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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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My vulvodynia Story!

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My vulvodynia Story!

Post  StellaLuna on Sun Aug 21, 2016 9:21 pm

Hello to all!

I am new to this forum and I would like to share my story with you all! First of all I would like to say that it is the first time after 2,5 years that I have vulvodynia that I feel that there are people who can understand me. It is very important to me.

Two and a half years ago I took antibiotics and after 4 days I felt itcing in my vagina. I called my gynecologist who gave me suppositories and a cream for yeast infection, although everthing went well with the suppositoties the last day of my therapy, I begin to have terrible burning sensation from the cream. I called my doctor again who gave me another therapy for yeast infection because he thougt that there was an persistence infection. My tragedy started. I took the therapy an every day I was even worst. The tests I did was all clean but the syptoms was there. Ι had around 4 tests and the last one was finally positive at yeast infection. I took the therapy but after that there was no relief for me. I was feeling that every cream and suppository made me even worse. My doctor told me that propably I was allergic to drugs and I should stop everything and try only lactobacillus oraly and vaginally. Nothing happend. I changed doctor who gaved me another therapy for yeast infection and vaginal washes. Finally with all these creams, suppositories and vaginal washes, I destroyed my flora. In all these time (2-3 months) I had around 10 tests and all were clear. I changed doctor again who after 2-3 tests and visits diagnosed me with bacterial vaginosis (probably because of the bad flora). I took antibiotics but again with no relief.

Not to expatiate a year passed with visits at my gynecologist, test which some of them where positive at bacterial vaginosis but most of them negative and myself with not a single day of relief. Burning, soreness and itching were there every day. But something came to make things even worst: pain at urination and frequent urination. I had an homeopathy therapy, reflexology, I visited a dermatologist, a physiatrist and finally an psychiatrist. All with no result. I was in panic, my life have been destroying, I had no social life, I became hypochondriacal because I thought that all these bacteria are responsible for my situation and not to mention my sex life, which bacame a permanet anxiety for me.

However I didnt give up. I made urine tests (which were clear) and after 2 unsuccessful visits to urologists who they simply gave my a therapy of 6 months antibiotics, I finally found this holy man: an urologist who after a lot of tests diagnosed me with chronic pelvic pain and talked to me about interstitial cystitis and vulvodynia. My life is much better now, I take some pills for urination, amitriplyline, I use rephresh which I found very helpful, I wash only with baby shower gel, I wear cotton underweare, rarely trousers and I am able to have sex but not very often. I have my bad days and good days, try to live with that and live normal as far as I can.

I apologise for the big post and for my english. I am from Greece.

Love to all and courage xx

StellaLuna
StellaLuna

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Re: My vulvodynia Story!

Post  PainBlogger on Mon Aug 22, 2016 7:02 am

Good to hear that your symptoms have improved. (And your English is excellent.) The most important thing one can do for oneself with this condition is to not give up!

PainBlogger

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