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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


My vulvodynia Story!

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My vulvodynia Story!

Post  StellaLuna on Sun Aug 21, 2016 9:21 pm

Hello to all!

I am new to this forum and I would like to share my story with you all! First of all I would like to say that it is the first time after 2,5 years that I have vulvodynia that I feel that there are people who can understand me. It is very important to me.

Two and a half years ago I took antibiotics and after 4 days I felt itcing in my vagina. I called my gynecologist who gave me suppositories and a cream for yeast infection, although everthing went well with the suppositoties the last day of my therapy, I begin to have terrible burning sensation from the cream. I called my doctor again who gave me another therapy for yeast infection because he thougt that there was an persistence infection. My tragedy started. I took the therapy an every day I was even worst. The tests I did was all clean but the syptoms was there. Ι had around 4 tests and the last one was finally positive at yeast infection. I took the therapy but after that there was no relief for me. I was feeling that every cream and suppository made me even worse. My doctor told me that propably I was allergic to drugs and I should stop everything and try only lactobacillus oraly and vaginally. Nothing happend. I changed doctor who gaved me another therapy for yeast infection and vaginal washes. Finally with all these creams, suppositories and vaginal washes, I destroyed my flora. In all these time (2-3 months) I had around 10 tests and all were clear. I changed doctor again who after 2-3 tests and visits diagnosed me with bacterial vaginosis (probably because of the bad flora). I took antibiotics but again with no relief.

Not to expatiate a year passed with visits at my gynecologist, test which some of them where positive at bacterial vaginosis but most of them negative and myself with not a single day of relief. Burning, soreness and itching were there every day. But something came to make things even worst: pain at urination and frequent urination. I had an homeopathy therapy, reflexology, I visited a dermatologist, a physiatrist and finally an psychiatrist. All with no result. I was in panic, my life have been destroying, I had no social life, I became hypochondriacal because I thought that all these bacteria are responsible for my situation and not to mention my sex life, which bacame a permanet anxiety for me.

However I didnt give up. I made urine tests (which were clear) and after 2 unsuccessful visits to urologists who they simply gave my a therapy of 6 months antibiotics, I finally found this holy man: an urologist who after a lot of tests diagnosed me with chronic pelvic pain and talked to me about interstitial cystitis and vulvodynia. My life is much better now, I take some pills for urination, amitriplyline, I use rephresh which I found very helpful, I wash only with baby shower gel, I wear cotton underweare, rarely trousers and I am able to have sex but not very often. I have my bad days and good days, try to live with that and live normal as far as I can.

I apologise for the big post and for my english. I am from Greece.

Love to all and courage xx

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Re: My vulvodynia Story!

Post  PainBlogger on Mon Aug 22, 2016 7:02 am

Good to hear that your symptoms have improved. (And your English is excellent.) The most important thing one can do for oneself with this condition is to not give up!

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