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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


My vulvodynia Story!

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My vulvodynia Story!

Post  StellaLuna on Sun Aug 21, 2016 9:21 pm

Hello to all!

I am new to this forum and I would like to share my story with you all! First of all I would like to say that it is the first time after 2,5 years that I have vulvodynia that I feel that there are people who can understand me. It is very important to me.

Two and a half years ago I took antibiotics and after 4 days I felt itcing in my vagina. I called my gynecologist who gave me suppositories and a cream for yeast infection, although everthing went well with the suppositoties the last day of my therapy, I begin to have terrible burning sensation from the cream. I called my doctor again who gave me another therapy for yeast infection because he thougt that there was an persistence infection. My tragedy started. I took the therapy an every day I was even worst. The tests I did was all clean but the syptoms was there. Ι had around 4 tests and the last one was finally positive at yeast infection. I took the therapy but after that there was no relief for me. I was feeling that every cream and suppository made me even worse. My doctor told me that propably I was allergic to drugs and I should stop everything and try only lactobacillus oraly and vaginally. Nothing happend. I changed doctor who gaved me another therapy for yeast infection and vaginal washes. Finally with all these creams, suppositories and vaginal washes, I destroyed my flora. In all these time (2-3 months) I had around 10 tests and all were clear. I changed doctor again who after 2-3 tests and visits diagnosed me with bacterial vaginosis (probably because of the bad flora). I took antibiotics but again with no relief.

Not to expatiate a year passed with visits at my gynecologist, test which some of them where positive at bacterial vaginosis but most of them negative and myself with not a single day of relief. Burning, soreness and itching were there every day. But something came to make things even worst: pain at urination and frequent urination. I had an homeopathy therapy, reflexology, I visited a dermatologist, a physiatrist and finally an psychiatrist. All with no result. I was in panic, my life have been destroying, I had no social life, I became hypochondriacal because I thought that all these bacteria are responsible for my situation and not to mention my sex life, which bacame a permanet anxiety for me.

However I didnt give up. I made urine tests (which were clear) and after 2 unsuccessful visits to urologists who they simply gave my a therapy of 6 months antibiotics, I finally found this holy man: an urologist who after a lot of tests diagnosed me with chronic pelvic pain and talked to me about interstitial cystitis and vulvodynia. My life is much better now, I take some pills for urination, amitriplyline, I use rephresh which I found very helpful, I wash only with baby shower gel, I wear cotton underweare, rarely trousers and I am able to have sex but not very often. I have my bad days and good days, try to live with that and live normal as far as I can.

I apologise for the big post and for my english. I am from Greece.

Love to all and courage xx

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StellaLuna

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Re: My vulvodynia Story!

Post  PainBlogger on Mon Aug 22, 2016 7:02 am

Good to hear that your symptoms have improved. (And your English is excellent.) The most important thing one can do for oneself with this condition is to not give up!

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