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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Helping My Partner Cope

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Helping My Partner Cope

Post  Huffmanl795 on Mon Aug 22, 2016 11:20 am

I have had vuvlodynia for five years and went into remission with it for two. Unfortunately three months in to dating a guy I fell in love with, my symptoms came back and I now have pudendal neuralgia. Is there any tips or advice on helping him cope through this? He is always there for me and supports me but it is taking a toll on him. I can't go out and do things like I use to, our love life suffers, and he feels guilty for feeling disappointed. How can I help him cope and not feel guilty, at fault, or alone. He has tried to find ways to cope but to no avail. I tell him all the time that it's ok to feel upset about it and sad. That I don't hold me against it. It affects him just as much as me. I just want to help him so our relationship can thrive. Any ideas?
Thanks!!

Huffmanl795

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Re: Helping My Partner Cope

Post  PainBlogger on Mon Aug 22, 2016 2:55 pm

Good communication is really important. If you can both be 100% open with each other and talk through worries, frustrations etc then that's a form of intimacy in itself. Not the most fun kind, obviously, but it does help to strengthen a relationship.

Finding things that you can still do together - if you don't feel well enough to go out then think of some things you can do to spend quality time together at home. Or is there a way you can make going out and about more manageable - like getting a good cushion if sitting is an issue or making other adaptations.

If you're researching possible treatment options that you've not yet tried then include him, show him articles you read etc.

When it comes to physical intimacy, it can be easy to cut it out completely so as not to raise expectations, but I think it's important to continue to share physical affection by any means that does not cause pain. By making sure he knows exactly what you can and can't do right now before getting into that situation you can remove any pressure to 'go that bit further' when caught up in the moment.

This condition, by its very nature, does take more of a toll on romantic partners than some other chronic conditions. Which is not to say that, for example, severe back pain or a heart condition cannot cause equal disruption to one's love life and socialising opportunities, but at least other conditions are easier to talk about with friends and family.

Good luck Smile

PainBlogger

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