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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Sat Sep 03, 2016 7:52 pm

Thank you all for your replies. Its been hard for me to find hope in this and I don't have may people to talk to about it. I get so excited to read your stories and replies whenever I get an email saying someone had responded.

Emalita: The pain varies and sometimes it can be hard to pin point when I actually use a mirror and touch the areas I feel are hurting it doesn't hurt or its not unbearable pain at least.
Sometimes I have pain with urination which I can't tell if its inside my urethra that's in pain or the top of my clitoris spasming so its making it painful. The urine toching my labia skin does sting yes. I can't wear underwear at all or pants. I keep trying to do little things like go grocery shopping simple things and I'm in so much pain I don't know how to work threw it. The only time I feel the pain is manageable is when I'm laying down. its awful I used to be such an active person and I like being home with my animals but at this point my self worth and self esteem is being gratley affected.


I called yesterday and found out I should be approved for health insurance by the end of the month! I was so excited about that. They also said that I can get health care and pay up front fees and they would remburce me and pay the rest when I'm approved.

So yesterday I found a Vulva specialist in my area I did a lot of research and I think she will be able to help. I'm with you guy on the all natural stuff. I will no longer be using any antibiotics or creams down there as I know this will only hurt me worse.

I don't know if others feel this way but it makes me angry that doctord aren't more edgicated about this. Espcailly Gynos! Also why aren't woman made more aware when they are given these medications that they can be harmful. I will forever be skeptical of doctors and health care from now on. Which I guess is best.

Also I do plan to try coco butter and see if this helps which brand is best? Ice helps a little Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 26
Location : Portland Oregon

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