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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Fri Sep 02, 2016 3:48 am

Thank you all for talking with me every time I get an email notification saying someone has said something on here it gives me hope and comfort.

Emilita: Its hard to tell where the pain is coming from sometimes because last night it felt like the area right outside my vagina as well as my butt just a really bad burn. Today its in my clitoris and what I feel is my urethra. My symptoms seem to vary and hurt the least when I wake up in the morning. I did sign up for state insurance and I call almost everyday to see if its approved Smile

I think the hardest part about all this is trying not to break down all the time. I almost feel like I need learn to be a complete different person and I'm having a hard time with this. I lost my job so I've become very depressed I can't really leave my house because of the pain. My relationship is also suffering a great deal and I don't have a lot of family support so that is hard. That's why I've started reaching out to places like these its nice to be able to talk to other woman that are going threw or have been threw the same thing. I'm so surprised when this all started happening I had never heard of this before. It makes me angry actually that doctors/people aren't more knowledgeable of it. It also makes me angry that doctors proscribe you things without telling you how sever the side effects. My heart goes out to each and everyone of you strong women because at this point I don't know how you do it.

Coconut yes I have tried the capsules and they do help but I didn't want use them because I would rather go more natural and you just raw coconut oil so Ill be giving that try Smile I hope to find a good doctor in my area that excepts my insurance soon. Its hard to find I've asked my doctor and Gyno now and they both say that they're not sure where to go from here. Not that would trust them anyway because they are the ones that proscribed me all this garbage without telling me what it could do. I did see a urologist as well but she didn't even look at me and just proscribed me more pills which I'm very against now.

Anyway I'm a talker thanks all for you advice and support. Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 27
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

Post  SinclairSassy on Fri Sep 09, 2016 3:07 pm

I agree. It's hard not to break down all of the time. I'll have a minute when I think I am normal, then the pain reminds me that I am not. I'm so tired of the pain and feeling broken, and crying. What did I do to deserve this? Why am I being punished? So sorry to be having a meltdown, I just needed to talk about how I am feeling.

SinclairSassy

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Its okay to feel how you feel.

Post  dani1990 on Fri Sep 09, 2016 5:47 pm

I'm so sorry for your pain and I'm with you and here if you need to talk to someone. I feel this way almost 100 percent of the time. I have always been healthy and active and had the freedom to live life freely. I feel that has been taken away from me and I just can't seem to pull it together as much as I try. I stressed myself out so bad about all this my hair is failing out and I'm having odd things happen to the rest of my body. I've been the the doctor all the tests are normal and they say its just stress realated and I need to relax. I don't know how to relax when I can't even go out and live my life. I don't have anyone to really talk to about it that's why I joined this site in hopes maybe I could find some support or offer some to someone else as this is not only physically demanding but mentally exhausting. My e-mail is danifournier1990@gmail.com if you ever want to talk feel free Smile

dani1990

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Location : Portland Oregon

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