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Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


My vulvodynia Story!

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My vulvodynia Story!

Post  StellaLuna on Sun Aug 21, 2016 9:21 pm

Hello to all!

I am new to this forum and I would like to share my story with you all! First of all I would like to say that it is the first time after 2,5 years that I have vulvodynia that I feel that there are people who can understand me. It is very important to me.

Two and a half years ago I took antibiotics and after 4 days I felt itcing in my vagina. I called my gynecologist who gave me suppositories and a cream for yeast infection, although everthing went well with the suppositoties the last day of my therapy, I begin to have terrible burning sensation from the cream. I called my doctor again who gave me another therapy for yeast infection because he thougt that there was an persistence infection. My tragedy started. I took the therapy an every day I was even worst. The tests I did was all clean but the syptoms was there. Ι had around 4 tests and the last one was finally positive at yeast infection. I took the therapy but after that there was no relief for me. I was feeling that every cream and suppository made me even worse. My doctor told me that propably I was allergic to drugs and I should stop everything and try only lactobacillus oraly and vaginally. Nothing happend. I changed doctor who gaved me another therapy for yeast infection and vaginal washes. Finally with all these creams, suppositories and vaginal washes, I destroyed my flora. In all these time (2-3 months) I had around 10 tests and all were clear. I changed doctor again who after 2-3 tests and visits diagnosed me with bacterial vaginosis (probably because of the bad flora). I took antibiotics but again with no relief.

Not to expatiate a year passed with visits at my gynecologist, test which some of them where positive at bacterial vaginosis but most of them negative and myself with not a single day of relief. Burning, soreness and itching were there every day. But something came to make things even worst: pain at urination and frequent urination. I had an homeopathy therapy, reflexology, I visited a dermatologist, a physiatrist and finally an psychiatrist. All with no result. I was in panic, my life have been destroying, I had no social life, I became hypochondriacal because I thought that all these bacteria are responsible for my situation and not to mention my sex life, which bacame a permanet anxiety for me.

However I didnt give up. I made urine tests (which were clear) and after 2 unsuccessful visits to urologists who they simply gave my a therapy of 6 months antibiotics, I finally found this holy man: an urologist who after a lot of tests diagnosed me with chronic pelvic pain and talked to me about interstitial cystitis and vulvodynia. My life is much better now, I take some pills for urination, amitriplyline, I use rephresh which I found very helpful, I wash only with baby shower gel, I wear cotton underweare, rarely trousers and I am able to have sex but not very often. I have my bad days and good days, try to live with that and live normal as far as I can.

I apologise for the big post and for my english. I am from Greece.

Love to all and courage xx

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Re: My vulvodynia Story!

Post  PainBlogger on Mon Aug 22, 2016 7:02 am

Good to hear that your symptoms have improved. (And your English is excellent.) The most important thing one can do for oneself with this condition is to not give up!

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