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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Fri Sep 02, 2016 3:48 am

Thank you all for talking with me every time I get an email notification saying someone has said something on here it gives me hope and comfort.

Emilita: Its hard to tell where the pain is coming from sometimes because last night it felt like the area right outside my vagina as well as my butt just a really bad burn. Today its in my clitoris and what I feel is my urethra. My symptoms seem to vary and hurt the least when I wake up in the morning. I did sign up for state insurance and I call almost everyday to see if its approved Smile

I think the hardest part about all this is trying not to break down all the time. I almost feel like I need learn to be a complete different person and I'm having a hard time with this. I lost my job so I've become very depressed I can't really leave my house because of the pain. My relationship is also suffering a great deal and I don't have a lot of family support so that is hard. That's why I've started reaching out to places like these its nice to be able to talk to other woman that are going threw or have been threw the same thing. I'm so surprised when this all started happening I had never heard of this before. It makes me angry actually that doctors/people aren't more knowledgeable of it. It also makes me angry that doctors proscribe you things without telling you how sever the side effects. My heart goes out to each and everyone of you strong women because at this point I don't know how you do it.

Coconut yes I have tried the capsules and they do help but I didn't want use them because I would rather go more natural and you just raw coconut oil so Ill be giving that try Smile I hope to find a good doctor in my area that excepts my insurance soon. Its hard to find I've asked my doctor and Gyno now and they both say that they're not sure where to go from here. Not that would trust them anyway because they are the ones that proscribed me all this garbage without telling me what it could do. I did see a urologist as well but she didn't even look at me and just proscribed me more pills which I'm very against now.

Anyway I'm a talker thanks all for you advice and support. Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 26
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

Post  SinclairSassy on Fri Sep 09, 2016 3:07 pm

I agree. It's hard not to break down all of the time. I'll have a minute when I think I am normal, then the pain reminds me that I am not. I'm so tired of the pain and feeling broken, and crying. What did I do to deserve this? Why am I being punished? So sorry to be having a meltdown, I just needed to talk about how I am feeling.

SinclairSassy

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Location : Huntsville, AL

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Its okay to feel how you feel.

Post  dani1990 on Fri Sep 09, 2016 5:47 pm

I'm so sorry for your pain and I'm with you and here if you need to talk to someone. I feel this way almost 100 percent of the time. I have always been healthy and active and had the freedom to live life freely. I feel that has been taken away from me and I just can't seem to pull it together as much as I try. I stressed myself out so bad about all this my hair is failing out and I'm having odd things happen to the rest of my body. I've been the the doctor all the tests are normal and they say its just stress realated and I need to relax. I don't know how to relax when I can't even go out and live my life. I don't have anyone to really talk to about it that's why I joined this site in hopes maybe I could find some support or offer some to someone else as this is not only physically demanding but mentally exhausting. My e-mail is danifournier1990@gmail.com if you ever want to talk feel free Smile

dani1990

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Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

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