many culprits. This year I was having more stress than usual because of university and my job. Suddenly, after my period (February) I felt a bit discomfort down there and I went to the doctor, who told me that I probably had yeast and prescribed me with clotrimazol. Well, I was not sure, because the only sympton I had was my inflammated vagina. No discharge at all! It was cleared up but it happened to me every month after my period till May. I went every month to the doctor, and she told me it was normal due to the ph changes during our periods. But I started to worry and to be really annoyed, plus the stress I was having in May, which was way higher than before. The results? My inflammation did not go away and I started to have a burning sensantion and what it seemed to be an UTI. But after the medication (antibiotics, antifungals, among others) and some negative cultures I had no clue what was going on. So were the doctors, neither obgyns, urologists and a dermatologist.

After one month and a half waitung for my body to cure and to get back I started to freak out and to google my symptoms. Vulvodynia came across. By that moment I was starting to feel my muscles (including my anus area) really really tight. I couldn't go to the toilet and I swear I never ever had problems. And I asked my boyfriend to help me, since he is working as a PT in a hospital. He pretty unterstand what is going on and we are fighting together, hopefully.

Well, after going to four different doctors with no relief (appart from a mild improvement thanks to corticoids and zinc sulfate, which was suggested by a dermatologist who saw the redness and irritation and a couple of 'eczemas' according to her), my mom thought of a friend of our family who is working as a doctor. He is specialized in muscular and nerve related traumas and he was the First one understanding how I was suffering and what could be going on (since apparently I had no infections). After an appointment he examined me and found out that probably, due to the inflammatory process (triggered by tampons? I still don't know but I am suspicious), my area was hypersensitive and my nerves were all crazy sending wrong signals. And, of course, he detected muscular problems, both inside and outside.

He has told me to use a compound cream of amitriptiline and baclofen and I have already started with a couple of PTs to solve the Problem and desensitize it.

And now I am at this point. I have the burning sensation both inside and outside, itchiness (only sometimes), redness and irritation in the vestibular area and ocassional "pricks" in my lady parts and my back part.

Well... I feel happy since I am already on track, today I had my second session with the PT and I think I was lucky enough to be treated as fast as I did, only two months before it all started.

But, as I newby here, I have a couple of questions to you Smile I have read like a thousand posts and I would like to ask for advice. I will tell my doctor, but I have checked here some sucessful stories related to the use of amitriptiline and Lyrica. Another doctor suggested me to take a minimun dose of Lyrica (75 mg) to help with the nerve pain. Do you think it would help me? I mean, taking topical ami and simultaneously Lyrica (orally).

Aaaand, regarding the soreness... I am not sure what to do. ATM no soaps, no nasty chemicals (but i want to look for "natural" laundry soap and gel), only water to clean the area, no jeans, cotton undies. It is still irritated but I am also a little bit worried about my "flora" or whatever is inside of me. The smell is a bit stronger and my discharge is also a little bit sticky, but far to be copious (I also feel a lot of dryness since all this started). I was wondering if it would be okay to continue on the probiotics, since I think that appart from the muscle/nerve problem, something else could be wrong inside as I took a lot of different medications in june (and maybe my good flora is still recovering or I don't know).

Thank u very much for reading me... I know it is really really long. And so sorry for the misspelling, I am not English speaker. Keep fighting, girls!

Ldc

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Re: Another one suffering

Post  PainBlogger on Fri Aug 19, 2016 1:41 pm

Ldc wrote:
But, as I newby here, I have a couple of questions to you Smile I have read like a thousand posts and I would like to ask for advice. I will tell my doctor, but I have checked here some sucessful stories related to the use of amitriptiline and Lyrica. Another doctor suggested me to take a minimun dose of Lyrica (75 mg) to help with the nerve pain. Do you think it would help me? I mean, taking topical ami and simultaneously Lyrica (orally).

Aaaand, regarding the soreness... I am not sure what to do. ATM no soaps, no nasty chemicals (but i want to look for "natural" laundry soap and gel), only water to clean the area, no jeans, cotton undies. It is still irritated but I am also a little bit worried about my "flora"  or whatever is inside of me. The smell is a bit stronger and my discharge is also a little bit sticky, but far to be copious (I also feel a lot of dryness since all this started). I was wondering if it would be okay to continue on the probiotics, since I think that appart from the muscle/nerve problem, something else could be wrong inside as I took a lot of different medications in june (and maybe my good flora is still recovering or I don't know).

Thank u very much for reading me... I know it is really really long. And so sorry for the misspelling, I am not English speaker. Keep fighting, girls!

Firstly, your English is great!

Secondly, topical amitriptyline and oral Lyrica - obviously I can't say for definite if it would help you. We all respond so differently to medications. What I can tell you is that I was taking oral amitriptyline and oral Lyrica simultaneously and they are often prescribed in combination. I didn't have any terrible side effects although I do feel much more alert since I changed to duloxetine. I'd say it's worth trying Lyrica. If you don't find any benefit then it's one option you can cross off the list of possibilities. If it helps and side effects are minimal then you'll be glad you tried it Smile

PainBlogger

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Re: Another one suffering

Post  Ldc on Fri Aug 19, 2016 2:40 pm

Thanks Smile It made me smile. I do love languages and I am a translator.

I think I will definitely ask my doctor. He is doing great and since we have a close relationship since I was a child I really trust him. By know, the constant burning is vanished most of the time and I am still like super sensitive (that means, after wiping or by touching it it hurts and burns). At least I am far better than a month ago. The thing is that what worries me the most is the hypersensibility mostly on two tiny spots at both sides of my vestibule and I am just freaking out all the time because I want to get better. Then I remember the key word, patience. Sorry I am beating around the bush, haha.

I hope time and all I am doing right now will help. I am always terrified thinking about not being able to intimate again with my beloved bf. But today I am really positive and I think it will be okay. Thanks for your answer and your personal opinion Smile Smile

Ldc

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Re: Another one suffering

Post  lindsey_taylor on Sun Aug 21, 2016 8:00 pm

Hello and welcome to this forum! Your English is fantastic! I'm so sorry for the fact that you are suffering from this, but so glad that you are making progress in improving! Please continue to let us know how things are going for you!

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Re: Another one suffering

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