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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


I will live threw this. Its my new motto :)

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I will live threw this. Its my new motto :)

Post  dani1990 on Sat Sep 03, 2016 7:52 pm

Thank you all for your replies. Its been hard for me to find hope in this and I don't have may people to talk to about it. I get so excited to read your stories and replies whenever I get an email saying someone had responded.

Emalita: The pain varies and sometimes it can be hard to pin point when I actually use a mirror and touch the areas I feel are hurting it doesn't hurt or its not unbearable pain at least.
Sometimes I have pain with urination which I can't tell if its inside my urethra that's in pain or the top of my clitoris spasming so its making it painful. The urine toching my labia skin does sting yes. I can't wear underwear at all or pants. I keep trying to do little things like go grocery shopping simple things and I'm in so much pain I don't know how to work threw it. The only time I feel the pain is manageable is when I'm laying down. its awful I used to be such an active person and I like being home with my animals but at this point my self worth and self esteem is being gratley affected.


I called yesterday and found out I should be approved for health insurance by the end of the month! I was so excited about that. They also said that I can get health care and pay up front fees and they would remburce me and pay the rest when I'm approved.

So yesterday I found a Vulva specialist in my area I did a lot of research and I think she will be able to help. I'm with you guy on the all natural stuff. I will no longer be using any antibiotics or creams down there as I know this will only hurt me worse.

I don't know if others feel this way but it makes me angry that doctord aren't more edgicated about this. Espcailly Gynos! Also why aren't woman made more aware when they are given these medications that they can be harmful. I will forever be skeptical of doctors and health care from now on. Which I guess is best.

Also I do plan to try coco butter and see if this helps which brand is best? Ice helps a little Smile

dani1990

Posts : 5
Join date : 2016-08-31
Age : 28
Location : Portland Oregon

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