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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Fri Sep 02, 2016 3:48 am

Thank you all for talking with me every time I get an email notification saying someone has said something on here it gives me hope and comfort.

Emilita: Its hard to tell where the pain is coming from sometimes because last night it felt like the area right outside my vagina as well as my butt just a really bad burn. Today its in my clitoris and what I feel is my urethra. My symptoms seem to vary and hurt the least when I wake up in the morning. I did sign up for state insurance and I call almost everyday to see if its approved Smile

I think the hardest part about all this is trying not to break down all the time. I almost feel like I need learn to be a complete different person and I'm having a hard time with this. I lost my job so I've become very depressed I can't really leave my house because of the pain. My relationship is also suffering a great deal and I don't have a lot of family support so that is hard. That's why I've started reaching out to places like these its nice to be able to talk to other woman that are going threw or have been threw the same thing. I'm so surprised when this all started happening I had never heard of this before. It makes me angry actually that doctors/people aren't more knowledgeable of it. It also makes me angry that doctors proscribe you things without telling you how sever the side effects. My heart goes out to each and everyone of you strong women because at this point I don't know how you do it.

Coconut yes I have tried the capsules and they do help but I didn't want use them because I would rather go more natural and you just raw coconut oil so Ill be giving that try Smile I hope to find a good doctor in my area that excepts my insurance soon. Its hard to find I've asked my doctor and Gyno now and they both say that they're not sure where to go from here. Not that would trust them anyway because they are the ones that proscribed me all this garbage without telling me what it could do. I did see a urologist as well but she didn't even look at me and just proscribed me more pills which I'm very against now.

Anyway I'm a talker thanks all for you advice and support. Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 27
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

Post  SinclairSassy on Fri Sep 09, 2016 3:07 pm

I agree. It's hard not to break down all of the time. I'll have a minute when I think I am normal, then the pain reminds me that I am not. I'm so tired of the pain and feeling broken, and crying. What did I do to deserve this? Why am I being punished? So sorry to be having a meltdown, I just needed to talk about how I am feeling.

SinclairSassy

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Join date : 2016-08-02
Location : Huntsville, AL

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Its okay to feel how you feel.

Post  dani1990 on Fri Sep 09, 2016 5:47 pm

I'm so sorry for your pain and I'm with you and here if you need to talk to someone. I feel this way almost 100 percent of the time. I have always been healthy and active and had the freedom to live life freely. I feel that has been taken away from me and I just can't seem to pull it together as much as I try. I stressed myself out so bad about all this my hair is failing out and I'm having odd things happen to the rest of my body. I've been the the doctor all the tests are normal and they say its just stress realated and I need to relax. I don't know how to relax when I can't even go out and live my life. I don't have anyone to really talk to about it that's why I joined this site in hopes maybe I could find some support or offer some to someone else as this is not only physically demanding but mentally exhausting. My e-mail is danifournier1990@gmail.com if you ever want to talk feel free Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 27
Location : Portland Oregon

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Re: I will live threw this. Its my new motto :)

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