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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Helping My Partner Cope

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Helping My Partner Cope

Post  Huffmanl795 on Mon Aug 22, 2016 11:20 am

I have had vuvlodynia for five years and went into remission with it for two. Unfortunately three months in to dating a guy I fell in love with, my symptoms came back and I now have pudendal neuralgia. Is there any tips or advice on helping him cope through this? He is always there for me and supports me but it is taking a toll on him. I can't go out and do things like I use to, our love life suffers, and he feels guilty for feeling disappointed. How can I help him cope and not feel guilty, at fault, or alone. He has tried to find ways to cope but to no avail. I tell him all the time that it's ok to feel upset about it and sad. That I don't hold me against it. It affects him just as much as me. I just want to help him so our relationship can thrive. Any ideas?
Thanks!!

Huffmanl795

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Re: Helping My Partner Cope

Post  PainBlogger on Mon Aug 22, 2016 2:55 pm

Good communication is really important. If you can both be 100% open with each other and talk through worries, frustrations etc then that's a form of intimacy in itself. Not the most fun kind, obviously, but it does help to strengthen a relationship.

Finding things that you can still do together - if you don't feel well enough to go out then think of some things you can do to spend quality time together at home. Or is there a way you can make going out and about more manageable - like getting a good cushion if sitting is an issue or making other adaptations.

If you're researching possible treatment options that you've not yet tried then include him, show him articles you read etc.

When it comes to physical intimacy, it can be easy to cut it out completely so as not to raise expectations, but I think it's important to continue to share physical affection by any means that does not cause pain. By making sure he knows exactly what you can and can't do right now before getting into that situation you can remove any pressure to 'go that bit further' when caught up in the moment.

This condition, by its very nature, does take more of a toll on romantic partners than some other chronic conditions. Which is not to say that, for example, severe back pain or a heart condition cannot cause equal disruption to one's love life and socialising opportunities, but at least other conditions are easier to talk about with friends and family.

Good luck Smile

PainBlogger

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