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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


My vulvodynia Story!

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My vulvodynia Story!

Post  StellaLuna on Sun Aug 21, 2016 9:21 pm

Hello to all!

I am new to this forum and I would like to share my story with you all! First of all I would like to say that it is the first time after 2,5 years that I have vulvodynia that I feel that there are people who can understand me. It is very important to me.

Two and a half years ago I took antibiotics and after 4 days I felt itcing in my vagina. I called my gynecologist who gave me suppositories and a cream for yeast infection, although everthing went well with the suppositoties the last day of my therapy, I begin to have terrible burning sensation from the cream. I called my doctor again who gave me another therapy for yeast infection because he thougt that there was an persistence infection. My tragedy started. I took the therapy an every day I was even worst. The tests I did was all clean but the syptoms was there. Ι had around 4 tests and the last one was finally positive at yeast infection. I took the therapy but after that there was no relief for me. I was feeling that every cream and suppository made me even worse. My doctor told me that propably I was allergic to drugs and I should stop everything and try only lactobacillus oraly and vaginally. Nothing happend. I changed doctor who gaved me another therapy for yeast infection and vaginal washes. Finally with all these creams, suppositories and vaginal washes, I destroyed my flora. In all these time (2-3 months) I had around 10 tests and all were clear. I changed doctor again who after 2-3 tests and visits diagnosed me with bacterial vaginosis (probably because of the bad flora). I took antibiotics but again with no relief.

Not to expatiate a year passed with visits at my gynecologist, test which some of them where positive at bacterial vaginosis but most of them negative and myself with not a single day of relief. Burning, soreness and itching were there every day. But something came to make things even worst: pain at urination and frequent urination. I had an homeopathy therapy, reflexology, I visited a dermatologist, a physiatrist and finally an psychiatrist. All with no result. I was in panic, my life have been destroying, I had no social life, I became hypochondriacal because I thought that all these bacteria are responsible for my situation and not to mention my sex life, which bacame a permanet anxiety for me.

However I didnt give up. I made urine tests (which were clear) and after 2 unsuccessful visits to urologists who they simply gave my a therapy of 6 months antibiotics, I finally found this holy man: an urologist who after a lot of tests diagnosed me with chronic pelvic pain and talked to me about interstitial cystitis and vulvodynia. My life is much better now, I take some pills for urination, amitriplyline, I use rephresh which I found very helpful, I wash only with baby shower gel, I wear cotton underweare, rarely trousers and I am able to have sex but not very often. I have my bad days and good days, try to live with that and live normal as far as I can.

I apologise for the big post and for my english. I am from Greece.

Love to all and courage xx

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StellaLuna

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Re: My vulvodynia Story!

Post  PainBlogger on Mon Aug 22, 2016 7:02 am

Good to hear that your symptoms have improved. (And your English is excellent.) The most important thing one can do for oneself with this condition is to not give up!

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