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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Fri Sep 02, 2016 3:48 am

Thank you all for talking with me every time I get an email notification saying someone has said something on here it gives me hope and comfort.

Emilita: Its hard to tell where the pain is coming from sometimes because last night it felt like the area right outside my vagina as well as my butt just a really bad burn. Today its in my clitoris and what I feel is my urethra. My symptoms seem to vary and hurt the least when I wake up in the morning. I did sign up for state insurance and I call almost everyday to see if its approved Smile

I think the hardest part about all this is trying not to break down all the time. I almost feel like I need learn to be a complete different person and I'm having a hard time with this. I lost my job so I've become very depressed I can't really leave my house because of the pain. My relationship is also suffering a great deal and I don't have a lot of family support so that is hard. That's why I've started reaching out to places like these its nice to be able to talk to other woman that are going threw or have been threw the same thing. I'm so surprised when this all started happening I had never heard of this before. It makes me angry actually that doctors/people aren't more knowledgeable of it. It also makes me angry that doctors proscribe you things without telling you how sever the side effects. My heart goes out to each and everyone of you strong women because at this point I don't know how you do it.

Coconut yes I have tried the capsules and they do help but I didn't want use them because I would rather go more natural and you just raw coconut oil so Ill be giving that try Smile I hope to find a good doctor in my area that excepts my insurance soon. Its hard to find I've asked my doctor and Gyno now and they both say that they're not sure where to go from here. Not that would trust them anyway because they are the ones that proscribed me all this garbage without telling me what it could do. I did see a urologist as well but she didn't even look at me and just proscribed me more pills which I'm very against now.

Anyway I'm a talker thanks all for you advice and support. Smile

dani1990

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Join date : 2016-08-31
Age : 28
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

Post  SinclairSassy on Fri Sep 09, 2016 3:07 pm

I agree. It's hard not to break down all of the time. I'll have a minute when I think I am normal, then the pain reminds me that I am not. I'm so tired of the pain and feeling broken, and crying. What did I do to deserve this? Why am I being punished? So sorry to be having a meltdown, I just needed to talk about how I am feeling.

SinclairSassy

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Location : Huntsville, AL

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Its okay to feel how you feel.

Post  dani1990 on Fri Sep 09, 2016 5:47 pm

I'm so sorry for your pain and I'm with you and here if you need to talk to someone. I feel this way almost 100 percent of the time. I have always been healthy and active and had the freedom to live life freely. I feel that has been taken away from me and I just can't seem to pull it together as much as I try. I stressed myself out so bad about all this my hair is failing out and I'm having odd things happen to the rest of my body. I've been the the doctor all the tests are normal and they say its just stress realated and I need to relax. I don't know how to relax when I can't even go out and live my life. I don't have anyone to really talk to about it that's why I joined this site in hopes maybe I could find some support or offer some to someone else as this is not only physically demanding but mentally exhausting. My e-mail is danifournier1990@gmail.com if you ever want to talk feel free Smile

dani1990

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