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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Another one suffering

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Another one suffering

Post  Ldc on Thu Aug 18, 2016 6:51 pm

Hi, I was a bit reluctant about registering and posting here.. But this forum has helped me a lot so far. I read it almost everyday since I realized my problems down there weren't caused by an infection.

Well, I think I can skip the emotional journey, as all of you know what it is like. I am 24 years old, apparently healthy, no UTIs in the past and a couple of yeast infections, but many years ago. But like a couple of months ago this mess started. I am not sure why, I think there are many culprits. This year I was having more stress than usual because of university and my job. Suddenly, after my period (February) I felt a bit discomfort down there and I went to the doctor, who told me that I probably had yeast and prescribed me with clotrimazol. Well, I was not sure, because the only sympton I had was my inflammated vagina. No discharge at all! It was cleared up but it happened to me every month after my period till May. I went every month to the doctor, and she told me it was normal due to the ph changes during our periods. But I started to worry and to be really annoyed, plus the stress I was having in May, which was way higher than before. The results? My inflammation did not go away and I started to have a burning sensantion and what it seemed to be an UTI. But after the medication (antibiotics, antifungals, among others) and some negative cultures I had no clue what was going on. So were the doctors, neither obgyns, urologists and a dermatologist.

After one month and a half waitung for my body to cure and to get back I started to freak out and to google my symptoms. Vulvodynia came across. By that moment I was starting to feel my muscles (including my anus area) really really tight. I couldn't go to the toilet and I swear I never ever had problems. And I asked my boyfriend to help me, since he is working as a PT in a hospital. He pretty unterstand what is going on and we are fighting together, hopefully.

Well, after going to four different doctors with no relief (appart from a mild improvement thanks to corticoids and zinc sulfate, which was suggested by a dermatologist who saw the redness and irritation and a couple of 'eczemas' according to her), my mom thought of a friend of our family who is working as a doctor. He is specialized in muscular and nerve related traumas and he was the First one understanding how I was suffering and what could be going on (since apparently I had no infections). After an appointment he examined me and found out that probably, due to the inflammatory process (triggered by tampons? I still don't know but I am suspicious), my area was hypersensitive and my nerves were all crazy sending wrong signals. And, of course, he detected muscular problems, both inside and outside.

He has told me to use a compound cream of amitriptiline and baclofen and I have already started with a couple of PTs to solve the Problem and desensitize it.

And now I am at this point. I have the burning sensation both inside and outside, itchiness (only sometimes), redness and irritation in the vestibular area and ocassional "pricks" in my lady parts and my back part.

Well... I feel happy since I am already on track, today I had my second session with the PT and I think I was lucky enough to be treated as fast as I did, only two months before it all started.

But, as I newby here, I have a couple of questions to you Smile I have read like a thousand posts and I would like to ask for advice. I will tell my doctor, but I have checked here some sucessful stories related to the use of amitriptiline and Lyrica. Another doctor suggested me to take a minimun dose of Lyrica (75 mg) to help with the nerve pain. Do you think it would help me? I mean, taking topical ami and simultaneously Lyrica (orally).

Aaaand, regarding the soreness... I am not sure what to do. ATM no soaps, no nasty chemicals (but i want to look for "natural" laundry soap and gel), only water to clean the area, no jeans, cotton undies. It is still irritated but I am also a little bit worried about my "flora" or whatever is inside of me. The smell is a bit stronger and my discharge is also a little bit sticky, but far to be copious (I also feel a lot of dryness since all this started). I was wondering if it would be okay to continue on the probiotics, since I think that appart from the muscle/nerve problem, something else could be wrong inside as I took a lot of different medications in june (and maybe my good flora is still recovering or I don't know).

Thank u very much for reading me... I know it is really really long. And so sorry for the misspelling, I am not English speaker. Keep fighting, girls!

Ldc

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Re: Another one suffering

Post  PainBlogger on Fri Aug 19, 2016 1:41 pm

Ldc wrote:
But, as I newby here, I have a couple of questions to you Smile I have read like a thousand posts and I would like to ask for advice. I will tell my doctor, but I have checked here some sucessful stories related to the use of amitriptiline and Lyrica. Another doctor suggested me to take a minimun dose of Lyrica (75 mg) to help with the nerve pain. Do you think it would help me? I mean, taking topical ami and simultaneously Lyrica (orally).

Aaaand, regarding the soreness... I am not sure what to do. ATM no soaps, no nasty chemicals (but i want to look for "natural" laundry soap and gel), only water to clean the area, no jeans, cotton undies. It is still irritated but I am also a little bit worried about my "flora"  or whatever is inside of me. The smell is a bit stronger and my discharge is also a little bit sticky, but far to be copious (I also feel a lot of dryness since all this started). I was wondering if it would be okay to continue on the probiotics, since I think that appart from the muscle/nerve problem, something else could be wrong inside as I took a lot of different medications in june (and maybe my good flora is still recovering or I don't know).

Thank u very much for reading me... I know it is really really long. And so sorry for the misspelling, I am not English speaker. Keep fighting, girls!

Firstly, your English is great!

Secondly, topical amitriptyline and oral Lyrica - obviously I can't say for definite if it would help you. We all respond so differently to medications. What I can tell you is that I was taking oral amitriptyline and oral Lyrica simultaneously and they are often prescribed in combination. I didn't have any terrible side effects although I do feel much more alert since I changed to duloxetine. I'd say it's worth trying Lyrica. If you don't find any benefit then it's one option you can cross off the list of possibilities. If it helps and side effects are minimal then you'll be glad you tried it Smile

PainBlogger

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Re: Another one suffering

Post  Ldc on Fri Aug 19, 2016 2:40 pm

Thanks Smile It made me smile. I do love languages and I am a translator.

I think I will definitely ask my doctor. He is doing great and since we have a close relationship since I was a child I really trust him. By know, the constant burning is vanished most of the time and I am still like super sensitive (that means, after wiping or by touching it it hurts and burns). At least I am far better than a month ago. The thing is that what worries me the most is the hypersensibility mostly on two tiny spots at both sides of my vestibule and I am just freaking out all the time because I want to get better. Then I remember the key word, patience. Sorry I am beating around the bush, haha.

I hope time and all I am doing right now will help. I am always terrified thinking about not being able to intimate again with my beloved bf. But today I am really positive and I think it will be okay. Thanks for your answer and your personal opinion Smile Smile

Ldc

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Re: Another one suffering

Post  lindsey_taylor on Sun Aug 21, 2016 8:00 pm

Hello and welcome to this forum! Your English is fantastic! I'm so sorry for the fact that you are suffering from this, but so glad that you are making progress in improving! Please continue to let us know how things are going for you!

lindsey_taylor

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Re: Another one suffering

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