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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Fri Sep 02, 2016 3:48 am

Thank you all for talking with me every time I get an email notification saying someone has said something on here it gives me hope and comfort.

Emilita: Its hard to tell where the pain is coming from sometimes because last night it felt like the area right outside my vagina as well as my butt just a really bad burn. Today its in my clitoris and what I feel is my urethra. My symptoms seem to vary and hurt the least when I wake up in the morning. I did sign up for state insurance and I call almost everyday to see if its approved Smile

I think the hardest part about all this is trying not to break down all the time. I almost feel like I need learn to be a complete different person and I'm having a hard time with this. I lost my job so I've become very depressed I can't really leave my house because of the pain. My relationship is also suffering a great deal and I don't have a lot of family support so that is hard. That's why I've started reaching out to places like these its nice to be able to talk to other woman that are going threw or have been threw the same thing. I'm so surprised when this all started happening I had never heard of this before. It makes me angry actually that doctors/people aren't more knowledgeable of it. It also makes me angry that doctors proscribe you things without telling you how sever the side effects. My heart goes out to each and everyone of you strong women because at this point I don't know how you do it.

Coconut yes I have tried the capsules and they do help but I didn't want use them because I would rather go more natural and you just raw coconut oil so Ill be giving that try Smile I hope to find a good doctor in my area that excepts my insurance soon. Its hard to find I've asked my doctor and Gyno now and they both say that they're not sure where to go from here. Not that would trust them anyway because they are the ones that proscribed me all this garbage without telling me what it could do. I did see a urologist as well but she didn't even look at me and just proscribed me more pills which I'm very against now.

Anyway I'm a talker thanks all for you advice and support. Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 28
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

Post  SinclairSassy on Fri Sep 09, 2016 3:07 pm

I agree. It's hard not to break down all of the time. I'll have a minute when I think I am normal, then the pain reminds me that I am not. I'm so tired of the pain and feeling broken, and crying. What did I do to deserve this? Why am I being punished? So sorry to be having a meltdown, I just needed to talk about how I am feeling.

SinclairSassy

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Join date : 2016-08-02
Location : Huntsville, AL

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Its okay to feel how you feel.

Post  dani1990 on Fri Sep 09, 2016 5:47 pm

I'm so sorry for your pain and I'm with you and here if you need to talk to someone. I feel this way almost 100 percent of the time. I have always been healthy and active and had the freedom to live life freely. I feel that has been taken away from me and I just can't seem to pull it together as much as I try. I stressed myself out so bad about all this my hair is failing out and I'm having odd things happen to the rest of my body. I've been the the doctor all the tests are normal and they say its just stress realated and I need to relax. I don't know how to relax when I can't even go out and live my life. I don't have anyone to really talk to about it that's why I joined this site in hopes maybe I could find some support or offer some to someone else as this is not only physically demanding but mentally exhausting. My e-mail is danifournier1990@gmail.com if you ever want to talk feel free Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 28
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

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